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Unraveling Amyloidosis: A Misunderstood Disorder Impacting Family Communication. there are still widespread misunderstandings surrounding this disorder, which can lead to communication problems within families dealing with its impact.

Amyloidosis is a rare disease that affects a small number of people worldwide. It is a complex condition that can cause a range of symptoms, from fatigue and weakness to…

Great news to share with the community. 

This press release announces that the BioBridge laboratory will now be able to submit an approval dossier to the health authorities.

Hereditary amyloidosis is a rare genetic disease. This disease is characterised by the unusual deposition of protein clusters in tissues, between cells, and often in the walls of small vessels….

Understanding amyloidosis: symptoms, diagnosis and outlook Amyloidosis is a rare disease affecting a limited number of people worldwide. Although little known, it can have a significant impact on patients’ quality…

For almost 150 years after its discovery, amyloidosis was considered incurable. Historically, the complexity of the disease delayed research. Why invest time and money in research on such a complex…

Amyloidosis is a rare disease that occurs when abnormal proteins build up in tissues and organs throughout the body. This build-up can lead to a variety of health problems and…

We have already mentioned it several times: amyloidosis is a rare disease that is not well known to everyone, even to doctors. The fact that it is so little known…

The World Heart Federation (WHF) convened a special forum May 17-18, 2023 in Geneva, Switzerland, entitled “SHINING A LIGHT ON RARE CARDIOVASCULAR DISEASES” in advance of the 2023 World Heart…

Do you want to learn MORE about CLINICAL TRIAL? Over the past year Alnylam’s Patient Advocacy and Medical Writing teams have been collaborating to produce plain language summaries (PLS) of…