AMYLOIDOSIS ALLIANCE The Voice of Patients

Resources

Library

Every document the Amyloidosis Alliance and its member associations make freely available, booklets, fact sheets and question cards, free to download, print and share.

Each download is labelled with the language the document is written in, not the country it comes from.

All types of amyloidosis

8 documents

Booklet

Amyloidosis Alliance booklet

The Alliance and the patient associations involved around the world.

Infographic

Amyloidosis at a glance

The four main forms, their key figures and the sources behind them, on two pages.

Booklet

Booklet for carers

A companion for those who care for someone living with amyloidosis.

Q&A cards

Question / answer cards n°1

Everyday questions from patients and carers, answered card by card.

Q&A cards

Question / answer cards n°2

Everyday questions from patients and carers, answered card by card.

Q&A cards

Question / answer cards n°3

Everyday questions from patients and carers, answered card by card.

Q&A cards

Question / answer cards n°4

Everyday questions from patients and carers, answered card by card.

AA amyloidosis

2 documents

Fact sheets

Patients & carers file

Memo sheets on AA amyloidosis, written for patients and the people around them.

For clinicians

Healthcare professionals file

The same AA memo sheets, written for the clinicians who follow these patients.

ATTR amyloidosis

9 documents

Introduction

Introduction to ATTR amyloidosis

What hereditary ATTR is, in a leaflet for patients, carers and families. Available in four languages.

Fact sheets

Patients & carers file, ATTRv

Memo sheets on hereditary ATTR amyloidosis, written for patients and the people around them.

For clinicians

Healthcare professionals file, ATTRv

The same hereditary ATTR memo sheets, written for the clinicians who follow these patients.

For clinicians

Sheet for ophthalmologists

The ocular signs of hereditary ATTR, for the specialists most likely to see them first.

Fact sheets

Patients & carers file, cardiac ATTR

Memo sheets on cardiac ATTR amyloidosis, written for patients and the people around them.

For clinicians

Healthcare professionals file, cardiac ATTR

The same cardiac ATTR memo sheets, written for the clinicians who follow these patients.

AL amyloidosis

2 documents

Fact sheets

Patients & carers file

Memo sheets on AL amyloidosis, written for patients and the people around them.

For clinicians

Healthcare professionals file

The same AL memo sheets, written for the clinicians who follow these patients.

For caregivers

2 documents

Leaflet

Caregiver file

Practical guidance for the person accompanying someone through the disease.

Online tool

Family dialogue tool

Chattr helps families talk about a hereditary disease, and about being tested.

Search the library

All documents

Every document of the library, from the Alliance and from its member organizations, in a single list you can search and filter by country, language and type.

27 documents

For patient organizations

The Toolkit

The documents above are written for patients and their families. The Toolkit is for those who want to go further and create a patient organization: model articles of association, founding meeting templates, GDPR registers, financial plans, speaker training, logo and website guidelines.

It is reserved for member organizations and opens with a password. Write to us if you need it.

Open the Toolkit