This program is called “Fråga Doktorn” (Ask the Doctor) and is broadcast in Sweden.Each week there is always a special topic that is covered and this time it was about…
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08/03/2023
28/02/2023
Today is RARE DISEASE DAY!!! Amyloidosis is one of them and we are doing everything we can to support the event and this fight against rare diseases! Today, rare diseases…
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15/02/2023
Caring for a person with hereditary Transthyretin amyloidosis (hATTR), has a considerable impact on caregivers’ health-related quality of life and productivity, a survey reported. Read this article from FAP new…
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02/02/2023
15 February 2023
On-site: Puerta de Hierro University Hospital. Majadahonda, Madrid
Also online from the official website event.
26/01/2023
New FAP-causing Mutation Found in Elderly Man in Germany
“An elderly man in Germany was found to carry one copy of a new mutation in the TTR gene that caused both neurological and heart symptoms of familial amyloid polyneuropathy…
17/01/2023
A retrospective of 2022: a year around Amyloidosis in video. Find in this video the actions and projects of the Alliance realised in 2022.The Amyloidosis Alliance and its members wishes…
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21/12/2022
We wish you a wonderful holiday season. May they be filled with smiles and happy moments with your family.We will meet again in 2023 for even more actions around Amyloidosis.
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13/12/2022
Access to care – Sara tells us about her country, Israel, where she finds that accessibility to care is increasing. Find out more about her story by watching the video.
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01/12/2022
Amyloidosis and heredity Anne-Marie has a hereditary form of amyloidosis. She has warned her siblings to get tested as well. Find out more about her story by watching this video…
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24/11/2022
Amyloidosis testimonies from all around the world After this month of November, and the month of the second World Amyloidosis Day in October, we thought it would be interesting to…
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