International webinar replay about Amyloidosis AA
Replay of the international webinar on AA amyloidosis: treatment market access, reimbursement, and the rules between manufacturers and patient organizations.
Newsroom
News
Research advances, patient stories, policy work and news from the associations of the Alliance network.
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The world amyloidosis day 2023
World Amyloidosis Day 2023 takes place on 26 October. What amyloidosis is, why this global awareness day matters and how you can get involved.
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Amyloidosis and diet: our advice
Digestive problems are common in amyloidosis. Practical dietary advice to help people living with the disease manage their symptoms day to day.
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The fourth European ATTR Congress in Madrid
The fourth European ATTR amyloidosis congress takes place in Madrid on 2 and 3 November 2023: the programme for patients and physicians, day by day.
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Join Us in Raising Awareness on World Amyloidosis Day!
World Amyloidosis Day is on 26 October. Save the date, explore the campaign website and spread the word: how everyone can help raise awareness.
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Call for testimonies on Amyloidosis
For World Amyloidosis Day on 26 October, the Alliance invites families affected by amyloidosis to share their story and help others facing the same situation.
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Unraveling Amyloidosis: A Misunderstood Disorder Impacting Family Communication
Amyloidosis can be hard to explain, even within a family. Common misconceptions about the disease and practical ways to talk about it and support each other.
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Can Amyloidosis Be Cured?
Can amyloidosis be cured? The difference between cure and remission, and what current treatments can offer people living with the different forms.
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Important press release
A company announces it can submit a treatment for ATTR amyloidosis to health authorities. Access to treatment must now reach patients in every country.