Amylostory
Your story is unique
Amyloidosis invades lives and turns them upside down. Sharing yours will help someone. Here, everyone is free to talk about their life with the disease, in their own words and in their own language.
Browse the stories
People all connected by amyloidosis
Behind every statistic is a person. Each story below was written by a patient or a caregiver and is published in the language it was written in.
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Mon intruse
Read the full story →: Mon intruse56 ans. Je pensais enfin mener une vie tranquille, continuer de voyager, peut-être de trouver un nouveau compagnon…
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L’Amylose de ma vie
Read the full story →: L’Amylose de ma vieIl était une fois une enfant avec le seul souvenir l’hôpital, et seuls compagnons la fièvre et katty, la chatte.
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La Vie En Sursis
Read the full story →: La Vie En SursisDéclaration de la Maladie Mars 2018. Âge 62 ans. Voici mon récit sur mon Amylose Cardiaque AL.
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A good life but maybe not a long one
Read the full story →: A good life but maybe not a long oneI have hereditary amyloidosis. I got it from my dad who died at 74 who got it from his dad who died at 61.
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Mi Herencia Familiar
Read the full story →: Mi Herencia FamiliarNacer y vivir en Venezuela ha sido un verdadero honor, hijo de Eulogio R. D. y Justina O. L. con 49 años de edad soy el…
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Recomeçando a vida
Read the full story →: Recomeçando a vidaMe chama Leonardo Gomes tenho 63 anos, após um passeio no Canadá para nascimento do meu netinho.
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Amyloidosis is bad, but after reaching the bottom I found the good in it
Read the full story →: Amyloidosis is bad, but after reaching the bottom I found the good in itHi, I’m João Ferrão, 26 years, living in Caldas da Rainha, Portugal. I’m a Lead Product Designer at Talkdesk.
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Gerry’s Amyloidosis story
Read the full story →: Gerry’s Amyloidosis story“You’re just constipated. We’ll empty your bowels and send you home.“
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The Day My Life Changed
Read the full story →: The Day My Life ChangedIn April 2019, I had just returned from a girl’s trip to Las Vegas and was not feeling great.
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Lo mejor está en el camino… No tengas prisa en llegar a la meta
Read the full story →: Lo mejor está en el camino… No tengas prisa en llegar a la metaMe llamo Joel, nací en el 1972 y soy de Mallorca. A los 23 años, cuando hacía el servicio militar, empecé a encontrarme mal y no…
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Christmas 2014
Read the full story →: Christmas 2014Christmas morning on the most beautiful island that my family so dearly love – Stradbroke Island, Queensland Australia.
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It Doesn’t Really Matter
Read the full story →: It Doesn’t Really MatterWithout knowing it, I had been living with an uninvited menace in my body for some years.
Be the link
Share your story
Your account of the disease (how long it took to be diagnosed, what helped, what did not) is what makes the next patient’s road shorter. Write it in whichever language you are comfortable with.
