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The Alliance

THE ASSOCIATION

OUR MISSION

Communicate internationally

The first role of the alliance is to bring together voices from around the world to hopefully fight amyloidosis.

Diagnosis and treatment

There is an urgent need to find a faster way to diagnose amyloidosis so that it can be treated. Together we can fight amyloidosis.

Advancing research

To fight amyloidosis and to address the problem of delayed diagnosis and information about the disease, we need to support research.

Support each other

Together we are stronger and can fight amyloidosis. To do this, we need to unite and above all stick together.

The objectives of the Alliance allow us, on a daily basis, not to forget the reason for our fight: the fight against amyloidosis. Let us hope that together we can achieve these goals.

THE ASSOCIATION

Our goals

The 5 “pillars” which Amyloidosis Alliance’s activities are based on: awareness & diagnosis, treatment, research, communication/information and advocacy.

AWARENESS & DIAGNOSIS 89%
TREATMENT 90%
RESEARCH 85%
COMMUNICATION/INFORMATION 80%
ADVOCACY 80%

THE ASSOCIATION

Our structure

The Alliance Board

Every day, these members fight amyloidosis.

david-gregory-amyloidosis-alliance

David Gregory

Board member

J.Christophe Fidalgo

President

agnes-farrugia-amyloidosis-alliance

Agnès Farrugia

Executive director

Catilena Bibiloni

Board member

Giovanni d'Alessio

Treasurer

Become a member

LIST OF SCIENTIFIC COMMITEE

Pr Monique Minnema

Amsterdam, Utrecht.
 Active member of the HOVON
Hematologist

Pr Thibaud DAMY

France, Paris.
 Head of the French Referral Center for Cardiac Amyloidosis
Professor in Cardiology

Pr Julian Gillmore

United Kingdom
Centre Head at UCL’s Centre for Amyloidosis
Research lead at the UK National Amyloidosis Centre.

Dr Laura Obici

Italy, San Matteo.
 Consultant at the Amyloid Research and Treatment Center
Specialist in Internal Medicine

Pr David Adams

France, Paris.
 Founder of national reference of Familial Amyloid Polyneuropathy
Head of Department of Neurology

Pr Sophie Georgin-Lavialle

France, Paris.
French national reference director for inflammatory amyloidosis

Dr Fabio Fernandez

Italy, San Matteo.
 Director of cardiomyopathies group Heart failure Institute FMUSP

Dr Pablo Garcia Pavia

Spain, Madrid.
 Director of the Inherited Cardiac Diseases and Heart Failure Unit Department of Cardiology

Dr Márcia Waddington-Cruz

Brazil, Rio de Janeiro.
 Responsible for the Brazilian referral centre for TTR-FAP

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