Resources

Resources

Everything the Alliance makes available to read, watch and share: documents to download, videos to watch, answers to the questions we are asked most, and the news of the network.

Browse

Where to look

Library

Booklets, fact sheets and question cards from the Alliance and its member organizations, free to download, print and share.

Toolkit

Model articles of association, GDPR registers, logo and website guidelines: what a new patient organization needs to get started. Reserved for member organizations.

Video center

Patient stories, expert talks and conference replays, gathered from the Alliance channel.

FAQ

The questions patients, families and organizations ask us most often, answered plainly.

News

What the Alliance and its members are doing, month after month.