Cardiac amyloidosis and transplantation
A Heidelberg study of 115 patients suggests that heart transplantation has become a feasible option for some people with end-stage cardiac amyloidosis.
Newsroom
News
Research advances, patient stories, policy work and news from the associations of the Alliance network.
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First ever Canadian specific ATTR patient summit
The first Canadian ATTR Patient Summit brings together patients, families, physicians and industry in Toronto in April 2023 to share knowledge and experience.
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The Australian Amyloidosis Workshops: A Platform for Scientific Advancement
Since 2014, the Australian Amyloidosis Workshops have brought together researchers, clinicians and patients to improve care for all types of amyloidosis.
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What is a clinical trial ?
What is a clinical trial, why does it matter and is taking part voluntary? Answers to these questions and a short quiz to test your knowledge.
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The Amyloidosis infographic
Four types of amyloidosis, four years before diagnosis, four specialists seen on average: an infographic to help raise awareness of amyloidosis.
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READ AMY’S DISEASE STORY , diagnosed at 52
Amy was diagnosed with amyloidosis at 52, after years of unexplained symptoms. She shares her journey and why finding a specialist doctor matters.
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The Alliance E-learning : test your knowledge
Test your knowledge of amyloidosis and learn more about the mechanisms of the disease with an interactive e-learning module shared by the Alliance.
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Protein Deposits Affecting the Eyes Can Be Common in ATTRv Patients
A Spanish study suggests that people with ATTRv amyloidosis may develop eye problems over time, and recommends regular eye examinations for patients.
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A Tv program about Crispr Cas-9 in Sweden
A Swedish TV programme looks at gene editing in transthyretin amyloidosis, with a patient treated in a study and the cardiologist who leads it in Umeå.