{"id":5292,"date":"2022-08-01T18:13:00","date_gmt":"2022-08-01T16:13:00","guid":{"rendered":"https:\/\/www.amyloidosisalliance.org\/varldsamyloidosdagen\/"},"modified":"2026-11-03T10:46:28","modified_gmt":"2026-11-03T09:46:28","slug":"varldsamyloidosdagen","status":"publish","type":"post","link":"https:\/\/www.amyloidosisalliance.org\/sv\/varldsamyloidosdagen\/","title":{"rendered":"V\u00e4rldsamyloidosdagen"},"content":{"rendered":"\n

V\u00e4rldsamyloidosdagen 2022<\/h2>\nF\u00f6r att uppm\u00e4rksamma att patienter med amyloidos f\u00e5r sin diagnos f\u00f6rst efter i genomsnitt 4 \u00e5r, och f\u00f6r att samla alla som ber\u00f6rs av sjukdomen, beslutade Amyloidosis Alliance och flera andra patientorganisationer 2021 att skapa V\u00e4rldsamyloidosdagen, som samlar inte mindre \u00e4n 18 l\u00e4nder p\u00e5 4 kontinenter.\n

Amyloidos \u00e4r en s\u00e4llsynt, komplex och m\u00e5ngfacetterad sjukdom.<\/h2>\nAmyloidos \u00e4r fortfarande d\u00e5ligt k\u00e4nd bland allm\u00e4nheten och v\u00e5rdpersonalen, vilket g\u00f6r den \u00e4nnu sv\u00e5rare att uppt\u00e4cka. Men ju l\u00e4ngre det dr\u00f6jer, desto st\u00f6rre blir riskerna. Om amyloidos inte behandlas snabbt \u00e4r den f\u00f6rv\u00e4ntade livsl\u00e4ngden 3 till 5 \u00e5r vid de allvarligaste formerna.\n\nSyftet med \u00e5rets dag, som \u00e4ger rum den 26 oktober 2022, \u00e4r d\u00e4rf\u00f6r att samla s\u00e5 m\u00e5nga som m\u00f6jligt mot amyloidos och att f\u00f6ra samman amyloidosgemenskapen med en bred publik.\n\nNu \u00e4r det avg\u00f6rande att genomf\u00f6ra s\u00e5dana insatser och visa solidaritet f\u00f6r att \u00f6ka medvetenheten om sjukdomen och s\u00e4kerst\u00e4lla b\u00e4ttre och snabbare tillg\u00e5ng till diagnos och v\u00e5rd. Det \u00e4r genom att sprida kunskap om amyloidos till alla l\u00e4kare som vi kan f\u00e5 fler att misst\u00e4nka sjukdomen och minska antalet feldiagnoser.\n

\nDet \u00e4r tillsammans som vi kan hoppas p\u00e5 framsteg.<\/h2>\nD\u00e4rf\u00f6r \u00e4r det viktigt att samlas en och samma dag f\u00f6r att f\u00f6ra samman patienter, n\u00e4rst\u00e5ende och alla andra ber\u00f6rda. D\u00e4rf\u00f6r \u00e4r V\u00e4rldsamyloidosdagen till f\u00f6r alla: h\u00e4lsomyndigheter och v\u00e5rdpersonal, socialarbetare, l\u00e4kemedelsf\u00f6retag, forskare, volont\u00e4rer, f\u00f6reningar… var och en av er kan st\u00e4rka v\u00e5r kamp och hj\u00e4lpa oss att komma fram\u00e5t.\n

F\u00f6r att st\u00f6dja patienterna och deras familjer: l\u00e5t oss vara l\u00e4nken som h\u00e5ller dem vid liv.<\/h3>\nI en tid n\u00e4r det digitala \u00e4r viktigare \u00e4n n\u00e5gonsin har vi ocks\u00e5 startat en digital kampanj f\u00f6r \u00f6kad medvetenhet i sociala medier, \u201dBe the Link\u201d. Genom att dela den orangea Be the Link-l\u00e4nken kan du ocks\u00e5 hj\u00e4lpa till att sprida kunskap om sjukdomen p\u00e5 n\u00e4tet.\n","protected":false},"excerpt":{"rendered":"

V\u00e4rldsamyloidosdagen skapades 2021 f\u00f6r att \u00f6ka medvetenheten om amyloidos, en sjukdom som ofta diagnostiseras flera \u00e5r f\u00f6r sent. 2022 \u00e5rs upplaga \u00e4ger rum den 26 oktober.<\/p>\n","protected":false},"author":1,"featured_media":5293,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[93],"tags":[],"class_list":["post-5292","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-uncategorized-sv"],"yoast_head":"\nV\u00e4rldsamyloidosdagen<\/title>\n<meta name=\"description\" content=\"V\u00e4rldsamyloidosdagen skapades 2021 f\u00f6r att \u00f6ka medvetenheten om amyloidos, en sjukdom som ofta diagnostiseras flera \u00e5r f\u00f6r sent. 2022 \u00e5rs upplaga \u00e4ger rum den 26 oktober.\" \/>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" 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