{"id":5058,"date":"2022-08-01T18:13:00","date_gmt":"2022-08-01T16:13:00","guid":{"rendered":"https:\/\/www.amyloidosisalliance.org\/o-dia-mundial-da-amiloidose\/"},"modified":"2026-11-03T10:41:35","modified_gmt":"2026-11-03T09:41:35","slug":"o-dia-mundial-da-amiloidose","status":"publish","type":"post","link":"https:\/\/www.amyloidosisalliance.org\/pt\/o-dia-mundial-da-amiloidose\/","title":{"rendered":"O Dia Mundial da Amiloidose"},"content":{"rendered":"\n<h2>O Dia Mundial da Amiloidose 2022<\/h2>\nPara alertar para o facto de os doentes com amiloidose serem diagnosticados ao fim de 4 anos, em m\u00e9dia, e para reunir todas as pessoas afetadas pela doen\u00e7a, a Amyloidosis Alliance e v\u00e1rias outras organiza\u00e7\u00f5es de doentes decidiram criar em 2021 o Dia Mundial da Amiloidose, que re\u00fane nada menos do que 18 pa\u00edses em 4 continentes.\n<h2>A amiloidose \u00e9 uma doen\u00e7a rara, complexa e multifacetada.<\/h2>\nA amiloidose continua a ser mal conhecida pelo grande p\u00fablico e pelos profissionais de sa\u00fade, o que a torna ainda mais dif\u00edcil de detetar. No entanto, quanto mais tempo passa, maiores s\u00e3o os riscos. Sem tratamento r\u00e1pido, a esperan\u00e7a de vida \u00e9 de 3 a 5 anos nas formas mais graves.\n\nO objetivo do dia deste ano, a 26 de outubro de 2022, \u00e9, por isso, reunir o maior n\u00famero poss\u00edvel de pessoas contra a amiloidose e dar a conhecer a comunidade da amiloidose a um p\u00fablico alargado.\n\n\u00c9 agora essencial p\u00f4r em pr\u00e1tica este tipo de a\u00e7\u00f5es e mostrar solidariedade, para dar a conhecer a doen\u00e7a e garantir um acesso melhor e mais r\u00e1pido ao diagn\u00f3stico e aos cuidados. \u00c9 alargando o conhecimento da amiloidose a todos os profissionais de sa\u00fade que vamos melhorar a suspeita diagn\u00f3stica e reduzir os erros de diagn\u00f3stico.\n<h2>\n\u00c9 juntos que podemos aspirar a progredir.<\/h2>\nPor isso, \u00e9 importante reunirmo-nos num mesmo dia para juntar doentes, cuidadores e todas as outras partes interessadas. \u00c9 por isso que o Dia Mundial da Amiloidose \u00e9 para todos: autoridades e profissionais de sa\u00fade, assistentes sociais, empresas farmac\u00eauticas, investigadores, volunt\u00e1rios, associa\u00e7\u00f5es&#8230; cada um pode refor\u00e7ar a nossa luta e ajudar-nos a avan\u00e7ar.\n<h3>Para apoiar os doentes e as suas fam\u00edlias, sejamos o la\u00e7o que os mant\u00e9m vivos.<\/h3>\nNuma altura em que o digital \u00e9 mais importante do que nunca, lan\u00e7\u00e1mos tamb\u00e9m nas redes sociais uma campanha de sensibiliza\u00e7\u00e3o digital chamada \u00abBe the Link\u00bb. Ao partilhar o la\u00e7o cor de laranja Be the Link, pode tamb\u00e9m ajudar a dar a conhecer a doen\u00e7a online.\n","protected":false},"excerpt":{"rendered":"<p>O Dia Mundial da Amiloidose foi criado em 2021 para dar a conhecer a amiloidose, uma doen\u00e7a muitas vezes diagnosticada com anos de atraso. A edi\u00e7\u00e3o de 2022 realiza-se a 26 de outubro.<\/p>\n","protected":false},"author":1,"featured_media":5059,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[83],"tags":[],"class_list":["post-5058","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-uncategorized-pt-pt"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v28.6 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>O Dia Mundial da Amiloidose<\/title>\n<meta name=\"description\" content=\"O Dia Mundial da Amiloidose foi criado em 2021 para dar a conhecer a amiloidose, uma doen\u00e7a muitas vezes diagnosticada com anos de atraso. A edi\u00e7\u00e3o de 2022 realiza-se a 26 de outubro.\" \/>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.amyloidosisalliance.org\/pt\/o-dia-mundial-da-amiloidose\/\" \/>\n<meta property=\"og:locale\" content=\"pt_PT\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"O Dia Mundial da Amiloidose\" \/>\n<meta property=\"og:description\" content=\"O Dia Mundial da Amiloidose foi criado em 2021 para dar a conhecer a amiloidose, uma doen\u00e7a muitas vezes diagnosticada com anos de atraso. 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