{"id":3130,"date":"2026-07-07T11:33:50","date_gmt":"2026-07-07T09:33:50","guid":{"rendered":"https:\/\/www.amyloidosisalliance.org\/quem-somos\/"},"modified":"2026-11-02T17:09:26","modified_gmt":"2026-11-02T16:09:26","slug":"quem-somos","status":"publish","type":"page","link":"https:\/\/www.amyloidosisalliance.org\/pt\/quem-somos\/","title":{"rendered":"Quem somos"},"content":{"rendered":"\n<nav aria-label=\"Breadcrumb\" class=\"wp-block-group aa-breadcrumb is-layout-flow wp-block-group-is-layout-flow\">\n<div class=\"aa-inner\"><a href=\"\/\">In\u00edcio<\/a><span class=\"aa-breadcrumb__sep\">\u203a<\/span><span class=\"aa-breadcrumb__label\">A Alian\u00e7a<\/span><span class=\"aa-breadcrumb__sep\">\u203a<\/span><span class=\"aa-breadcrumb__current\">Quem somos<\/span><\/div>\n<\/nav>\n\n<section class=\"wp-block-group aa-page-hero is-layout-flow wp-block-group-is-layout-flow\">\n<div class=\"wp-block-group aa-inner is-layout-flow wp-block-group-is-layout-flow\">\n<div class=\"wp-block-group aa-page-hero__grid is-layout-flow wp-block-group-is-layout-flow\">\n<div class=\"wp-block-group is-layout-flow wp-block-group-is-layout-flow\">\n<p class=\"aa-overline wp-block-paragraph\">A Alian\u00e7a<\/p>\n\n\n\n<h1 class=\"wp-block-heading\">Quem somos<\/h1>\n\n\n\n<p class=\"aa-lead wp-block-paragraph\">A Amyloidosis Alliance \u00e9 uma coliga\u00e7\u00e3o internacional que re\u00fane associa\u00e7\u00f5es de doentes, especialistas m\u00e9dicos e institui\u00e7\u00f5es de investiga\u00e7\u00e3o em torno de uma miss\u00e3o comum: p\u00f4r fim ao longo percurso at\u00e9 ao diagn\u00f3stico e transformar os cuidados prestados aos doentes com amiloidose em todo o mundo.<\/p>\n\n\n\n<p class=\"aa-page-hero__body wp-block-paragraph\">Assente na convic\u00e7\u00e3o de que nenhuma organiza\u00e7\u00e3o consegue enfrentar sozinha estes desafios, a Alian\u00e7a liga os esfor\u00e7os nacionais atrav\u00e9s da coopera\u00e7\u00e3o internacional, partilhando conhecimentos, recursos e as perspetivas das pessoas afetadas pela doen\u00e7a.<\/p>\n<\/div>\n\n\n\n<div class=\"wp-block-group aa-page-hero__photo is-layout-flow wp-block-group-is-layout-flow\">\n<figure class=\"wp-block-image size-full\"><img loading=\"lazy\" decoding=\"async\" width=\"631\" height=\"593\" src=\"https:\/\/www.amyloidosisalliance.org\/wp-content\/uploads\/2026\/09\/about-us.jpg\" alt=\"\" class=\"wp-image-671\" srcset=\"https:\/\/www.amyloidosisalliance.org\/wp-content\/uploads\/2026\/09\/about-us.jpg 631w, https:\/\/www.amyloidosisalliance.org\/wp-content\/uploads\/2026\/09\/about-us-300x282.jpg 300w\" sizes=\"auto, (max-width: 631px) 100vw, 631px\" \/><\/figure>\n<\/div>\n<\/div>\n<\/div>\n<\/section>\n\n<nav aria-label=\"Section navigation\" class=\"wp-block-group aa-anchorband is-layout-flow wp-block-group-is-layout-flow\">\n<div class=\"wp-block-group aa-inner is-layout-flow wp-block-group-is-layout-flow\">\n<div class=\"wp-block-columns aa-anchor-cols is-layout-flex wp-container-core-columns-is-layout-b2e659ba wp-block-columns-is-layout-flex\">\n<div class=\"wp-block-column aa-anchor-item is-layout-flow wp-block-column-is-layout-flow\">\n<p class=\"num wp-block-paragraph\">01<\/p>\n\n\n\n<p class=\"lbl wp-block-paragraph\"><a href=\"#why\">Porque existimos<\/a><\/p>\n<\/div>\n\n\n\n<div class=\"wp-block-column aa-anchor-item is-layout-flow wp-block-column-is-layout-flow\">\n<p class=\"num wp-block-paragraph\">02<\/p>\n\n\n\n<p class=\"lbl wp-block-paragraph\"><a href=\"#connect\">O que reunimos<\/a><\/p>\n<\/div>\n\n\n\n<div class=\"wp-block-column aa-anchor-item is-layout-flow wp-block-column-is-layout-flow\">\n<p class=\"num wp-block-paragraph\">03<\/p>\n\n\n\n<p class=\"lbl wp-block-paragraph\"><a href=\"#how\">Como funcionamos<\/a><\/p>\n<\/div>\n\n\n\n<div class=\"wp-block-column aa-anchor-item is-layout-flow wp-block-column-is-layout-flow\">\n<p class=\"num wp-block-paragraph\">04<\/p>\n\n\n\n<p class=\"lbl wp-block-paragraph\"><a href=\"#presence\">Presen\u00e7a internacional<\/a><\/p>\n<\/div>\n\n\n\n<div class=\"wp-block-column aa-anchor-item is-layout-flow wp-block-column-is-layout-flow\">\n<p class=\"num wp-block-paragraph\">05<\/p>\n\n\n\n<p class=\"lbl wp-block-paragraph\"><a href=\"#serve\">Para quem trabalhamos<\/a><\/p>\n<\/div>\n\n\n\n<div class=\"wp-block-column aa-anchor-item is-layout-flow wp-block-column-is-layout-flow\">\n<p class=\"num wp-block-paragraph\">06<\/p>\n\n\n\n<p class=\"lbl wp-block-paragraph\"><a href=\"#timeline\">A hist\u00f3ria da Alian\u00e7a<\/a><\/p>\n<\/div>\n<\/div>\n<\/div>\n<\/nav>\n\n<section id=\"why\" class=\"wp-block-group aa-section aa-section--white aa-why is-layout-flow wp-block-group-is-layout-flow\">\n<div class=\"wp-block-group aa-inner is-layout-flow wp-block-group-is-layout-flow\">\n<div class=\"wp-block-group is-layout-flow wp-block-group-is-layout-flow\">\n<p class=\"aa-section-num wp-block-paragraph\">01<\/p>\n\n\n\n<h2 class=\"wp-block-heading\">Porque existe a Alian\u00e7a<\/h2>\n<\/div>\n\n\n\n<div class=\"wp-block-group aa-why__cols is-layout-flow wp-block-group-is-layout-flow\">\n<div class=\"wp-block-group aa-why-col is-layout-flow wp-block-group-is-layout-flow\">\n<h4 class=\"wp-block-heading\">O desafio de uma doen\u00e7a rara<\/h4>\n\n\n\n<p class=\"wp-block-paragraph\">A amiloidose \u00e9 um grupo de doen\u00e7as raras e complexas que continuam a ser amplamente subdiagnosticadas. Os sintomas podem assemelhar-se aos de doen\u00e7as muito mais frequentes, enquanto o conhecimento especializado est\u00e1 repartido por diferentes especialidades e sistemas de sa\u00fade.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">Isto pode levar a um percurso at\u00e9 ao diagn\u00f3stico de v\u00e1rios anos, com risco de les\u00f5es progressivas e potencialmente irrevers\u00edveis dos \u00f3rg\u00e3os.<\/p>\n<\/div>\n\n\n\n<div class=\"wp-block-group aa-why-col is-layout-flow wp-block-group-is-layout-flow\">\n<h4 class=\"wp-block-heading\">Uma resposta internacional comum<\/h4>\n\n\n\n<p class=\"wp-block-paragraph\">A Alian\u00e7a foi fundada para ligar as iniciativas nacionais e reunir organiza\u00e7\u00f5es de doentes, profissionais de sa\u00fade, investigadores e outros intervenientes em torno de objetivos comuns.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">Ao partilhar conhecimentos e recursos para al\u00e9m das fronteiras, trabalhamos para favorecer um diagn\u00f3stico mais precoce, melhorar o acesso aos cuidados e refor\u00e7ar a voz dos doentes nos debates sobre sa\u00fade, investiga\u00e7\u00e3o e pol\u00edticas p\u00fablicas.<\/p>\n<\/div>\n<\/div>\n<\/div>\n<\/section>\n\n<section id=\"connect\" class=\"wp-block-group aa-section aa-section--cream aa-connect is-layout-flow wp-block-group-is-layout-flow\">\n<div class=\"wp-block-group aa-inner is-layout-flow wp-block-group-is-layout-flow\">\n<div class=\"wp-block-group aa-connect__media is-layout-flow wp-block-group-is-layout-flow\">\n<figure class=\"wp-block-image size-large\"><img loading=\"lazy\" decoding=\"async\" width=\"683\" height=\"1024\" src=\"https:\/\/www.amyloidosisalliance.org\/wp-content\/uploads\/2026\/09\/krakenimages-Y5bvRlcCx8k-unsplash-683x1024.jpg\" alt=\"\" class=\"wp-image-667\" srcset=\"https:\/\/www.amyloidosisalliance.org\/wp-content\/uploads\/2026\/09\/krakenimages-Y5bvRlcCx8k-unsplash-683x1024.jpg 683w, https:\/\/www.amyloidosisalliance.org\/wp-content\/uploads\/2026\/09\/krakenimages-Y5bvRlcCx8k-unsplash-200x300.jpg 200w, https:\/\/www.amyloidosisalliance.org\/wp-content\/uploads\/2026\/09\/krakenimages-Y5bvRlcCx8k-unsplash-768x1152.jpg 768w, https:\/\/www.amyloidosisalliance.org\/wp-content\/uploads\/2026\/09\/krakenimages-Y5bvRlcCx8k-unsplash-1024x1536.jpg 1024w, https:\/\/www.amyloidosisalliance.org\/wp-content\/uploads\/2026\/09\/krakenimages-Y5bvRlcCx8k-unsplash-1365x2048.jpg 1365w\" sizes=\"auto, (max-width: 683px) 100vw, 683px\" \/><\/figure>\n<\/div>\n\n\n\n<div class=\"wp-block-group is-layout-flow wp-block-group-is-layout-flow\">\n<p class=\"aa-section-num wp-block-paragraph\">02<\/p>\n\n\n\n<h2 class=\"wp-block-heading\">O que reunimos<\/h2>\n\n\n\n<div class=\"wp-block-group aa-connect__list is-layout-flow wp-block-group-is-layout-flow\">\n<div class=\"wp-block-group aa-connect-row is-layout-flow wp-block-group-is-layout-flow\">\n<p class=\"aa-connect-row__name wp-block-paragraph\">Organiza\u00e7\u00f5es membros<\/p>\n\n\n\n<p class=\"aa-connect-row__desc wp-block-paragraph\">24 organiza\u00e7\u00f5es de doentes em 19 pa\u00edses, ligadas numa mesma alian\u00e7a internacional.<\/p>\n<\/div>\n\n\n\n<div class=\"wp-block-group aa-connect-row is-layout-flow wp-block-group-is-layout-flow\">\n<p class=\"aa-connect-row__name wp-block-paragraph\">Comit\u00e9 cient\u00edfico<\/p>\n\n\n\n<p class=\"aa-connect-row__desc wp-block-paragraph\">Cl\u00ednicos e investigadores que contribuem com o seu conhecimento cient\u00edfico e m\u00e9dico para o trabalho da Alian\u00e7a.<\/p>\n<\/div>\n\n\n\n<div class=\"wp-block-group aa-connect-row is-layout-flow wp-block-group-is-layout-flow\">\n<p class=\"aa-connect-row__name wp-block-paragraph\">A\u00e7\u00f5es de sensibiliza\u00e7\u00e3o<\/p>\n\n\n\n<p class=\"aa-connect-row__desc wp-block-paragraph\">Campanhas mundiais, entre as quais o Dia Mundial da Amiloidose, que mobilizam a comunidade todos os anos.<\/p>\n<\/div>\n\n\n\n<div class=\"wp-block-group aa-connect-row is-layout-flow wp-block-group-is-layout-flow\">\n<p class=\"aa-connect-row__name wp-block-paragraph\">Recursos e eventos<\/p>\n\n\n\n<p class=\"aa-connect-row__desc wp-block-paragraph\">Encontros internacionais, recursos educativos e ferramentas pr\u00e1ticas pensados para os diferentes p\u00fablicos da comunidade da amiloidose.<\/p>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/section>\n\n<section id=\"how\" class=\"wp-block-group aa-section aa-section--white aa-how is-layout-flow wp-block-group-is-layout-flow\">\n<div class=\"wp-block-group aa-inner is-layout-flow wp-block-group-is-layout-flow\">\n<div class=\"wp-block-group aa-how__head is-layout-flow wp-block-group-is-layout-flow\">\n<p class=\"aa-section-num wp-block-paragraph\">03<\/p>\n\n\n\n<h2 class=\"wp-block-heading\">Como funciona a Alian\u00e7a<\/h2>\n\n\n\n<div class=\"aa-divider-dot\"><\/div>\n\n\n\n<p class=\"wp-block-paragraph\">Tr\u00eas fun\u00e7\u00f5es complementares permitem \u00e0 nossa rede agir coletivamente e aumentar o seu impacto.<\/p>\n<\/div>\n\n\n\n<div class=\"wp-block-group aa-how__grid is-layout-flow wp-block-group-is-layout-flow\">\n<div class=\"wp-block-group aa-how-card is-layout-flow wp-block-group-is-layout-flow\">\n<span class=\"aa-icon-tile\"><svg width=\"24\" height=\"24\" viewbox=\"0 0 24 24\" fill=\"none\" stroke=\"currentColor\" stroke-width=\"1.75\" stroke-linecap=\"round\" stroke-linejoin=\"round\" aria-hidden=\"true\"><circle cx=\"18\" cy=\"5\" r=\"3\"><\/circle><circle cx=\"6\" cy=\"12\" r=\"3\"><\/circle><circle cx=\"18\" cy=\"19\" r=\"3\"><\/circle><line x1=\"8.59\" y1=\"13.51\" x2=\"15.42\" y2=\"17.49\"><\/line><line x1=\"15.41\" y1=\"6.51\" x2=\"8.59\" y2=\"10.49\"><\/line><\/svg><\/span>\n\n\n\n<h3 class=\"wp-block-heading\">Coordenar<\/h3>\n\n\n\n<p class=\"wp-block-paragraph\">Reunimos as organiza\u00e7\u00f5es membros em torno de prioridades comuns, para que possam trocar experi\u00eancias, partilhar boas pr\u00e1ticas e desenvolver iniciativas conjuntas.<\/p>\n<\/div>\n\n\n\n<div class=\"wp-block-group aa-how-card is-layout-flow wp-block-group-is-layout-flow\">\n<span class=\"aa-icon-tile\"><svg width=\"24\" height=\"24\" viewbox=\"0 0 24 24\" fill=\"none\" stroke=\"currentColor\" stroke-width=\"1.75\" stroke-linecap=\"round\" stroke-linejoin=\"round\" aria-hidden=\"true\"><path d=\"M3 11l18-5v12L3 14v-3z\"><\/path><path d=\"M11.6 16.8a3 3 0 1 1-5.8-1.6\"><\/path><\/svg><\/span>\n\n\n\n<h3 class=\"wp-block-heading\">Defender<\/h3>\n\n\n\n<p class=\"wp-block-paragraph\">Levamos a perspetiva dos doentes \u00e0s autoridades de sa\u00fade e a outros intervenientes, defendendo um diagn\u00f3stico atempado, cuidados adequados e um acesso equitativo ao tratamento.<\/p>\n<\/div>\n\n\n\n<div class=\"wp-block-group aa-how-card is-layout-flow wp-block-group-is-layout-flow\">\n<span class=\"aa-icon-tile\"><svg width=\"24\" height=\"24\" viewbox=\"0 0 24 24\" fill=\"none\" stroke=\"currentColor\" stroke-width=\"1.75\" stroke-linecap=\"round\" stroke-linejoin=\"round\" aria-hidden=\"true\"><path d=\"M2 3h6a4 4 0 0 1 4 4v14a3 3 0 0 0-3-3H2z\"><\/path><path d=\"M22 3h-6a4 4 0 0 0-4 4v14a3 3 0 0 1 3-3h7z\"><\/path><\/svg><\/span>\n\n\n\n<h3 class=\"wp-block-heading\">Informar<\/h3>\n\n\n\n<p class=\"wp-block-paragraph\">Transformamos uma ci\u00eancia complexa em recursos claros e fi\u00e1veis para doentes, fam\u00edlias e profissionais de sa\u00fade.<\/p>\n<\/div>\n<\/div>\n<\/div>\n<\/section>\n\n<section id=\"presence\" class=\"wp-block-group aa-section aa-section--cream aa-presence is-layout-flow wp-block-group-is-layout-flow\">\n<div class=\"wp-block-group aa-inner is-layout-flow wp-block-group-is-layout-flow\">\n<div class=\"wp-block-group is-layout-flow wp-block-group-is-layout-flow\">\n<p class=\"aa-section-num wp-block-paragraph\">04<\/p>\n\n\n\n<h2 class=\"wp-block-heading\">Presen\u00e7a internacional<\/h2>\n\n\n\n<p class=\"aa-lead wp-block-paragraph\">Na Europa, no continente americano, na \u00c1sia e n\u00e3o s\u00f3, a Alian\u00e7a liga organiza\u00e7\u00f5es de doentes e conhecimentos especializados para al\u00e9m das fronteiras, ajudando a partilhar conhecimentos e a refor\u00e7ar o apoio em contextos diferentes.<\/p>\n\n\n\n<p class=\"aa-presence__body wp-block-paragraph\">Cada organiza\u00e7\u00e3o membro traz para a rede o seu conhecimento e a sua experi\u00eancia locais, o que ajuda a identificar desafios comuns e a partilhar abordagens entre pa\u00edses.<\/p>\n\n\n\n<div class=\"wp-block-group aa-presence__stats is-layout-flow wp-block-group-is-layout-flow\">\n<div class=\"wp-block-group aa-presence-stat is-layout-flow wp-block-group-is-layout-flow\">\n<p class=\"n wp-block-paragraph\">19<\/p>\n\n\n\n<p class=\"t wp-block-paragraph\">Pa\u00edses<\/p>\n<\/div>\n\n\n\n<div class=\"wp-block-group aa-presence-stat is-layout-flow wp-block-group-is-layout-flow\">\n<p class=\"n wp-block-paragraph\">24<\/p>\n\n\n\n<p class=\"t wp-block-paragraph\">Associa\u00e7\u00f5es<\/p>\n<\/div>\n\n\n\n<div class=\"wp-block-group aa-presence-stat is-layout-flow wp-block-group-is-layout-flow\">\n<p class=\"n wp-block-paragraph\">8<\/p>\n\n\n\n<p class=\"t wp-block-paragraph\">L\u00ednguas<\/p>\n<\/div>\n<\/div>\n<\/div>\n\n\n\n<div class=\"wp-block-group aa-presence__map is-layout-flow wp-block-group-is-layout-flow\">\n<figure class=\"wp-block-image size-full\"><img loading=\"lazy\" decoding=\"async\" width=\"1600\" height=\"1200\" src=\"https:\/\/www.amyloidosisalliance.org\/wp-content\/uploads\/2026\/09\/alliance-world-map.png\" alt=\"Mapa-m&#xFA;ndi estilizado que mostra as organiza&#xE7;&#xF5;es membros ligadas entre continentes\" class=\"wp-image-1048\" srcset=\"https:\/\/www.amyloidosisalliance.org\/wp-content\/uploads\/2026\/09\/alliance-world-map.png 1600w, https:\/\/www.amyloidosisalliance.org\/wp-content\/uploads\/2026\/09\/alliance-world-map-300x225.png 300w, https:\/\/www.amyloidosisalliance.org\/wp-content\/uploads\/2026\/09\/alliance-world-map-1024x768.png 1024w, https:\/\/www.amyloidosisalliance.org\/wp-content\/uploads\/2026\/09\/alliance-world-map-768x576.png 768w, https:\/\/www.amyloidosisalliance.org\/wp-content\/uploads\/2026\/09\/alliance-world-map-1536x1152.png 1536w\" sizes=\"auto, (max-width: 1600px) 100vw, 1600px\" \/><\/figure>\n\n\n\n<div class=\"wp-block-group aa-presence__badge is-layout-flow wp-block-group-is-layout-flow\">\n<p class=\"num wp-block-paragraph\">19<\/p>\n\n\n\n<p class=\"txt wp-block-paragraph\">As nossas organiza\u00e7\u00f5es membros est\u00e3o atualmente presentes em 19 pa\u00edses, em v\u00e1rias regi\u00f5es do mundo.<\/p>\n<\/div>\n<\/div>\n<\/div>\n<\/section>\n\n<section id=\"serve\" class=\"wp-block-group aa-section aa-section--white aa-serve is-layout-flow wp-block-group-is-layout-flow\">\n<div class=\"wp-block-group aa-inner is-layout-flow wp-block-group-is-layout-flow\">\n<div class=\"wp-block-group aa-serve__head is-layout-flow wp-block-group-is-layout-flow\">\n<p class=\"aa-section-num wp-block-paragraph\">05<\/p>\n\n\n\n<h2 class=\"wp-block-heading\">Para quem trabalhamos<\/h2>\n<\/div>\n\n\n\n<div class=\"wp-block-group aa-serve__grid is-layout-flow wp-block-group-is-layout-flow\">\n<div class=\"wp-block-group aa-serve-col is-layout-flow wp-block-group-is-layout-flow\">\n<span class=\"aa-icon-tile\"><svg width=\"24\" height=\"24\" viewbox=\"0 0 24 24\" fill=\"none\" stroke=\"currentColor\" stroke-width=\"1.75\" stroke-linecap=\"round\" stroke-linejoin=\"round\" aria-hidden=\"true\"><rect x=\"4\" y=\"2\" width=\"16\" height=\"20\" rx=\"1\"><\/rect><path d=\"M9 22v-4h6v4\"><\/path><path d=\"M8 6h.01\"><\/path><path d=\"M16 6h.01\"><\/path><path d=\"M12 6h.01\"><\/path><path d=\"M8 10h.01\"><\/path><path d=\"M16 10h.01\"><\/path><path d=\"M12 10h.01\"><\/path><path d=\"M8 14h.01\"><\/path><path d=\"M16 14h.01\"><\/path><path d=\"M12 14h.01\"><\/path><\/svg><\/span>\n\n\n\n<h3 class=\"wp-block-heading\">Associa\u00e7\u00f5es de doentes<\/h3>\n\n\n\n<p class=\"wp-block-paragraph\">Uma rede para partilhar experi\u00eancias e recursos, colaborar para al\u00e9m das fronteiras e refor\u00e7ar o trabalho das organiza\u00e7\u00f5es de doentes, a n\u00edvel nacional e internacional.<\/p>\n\n\n\n<p class=\"aa-serve-col__link wp-block-paragraph\"><a href=\"https:\/\/www.amyloidosisalliance.org\/pt\/membros\/#apply\">Torne-se membro<\/a><\/p>\n<\/div>\n\n\n\n<div class=\"wp-block-group aa-serve-col is-layout-flow wp-block-group-is-layout-flow\">\n<span class=\"aa-icon-tile\"><svg width=\"24\" height=\"24\" viewbox=\"0 0 24 24\" fill=\"none\" stroke=\"currentColor\" stroke-width=\"1.75\" stroke-linecap=\"round\" stroke-linejoin=\"round\" aria-hidden=\"true\"><path d=\"M17 21v-2a4 4 0 0 0-4-4H5a4 4 0 0 0-4 4v2\"><\/path><circle cx=\"9\" cy=\"7\" r=\"4\"><\/circle><path d=\"M23 21v-2a4 4 0 0 0-3-3.87\"><\/path><path d=\"M16 3.13a4 4 0 0 1 0 7.75\"><\/path><\/svg><\/span>\n\n\n\n<h3 class=\"wp-block-heading\">Doentes e fam\u00edlias<\/h3>\n\n\n\n<p class=\"wp-block-paragraph\">Orienta\u00e7\u00e3o, comunidade e centros de excel\u00eancia reconhecidos para ajudar a percorrer o caminho, do diagn\u00f3stico \u00e0 vida quotidiana.<\/p>\n\n\n\n<p class=\"aa-serve-col__link wp-block-paragraph\"><a href=\"https:\/\/www.amyloidosisalliance.org\/pt\/recursos\/biblioteca\/\">Recursos para doentes<\/a><\/p>\n<\/div>\n\n\n\n<div class=\"wp-block-group aa-serve-col is-layout-flow wp-block-group-is-layout-flow\">\n<span class=\"aa-icon-tile\"><svg width=\"24\" height=\"24\" viewbox=\"0 0 24 24\" fill=\"none\" stroke=\"currentColor\" stroke-width=\"1.75\" stroke-linecap=\"round\" stroke-linejoin=\"round\" aria-hidden=\"true\"><path d=\"M11 2v2\"><\/path><path d=\"M5 2v2\"><\/path><path d=\"M5 3H4a2 2 0 0 0-2 2v4a6 6 0 0 0 12 0V5a2 2 0 0 0-2-2h-1\"><\/path><path d=\"M8 15a6 6 0 0 0 12 0v-3\"><\/path><circle cx=\"20\" cy=\"10\" r=\"2\"><\/circle><\/svg><\/span>\n\n\n\n<h3 class=\"wp-block-heading\">Profissionais de sa\u00fade<\/h3>\n\n\n\n<p class=\"wp-block-paragraph\">Acesso a recursos educativos, informa\u00e7\u00e3o cient\u00edfica e contactos com toda a comunidade da amiloidose.<\/p>\n\n\n\n<p class=\"aa-serve-col__link wp-block-paragraph\"><a href=\"https:\/\/www.amyloidosisalliance.org\/pt\/recursos\/biblioteca\/\">Espa\u00e7o cl\u00ednico<\/a><\/p>\n<\/div>\n<\/div>\n<\/div>\n<\/section>\n\n<section id=\"timeline\" class=\"wp-block-group aa-section aa-section--cream aa-timeline is-layout-flow wp-block-group-is-layout-flow\">\n<div class=\"wp-block-group aa-inner is-layout-flow wp-block-group-is-layout-flow\">\n<div class=\"wp-block-group aa-timeline__head is-layout-flow wp-block-group-is-layout-flow\">\n<p class=\"aa-section-num wp-block-paragraph\">06<\/p>\n\n\n\n<h2 class=\"wp-block-heading\">A hist\u00f3ria da Alian\u00e7a<\/h2>\n\n\n\n<div class=\"aa-divider-dot\"><\/div>\n<\/div>\n\n\n\n<div class=\"wp-block-group aa-tl is-layout-flow wp-block-group-is-layout-flow\">\n<div class=\"wp-block-group aa-tl-row is-layout-flow wp-block-group-is-layout-flow\">\n<div class=\"wp-block-group aa-tl-card is-layout-flow wp-block-group-is-layout-flow\">\n<p class=\"aa-tl-year wp-block-paragraph\">2017<\/p>\n\n\n\n<h4 class=\"wp-block-heading\">Primeiro encontro ATTR para doentes e m\u00e9dicos<\/h4>\n<\/div>\n<\/div>\n\n\n\n<div class=\"wp-block-group aa-tl-row is-layout-flow wp-block-group-is-layout-flow\">\n<div class=\"wp-block-group aa-tl-card is-layout-flow wp-block-group-is-layout-flow\">\n<p class=\"aa-tl-year wp-block-paragraph\">2018<\/p>\n\n\n\n<h4 class=\"wp-block-heading\">Cria\u00e7\u00e3o da Alian\u00e7a<\/h4>\n\n\n\n<p class=\"wp-block-paragraph\">Associa\u00e7\u00f5es de doentes de v\u00e1rios pa\u00edses unem-se para formar uma \u00fanica voz internacional pela amiloidose.<\/p>\n<\/div>\n<\/div>\n\n\n\n<div class=\"wp-block-group aa-tl-row is-layout-flow wp-block-group-is-layout-flow\">\n<div class=\"wp-block-group aa-tl-card is-layout-flow wp-block-group-is-layout-flow\">\n<p class=\"aa-tl-year wp-block-paragraph\">2019<\/p>\n\n\n\n<h4 class=\"wp-block-heading\">Segundo encontro ATTR para doentes e m\u00e9dicos<\/h4>\n<\/div>\n<\/div>\n\n\n\n<div class=\"wp-block-group aa-tl-row is-layout-flow wp-block-group-is-layout-flow\">\n<div class=\"wp-block-group aa-tl-card is-layout-flow wp-block-group-is-layout-flow\">\n<p class=\"aa-tl-year wp-block-paragraph\">2020<\/p>\n\n\n\n<h4 class=\"wp-block-heading\">Primeira rede de membros<\/h4>\n\n\n\n<p class=\"wp-block-paragraph\">A rede estende-se a v\u00e1rios continentes e dota-se de uma governa\u00e7\u00e3o partilhada e de objetivos comuns.<\/p>\n<\/div>\n<\/div>\n\n\n\n<div class=\"wp-block-group aa-tl-row is-layout-flow wp-block-group-is-layout-flow\">\n<div class=\"wp-block-group aa-tl-card is-layout-flow wp-block-group-is-layout-flow\">\n<p class=\"aa-tl-year wp-block-paragraph\">2021<\/p>\n\n\n\n<h4 class=\"wp-block-heading\">Dia Mundial da Amiloidose<\/h4>\n\n\n\n<p class=\"wp-block-paragraph\">O primeiro dia mundial de sensibiliza\u00e7\u00e3o, a 26 de outubro, mobiliza a comunidade em torno de uma causa comum.<\/p>\n<\/div>\n<\/div>\n\n\n\n<div class=\"wp-block-group aa-tl-row is-layout-flow wp-block-group-is-layout-flow\">\n<div class=\"wp-block-group aa-tl-card is-layout-flow wp-block-group-is-layout-flow\">\n<p class=\"aa-tl-year wp-block-paragraph\">2021<\/p>\n\n\n\n<h4 class=\"wp-block-heading\">Terceiro encontro ATTR para doentes e m\u00e9dicos<\/h4>\n<\/div>\n<\/div>\n\n\n\n<div class=\"wp-block-group aa-tl-row is-layout-flow wp-block-group-is-layout-flow\">\n<div class=\"wp-block-group aa-tl-card is-layout-flow wp-block-group-is-layout-flow\">\n<p class=\"aa-tl-year wp-block-paragraph\">2023<\/p>\n\n\n\n<h4 class=\"wp-block-heading\">Comit\u00e9 cient\u00edfico<\/h4>\n\n\n\n<p class=\"wp-block-paragraph\">\u00c9 criado o Comit\u00e9 cient\u00edfico, para contribuir com conhecimento cient\u00edfico e m\u00e9dico e apoiar o trabalho da Alian\u00e7a.<\/p>\n<\/div>\n<\/div>\n\n\n\n<div class=\"wp-block-group aa-tl-row is-layout-flow wp-block-group-is-layout-flow\">\n<div class=\"wp-block-group aa-tl-card is-layout-flow wp-block-group-is-layout-flow\">\n<p class=\"aa-tl-year wp-block-paragraph\">2023<\/p>\n\n\n\n<h4 class=\"wp-block-heading\">Quarto encontro ATTR para doentes e m\u00e9dicos<\/h4>\n\n\n\n<p class=\"wp-block-paragraph\">O primeiro encontro internacional ATTR re\u00fane a comunidade em Madrid.<\/p>\n<\/div>\n<\/div>\n\n\n\n<div class=\"wp-block-group aa-tl-row is-layout-flow wp-block-group-is-layout-flow\">\n<div class=\"wp-block-group aa-tl-card is-layout-flow wp-block-group-is-layout-flow\">\n<p class=\"aa-tl-year wp-block-paragraph\">2024<\/p>\n\n\n\n<h4 class=\"wp-block-heading\">Congresso AL em Bruxelas<\/h4>\n\n\n\n<p class=\"wp-block-paragraph\">Realiza-se na B\u00e9lgica o primeiro congresso dedicado \u00e0 amiloidose AL.<\/p>\n<\/div>\n<\/div>\n\n\n\n<div class=\"wp-block-group aa-tl-row is-layout-flow wp-block-group-is-layout-flow\">\n<div class=\"wp-block-group aa-tl-card is-layout-flow wp-block-group-is-layout-flow\">\n<p class=\"aa-tl-year wp-block-paragraph\">2025<\/p>\n\n\n\n<h4 class=\"wp-block-heading\">Inqu\u00e9rito AMYLife<\/h4>\n\n\n\n<p class=\"wp-block-paragraph\">Lan\u00e7amento do AMYLife, o inqu\u00e9rito internacional da Alian\u00e7a sobre a experi\u00eancia e o quotidiano das pessoas afetadas pela amiloidose.<\/p>\n<\/div>\n<\/div>\n\n\n\n<div class=\"wp-block-group aa-tl-row is-layout-flow wp-block-group-is-layout-flow\">\n<div class=\"wp-block-group aa-tl-card is-layout-flow wp-block-group-is-layout-flow\">\n<p class=\"aa-tl-year wp-block-paragraph\">2026<\/p>\n\n\n\n<h4 class=\"wp-block-heading\">Quinto encontro ATTR para doentes e m\u00e9dicos<\/h4>\n\n\n\n<p class=\"wp-block-paragraph\">O encontro internacional ATTR realiza-se em Baveno, It\u00e1lia.<\/p>\n<\/div>\n<\/div>\n\n\n\n<div class=\"wp-block-group aa-tl-row is-layout-flow wp-block-group-is-layout-flow\">\n<div class=\"wp-block-group aa-tl-card is-layout-flow wp-block-group-is-layout-flow\">\n<p class=\"aa-tl-year wp-block-paragraph\">2027<\/p>\n\n\n\n<h4 class=\"wp-block-heading\">Sexto encontro internacional AL &amp; ATTR para doentes e m\u00e9dicos<\/h4>\n\n\n\n<p class=\"wp-block-paragraph\">Previsto: os encontros AL e ATTR v\u00e3o juntar-se num \u00fanico evento internacional para doentes, profissionais de sa\u00fade e toda a comunidade da amiloidose.<\/p>\n<\/div>\n<\/div>\n<\/div>\n\n\n\n<div class=\"wp-block-buttons aa-timeline__continue is-layout-flex wp-block-buttons-is-layout-flex\">\n<div class=\"wp-block-button aa-btn aa-btn--ghost-teal aa-btn--lg\"><a class=\"wp-block-button__link wp-element-button\" href=\"https:\/\/www.amyloidosisalliance.org\/pt\/os-nossos-eventos\/\">A hist\u00f3ria continua<\/a><\/div>\n<\/div>\n<\/div>\n<\/section>\n\n<section class=\"wp-block-group aa-next is-layout-flow wp-block-group-is-layout-flow\">\n<div class=\"wp-block-group aa-inner is-layout-flow wp-block-group-is-layout-flow\">\n<div class=\"wp-block-group aa-next__head is-layout-flow wp-block-group-is-layout-flow\">\n<p class=\"aa-section-num wp-block-paragraph\">Continuar<\/p>\n\n\n\n<h2 class=\"wp-block-heading\">Para saber mais<\/h2>\n<\/div>\n\n\n\n<div class=\"wp-block-group aa-next__grid is-layout-flow wp-block-group-is-layout-flow\">\n<div class=\"wp-block-group aa-next-card is-layout-flow wp-block-group-is-layout-flow\">\n<h3 class=\"wp-block-heading\"><a href=\"https:\/\/www.amyloidosisalliance.org\/pt\/as-nossas-missoes\/\">Descubra as nossas miss\u00f5es<\/a><\/h3>\n\n\n\n<p class=\"wp-block-paragraph\">Descubra as prioridades estrat\u00e9gicas que orientam o nosso trabalho, da investiga\u00e7\u00e3o \u00e0 defesa dos doentes e \u00e0 sensibiliza\u00e7\u00e3o.<\/p>\n<\/div>\n\n\n\n<div class=\"wp-block-group aa-next-card is-layout-flow wp-block-group-is-layout-flow\">\n<h3 class=\"wp-block-heading\"><a href=\"https:\/\/www.amyloidosisalliance.org\/pt\/a-equipa\/\">Conhecer a equipa<\/a><\/h3>\n\n\n\n<p class=\"wp-block-paragraph\">Conhe\u00e7a as pessoas e os especialistas que tornam a Alian\u00e7a poss\u00edvel.<\/p>\n<\/div>\n\n\n\n<div class=\"wp-block-group aa-next-card is-layout-flow wp-block-group-is-layout-flow\">\n<h3 class=\"wp-block-heading\"><a href=\"https:\/\/www.amyloidosisalliance.org\/pt\/junte-se-a-nos\/\">Junte-se a n\u00f3s<\/a><\/h3>\n\n\n\n<p class=\"wp-block-paragraph\">Torne-se nosso parceiro para ampliar o seu impacto e refor\u00e7ar a voz dos doentes em todo o mundo.<\/p>\n<\/div>\n<\/div>\n<\/div>\n<\/section>\n","protected":false},"excerpt":{"rendered":"<p>In\u00edcio\u203aA Alian\u00e7a\u203aQuem somos A Alian\u00e7a Quem somos A Amyloidosis Alliance \u00e9 uma coliga\u00e7\u00e3o internacional que re\u00fane associa\u00e7\u00f5es de doentes, especialistas m\u00e9dicos e institui\u00e7\u00f5es de investiga\u00e7\u00e3o em torno de uma miss\u00e3o comum: p\u00f4r fim ao longo percurso at\u00e9 ao diagn\u00f3stico e transformar os cuidados prestados aos doentes com amiloidose em todo o mundo. Assente na convic\u00e7\u00e3o [&hellip;]<\/p>\n","protected":false},"author":1,"featured_media":0,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"footnotes":""},"class_list":["post-3130","page","type-page","status-publish","hentry"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v28.6 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>Sobre a Amyloidosis Alliance: quem somos<\/title>\n<meta name=\"description\" content=\"Uma coliga\u00e7\u00e3o internacional de organiza\u00e7\u00f5es de doentes, especialistas m\u00e9dicos e institui\u00e7\u00f5es de investiga\u00e7\u00e3o que trabalha para melhorar os cuidados prestados \u00e0s pessoas afetadas pela amiloidose.\" \/>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.amyloidosisalliance.org\/pt\/quem-somos\/\" \/>\n<meta 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