{"id":5229,"date":"2023-04-05T08:32:00","date_gmt":"2023-04-05T06:32:00","guid":{"rendered":"https:\/\/www.amyloidosisalliance.org\/las-amys-berattelse-om-sin-sjukdom-diagnostiserad-vid-52-ars-alder\/"},"modified":"2026-11-03T10:46:25","modified_gmt":"2026-11-03T09:46:25","slug":"las-amys-berattelse-om-sin-sjukdom-diagnostiserad-vid-52-ars-alder","status":"publish","type":"post","link":"https:\/\/www.amyloidosisalliance.org\/sv\/las-amys-berattelse-om-sin-sjukdom-diagnostiserad-vid-52-ars-alder\/","title":{"rendered":"L\u00c4S AMYS BER\u00c4TTELSE OM SIN SJUKDOM, diagnostiserad vid 52 \u00e5rs \u00e5lder"},"content":{"rendered":"\n<p class=\"wp-block-paragraph\">Jag fick diagnosen amyloidos 2018, n\u00e4r jag var 52 \u00e5r, efter flera \u00e5r av l\u00e4karbes\u00f6k f\u00f6r symtom som ingen kunde f\u00f6rklara.<\/p>\n\n<p class=\"wp-block-paragraph\">Jag visste att n\u00e5got var fel, men rutinkontrollerna visade inget onormalt. Amyloiden uppt\u00e4cktes vid en rutinm\u00e4ssig koloskopi, i min mag-tarmkanal.<\/p>\n\n<p class=\"wp-block-paragraph\">Amyloidos var ett ord jag aldrig hade h\u00f6rt, och \u00e4ven efter flera \u00e5r av att ha l\u00e4st p\u00e5 efter diagnosen tycker jag att det \u00e4r v\u00e4ldigt komplicerat och sv\u00e5rt att f\u00f6rst\u00e5.<\/p>\n\n<p class=\"wp-block-paragraph\">Som en mycket aktiv kvinna, mamma till tre och mormor och farmor till sju, var jag f\u00f6rst f\u00f6rkrossad och r\u00e4dd. Jag hade f\u00f6rlorat b\u00e5da mina f\u00f6r\u00e4ldrar och tv\u00e5 syskon i cancer, jag hade gjort h\u00e4lsosamma val i livet, det h\u00e4r kunde inte h\u00e4nda mig.<\/p>\n\n<p class=\"wp-block-paragraph\">Verkligheten bevisade att jag hade fel.<\/p>\n\n<p class=\"wp-block-paragraph\">Att hitta en l\u00e4kare som \u00e4r specialiserad p\u00e5 amyloidos \u00e4r ett m\u00e5ste! Efter grundliga unders\u00f6kningar f\u00f6r att fastst\u00e4lla hur l\u00e5ngt sjukdomen hade g\u00e5tt b\u00f6rjade jag med en kombination av cytostatika som p\u00e5gick i 6 m\u00e5nader.<\/p>\n\n<p class=\"wp-block-paragraph\">Hittills har resultaten varit till min f\u00f6rdel. \u00c4ven om stamcellstransplantation ofta n\u00e4mns som ett alternativ vid den h\u00e4r sjukdomen \u00e4r det inte m\u00f6jligt f\u00f6r mig p\u00e5 grund av IgM-faktorer. \u00c4nnu en s\u00e4llsynt faktor. Jag \u00e4r fast besluten att leva \u201dmitt normala\u201d liv s\u00e5 mycket som m\u00f6jligt. Jag fokuserar p\u00e5 att leva lyckligt och s\u00e4tter min tillit till positiv forskning och till nya behandlingar n\u00e4r de blir tillg\u00e4ngliga. Jag anpassar mina rutiner n\u00e4r det beh\u00f6vs, men v\u00e4grar att ge upp!<\/p>\n\n<p class=\"wp-block-paragraph\">Mitt fr\u00e4msta syfte med att dela min ber\u00e4ttelse \u00e4r att \u00f6ka medvetenheten, i hopp om att andra ska f\u00e5 en tidigare diagnos.<\/p>\n\n<p class=\"wp-block-paragraph\"><img loading=\"lazy\" decoding=\"async\" height=\"16\" width=\"16\" src=\"https:\/\/static.xx.fbcdn.net\/images\/emoji.php\/v9\/t1f\/2\/16\/27a1.png\" alt=\"&#x27A1;&#xFE0F;\"\/> <a href=\"https:\/\/worldamyloidosisday.org\/amys-disease-aka-amyloidosis-3\/?fbclid=IwAR3Fon8r7Fd1Q0NlX3m7RY_L_2SdDolMqpqxyJoWqnEVAejB0F_nuGuD5oM\">Hennes ber\u00e4ttelse h\u00e4r<\/a> <\/p>\n","protected":false},"excerpt":{"rendered":"<p>Amy fick diagnosen amyloidos vid 52 \u00e5rs \u00e5lder, efter flera \u00e5r av of\u00f6rklarliga symtom. Hon ber\u00e4ttar om sin v\u00e4g och om varf\u00f6r det \u00e4r viktigt att hitta en specialistl\u00e4kare.<\/p>\n","protected":false},"author":1,"featured_media":5230,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[93],"tags":[],"class_list":["post-5229","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-uncategorized-sv"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v28.6 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>L\u00c4S AMYS BER\u00c4TTELSE OM SIN SJUKDOM, diagnostiserad vid 52 \u00e5rs \u00e5lder<\/title>\n<meta name=\"description\" content=\"Amy fick diagnosen amyloidos vid 52 \u00e5rs \u00e5lder, efter flera \u00e5r av of\u00f6rklarliga symtom. 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