{"id":4696,"date":"2023-10-11T08:53:00","date_gmt":"2023-10-11T06:53:00","guid":{"rendered":"https:\/\/www.amyloidosisalliance.org\/terugkijken-internationaal-webinar-over-aa-amyloidose\/"},"modified":"2026-11-03T10:30:59","modified_gmt":"2026-11-03T09:30:59","slug":"terugkijken-internationaal-webinar-over-aa-amyloidose","status":"publish","type":"post","link":"https:\/\/www.amyloidosisalliance.org\/nl\/terugkijken-internationaal-webinar-over-aa-amyloidose\/","title":{"rendered":"Terugkijken: internationaal webinar over AA-amylo\u00efdose"},"content":{"rendered":"\n<p class=\"wp-block-paragraph\">In de wereld van zeldzame ziekten is elk stukje kennis waardevol. Pati\u00ebnten, mantelzorgers, onderzoekers en belangenbehartigers zoeken voortdurend naar inzicht in het complexe landschap van markttoegang en vergoeding van behandelingen, en in de ingewikkelde regels die de contacten tussen fabrikanten en pati\u00ebntenverenigingen voor amylo\u00efdose bepalen. Heeft u ons recente webinar gemist? Geen zorgen: u kunt het terugkijken op YouTube.<\/p>\n\n<p class=\"wp-block-paragraph\">Duur: twee sessies + 30 minuten vragen en antwoorden<\/p>\n\n<figure class=\"wp-block-embed is-type-video is-provider-youtube wp-block-embed-youtube wp-embed-aspect-16-9 wp-has-aspect-ratio\"><div class=\"wp-block-embed__wrapper\">\n<iframe loading=\"lazy\" title=\"International Webinar Amyloidosis AA\" width=\"500\" height=\"281\" src=\"https:\/\/www.youtube.com\/embed\/fchDUnbGczc?feature=oembed\" frameborder=\"0\" allow=\"accelerometer; autoplay; clipboard-write; encrypted-media; gyroscope; picture-in-picture; web-share\" referrerpolicy=\"strict-origin-when-cross-origin\" allowfullscreen><\/iframe>\n<\/div><\/figure>\n\n<div style=\"height:41px\" aria-hidden=\"true\" class=\"wp-block-spacer\"><\/div>\n\n<h3 class=\"wp-block-heading\"><strong>Sessie 1: markttoegang en vergoeding van behandelingen beter begrijpen<\/strong><\/h3>\n\n<p class=\"wp-block-paragraph\"><br\/>In de eerste sessie verdiepten onze experts zich in de doolhof van markttoegang en vergoeding van behandelingen voor AA-amylo\u00efdose. We bespraken strategie\u00ebn om de uitdagingen waarmee pati\u00ebnten, families en pati\u00ebntenverenigingen vaak te maken hebben beter te begrijpen en aan te pakken. Enkele hoogtepunten:<\/p>\n\n<p class=\"wp-block-paragraph\">Uitdagingen bij markttoegang: de sessie begint met de specifieke obstakels waar behandelingen voor AA-amylo\u00efdose op de markt op stuiten, waaronder prijs, financiering en distributie.<br\/>Vergoedingsstrategie\u00ebn: experts geven inzicht in doeltreffende vergoedingsstrategie\u00ebn en benadrukken het belang van belangenbehartiging door pati\u00ebnten en van datagedreven benaderingen.<br\/>Pati\u00ebntgerichte benaderingen: ontdek hoe het centraal stellen van pati\u00ebnten in de discussies over toegang het beleid kan be\u00efnvloeden en positieve verandering kan brengen.<\/p>\n\n<h3 class=\"wp-block-heading\"><br\/>Sessie 2: de regels en beperkingen voor de contacten tussen fabrikanten en pati\u00ebntenverenigingen<\/h3>\n\n<p class=\"wp-block-paragraph\"><br\/>De tweede sessie gaat dieper in op het complexe geheel van regelgeving, ethiek en goede praktijken dat de relaties tussen farmaceutische bedrijven en pati\u00ebntenorganisaties bepaalt. Enkele hoogtepunten van deze sessie:<\/p>\n\n<p class=\"wp-block-paragraph\">Transparantie en samenwerking: hoe fabrikanten en pati\u00ebntenverenigingen kunnen samenwerken met inachtneming van strikte ethische richtlijnen en transparantie-eisen.<br\/>Juridische kaders: een beter begrip van de juridische kaders voor de contacten en afspraken tussen deze twee belangrijke partijen.<br\/>Casestudy\u2019s: concrete voorbeelden van geslaagde partnerschappen tonen hoe men het best kan samenwerken in het belang van pati\u00ebnten met een zeldzame ziekte.<\/p>\n\n<h3 class=\"wp-block-heading\"><br\/>30 minuten vragen en antwoorden<\/h3>\n\n<p class=\"wp-block-paragraph\"><br\/>Na deze twee leerzame sessies gingen onze experts tijdens een levendige vragenronde van 30 minuten in gesprek met een zeer betrokken publiek. De deelnemers konden hun vragen rechtstreeks aan de sprekers stellen en kregen persoonlijke antwoorden en advies.<\/p>\n\n<p class=\"wp-block-paragraph\"><br\/>De opname van dit verhelderende webinar staat nu op ons YouTube-kanaal, zodat u het kunt bekijken wanneer het u uitkomt. Of u nu pati\u00ebnt, mantelzorger, belangenbehartiger of zorgverlener bent, dit webinar geeft u de kennis en de middelen om de complexe wereld van markttoegang voor behandelingen van zeldzame ziekten en de contacten tussen fabrikanten en pati\u00ebntenverenigingen beter te begrijpen.<\/p>\n\n<p class=\"wp-block-paragraph\">Ga met ons mee op weg naar een betere toekomst voor de amylo\u00efdosegemeenschappen. Bekijk de opname vandaag nog en geef uzelf de middelen om iets te betekenen voor mensen die door deze moeilijke aandoeningen getroffen zijn.<\/p>\n\n<p class=\"wp-block-paragraph\">Samen kunnen we verandering brengen en het leven van mensen met amylo\u00efdose wereldwijd verbeteren. Blijf op de hoogte, blijf betrokken en blijf in contact met de Amyloidosis Alliance.<\/p>\n","protected":false},"excerpt":{"rendered":"<p>Terugkijken: het internationale webinar over AA-amylo\u00efdose, over markttoegang en vergoeding van behandelingen en de regels tussen fabrikanten en pati\u00ebntenorganisaties.<\/p>\n","protected":false},"author":1,"featured_media":4697,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[107],"tags":[],"class_list":["post-4696","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-uncategorized-nl"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v28.6 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>Terugkijken: internationaal webinar over AA-amylo\u00efdose<\/title>\n<meta name=\"description\" content=\"Terugkijken: het internationale webinar over AA-amylo\u00efdose, over markttoegang en 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