Cardiac amyloidosis is under-diagnosed

Cardiac amyloidosis is under-diagnosed

We have already mentioned it several times: amyloidosis is a rare disease that is not well known to everyone, even to doctors. The fact that it is so little known…

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The WHF forum in Switzerland

The WHF forum in Switzerland

The World Heart Federation (WHF) convened a special forum May 17-18, 2023 in Geneva, Switzerland, entitled “SHINING A LIGHT ON RARE CARDIOVASCULAR DISEASES” in advance of the 2023 World Heart…

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Clinical trial accessible to everybody

Clinical trial accessible to everybody

Do you want to learn MORE about CLINICAL TRIAL? Over the past year Alnylam’s Patient Advocacy and Medical Writing teams have been collaborating to produce plain language summaries (PLS) of…

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A successful therapeutic trial for Amyloidosis

A successful therapeutic trial for Amyloidosis

A look back at a most successful therapeutic trial for Amyloidosis !
We are pleased to report that the trial is very promising and paves the way for a new therapy.

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What is ATTRv amyloidosis?

What is ATTRv amyloidosis?

Amyloidosis is a group of rare diseases characterised by the abnormal deposition of amyloid proteins (proteins that misfold or twist to form “amyloid fibrils”) in various organs and tissues of…

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The 4th European ATTR amyloidosis meeting

The 4th European ATTR amyloidosis meeting

The 4th European ATTR amyloidosis meeting for patients and physicians will be held on 2 and 3 November. To register, go online to the official event website: www.attramyloidosis2023.com It will…

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What is the status of amyloidosis research?

What is the status of amyloidosis research?

Amyloidosis is a recent disease, first described in 1838 by Rudolph Virchow, a German pathologist, who identified abnormal deposits in the tissue of deceased patients. Since then, much research has…

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Cardiac amyloidosis and transplantation

Cardiac amyloidosis and transplantation

End-stage cardiac amyloidosis is an often-fatal disease that affects the ability of the heart to function properly. In recent years, heart transplantation has emerged as a viable option for patients…

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First ever Canadian specific  ATTR patient summit

First ever Canadian specific ATTR patient summit

HAC/TAC is proud to present the first-ever Canadian-specific ATTR Patient Summit
An event where we will be bringing together patients, families, physicians, healthcare professionals and industry in a weekend of knowledge exchange, shared experiences, and networking.
This ATTR Patient Summit will take place at the Hyatt Regency Hotel in downtown Toronto.

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The Australian Amyloidosis Workshops: A Platform for Scientific Advancement

The Australian Amyloidosis Workshops: A Platform for Scientific Advancement

Amyloidosis is a group of complex, incurable diseases which are frequently misdiagnosed and under-recognised. To improve the diagnosis and management of patients with all types of amyloidosis, four multidisciplinary medical…

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