Unveiling Courage and Resilience: a glimpse into the lives of Amyloidosis h-ATTR Warriors
For World Amyloidosis Day 2023, a couple share their life with ATTRv amyloidosis in a video testimony, a story of courage, love and resilience.
Newsroom
News
Research advances, patient stories, policy work and news from the associations of the Alliance network.
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The Amyloidosis Alliance board in Italy.
Board members of the Amyloidosis Alliance visited the National Amyloidosis Reference Centre in Pavia, Italy, to strengthen collaboration between countries.
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Amyloidosis ATTR Congress Madrid
A video look back at the ATTR amyloidosis congress held in Madrid in November 2023, ahead of new interviews with experts and a film about caregivers.
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Amyloidosis testimony videos 2023
Testimony videos help people living with amyloidosis feel less alone. Why sharing personal stories matters for patients, families and the wider community.
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Insights from the 4th ATTR amyloidosis congress in Madrid
The 4th ATTR amyloidosis congress in Madrid brought together patients, caregivers, clinicians and researchers on 2 and 3 November 2023. Highlights.
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World Amyloidosis Day 2023: A Global Success
World Amyloidosis Day 2023 brought together patients, healthcare professionals and the public in more than 20 countries, from Brazil to Australia.
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Less than a week to World Amyloidosis Day
World Amyloidosis Day is less than a week away. The Amyloidosis Alliance invites everyone to share stories, learn about the disease and take part on 26…
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International webinar replay about Amyloidosis AA
Replay of the international webinar on AA amyloidosis: treatment market access, reimbursement, and the rules between manufacturers and patient organizations.
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The world amyloidosis day 2023
World Amyloidosis Day 2023 takes place on 26 October. What amyloidosis is, why this global awareness day matters and how you can get involved.