AMYLife: Amyloidosis survey to Understand Patient Lives
AMYLife, launched on 29 November 2024, is a global survey exploring the daily challenges and needs of people living with amyloidosis and their families.
Newsroom
News
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Join Us for a Global Live Event on World Amyloidosis Day – October 26, 2024!
Join an international live broadcast on 26 October 2024 for World Amyloidosis Day, with amyloidosis experts from Brazil, France, Austria and the UK.
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World Amyloidosis Day: October 26, 2024
On 26 October 2024, the 4th World Amyloidosis Day brings together patients, healthcare professionals and advocates in many countries to raise awareness.
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Amyloidosis AL meeting: a comprehensive review of the event
A review of the international AL amyloidosis meeting: the research, treatment options and patient care approaches discussed by experts and patients.
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The First Amyloidosis AL Congress in Belgium
The first AL amyloidosis congress takes place in Belgium on 5 and 6 July 2024, on site and online, for healthcare professionals, researchers and patients.
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The XIX International Symposium on Amyloidosis: A Landmark Event in Rochester, MN
Highlights from the XIX International Symposium on Amyloidosis, held in Rochester, MN, from 26 to 30 May 2024, attended by members of the Alliance.
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Raising awareness for Amyloidosis: a collaborative event in Switzerland
On 17 May 2024, the Lausanne and Geneva university hospitals hosted an afternoon on amyloidosis with experts, patients and the Amyloidosis Alliance.
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Understanding Amyloidosis Symptoms: Why Early Diagnosis is Crucial
Amyloidosis symptoms often mimic those of other conditions, which delays diagnosis. The common signs to know and why recognising them early matters.
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A new study published about Hereditary Transthyretin Amyloid Polyneuropathy
A study of 201 patients over three decades suggests that disease-modifying treatments extend survival in ATTRv amyloidosis with polyneuropathy.