Protein Deposits Affecting the Eyes Can Be Common in hATTR Patients

Protein Deposits Affecting the Eyes Can Be Common in hATTR Patients

Protein Deposits Affecting the Eyes Can Be Common in hATTR Patients According to a Spanish study, people with hereditary transthyretin amyloidosis (hATTR) may develop eye problems over time. Indeed, researchers…

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A Tv program about Crispr Cas-9 in Sweden

A Tv program about Crispr Cas-9 in Sweden

This program is called “Fråga Doktorn” (Ask the Doctor) and is broadcast in Sweden.Each week there is always a special topic that is covered and this time it was about…

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Rare disease day

Rare disease day

Today is RARE DISEASE DAY!!! Amyloidosis is one of them and we are doing everything we can to support the event and this fight against rare diseases! Today, rare diseases…

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hATTRs impact caregiver health-related quality of life

hATTRs impact caregiver health-related quality of life

Caring for a person with hereditary Transthyretin amyloidosis (hATTR), has a considerable impact on caregivers’ health-related quality of life and productivity, a survey reported. Read this article from FAP new…

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4th Meeting of the Amino association in Spain

4th Meeting of the Amino association in Spain

15 February 2023
On-site: Puerta de Hierro University Hospital. Majadahonda, Madrid
Also online from the official website event.

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New FAP-causing Mutation Found in Elderly Man in Germany

New FAP-causing Mutation Found in Elderly Man in Germany

New FAP-causing Mutation Found in Elderly Man in Germany
“An elderly man in Germany was found to carry one copy of a new mutation in the TTR gene that caused both neurological and heart symptoms of familial amyloid polyneuropathy…

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2022: a year around Amyloidosis in Video

2022: a year around Amyloidosis in Video

A retrospective of 2022: a year around Amyloidosis in video. Find in this video the actions and projects of the Alliance realised in 2022.The Amyloidosis Alliance and its members wishes…

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Best wishes for the new year from the Amyloidosis Alliance

Best wishes for the new year from the Amyloidosis Alliance

All members of the Amyloidosis Alliance worldwide wish you all their best wishes for the new year 2023. Let us continue to fight the disease and raise awareness. May 2023…

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The Amyloidosis Alliance wishes you a happy holiday season

The Amyloidosis Alliance wishes you a happy holiday season

We wish you a wonderful holiday season. May they be filled with smiles and happy moments with your family.We will meet again in 2023 for even more actions around Amyloidosis.

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Amyloidoisis: access to care

Amyloidoisis: access to care

Access to care – Sara tells us about her country, Israel, where she finds that accessibility to care is increasing. Find out more about her story by watching the video.

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