FaMY Norbotten - Sweden
The Association Française contre l’Amylose (AFCA) - France
The Associazione Italiana Amiloidosi Familiare Onlus (FAMY) – Italy
FAP-eV - Germany
UKATPA - ATTR Amyloidosis patient's association
ABPAR - Brazil
Canadian Amyloidosis Support Network - Canada
Amyloidosis Israel Org - Israel
Amyloidosis Support Groups - US
The Stichting Amyloïdose Nederland (SAN) – Netherlands
The ATTR Amyloidosis All Ireland
ABEA - Spain (Balearic Islands)
ASVEA - Spain
Leben mit Amyloidose - Austria
New Zealand Amyloidosis Patients association
FFAM - Mexico
Funcolehf - Colombia
Australian Amyloidosis Network
Hereditary amyloidose hwanwoohoe - Corea
This list is not exhaustive but represents only the most involved groups within the Alliance.
You are an association, or a patient association fighting against amyloidosis somewhere in the world. Come and join us and let’s fight together against the disease worldwide. By filling in the contact form below you will be quickly contacted by a member of the board of the alliance and will be able to become part of this alliance.
Patient organisations that have been created recently (less than 1 year ago) are invited to apply for full membership, but will qualify for a provisional status as “associate member”. After one year, and upon examination of their first annual report or other documents that provide proof of activities in compliance with the membership rules, their status can be revised by the Board of Directors for admittance to full membership.