Amyloidosis Progress

Amyloidosis Progress

For almost 150 years after its discovery, amyloidosis was considered incurable. Historically, the complexity of the disease delayed research. Why invest time and money in research on such a complex…

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Amyloidosis and physical activity

Amyloidosis and physical activity

Amyloidosis is a rare disease that occurs when abnormal proteins build up in tissues and organs throughout the body. This build-up can lead to a variety of health problems and…

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Cardiac amyloidosis is under-diagnosed

Cardiac amyloidosis is under-diagnosed

We have already mentioned it several times: amyloidosis is a rare disease that is not well known to everyone, even to doctors. The fact that it is so little known…

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The WHF forum in Switzerland

The WHF forum in Switzerland

The World Heart Federation (WHF) convened a special forum May 17-18, 2023 in Geneva, Switzerland, entitled “SHINING A LIGHT ON RARE CARDIOVASCULAR DISEASES” in advance of the 2023 World Heart…

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Clinical trial accessible to everybody

Clinical trial accessible to everybody

Do you want to learn MORE about CLINICAL TRIAL? Over the past year Alnylam’s Patient Advocacy and Medical Writing teams have been collaborating to produce plain language summaries (PLS) of…

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