{"id":5130,"date":"2024-02-20T08:34:00","date_gmt":"2024-02-20T07:34:00","guid":{"rendered":"https:\/\/www.amyloidosisalliance.org\/dagen-for-sallsynta-diagnoser-2024-narmar-sig\/"},"modified":"2026-11-03T10:44:22","modified_gmt":"2026-11-03T09:44:22","slug":"dagen-for-sallsynta-diagnoser-2024-narmar-sig","status":"publish","type":"post","link":"https:\/\/www.amyloidosisalliance.org\/sv\/dagen-for-sallsynta-diagnoser-2024-narmar-sig\/","title":{"rendered":"Dagen f\u00f6r s\u00e4llsynta diagnoser 2024 n\u00e4rmar sig!"},"content":{"rendered":"\n<p class=\"wp-block-paragraph\">Den 29 februari \u00e4r det internationella dagen f\u00f6r s\u00e4llsynta diagnoser, ett s\u00e4rskilt tillf\u00e4lle att \u00f6ka allm\u00e4nhetens medvetenhet om de sv\u00e5righeter som personer med s\u00e4llsynta sjukdomar m\u00f6ter. I \u00e5r mobiliserar Amyloidosis Alliance \u00e5terigen i hela v\u00e4rlden f\u00f6r att st\u00f6dja saken och visa vilka konsekvenser amyloidos f\u00e5r. Varje engagerad <a href=\"https:\/\/www.amyloidosisalliance.org\/sv\/medlemmar\/\"><mark style=\"background-color:rgba(0, 0, 0, 0)\" class=\"has-inline-color has-pale-cyan-blue-color\">medlem<\/mark><\/a> i alliansen bidrar p\u00e5 sitt s\u00e4tt i sitt eget land.<\/p>\n\n<p class=\"wp-block-paragraph\"><a href=\"http:\/\/rarediseaseday.org\/\">I<\/a><mark style=\"background-color:rgba(0, 0, 0, 0)\" class=\"has-inline-color has-pale-cyan-blue-color\"><a href=\"http:\/\/rarediseaseday.org\/\">nternationella dagen f\u00f6r s\u00e4llsynta diagnoser:<\/a> <\/mark>ett sj\u00e4lvklart evenemang som uppm\u00e4rksammas varje \u00e5r, symboliskt den 29 februari under skott\u00e5r. Dagen ger en viktig plattform f\u00f6r att \u00f6ka allm\u00e4nhetens medvetenhet, uppmuntra forskning och fr\u00e4mja tillg\u00e5ngen till behandling f\u00f6r personer som lever med s\u00e4llsynta sjukdomar.<\/p>\n\n<h2 class=\"wp-block-heading has-medium-font-size\"><mark style=\"background-color:rgba(0, 0, 0, 0)\" class=\"has-inline-color has-luminous-vivid-orange-color\">Amyloidosis Alliance, en engagerad akt\u00f6r p\u00e5 dagen f\u00f6r s\u00e4llsynta diagnoser<\/mark><\/h2>\n\n<p class=\"wp-block-paragraph\">I samband med denna s\u00e4rskilda dag framtr\u00e4der Amyloidosis Alliance som en engagerad akt\u00f6r i kampen mot s\u00e4llsynta sjukdomar. Amyloidos \u00e4r en sjukdom som k\u00e4nnetecknas av onormala inlagringar av proteiner i kroppens v\u00e4vnader och organ, vilket leder till allvarliga komplikationer. Eftersom amyloidos \u00e4r s\u00e5 s\u00e4llsynt blir den tyv\u00e4rr ofta feldiagnostiserad, vilket f\u00f6rdr\u00f6jer r\u00e4tt behandling.<\/p>\n\n<h2 class=\"wp-block-heading has-medium-font-size\"><mark style=\"background-color:rgba(0, 0, 0, 0)\" class=\"has-inline-color has-vivid-cyan-blue-color\">\u00d6ka medvetenheten och mobilisera: Amyloidosis Alliances m\u00e5l f\u00f6r dagen f\u00f6r s\u00e4llsynta diagnoser<\/mark><\/h2>\n\n<p class=\"wp-block-paragraph\">Amyloidosis Alliance tar tillf\u00e4llet i akt att intensifiera sitt arbete f\u00f6r \u00f6kad medvetenhet och lyfta fram de sv\u00e5righeter som patienter med amyloidos m\u00f6ter. Organisationen hoppas ocks\u00e5 kunna mobilisera resurser till forskning som ska ge b\u00e4ttre f\u00f6rst\u00e5else f\u00f6r sjukdomen och mer effektiva behandlingar.<\/p>\n\n<h2 class=\"wp-block-heading has-medium-font-size\"><mark style=\"background-color:rgba(0, 0, 0, 0)\" class=\"has-inline-color has-vivid-green-cyan-color\">S\u00e5 kan du delta i dagen f\u00f6r s\u00e4llsynta diagnoser<\/mark><\/h2>\n\n<p class=\"wp-block-paragraph\">Du kan ansluta dig till alliansens engagemang genom att delta aktivt i dagen f\u00f6r s\u00e4llsynta diagnoser. F\u00f6lj alliansen i sociala medier, dela relevant information och anv\u00e4nd dagens officiella hashtagg f\u00f6r att sprida budskapen l\u00e4ngre. Du kan ocks\u00e5 st\u00f6dja insatserna, forskningen och initiativen hos alliansens medlemmar i hela v\u00e4rlden.<\/p>\n\n<h2 class=\"wp-block-heading has-medium-font-size\"><mark style=\"background-color:rgba(0, 0, 0, 0)\" class=\"has-inline-color has-pale-pink-color\">Tillsammans g\u00f6r vi skillnad<\/mark><\/h2>\n\n<p class=\"wp-block-paragraph\">Internationella dagen f\u00f6r s\u00e4llsynta diagnoser \u00e4r ett v\u00e4rdefullt tillf\u00e4lle att g\u00f6ra allm\u00e4nheten uppm\u00e4rksam p\u00e5 verkligheter som ofta \u00e4r ok\u00e4nda. Genom att g\u00e5 samman med Amyloidosis Alliance kan var och en av oss bidra till att f\u00f6ra forskningen fram\u00e5t, f\u00f6rb\u00e4ttra v\u00e5rden av patienterna och driva fr\u00e5gan om s\u00e4llsynta sjukdomar. <\/p>\n\n<p class=\"wp-block-paragraph\">Den 29 februari: anslut dig till detta globala initiativ och bli r\u00f6sten f\u00f6r dem som k\u00e4mpar mot amyloidos.<\/p>\n\n<div style=\"height:49px\" aria-hidden=\"true\" class=\"wp-block-spacer\"><\/div>\n\n<figure class=\"wp-block-image size-full is-resized\"><img decoding=\"async\" src=\"https:\/\/www.amyloidosisalliance.org\/wp-content\/uploads\/2022\/06\/cropped-cropped-logo.jpg\" alt=\"\" class=\"wp-image-5208\" style=\"width:218px;height:auto\"\/><\/figure>\n\n<div style=\"height:100px\" aria-hidden=\"true\" class=\"wp-block-spacer\"><\/div>\n","protected":false},"excerpt":{"rendered":"<p>Dagen f\u00f6r s\u00e4llsynta diagnoser infaller den 29 februari 2024. S\u00e5 mobiliserar Amyloidosis Alliance och dess medlemmar f\u00f6r att lyfta fram amyloidos bland de s\u00e4llsynta sjukdomarna.<\/p>\n","protected":false},"author":1,"featured_media":5131,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[93],"tags":[],"class_list":["post-5130","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-uncategorized-sv"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v28.6 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>Dagen f\u00f6r s\u00e4llsynta diagnoser 2024 n\u00e4rmar sig!<\/title>\n<meta name=\"description\" content=\"Dagen f\u00f6r s\u00e4llsynta diagnoser infaller den 29 februari 2024. 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