{"id":5164,"date":"2023-10-11T08:53:00","date_gmt":"2023-10-11T06:53:00","guid":{"rendered":"https:\/\/www.amyloidosisalliance.org\/repris-av-det-internationella-webbinariet-om-aa-amyloidos\/"},"modified":"2026-11-03T10:44:24","modified_gmt":"2026-11-03T09:44:24","slug":"repris-av-det-internationella-webbinariet-om-aa-amyloidos","status":"publish","type":"post","link":"https:\/\/www.amyloidosisalliance.org\/sv\/repris-av-det-internationella-webbinariet-om-aa-amyloidos\/","title":{"rendered":"Repris av det internationella webbinariet om AA-amyloidos"},"content":{"rendered":"\n<p class=\"wp-block-paragraph\">Inom s\u00e4llsynta sjukdomar \u00e4r all kunskap ov\u00e4rderlig. Patienter, n\u00e4rst\u00e5ende, forskare och f\u00f6retr\u00e4dare f\u00f6r patientorganisationer s\u00f6ker st\u00e4ndigt efter kunskap f\u00f6r att f\u00f6rst\u00e5 marknadstilltr\u00e4de f\u00f6r behandlingar, subventionering och de invecklade regler som styr relationen mellan l\u00e4kemedelsf\u00f6retag och patientf\u00f6reningar f\u00f6r amyloidos. Missade du v\u00e5rt senaste webbinarium? Ingen fara: reprisen finns p\u00e5 YouTube.<\/p>\n\n<p class=\"wp-block-paragraph\">L\u00e4ngd: tv\u00e5 pass + 30 minuters fr\u00e5gestund<\/p>\n\n<figure class=\"wp-block-embed is-type-video is-provider-youtube wp-block-embed-youtube wp-embed-aspect-16-9 wp-has-aspect-ratio\"><div class=\"wp-block-embed__wrapper\">\n<iframe loading=\"lazy\" title=\"International Webinar Amyloidosis AA\" width=\"500\" height=\"281\" src=\"https:\/\/www.youtube.com\/embed\/fchDUnbGczc?feature=oembed\" frameborder=\"0\" allow=\"accelerometer; autoplay; clipboard-write; encrypted-media; gyroscope; picture-in-picture; web-share\" referrerpolicy=\"strict-origin-when-cross-origin\" allowfullscreen><\/iframe>\n<\/div><\/figure>\n\n<div style=\"height:41px\" aria-hidden=\"true\" class=\"wp-block-spacer\"><\/div>\n\n<h3 class=\"wp-block-heading\"><strong>Pass 1: b\u00e4ttre f\u00f6rst\u00e5else f\u00f6r marknadstilltr\u00e4de och subventionering av behandlingar<\/strong><\/h3>\n\n<p class=\"wp-block-paragraph\"><br\/>Under det f\u00f6rsta passet gick v\u00e5ra experter p\u00e5 djupet i den sn\u00e5riga v\u00e4rlden av marknadstilltr\u00e4de och subventionering f\u00f6r behandlingar av AA-amyloidos. Vi presenterade strategier f\u00f6r att b\u00e4ttre f\u00f6rst\u00e5 och hantera de sv\u00e5righeter som enskilda, familjer och patientf\u00f6reningar ofta m\u00f6ter. N\u00e5gra av h\u00f6jdpunkterna:<\/p>\n\n<p class=\"wp-block-paragraph\">Utmaningar kring marknadstilltr\u00e4de: passet inleds med en genomg\u00e5ng av de s\u00e4rskilda hinder som behandlingar av AA-amyloidos m\u00f6ter p\u00e5 marknaden, bland annat pris, finansiering och distribution.<br\/>Strategier f\u00f6r subventionering: experter ber\u00e4ttar om effektiva strategier f\u00f6r subventionering och betonar vikten av patienternas intressebevakning och datadrivna arbetss\u00e4tt.<br\/>Patientcentrerade arbetss\u00e4tt: ta reda p\u00e5 hur det kan p\u00e5verka politiken och driva fram f\u00f6r\u00e4ndring att s\u00e4tta patienterna i centrum f\u00f6r diskussionerna om tillg\u00e5ng.<\/p>\n\n<h3 class=\"wp-block-heading\"><br\/>Pass 2: regler och begr\u00e4nsningar f\u00f6r relationen mellan l\u00e4kemedelsf\u00f6retag och patientf\u00f6reningar<\/h3>\n\n<p class=\"wp-block-paragraph\"><br\/>Det andra passet g\u00e5r igenom det komplexa n\u00e4tet av regler, etiska krav och goda arbetss\u00e4tt som styr relationen mellan l\u00e4kemedelsf\u00f6retag och patientorganisationer. N\u00e5gra av h\u00f6jdpunkterna:<\/p>\n\n<p class=\"wp-block-paragraph\">\u00d6ppenhet och samarbete: hur l\u00e4kemedelsf\u00f6retag och patientf\u00f6reningar kan samarbeta och samtidigt f\u00f6lja strikta etiska riktlinjer och krav p\u00e5 \u00f6ppenhet.<br\/>R\u00e4ttsliga ramar: en b\u00e4ttre f\u00f6rst\u00e5else f\u00f6r de r\u00e4ttsliga ramar som styr kontakter och avtal mellan dessa tv\u00e5 viktiga akt\u00f6rer.<br\/>Fallstudier: verkliga exempel visar framg\u00e5ngsrika samarbeten och de b\u00e4sta s\u00e4tten att arbeta tillsammans till nytta f\u00f6r patienter med s\u00e4llsynta sjukdomar.<\/p>\n\n<h3 class=\"wp-block-heading\"><br\/>30 minuters fr\u00e5gestund<\/h3>\n\n<p class=\"wp-block-paragraph\"><br\/>Efter de tv\u00e5 givande passen m\u00f6tte v\u00e5ra experter en engagerad publik under en livlig fr\u00e5gestund p\u00e5 30 minuter. Deltagarna kunde st\u00e4lla sina fr\u00e5gor direkt till talarna och f\u00e5 personliga svar och r\u00e5d.<\/p>\n\n<p class=\"wp-block-paragraph\"><br\/>Reprisen av detta l\u00e4rorika webbinarium finns nu p\u00e5 v\u00e5r YouTube-kanal, s\u00e5 att du kan ta del av den n\u00e4r det passar dig. Oavsett om du \u00e4r patient, n\u00e4rst\u00e5ende, engagerad i en patientorganisation eller arbetar inom v\u00e5rden ger webbinariet dig kunskap och verktyg f\u00f6r att f\u00f6rst\u00e5 marknadstilltr\u00e4de f\u00f6r behandlingar av s\u00e4llsynta sjukdomar och relationen mellan l\u00e4kemedelsf\u00f6retag och patientf\u00f6reningar.<\/p>\n\n<p class=\"wp-block-paragraph\">F\u00f6lj med oss mot en ljusare framtid f\u00f6r alla som ber\u00f6rs av amyloidos. Se reprisen redan i dag och f\u00e5 kraft att g\u00f6ra skillnad f\u00f6r dem som drabbas av dessa sv\u00e5ra sjukdomar.<\/p>\n\n<p class=\"wp-block-paragraph\">Kom ih\u00e5g att vi tillsammans kan driva f\u00f6r\u00e4ndring och f\u00f6rb\u00e4ttra livet f\u00f6r patienter med amyloidos i hela v\u00e4rlden. H\u00e5ll dig informerad, beh\u00e5ll kraften att agera och h\u00e5ll kontakten med Amyloidosis Alliance.<\/p>\n","protected":false},"excerpt":{"rendered":"<p>Repris av det internationella webbinariet om AA-amyloidos: marknadstilltr\u00e4de f\u00f6r behandlingar, subventionering och reglerna f\u00f6r relationen mellan l\u00e4kemedelsf\u00f6retag och patientorganisationer.<\/p>\n","protected":false},"author":1,"featured_media":5165,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[93],"tags":[],"class_list":["post-5164","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-uncategorized-sv"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v28.6 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>Repris av det internationella webbinariet om AA-amyloidos<\/title>\n<meta name=\"description\" content=\"Repris av det internationella 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