World Amyloidosis Day: October 26, 2024
On 26 October 2024, the 4th World Amyloidosis Day brings together patients, healthcare professionals and advocates in many countries to raise awareness.
Newsroom
News
Research advances, patient stories, policy work and news from the associations of the Alliance network.
-
-
Amyloidosis AL meeting: a comprehensive review of the event
A review of the international AL amyloidosis meeting: the research, treatment options and patient care approaches discussed by experts and patients.
-
The First Amyloidosis AL Congress in Belgium
The first AL amyloidosis congress takes place in Belgium on 5 and 6 July 2024, on site and online, for healthcare professionals, researchers and patients.
-
The XIX International Symposium on Amyloidosis: A Landmark Event in Rochester, MN
Highlights from the XIX International Symposium on Amyloidosis, held in Rochester, MN, from 26 to 30 May 2024, attended by members of the Alliance.
-
Raising awareness for Amyloidosis: a collaborative event in Switzerland
On 17 May 2024, the Lausanne and Geneva university hospitals hosted an afternoon on amyloidosis with experts, patients and the Amyloidosis Alliance.
-
Understanding Amyloidosis Symptoms: Why Early Diagnosis is Crucial
Amyloidosis symptoms often mimic those of other conditions, which delays diagnosis. The common signs to know and why recognising them early matters.
-
A new study published about Hereditary Transthyretin Amyloid Polyneuropathy
A study of 201 patients over three decades suggests that disease-modifying treatments extend survival in ATTRv amyloidosis with polyneuropathy.
-
The Vital Role of Healthcare Professionals in Amyloidosis Management: Amyloidosis Alliance Leading the Way
From diagnosis to long-term follow-up, healthcare professionals play a key role in amyloidosis care. How the Alliance works to support them with resources.
-
Join the Amyloidosis Alliance: Uniting Patient Associations Globally to Fight Amyloidosis
The Amyloidosis Alliance brings together patient organizations from around the world. Who we are, our mission, and how your organization can join us.