{"id":4824,"date":"2022-08-01T18:13:00","date_gmt":"2022-08-01T16:13:00","guid":{"rendered":"https:\/\/www.amyloidosisalliance.org\/wereldamyloidosedag\/"},"modified":"2026-11-03T10:32:51","modified_gmt":"2026-11-03T09:32:51","slug":"wereldamyloidosedag","status":"publish","type":"post","link":"https:\/\/www.amyloidosisalliance.org\/nl\/wereldamyloidosedag\/","title":{"rendered":"Wereldamylo\u00efdosedag"},"content":{"rendered":"\n<h2>Wereldamylo\u00efdosedag 2022<\/h2>\nOm bekend te maken dat pati\u00ebnten met amylo\u00efdose gemiddeld pas na 4 jaar een diagnose krijgen, en om iedereen die met de ziekte te maken heeft samen te brengen, hebben de Amyloidosis Alliance en verschillende andere pati\u00ebntenorganisaties in 2021 Wereldamylo\u00efdosedag in het leven geroepen, met niet minder dan 18 landen op 4 continenten.\n<h2>Amylo\u00efdose is een zeldzame, complexe ziekte met vele gezichten.<\/h2>\nAmylo\u00efdose is nog altijd weinig bekend bij het brede publiek en bij zorgverleners, waardoor de ziekte nog moeilijker op te sporen is. Hoe langer het duurt, hoe groter de risico\u2019s. Als amylo\u00efdose niet snel wordt behandeld, is de levensverwachting bij de ernstigste vormen 3 tot 5 jaar.\n\nHet doel van de dag van dit jaar, op 26 oktober 2022, is daarom zo veel mogelijk mensen samen te brengen tegen amylo\u00efdose en de amylo\u00efdosegemeenschap in contact te brengen met een breed publiek.\n\nHet is nu essentieel om zulke acties op te zetten en solidariteit te tonen, om de ziekte bekender te maken en een betere en snellere toegang tot diagnose en zorg te garanderen. Door de kennis over amylo\u00efdose bij alle zorgverleners te verspreiden, zullen we de ziekte vaker vermoeden en het aantal verkeerde diagnoses verminderen.\n<h2>\nAlleen samen kunnen we vooruitgang boeken.<\/h2>\nDaarom is het belangrijk om op \u00e9\u00e9n dag samen te komen en pati\u00ebnten, mantelzorgers en alle andere betrokkenen te verenigen. Daarom is Wereldamylo\u00efdosedag er voor iedereen: gezondheidsautoriteiten en zorgverleners, maatschappelijk werkers, farmaceutische bedrijven, onderzoekers, vrijwilligers, verenigingen&#8230; ieder van u kan onze strijd versterken en ons helpen vooruit te komen.\n<h3>Laten we, om pati\u00ebnten en hun families te steunen, de schakel zijn die hen in leven houdt.<\/h3>\nIn een tijd waarin digitale technologie belangrijker is dan ooit, hebben we op sociale netwerken ook een digitale bewustwordingscampagne opgezet onder de naam \u201cBe the Link\u201d. Door de oranje Be the Link-schakel te delen, kunt u ook online helpen de ziekte bekender te maken.\n","protected":false},"excerpt":{"rendered":"<p>Wereldamylo\u00efdosedag werd in 2021 in het leven geroepen om amylo\u00efdose bekender te maken, een ziekte die vaak pas jaren te laat wordt gediagnosticeerd. De editie van 2022 vindt plaats op 26 oktober.<\/p>\n","protected":false},"author":1,"featured_media":4825,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[107],"tags":[],"class_list":["post-4824","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-uncategorized-nl"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v28.6 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>Wereldamylo\u00efdosedag<\/title>\n<meta name=\"description\" content=\"Wereldamylo\u00efdosedag werd in 2021 in het leven geroepen om amylo\u00efdose bekender te maken, een ziekte die vaak pas jaren te laat wordt gediagnosticeerd. De editie van 2022 vindt plaats op 26 oktober.\" \/>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.amyloidosisalliance.org\/nl\/wereldamyloidosedag\/\" \/>\n<meta property=\"og:locale\" content=\"nl_NL\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Wereldamylo\u00efdosedag\" \/>\n<meta property=\"og:description\" content=\"Wereldamylo\u00efdosedag werd in 2021 in het leven geroepen om amylo\u00efdose bekender te maken, een ziekte die vaak pas jaren te laat wordt gediagnosticeerd. De editie van 2022 vindt plaats op 26 oktober.\" \/>\n<meta property=\"og:url\" content=\"https:\/\/www.amyloidosisalliance.org\/nl\/wereldamyloidosedag\/\" \/>\n<meta property=\"og:site_name\" content=\"Amyloidosis Alliance\" \/>\n<meta property=\"article:publisher\" content=\"https:\/\/www.facebook.com\/AmyloidosisAlliance\/\" \/>\n<meta property=\"article:published_time\" content=\"2022-08-01T16:13:00+00:00\" \/>\n<meta property=\"article:modified_time\" content=\"2026-11-03T09:32:51+00:00\" \/>\n<meta property=\"og:image\" content=\"https:\/\/www.amyloidosisalliance.org\/wp-content\/uploads\/2026\/08\/278648789_359237499600876_6097345779473026203_n.png\" \/>\n\t<meta property=\"og:image:width\" content=\"1080\" \/>\n\t<meta property=\"og:image:height\" content=\"1080\" \/>\n\t<meta property=\"og:image:type\" content=\"image\/png\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:creator\" content=\"@amyloidosisa\" \/>\n<meta name=\"twitter:site\" content=\"@amyloidosisa\" \/>\n<meta name=\"twitter:label1\" content=\"Geschatte leestijd\" \/>\n\t<meta name=\"twitter:data1\" content=\"2 minuten\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\\\/\\\/schema.org\",\"@graph\":[{\"@type\":\"Article\",\"@id\":\"https:\\\/\\\/www.amyloidosisalliance.org\\\/nl\\\/wereldamyloidosedag\\\/#article\",\"isPartOf\":{\"@id\":\"https:\\\/\\\/www.amyloidosisalliance.org\\\/nl\\\/wereldamyloidosedag\\\/\"},\"author\":{\"name\":\"Amyloidosis Alliance\",\"@id\":\"https:\\\/\\\/www.amyloidosisalliance.org\\\/nl\\\/#organization\"},\"headline\":\"Wereldamylo\u00efdosedag\",\"datePublished\":\"2022-08-01T16:13:00+00:00\",\"dateModified\":\"2026-11-03T09:32:51+00:00\",\"mainEntityOfPage\":{\"@id\":\"https:\\\/\\\/www.amyloidosisalliance.org\\\/nl\\\/wereldamyloidosedag\\\/\"},\"wordCount\":323,\"commentCount\":0,\"publisher\":{\"@id\":\"https:\\\/\\\/www.amyloidosisalliance.org\\\/nl\\\/#organization\"},\"image\":{\"@id\":\"https:\\\/\\\/www.amyloidosisalliance.org\\\/nl\\\/wereldamyloidosedag\\\/#primaryimage\"},\"thumbnailUrl\":\"https:\\\/\\\/www.amyloidosisalliance.org\\\/wp-content\\\/uploads\\\/2026\\\/08\\\/278648789_359237499600876_6097345779473026203_n.png\",\"inLanguage\":\"nl-NL\"},{\"@type\":\"WebPage\",\"@id\":\"https:\\\/\\\/www.amyloidosisalliance.org\\\/nl\\\/wereldamyloidosedag\\\/\",\"url\":\"https:\\\/\\\/www.amyloidosisalliance.org\\\/nl\\\/wereldamyloidosedag\\\/\",\"name\":\"Wereldamylo\u00efdosedag\",\"isPartOf\":{\"@id\":\"https:\\\/\\\/www.amyloidosisalliance.org\\\/nl\\\/#website\"},\"primaryImageOfPage\":{\"@id\":\"https:\\\/\\\/www.amyloidosisalliance.org\\\/nl\\\/wereldamyloidosedag\\\/#primaryimage\"},\"image\":{\"@id\":\"https:\\\/\\\/www.amyloidosisalliance.org\\\/nl\\\/wereldamyloidosedag\\\/#primaryimage\"},\"thumbnailUrl\":\"https:\\\/\\\/www.amyloidosisalliance.org\\\/wp-content\\\/uploads\\\/2026\\\/08\\\/278648789_359237499600876_6097345779473026203_n.png\",\"datePublished\":\"2022-08-01T16:13:00+00:00\",\"dateModified\":\"2026-11-03T09:32:51+00:00\",\"description\":\"Wereldamylo\u00efdosedag werd in 2021 in het leven geroepen om amylo\u00efdose bekender te maken, een ziekte die vaak pas jaren te laat wordt gediagnosticeerd. De editie van 2022 vindt plaats op 26 oktober.\",\"breadcrumb\":{\"@id\":\"https:\\\/\\\/www.amyloidosisalliance.org\\\/nl\\\/wereldamyloidosedag\\\/#breadcrumb\"},\"inLanguage\":\"nl-NL\",\"potentialAction\":[{\"@type\":\"ReadAction\",\"target\":[\"https:\\\/\\\/www.amyloidosisalliance.org\\\/nl\\\/wereldamyloidosedag\\\/\"]}]},{\"@type\":\"ImageObject\",\"inLanguage\":\"nl-NL\",\"@id\":\"https:\\\/\\\/www.amyloidosisalliance.org\\\/nl\\\/wereldamyloidosedag\\\/#primaryimage\",\"url\":\"https:\\\/\\\/www.amyloidosisalliance.org\\\/wp-content\\\/uploads\\\/2026\\\/08\\\/278648789_359237499600876_6097345779473026203_n.png\",\"contentUrl\":\"https:\\\/\\\/www.amyloidosisalliance.org\\\/wp-content\\\/uploads\\\/2026\\\/08\\\/278648789_359237499600876_6097345779473026203_n.png\",\"width\":1080,\"height\":1080},{\"@type\":\"BreadcrumbList\",\"@id\":\"https:\\\/\\\/www.amyloidosisalliance.org\\\/nl\\\/wereldamyloidosedag\\\/#breadcrumb\",\"itemListElement\":[{\"@type\":\"ListItem\",\"position\":1,\"name\":\"Home\",\"item\":\"https:\\\/\\\/www.amyloidosisalliance.org\\\/nl\\\/home\\\/\"},{\"@type\":\"ListItem\",\"position\":2,\"name\":\"Wereldamylo\u00efdosedag\"}]},{\"@type\":\"WebSite\",\"@id\":\"https:\\\/\\\/www.amyloidosisalliance.org\\\/nl\\\/#website\",\"url\":\"https:\\\/\\\/www.amyloidosisalliance.org\\\/nl\\\/\",\"name\":\"Amyloidosis Alliance\",\"description\":\"\",\"publisher\":{\"@id\":\"https:\\\/\\\/www.amyloidosisalliance.org\\\/nl\\\/#organization\"},\"potentialAction\":[{\"@type\":\"SearchAction\",\"target\":{\"@type\":\"EntryPoint\",\"urlTemplate\":\"https:\\\/\\\/www.amyloidosisalliance.org\\\/nl\\\/?s={search_term_string}\"},\"query-input\":{\"@type\":\"PropertyValueSpecification\",\"valueRequired\":true,\"valueName\":\"search_term_string\"}}],\"inLanguage\":\"nl-NL\"},{\"@type\":\"Organization\",\"@id\":\"https:\\\/\\\/www.amyloidosisalliance.org\\\/nl\\\/#organization\",\"name\":\"Amyloidosis Alliance\",\"url\":\"https:\\\/\\\/www.amyloidosisalliance.org\\\/nl\\\/\",\"logo\":{\"@type\":\"ImageObject\",\"inLanguage\":\"nl-NL\",\"@id\":\"https:\\\/\\\/www.amyloidosisalliance.org\\\/nl\\\/#\\\/schema\\\/logo\\\/image\\\/\",\"url\":\"https:\\\/\\\/www.amyloidosisalliance.org\\\/wp-content\\\/uploads\\\/2026\\\/09\\\/logo.png\",\"contentUrl\":\"https:\\\/\\\/www.amyloidosisalliance.org\\\/wp-content\\\/uploads\\\/2026\\\/09\\\/logo.png\",\"width\":252,\"height\":252,\"caption\":\"Amyloidosis Alliance\"},\"image\":{\"@id\":\"https:\\\/\\\/www.amyloidosisalliance.org\\\/nl\\\/#\\\/schema\\\/logo\\\/image\\\/\"},\"sameAs\":[\"https:\\\/\\\/www.facebook.com\\\/AmyloidosisAlliance\\\/\",\"https:\\\/\\\/x.com\\\/amyloidosisa\"]}]}<\/script>\n<!-- \/ Yoast SEO plugin. -->","yoast_head_json":{"title":"Wereldamylo\u00efdosedag","description":"Wereldamylo\u00efdosedag werd in 2021 in het leven geroepen om amylo\u00efdose bekender te maken, een ziekte die vaak pas jaren te laat wordt gediagnosticeerd. De editie van 2022 vindt plaats op 26 oktober.","robots":{"index":"index","follow":"follow","max-snippet":"max-snippet:-1","max-image-preview":"max-image-preview:large","max-video-preview":"max-video-preview:-1"},"canonical":"https:\/\/www.amyloidosisalliance.org\/nl\/wereldamyloidosedag\/","og_locale":"nl_NL","og_type":"article","og_title":"Wereldamylo\u00efdosedag","og_description":"Wereldamylo\u00efdosedag werd in 2021 in het leven geroepen om amylo\u00efdose bekender te maken, een ziekte die vaak pas jaren te laat wordt gediagnosticeerd. De editie van 2022 vindt plaats op 26 oktober.","og_url":"https:\/\/www.amyloidosisalliance.org\/nl\/wereldamyloidosedag\/","og_site_name":"Amyloidosis Alliance","article_publisher":"https:\/\/www.facebook.com\/AmyloidosisAlliance\/","article_published_time":"2022-08-01T16:13:00+00:00","article_modified_time":"2026-11-03T09:32:51+00:00","og_image":[{"width":1080,"height":1080,"url":"https:\/\/www.amyloidosisalliance.org\/wp-content\/uploads\/2026\/08\/278648789_359237499600876_6097345779473026203_n.png","type":"image\/png"}],"twitter_card":"summary_large_image","twitter_creator":"@amyloidosisa","twitter_site":"@amyloidosisa","twitter_misc":{"Geschatte leestijd":"2 minuten"},"schema":{"@context":"https:\/\/schema.org","@graph":[{"@type":"Article","@id":"https:\/\/www.amyloidosisalliance.org\/nl\/wereldamyloidosedag\/#article","isPartOf":{"@id":"https:\/\/www.amyloidosisalliance.org\/nl\/wereldamyloidosedag\/"},"author":{"name":"Amyloidosis Alliance","@id":"https:\/\/www.amyloidosisalliance.org\/nl\/#organization"},"headline":"Wereldamylo\u00efdosedag","datePublished":"2022-08-01T16:13:00+00:00","dateModified":"2026-11-03T09:32:51+00:00","mainEntityOfPage":{"@id":"https:\/\/www.amyloidosisalliance.org\/nl\/wereldamyloidosedag\/"},"wordCount":323,"commentCount":0,"publisher":{"@id":"https:\/\/www.amyloidosisalliance.org\/nl\/#organization"},"image":{"@id":"https:\/\/www.amyloidosisalliance.org\/nl\/wereldamyloidosedag\/#primaryimage"},"thumbnailUrl":"https:\/\/www.amyloidosisalliance.org\/wp-content\/uploads\/2026\/08\/278648789_359237499600876_6097345779473026203_n.png","inLanguage":"nl-NL"},{"@type":"WebPage","@id":"https:\/\/www.amyloidosisalliance.org\/nl\/wereldamyloidosedag\/","url":"https:\/\/www.amyloidosisalliance.org\/nl\/wereldamyloidosedag\/","name":"Wereldamylo\u00efdosedag","isPartOf":{"@id":"https:\/\/www.amyloidosisalliance.org\/nl\/#website"},"primaryImageOfPage":{"@id":"https:\/\/www.amyloidosisalliance.org\/nl\/wereldamyloidosedag\/#primaryimage"},"image":{"@id":"https:\/\/www.amyloidosisalliance.org\/nl\/wereldamyloidosedag\/#primaryimage"},"thumbnailUrl":"https:\/\/www.amyloidosisalliance.org\/wp-content\/uploads\/2026\/08\/278648789_359237499600876_6097345779473026203_n.png","datePublished":"2022-08-01T16:13:00+00:00","dateModified":"2026-11-03T09:32:51+00:00","description":"Wereldamylo\u00efdosedag werd in 2021 in het leven geroepen om amylo\u00efdose bekender te maken, een ziekte die vaak pas jaren te laat wordt gediagnosticeerd. De editie van 2022 vindt plaats op 26 oktober.","breadcrumb":{"@id":"https:\/\/www.amyloidosisalliance.org\/nl\/wereldamyloidosedag\/#breadcrumb"},"inLanguage":"nl-NL","potentialAction":[{"@type":"ReadAction","target":["https:\/\/www.amyloidosisalliance.org\/nl\/wereldamyloidosedag\/"]}]},{"@type":"ImageObject","inLanguage":"nl-NL","@id":"https:\/\/www.amyloidosisalliance.org\/nl\/wereldamyloidosedag\/#primaryimage","url":"https:\/\/www.amyloidosisalliance.org\/wp-content\/uploads\/2026\/08\/278648789_359237499600876_6097345779473026203_n.png","contentUrl":"https:\/\/www.amyloidosisalliance.org\/wp-content\/uploads\/2026\/08\/278648789_359237499600876_6097345779473026203_n.png","width":1080,"height":1080},{"@type":"BreadcrumbList","@id":"https:\/\/www.amyloidosisalliance.org\/nl\/wereldamyloidosedag\/#breadcrumb","itemListElement":[{"@type":"ListItem","position":1,"name":"Home","item":"https:\/\/www.amyloidosisalliance.org\/nl\/home\/"},{"@type":"ListItem","position":2,"name":"Wereldamylo\u00efdosedag"}]},{"@type":"WebSite","@id":"https:\/\/www.amyloidosisalliance.org\/nl\/#website","url":"https:\/\/www.amyloidosisalliance.org\/nl\/","name":"Amyloidosis Alliance","description":"","publisher":{"@id":"https:\/\/www.amyloidosisalliance.org\/nl\/#organization"},"potentialAction":[{"@type":"SearchAction","target":{"@type":"EntryPoint","urlTemplate":"https:\/\/www.amyloidosisalliance.org\/nl\/?s={search_term_string}"},"query-input":{"@type":"PropertyValueSpecification","valueRequired":true,"valueName":"search_term_string"}}],"inLanguage":"nl-NL"},{"@type":"Organization","@id":"https:\/\/www.amyloidosisalliance.org\/nl\/#organization","name":"Amyloidosis Alliance","url":"https:\/\/www.amyloidosisalliance.org\/nl\/","logo":{"@type":"ImageObject","inLanguage":"nl-NL","@id":"https:\/\/www.amyloidosisalliance.org\/nl\/#\/schema\/logo\/image\/","url":"https:\/\/www.amyloidosisalliance.org\/wp-content\/uploads\/2026\/09\/logo.png","contentUrl":"https:\/\/www.amyloidosisalliance.org\/wp-content\/uploads\/2026\/09\/logo.png","width":252,"height":252,"caption":"Amyloidosis Alliance"},"image":{"@id":"https:\/\/www.amyloidosisalliance.org\/nl\/#\/schema\/logo\/image\/"},"sameAs":["https:\/\/www.facebook.com\/AmyloidosisAlliance\/","https:\/\/x.com\/amyloidosisa"]}]}},"_links":{"self":[{"href":"https:\/\/www.amyloidosisalliance.org\/nl\/wp-json\/wp\/v2\/posts\/4824","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.amyloidosisalliance.org\/nl\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.amyloidosisalliance.org\/nl\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.amyloidosisalliance.org\/nl\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/www.amyloidosisalliance.org\/nl\/wp-json\/wp\/v2\/comments?post=4824"}],"version-history":[{"count":1,"href":"https:\/\/www.amyloidosisalliance.org\/nl\/wp-json\/wp\/v2\/posts\/4824\/revisions"}],"predecessor-version":[{"id":4826,"href":"https:\/\/www.amyloidosisalliance.org\/nl\/wp-json\/wp\/v2\/posts\/4824\/revisions\/4826"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.amyloidosisalliance.org\/nl\/wp-json\/wp\/v2\/media\/4825"}],"wp:attachment":[{"href":"https:\/\/www.amyloidosisalliance.org\/nl\/wp-json\/wp\/v2\/media?parent=4824"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.amyloidosisalliance.org\/nl\/wp-json\/wp\/v2\/categories?post=4824"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.amyloidosisalliance.org\/nl\/wp-json\/wp\/v2\/tags?post=4824"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}