The Alliance
The team
The Amyloidosis Alliance is led by an elected Board, supported by a Scientific Committee and by working groups that contribute to the Alliance’s activities through collaboration and shared expertise.
Board members
Elected representatives from member organizations, the Board sets the strategic direction of the Alliance and is accountable to its members.
President
Giovanni d’Alessio
Secretary
Jean-Christophe Fidalgo
Treasurer
David Gregory
Board member
Catilena Bibiloni
Permanent staff
Executive team
The permanent team coordinates the Alliance’s day-to-day activities, supports the Board and implements the annual work plan.
Executive Director
Pascal Combes
Project manager
Emmanuel Jammes
Digital communication manager
Manon Dibatista
Operational structure
Working groups
Depending on the topic or project, volunteer representatives from member organizations come together to share experience, contribute expertise, support translations, and take part in specific Alliance initiatives.
Awareness
Coordinating World Amyloidosis Day and other awareness activities for patients, healthcare professionals, policymakers and the wider public.
Resources
Developing and maintaining multilingual patient information, educational resources and practical tools.
Member relations
Supporting member organizations, facilitating peer exchange and welcoming new organizations into the Alliance.
Events
Supporting collaboration and engagement through events that bring together patient organizations, healthcare professionals, researchers, and partners worldwide.