What is ATTRv amyloidosis?

What is ATTRv amyloidosis?

Amyloidosis is a group of rare diseases characterised by the abnormal deposition of amyloid proteins (proteins that misfold or twist to form “amyloid fibrils”) in various organs and tissues of…

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The 4th European ATTR amyloidosis meeting

The 4th European ATTR amyloidosis meeting

The 4th European ATTR amyloidosis meeting for patients and physicians will be held on 2 and 3 November. To register, go online to the official event website: www.attramyloidosis2023.com It will…

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What is the status of amyloidosis research?

What is the status of amyloidosis research?

Amyloidosis is a recent disease, first described in 1838 by Rudolph Virchow, a German pathologist, who identified abnormal deposits in the tissue of deceased patients. Since then, much research has…

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Cardiac amyloidosis and transplantation

Cardiac amyloidosis and transplantation

End-stage cardiac amyloidosis is an often-fatal disease that affects the ability of the heart to function properly. In recent years, heart transplantation has emerged as a viable option for patients…

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First ever Canadian specific  ATTR patient summit

First ever Canadian specific ATTR patient summit

HAC/TAC is proud to present the first-ever Canadian-specific ATTR Patient Summit
An event where we will be bringing together patients, families, physicians, healthcare professionals and industry in a weekend of knowledge exchange, shared experiences, and networking.
This ATTR Patient Summit will take place at the Hyatt Regency Hotel in downtown Toronto.

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The Australian Amyloidosis Workshops: A Platform for Scientific Advancement

The Australian Amyloidosis Workshops: A Platform for Scientific Advancement

Amyloidosis is a group of complex, incurable diseases which are frequently misdiagnosed and under-recognised. To improve the diagnosis and management of patients with all types of amyloidosis, four multidisciplinary medical…

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What is a clinical trial ?

What is a clinical trial ?

Find out the answer to these questions and take part in a quiz to test your knowledge about clinical trials. Training page (available in French and Spanish) Click directly on…

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The Amyloidosis infographic

The Amyloidosis infographic

Amyloidosis : a disease that concerns adults at any age . Find out more about it with these infographics ⬇️ ✅ 4 types of Amyloidosis 🩺 4 years before diagnosis👨🏼‍⚕️ 4 specialists…

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READ AMY’S DISEASE STORY , diagnosed at 52

READ AMY’S DISEASE STORY , diagnosed at 52

I was diagnosed with Amyloidosis in 2018, age 52, following several years of visits for symptoms that couldn’t be explained. I knew something was wrong but routine check ups showed…

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The Alliance E-learning : test your knowledge

The Alliance E-learning : test your knowledge

When the diagnosis is made, the first reflex is often to go on the internet to find out more about Amyloidosis.  Test your knowledge of amyloidosis and learn more about…

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