Legal notices

Publisher of the website

This website is published by the Amyloidosis Alliance, a non-profit association governed by the French law of 1 July 1901.

• Registered name: AMYLOIDOSIS ALLIANCE-THE VOICE OF PATIENTS
• Legal form: association declared under the French law of 1 July 1901 (INSEE category 9220)
• Registered office: 13 rue Raymond Losserand, 75014 Paris, France
• National register of associations (RNA) number: W133028249
• SIREN: 843 350 158
• SIRET (registered office): 843 350 158 00021
• Activity code (APE/NAF): 94.99Z, other organisations functioning by voluntary membership
• Email: contact@amyloidosisalliance.org

Publication director

Giovanni d’Alessio, President of the Amyloidosis Alliance, in their capacity as legal representative of the association.

Hosting

This website is hosted by Hostinger International Ltd. 61 Lordou Vironos Street, 6023 Larnaca, Chypre, +357 24030182

Intellectual property

Unless stated otherwise, the texts, illustrations, photographs, videos, graphic elements and logos published on this website are the property of the Amyloidosis Alliance or of its member organizations and partners, who have authorised their use.

Any reproduction, representation, adaptation or distribution, in whole or in part, requires prior written permission. Quoting a short extract is permitted provided the source and a link to this website are given. Requests for permission can be sent to contact@amyloidosisalliance.org.

The names and logos of the member organizations, partners and third-party institutions mentioned on this website remain the property of their respective owners.

Photo credits: unless stated otherwise, the photographs illustrating this website come from Unsplash and are used under the Unsplash License. They remain the property of their respective photographers.

Medical information

The information published on this website is general information about amyloidosis, intended for patients, their families, patient organizations and healthcare professionals. It does not constitute medical advice, a diagnosis or a treatment recommendation, and it does not replace a consultation with a qualified healthcare professional.

Anyone concerned about their health, or about the health of someone close to them, should speak to a doctor. In an emergency, contact the emergency services.

Personal data

The way personal data is collected and used on this website, including through the contact forms and the newsletter subscription form, is described in our privacy policy.

Under the General Data Protection Regulation, you have the right to access, rectify, erase and port your data, and to object to or restrict its processing. To exercise these rights, write to the Amyloidosis Alliance at the postal address above or to contact@amyloidosisalliance.org. You may also lodge a complaint with the French data protection authority, the CNIL.

Cookies and browser storage

This website sets no advertising cookie and no audience tracking cookie. Nothing you do here is used to build a profile or passed on to an advertising network.

Your browser stores two display preferences locally, on your device only: the text size you choose with the A- and A+ buttons, and the fact that the newsletter invitation has already been shown to you. This information never leaves your browser and is not readable by the Alliance. Clearing your browsing data removes it.

Videos are displayed as still images until you click on them: nothing is requested from YouTube, and no cookie is set by YouTube, before you decide to play a video.

Links to other websites

This website links to the websites of member organizations, partners, public institutions and clinical trial registries. These links are provided for information. The Amyloidosis Alliance has no control over the content of those websites and accepts no responsibility for it, nor for the way they handle personal data.

Accuracy and availability

The Amyloidosis Alliance takes care to publish accurate and up to date information, and corrects any error brought to its attention. Medical knowledge and the information published by third parties, in particular clinical trial registries, change over time, and no guarantee is given that the content of this website is complete or current at all times.

Access to the website may be interrupted for maintenance or for reasons beyond the control of the association.

Reporting content

If you consider that content published on this website infringes your rights, or if you spot an error, please write to contact@amyloidosisalliance.org. Your message will be examined and the content corrected or removed where appropriate.

Applicable law

These legal notices are governed by French law. In the absence of an amicable settlement, any dispute relating to this website falls within the jurisdiction of the French courts.

Last updated on 22 September 2026.