Rare disease day
Amyloidosis is one of the rare diseases highlighted on Rare Disease Day, when the community raises awareness of conditions affecting 300 million people.
Newsroom
News
Research advances, patient stories, policy work and news from the associations of the Alliance network.
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ATTRv impacts caregiver health-related quality of life
Caring for someone with ATTRv amyloidosis has a considerable impact on caregivers’ health-related quality of life and productivity, a survey reports.
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4th Meeting of the Amino association in Spain
The 4th meeting of the Spanish amyloidosis association Amilo takes place on 15 February 2023 in Madrid, on site and streamed online with translation.
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New FAP-causing Mutation Found in Elderly Man in Germany
A case report describes a new TTR gene variant in an elderly man in Germany, a reminder of why careful genetic testing matters in ATTR amyloidosis.
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2022: a year around Amyloidosis in Video
A look back at 2022 in video: the actions and projects carried out by the Amyloidosis Alliance and its members to raise awareness of amyloidosis.
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Best wishes for the new year from the Amyloidosis Alliance
The members of the Amyloidosis Alliance send their best wishes for 2023, with the hope of new advances and continued awareness of amyloidosis worldwide.
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The Amyloidosis Alliance wishes you a happy holiday season
Season’s greetings from the Amyloidosis Alliance to patients, families and supporters, with more actions around amyloidosis to come in the new year.
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Amyloidoisis: access to care
Sara, who lives in Israel, shares her experience of amyloidosis and how access to care is improving in her country. Watch her story in this short…
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A hereditary form of Amyloidosis
Anne-Marie, a member of TTR Amyloidosis Canada, lives with a hereditary form of amyloidosis and urged her siblings to get tested. Watch her video testimony.