Privacy Policy

Amyloidosis Alliance operates and may operate other websites. It is Amyloidosis Alliance policy to respect your privacy regarding any information we may collect while operating our websites.

Website Visitors

Like most website operators, Amyloidosis Alliance collects non-personally-identifying information of the sort that web browsers and servers typically make available, such as the browser type, language preference, referring site, and the date and time of each visitor request. Amyloidosis Alliance purpose in collecting non-personally identifying information is to better understand how Amyloidosis Alliancevisitors use its website. From time to time, Amyloidosis Alliance may release non-personally-identifying information in the aggregate, e.g., by publishing a report on trends in the usage of its website.
Amyloidosis Alliance also collects potentially personally-identifying information like Internet Protocol (IP) addresses for logged in users and for users leaving comments on blogs/sites. Amyloidosis Alliance only discloses logged in user and commenter IP addresses under the same circumstances that it uses and discloses personally-identifying information as described below, except that commenter IP addresses and email addresses are visible and disclosed to the administrators of the blog/site where the comment was left.

Gathering of Personally-Identifying Information

Certain visitors to Amyloidosis Alliance websites choose to interact with Amyloidosis Alliance in ways that require Amyloidosis Alliance to gather personally-identifying information. The amount and type of information that Amyloidosis Alliance gathers depends on the nature of the interaction. For example, we ask visitors who sign up at to provide a username and email address. Those who engage in transactions with Amyloidosis Alliance are asked to provide additional information, including as necessary the personal and financial information required to process those transactions. In each case, Amyloidosis Alliance collects such information only in so far as is necessary or appropriate to fulfill the purpose of the visitor's interaction with Amyloidosis Alliance. Amyloidosis Alliance does not disclose personally-identifying information other than as described below. And visitors can always refuse to supply personally-identifying information, with the cave at that it may prevent them from engaging in certain website-related activities.

Right of Internet users: right of access and rectification
In accordance with the provisions of the law n ° 78-17 of January 6th, 1978 relative to the data processing, the files and the liberties, the Net surfers have a right of access, of modification, rectification and suppression of the data which them concern. This right can be exercised by mail to

Aggregated Statistics

Amyloidosis Alliance may collect statistics about the behavior of visitors to its websites. Amyloidosis Alliance may display this information publicly or provide it to others. However, Amyloidosis Alliance does not disclose personally-identifying information other than as described below.

Protection of Certain Personally-Identifying Information

Amyloidosis Alliance discloses potentially personally-identifying and personally-identifying information only to those of its employees, contractors and affiliated organizations that (i) need to know that information in order to process it on Amyloidosis Alliance behalf or to provide services available at Amyloidosis Alliance websites, and (ii) that have agreed not to disclose it to others. Some of those employees, contractors and affiliated organizations may be located outside of your home country; by using Amyloidosis Alliancewebsites, you consent to the transfer of such information to them. Amyloidosis Alliance will not rent or sell potentially personally-identifying and personally-identifying information to anyone. Other than to its employees, contractors and affiliated organizations, as described above, Amyloidosis Alliance discloses potentially personally-identifying and personally-identifying information only in response to a subpoena, court order or other governmental request, or when Amyloidosis Alliance believes in good faith that disclosure is reasonably necessary to protect the property or rights of Amyloidosis Alliance, third parties or the public at large. If you are a registered user of an Amyloidosis Alliance website and have supplied your email address, Amyloidosis Alliance may occasionally send you an email to tell you about new features, solicit your feedback, or just keep you up to date with what's going on with Amyloidosis Alliance and our products. If you send us a request (for example via email or via one of our feedback mechanisms), we reserve the right to publish it in order to help us clarify or respond to your request or to help us support other users. Amyloidosis Alliance takes all measures reasonably necessary to protect against the unauthorized access, use, alteration or destruction of potentially personally-identifying and personally-identifying information.


A cookie is a string of information that a website stores on a visitor's computer, and that the visitor's browser provides to the website each time the visitor returns. Amyloidosis Alliance uses cookies to help Amyloidosis Alliance identify and track visitors, their usage of Amyloidosis Alliance website, and their website access preferences. Amyloidosis Alliance visitors who do not wish to have cookies placed on their computers should set their browsers to refuse cookies before using Amyloidosis Alliance websites, with the drawback that certain features of Amyloidosis Alliance websites may not function properly without the aid of cookies.
Business Transfers
If Amyloidosis Alliance, or substantially all of its assets, were acquired, or in the unlikely event that Amyloidosis Alliance goes out of business or enters bankruptcy, user information would be one of the assets that is transferred or acquired by a third party. You acknowledge that such transfers may occur, and that any acquirer of Amyloidosis Alliance may continue to use your personal information as set forth in this policy.


Ads appearing on any of our websites may be delivered to users by advertising partners, who may set cookies. These cookies allow the ad server to recognize your computer each time they send you an online advertisement to compile information about you or others who use your computer. This information allows ad networks to, among other things, deliver targeted advertisements that they believe will be of most interest to you. This Privacy Policy covers the use of cookies by Amyloidosis Alliance and does not cover the use of cookies by any advertisers.
Reproduction of the logo or the contents (texts, diagrams, photos, films, videos ...)
Whatever the medium (brochure, written support, ...) and its destination (internal or external ...) if you need to use the logo of our association or a partial or complete copy of one of the contents of our site, you must send us a request to An answer will be sent to you.
Without written authorization received in return, the use of our logo and the contents of our site is prohibited.

Creating links to our site

If you wish to establish a link to our site, you must send us a request to  A response will be sent to you.
Without written authorization received in return, it is prohibited to establish a link to our site.

Privacy Policy Changes

Although most changes are likely to be minor, Amyloidosis Alliance may change its Privacy Policy from time to time, and in Amyloidosis Alliance sole discretion. Amyloidosis Alliance encourages visitors to frequently check this page for any changes to its Privacy Policy. If you have a account, you might also receive an alert informing you of these changes. Your continued use of this site after any change in this Privacy Policy will constitute your acceptance of such change.

If you have any question or concerns regarding our privacy policy, please direct them to

Amyloidosis Alliance “The voice of patients”
66 rue Saint Jacques
Tel : +33(0)491.811.716