{"id":3704,"date":"2026-07-07T11:33:50","date_gmt":"2026-07-07T09:33:50","guid":{"rendered":"https:\/\/www.amyloidosisalliance.org\/over-ons\/"},"modified":"2026-11-03T08:45:05","modified_gmt":"2026-11-03T07:45:05","slug":"over-ons","status":"publish","type":"page","link":"https:\/\/www.amyloidosisalliance.org\/nl\/over-ons\/","title":{"rendered":"Over ons"},"content":{"rendered":"\n<nav aria-label=\"Breadcrumb\" class=\"wp-block-group aa-breadcrumb is-layout-flow wp-block-group-is-layout-flow\">\n<div class=\"aa-inner\"><a href=\"\/\">Home<\/a><span class=\"aa-breadcrumb__sep\">\u203a<\/span><span class=\"aa-breadcrumb__label\">De Alliantie<\/span><span class=\"aa-breadcrumb__sep\">\u203a<\/span><span class=\"aa-breadcrumb__current\">Over ons<\/span><\/div>\n<\/nav>\n\n<section class=\"wp-block-group aa-page-hero is-layout-flow wp-block-group-is-layout-flow\">\n<div class=\"wp-block-group aa-inner is-layout-flow wp-block-group-is-layout-flow\">\n<div class=\"wp-block-group aa-page-hero__grid is-layout-flow wp-block-group-is-layout-flow\">\n<div class=\"wp-block-group is-layout-flow wp-block-group-is-layout-flow\">\n<p class=\"aa-overline wp-block-paragraph\">De Alliantie<\/p>\n\n\n\n<h1 class=\"wp-block-heading\">Over ons<\/h1>\n\n\n\n<p class=\"aa-lead wp-block-paragraph\">De Amyloidosis Alliance is een internationale coalitie die pati\u00ebntenverenigingen, medische experts en onderzoeksinstellingen samenbrengt rond \u00e9\u00e9n gemeenschappelijke missie: een einde maken aan de lange zoektocht naar een diagnose en de zorg voor amylo\u00efdosepati\u00ebnten wereldwijd ingrijpend verbeteren.<\/p>\n\n\n\n<p class=\"aa-page-hero__body wp-block-paragraph\">Vanuit de overtuiging dat geen enkele organisatie deze uitdagingen alleen aankan, verbindt de Alliantie nationale inspanningen via internationale samenwerking, door kennis, middelen en de ervaringen van mensen die met de ziekte te maken hebben met elkaar te delen.<\/p>\n<\/div>\n\n\n\n<div class=\"wp-block-group aa-page-hero__photo is-layout-flow wp-block-group-is-layout-flow\">\n<figure class=\"wp-block-image size-full\"><img loading=\"lazy\" decoding=\"async\" width=\"631\" height=\"593\" src=\"https:\/\/www.amyloidosisalliance.org\/wp-content\/uploads\/2026\/09\/about-us.jpg\" alt=\"\" class=\"wp-image-671\" srcset=\"https:\/\/www.amyloidosisalliance.org\/wp-content\/uploads\/2026\/09\/about-us.jpg 631w, https:\/\/www.amyloidosisalliance.org\/wp-content\/uploads\/2026\/09\/about-us-300x282.jpg 300w\" sizes=\"auto, (max-width: 631px) 100vw, 631px\" \/><\/figure>\n<\/div>\n<\/div>\n<\/div>\n<\/section>\n\n<nav aria-label=\"Section navigation\" class=\"wp-block-group aa-anchorband is-layout-flow wp-block-group-is-layout-flow\">\n<div class=\"wp-block-group aa-inner is-layout-flow wp-block-group-is-layout-flow\">\n<div class=\"wp-block-columns aa-anchor-cols is-layout-flex wp-container-core-columns-is-layout-b2e659ba wp-block-columns-is-layout-flex\">\n<div class=\"wp-block-column aa-anchor-item is-layout-flow wp-block-column-is-layout-flow\">\n<p class=\"num wp-block-paragraph\">01<\/p>\n\n\n\n<p class=\"lbl wp-block-paragraph\"><a href=\"#why\">Waarom we bestaan<\/a><\/p>\n<\/div>\n\n\n\n<div class=\"wp-block-column aa-anchor-item is-layout-flow wp-block-column-is-layout-flow\">\n<p class=\"num wp-block-paragraph\">02<\/p>\n\n\n\n<p class=\"lbl wp-block-paragraph\"><a href=\"#connect\">Wat we samenbrengen<\/a><\/p>\n<\/div>\n\n\n\n<div class=\"wp-block-column aa-anchor-item is-layout-flow wp-block-column-is-layout-flow\">\n<p class=\"num wp-block-paragraph\">03<\/p>\n\n\n\n<p class=\"lbl wp-block-paragraph\"><a href=\"#how\">Hoe we werken<\/a><\/p>\n<\/div>\n\n\n\n<div class=\"wp-block-column aa-anchor-item is-layout-flow wp-block-column-is-layout-flow\">\n<p class=\"num wp-block-paragraph\">04<\/p>\n\n\n\n<p class=\"lbl wp-block-paragraph\"><a href=\"#presence\">Internationale aanwezigheid<\/a><\/p>\n<\/div>\n\n\n\n<div class=\"wp-block-column aa-anchor-item is-layout-flow wp-block-column-is-layout-flow\">\n<p class=\"num wp-block-paragraph\">05<\/p>\n\n\n\n<p class=\"lbl wp-block-paragraph\"><a href=\"#serve\">Voor wie we er zijn<\/a><\/p>\n<\/div>\n\n\n\n<div class=\"wp-block-column aa-anchor-item is-layout-flow wp-block-column-is-layout-flow\">\n<p class=\"num wp-block-paragraph\">06<\/p>\n\n\n\n<p class=\"lbl wp-block-paragraph\"><a href=\"#timeline\">De geschiedenis van de Alliantie<\/a><\/p>\n<\/div>\n<\/div>\n<\/div>\n<\/nav>\n\n<section id=\"why\" class=\"wp-block-group aa-section aa-section--white aa-why is-layout-flow wp-block-group-is-layout-flow\">\n<div class=\"wp-block-group aa-inner is-layout-flow wp-block-group-is-layout-flow\">\n<div class=\"wp-block-group is-layout-flow wp-block-group-is-layout-flow\">\n<p class=\"aa-section-num wp-block-paragraph\">01<\/p>\n\n\n\n<h2 class=\"wp-block-heading\">Waarom de Alliantie bestaat<\/h2>\n<\/div>\n\n\n\n<div class=\"wp-block-group aa-why__cols is-layout-flow wp-block-group-is-layout-flow\">\n<div class=\"wp-block-group aa-why-col is-layout-flow wp-block-group-is-layout-flow\">\n<h4 class=\"wp-block-heading\">De uitdaging van een zeldzame ziekte<\/h4>\n\n\n\n<p class=\"wp-block-paragraph\">Amylo\u00efdose is een groep zeldzame, complexe ziekten die nog altijd vaak niet worden herkend. De symptomen kunnen lijken op die van veel vaker voorkomende aandoeningen, terwijl de expertise verspreid is over verschillende specialismen en zorgstelsels.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">Dit kan leiden tot een zoektocht naar een diagnose die jaren duurt, met het risico op progressieve en mogelijk onomkeerbare orgaanschade.<\/p>\n<\/div>\n\n\n\n<div class=\"wp-block-group aa-why-col is-layout-flow wp-block-group-is-layout-flow\">\n<h4 class=\"wp-block-heading\">Een gezamenlijk internationaal antwoord<\/h4>\n\n\n\n<p class=\"wp-block-paragraph\">De Alliantie werd opgericht om nationale initiatieven met elkaar te verbinden en pati\u00ebntenorganisaties, zorgverleners, onderzoekers en andere betrokkenen samen te brengen rond gemeenschappelijke doelen.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">Door kennis en middelen over de grenzen heen te delen, zetten we ons in voor een vroegere diagnose, een betere toegang tot zorg en een sterkere stem van pati\u00ebnten in het debat over gezondheidszorg, onderzoek en beleid.<\/p>\n<\/div>\n<\/div>\n<\/div>\n<\/section>\n\n<section id=\"connect\" class=\"wp-block-group aa-section aa-section--cream aa-connect is-layout-flow wp-block-group-is-layout-flow\">\n<div class=\"wp-block-group aa-inner is-layout-flow wp-block-group-is-layout-flow\">\n<div class=\"wp-block-group aa-connect__media is-layout-flow wp-block-group-is-layout-flow\">\n<figure class=\"wp-block-image size-large\"><img loading=\"lazy\" decoding=\"async\" width=\"683\" height=\"1024\" src=\"https:\/\/www.amyloidosisalliance.org\/wp-content\/uploads\/2026\/09\/krakenimages-Y5bvRlcCx8k-unsplash-683x1024.jpg\" alt=\"\" class=\"wp-image-667\" srcset=\"https:\/\/www.amyloidosisalliance.org\/wp-content\/uploads\/2026\/09\/krakenimages-Y5bvRlcCx8k-unsplash-683x1024.jpg 683w, https:\/\/www.amyloidosisalliance.org\/wp-content\/uploads\/2026\/09\/krakenimages-Y5bvRlcCx8k-unsplash-200x300.jpg 200w, https:\/\/www.amyloidosisalliance.org\/wp-content\/uploads\/2026\/09\/krakenimages-Y5bvRlcCx8k-unsplash-768x1152.jpg 768w, https:\/\/www.amyloidosisalliance.org\/wp-content\/uploads\/2026\/09\/krakenimages-Y5bvRlcCx8k-unsplash-1024x1536.jpg 1024w, https:\/\/www.amyloidosisalliance.org\/wp-content\/uploads\/2026\/09\/krakenimages-Y5bvRlcCx8k-unsplash-1365x2048.jpg 1365w\" sizes=\"auto, (max-width: 683px) 100vw, 683px\" \/><\/figure>\n<\/div>\n\n\n\n<div class=\"wp-block-group is-layout-flow wp-block-group-is-layout-flow\">\n<p class=\"aa-section-num wp-block-paragraph\">02<\/p>\n\n\n\n<h2 class=\"wp-block-heading\">Wat we samenbrengen<\/h2>\n\n\n\n<div class=\"wp-block-group aa-connect__list is-layout-flow wp-block-group-is-layout-flow\">\n<div class=\"wp-block-group aa-connect-row is-layout-flow wp-block-group-is-layout-flow\">\n<p class=\"aa-connect-row__name wp-block-paragraph\">Lidorganisaties<\/p>\n\n\n\n<p class=\"aa-connect-row__desc wp-block-paragraph\">24 pati\u00ebntenorganisaties in 19 landen, verbonden binnen \u00e9\u00e9n internationale alliantie.<\/p>\n<\/div>\n\n\n\n<div class=\"wp-block-group aa-connect-row is-layout-flow wp-block-group-is-layout-flow\">\n<p class=\"aa-connect-row__name wp-block-paragraph\">Wetenschappelijk comit\u00e9<\/p>\n\n\n\n<p class=\"aa-connect-row__desc wp-block-paragraph\">Artsen en onderzoekers die hun wetenschappelijke en medische expertise inbrengen in het werk van de Alliantie.<\/p>\n<\/div>\n\n\n\n<div class=\"wp-block-group aa-connect-row is-layout-flow wp-block-group-is-layout-flow\">\n<p class=\"aa-connect-row__name wp-block-paragraph\">Bewustwordingsacties<\/p>\n\n\n\n<p class=\"aa-connect-row__desc wp-block-paragraph\">Wereldwijde campagnes, waaronder Wereldamylo\u00efdosedag, die de gemeenschap elk jaar in beweging brengen.<\/p>\n<\/div>\n\n\n\n<div class=\"wp-block-group aa-connect-row is-layout-flow wp-block-group-is-layout-flow\">\n<p class=\"aa-connect-row__name wp-block-paragraph\">Informatiebronnen en evenementen<\/p>\n\n\n\n<p class=\"aa-connect-row__desc wp-block-paragraph\">Internationale bijeenkomsten, educatieve informatiebronnen en praktische hulpmiddelen voor de verschillende doelgroepen binnen de amylo\u00efdosegemeenschap.<\/p>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/section>\n\n<section id=\"how\" class=\"wp-block-group aa-section aa-section--white aa-how is-layout-flow wp-block-group-is-layout-flow\">\n<div class=\"wp-block-group aa-inner is-layout-flow wp-block-group-is-layout-flow\">\n<div class=\"wp-block-group aa-how__head is-layout-flow wp-block-group-is-layout-flow\">\n<p class=\"aa-section-num wp-block-paragraph\">03<\/p>\n\n\n\n<h2 class=\"wp-block-heading\">Hoe de Alliantie werkt<\/h2>\n\n\n\n<div class=\"aa-divider-dot\"><\/div>\n\n\n\n<p class=\"wp-block-paragraph\">Drie complementaire functies stellen ons netwerk in staat gezamenlijk op te treden en zijn impact te vergroten.<\/p>\n<\/div>\n\n\n\n<div class=\"wp-block-group aa-how__grid is-layout-flow wp-block-group-is-layout-flow\">\n<div class=\"wp-block-group aa-how-card is-layout-flow wp-block-group-is-layout-flow\">\n<span class=\"aa-icon-tile\"><svg width=\"24\" height=\"24\" viewbox=\"0 0 24 24\" fill=\"none\" stroke=\"currentColor\" stroke-width=\"1.75\" stroke-linecap=\"round\" stroke-linejoin=\"round\" aria-hidden=\"true\"><circle cx=\"18\" cy=\"5\" r=\"3\"><\/circle><circle cx=\"6\" cy=\"12\" r=\"3\"><\/circle><circle cx=\"18\" cy=\"19\" r=\"3\"><\/circle><line x1=\"8.59\" y1=\"13.51\" x2=\"15.42\" y2=\"17.49\"><\/line><line x1=\"15.41\" y1=\"6.51\" x2=\"8.59\" y2=\"10.49\"><\/line><\/svg><\/span>\n\n\n\n<h3 class=\"wp-block-heading\">Co\u00f6rdineren<\/h3>\n\n\n\n<p class=\"wp-block-paragraph\">We brengen de lidorganisaties samen rond gedeelde prioriteiten, zodat ze ervaringen kunnen uitwisselen, goede praktijken kunnen delen en gezamenlijke initiatieven kunnen ontwikkelen.<\/p>\n<\/div>\n\n\n\n<div class=\"wp-block-group aa-how-card is-layout-flow wp-block-group-is-layout-flow\">\n<span class=\"aa-icon-tile\"><svg width=\"24\" height=\"24\" viewbox=\"0 0 24 24\" fill=\"none\" stroke=\"currentColor\" stroke-width=\"1.75\" stroke-linecap=\"round\" stroke-linejoin=\"round\" aria-hidden=\"true\"><path d=\"M3 11l18-5v12L3 14v-3z\"><\/path><path d=\"M11.6 16.8a3 3 0 1 1-5.8-1.6\"><\/path><\/svg><\/span>\n\n\n\n<h3 class=\"wp-block-heading\">Belangen behartigen<\/h3>\n\n\n\n<p class=\"wp-block-paragraph\">We brengen het perspectief van pati\u00ebnten in bij gezondheidsautoriteiten en andere betrokkenen, en pleiten voor een tijdige diagnose, passende zorg en gelijke toegang tot behandeling.<\/p>\n<\/div>\n\n\n\n<div class=\"wp-block-group aa-how-card is-layout-flow wp-block-group-is-layout-flow\">\n<span class=\"aa-icon-tile\"><svg width=\"24\" height=\"24\" viewbox=\"0 0 24 24\" fill=\"none\" stroke=\"currentColor\" stroke-width=\"1.75\" stroke-linecap=\"round\" stroke-linejoin=\"round\" aria-hidden=\"true\"><path d=\"M2 3h6a4 4 0 0 1 4 4v14a3 3 0 0 0-3-3H2z\"><\/path><path d=\"M22 3h-6a4 4 0 0 0-4 4v14a3 3 0 0 1 3-3h7z\"><\/path><\/svg><\/span>\n\n\n\n<h3 class=\"wp-block-heading\">Informeren<\/h3>\n\n\n\n<p class=\"wp-block-paragraph\">We vertalen complexe wetenschap naar heldere, betrouwbare informatie voor pati\u00ebnten, families en zorgverleners.<\/p>\n<\/div>\n<\/div>\n<\/div>\n<\/section>\n\n<section id=\"presence\" class=\"wp-block-group aa-section aa-section--cream aa-presence is-layout-flow wp-block-group-is-layout-flow\">\n<div class=\"wp-block-group aa-inner is-layout-flow wp-block-group-is-layout-flow\">\n<div class=\"wp-block-group is-layout-flow wp-block-group-is-layout-flow\">\n<p class=\"aa-section-num wp-block-paragraph\">04<\/p>\n\n\n\n<h2 class=\"wp-block-heading\">Internationale aanwezigheid<\/h2>\n\n\n\n<p class=\"aa-lead wp-block-paragraph\">In Europa, Noord- en Zuid-Amerika, Azi\u00eb en daarbuiten verbindt de Alliantie pati\u00ebntenorganisaties en expertise over de grenzen heen, om kennis te delen en de ondersteuning in uiteenlopende situaties te versterken.<\/p>\n\n\n\n<p class=\"aa-presence__body wp-block-paragraph\">Elke lidorganisatie brengt lokale kennis en ervaring in het netwerk in, wat helpt om gemeenschappelijke uitdagingen te herkennen en werkwijzen tussen landen uit te wisselen.<\/p>\n\n\n\n<div class=\"wp-block-group aa-presence__stats is-layout-flow wp-block-group-is-layout-flow\">\n<div class=\"wp-block-group aa-presence-stat is-layout-flow wp-block-group-is-layout-flow\">\n<p class=\"n wp-block-paragraph\">19<\/p>\n\n\n\n<p class=\"t wp-block-paragraph\">Landen<\/p>\n<\/div>\n\n\n\n<div class=\"wp-block-group aa-presence-stat is-layout-flow wp-block-group-is-layout-flow\">\n<p class=\"n wp-block-paragraph\">24<\/p>\n\n\n\n<p class=\"t wp-block-paragraph\">Verenigingen<\/p>\n<\/div>\n\n\n\n<div class=\"wp-block-group aa-presence-stat is-layout-flow wp-block-group-is-layout-flow\">\n<p class=\"n wp-block-paragraph\">8<\/p>\n\n\n\n<p class=\"t wp-block-paragraph\">Talen<\/p>\n<\/div>\n<\/div>\n<\/div>\n\n\n\n<div class=\"wp-block-group aa-presence__map is-layout-flow wp-block-group-is-layout-flow\">\n<figure class=\"wp-block-image size-full\"><img loading=\"lazy\" decoding=\"async\" width=\"1600\" height=\"1200\" src=\"https:\/\/www.amyloidosisalliance.org\/wp-content\/uploads\/2026\/09\/alliance-world-map.png\" alt=\"Gestileerde wereldkaart met lidorganisaties die over de continenten heen met elkaar verbonden zijn\" class=\"wp-image-1048\" srcset=\"https:\/\/www.amyloidosisalliance.org\/wp-content\/uploads\/2026\/09\/alliance-world-map.png 1600w, https:\/\/www.amyloidosisalliance.org\/wp-content\/uploads\/2026\/09\/alliance-world-map-300x225.png 300w, https:\/\/www.amyloidosisalliance.org\/wp-content\/uploads\/2026\/09\/alliance-world-map-1024x768.png 1024w, https:\/\/www.amyloidosisalliance.org\/wp-content\/uploads\/2026\/09\/alliance-world-map-768x576.png 768w, https:\/\/www.amyloidosisalliance.org\/wp-content\/uploads\/2026\/09\/alliance-world-map-1536x1152.png 1536w\" sizes=\"auto, (max-width: 1600px) 100vw, 1600px\" \/><\/figure>\n\n\n\n<div class=\"wp-block-group aa-presence__badge is-layout-flow wp-block-group-is-layout-flow\">\n<p class=\"num wp-block-paragraph\">19<\/p>\n\n\n\n<p class=\"txt wp-block-paragraph\">Onze lidorganisaties zijn momenteel actief in 19 landen, verspreid over verschillende regio\u2019s van de wereld.<\/p>\n<\/div>\n<\/div>\n<\/div>\n<\/section>\n\n<section id=\"serve\" class=\"wp-block-group aa-section aa-section--white aa-serve is-layout-flow wp-block-group-is-layout-flow\">\n<div class=\"wp-block-group aa-inner is-layout-flow wp-block-group-is-layout-flow\">\n<div class=\"wp-block-group aa-serve__head is-layout-flow wp-block-group-is-layout-flow\">\n<p class=\"aa-section-num wp-block-paragraph\">05<\/p>\n\n\n\n<h2 class=\"wp-block-heading\">Voor wie we er zijn<\/h2>\n<\/div>\n\n\n\n<div class=\"wp-block-group aa-serve__grid is-layout-flow wp-block-group-is-layout-flow\">\n<div class=\"wp-block-group aa-serve-col is-layout-flow wp-block-group-is-layout-flow\">\n<span class=\"aa-icon-tile\"><svg width=\"24\" height=\"24\" viewbox=\"0 0 24 24\" fill=\"none\" stroke=\"currentColor\" stroke-width=\"1.75\" stroke-linecap=\"round\" stroke-linejoin=\"round\" aria-hidden=\"true\"><rect x=\"4\" y=\"2\" width=\"16\" height=\"20\" rx=\"1\"><\/rect><path d=\"M9 22v-4h6v4\"><\/path><path d=\"M8 6h.01\"><\/path><path d=\"M16 6h.01\"><\/path><path d=\"M12 6h.01\"><\/path><path d=\"M8 10h.01\"><\/path><path d=\"M16 10h.01\"><\/path><path d=\"M12 10h.01\"><\/path><path d=\"M8 14h.01\"><\/path><path d=\"M16 14h.01\"><\/path><path d=\"M12 14h.01\"><\/path><\/svg><\/span>\n\n\n\n<h3 class=\"wp-block-heading\">Pati\u00ebntenverenigingen<\/h3>\n\n\n\n<p class=\"wp-block-paragraph\">Een netwerk om ervaringen en middelen te delen, over de grenzen heen samen te werken en het werk van pati\u00ebntenorganisaties nationaal en internationaal te versterken.<\/p>\n\n\n\n<p class=\"aa-serve-col__link wp-block-paragraph\"><a href=\"https:\/\/www.amyloidosisalliance.org\/nl\/leden\/#apply\">Lid worden<\/a><\/p>\n<\/div>\n\n\n\n<div class=\"wp-block-group aa-serve-col is-layout-flow wp-block-group-is-layout-flow\">\n<span class=\"aa-icon-tile\"><svg width=\"24\" height=\"24\" viewbox=\"0 0 24 24\" fill=\"none\" stroke=\"currentColor\" stroke-width=\"1.75\" stroke-linecap=\"round\" stroke-linejoin=\"round\" aria-hidden=\"true\"><path d=\"M17 21v-2a4 4 0 0 0-4-4H5a4 4 0 0 0-4 4v2\"><\/path><circle cx=\"9\" cy=\"7\" r=\"4\"><\/circle><path d=\"M23 21v-2a4 4 0 0 0-3-3.87\"><\/path><path d=\"M16 3.13a4 4 0 0 1 0 7.75\"><\/path><\/svg><\/span>\n\n\n\n<h3 class=\"wp-block-heading\">Pati\u00ebnten en families<\/h3>\n\n\n\n<p class=\"wp-block-paragraph\">Houvast, een gemeenschap en erkende expertisecentra om de weg te vinden, van de diagnose tot het dagelijks leven.<\/p>\n\n\n\n<p class=\"aa-serve-col__link wp-block-paragraph\"><a href=\"https:\/\/www.amyloidosisalliance.org\/nl\/informatiebronnen\/bibliotheek\/\">Informatie voor pati\u00ebnten<\/a><\/p>\n<\/div>\n\n\n\n<div class=\"wp-block-group aa-serve-col is-layout-flow wp-block-group-is-layout-flow\">\n<span class=\"aa-icon-tile\"><svg width=\"24\" height=\"24\" viewbox=\"0 0 24 24\" fill=\"none\" stroke=\"currentColor\" stroke-width=\"1.75\" stroke-linecap=\"round\" stroke-linejoin=\"round\" aria-hidden=\"true\"><path d=\"M11 2v2\"><\/path><path d=\"M5 2v2\"><\/path><path d=\"M5 3H4a2 2 0 0 0-2 2v4a6 6 0 0 0 12 0V5a2 2 0 0 0-2-2h-1\"><\/path><path d=\"M8 15a6 6 0 0 0 12 0v-3\"><\/path><circle cx=\"20\" cy=\"10\" r=\"2\"><\/circle><\/svg><\/span>\n\n\n\n<h3 class=\"wp-block-heading\">Zorgverleners<\/h3>\n\n\n\n<p class=\"wp-block-paragraph\">Toegang tot educatieve informatiebronnen, wetenschappelijke informatie en contacten met de bredere amylo\u00efdosegemeenschap.<\/p>\n\n\n\n<p class=\"aa-serve-col__link wp-block-paragraph\"><a href=\"https:\/\/www.amyloidosisalliance.org\/nl\/informatiebronnen\/bibliotheek\/\">Klinisch platform<\/a><\/p>\n<\/div>\n<\/div>\n<\/div>\n<\/section>\n\n<section id=\"timeline\" class=\"wp-block-group aa-section aa-section--cream aa-timeline is-layout-flow wp-block-group-is-layout-flow\">\n<div class=\"wp-block-group aa-inner is-layout-flow wp-block-group-is-layout-flow\">\n<div class=\"wp-block-group aa-timeline__head is-layout-flow wp-block-group-is-layout-flow\">\n<p class=\"aa-section-num wp-block-paragraph\">06<\/p>\n\n\n\n<h2 class=\"wp-block-heading\">De geschiedenis van de Alliantie<\/h2>\n\n\n\n<div class=\"aa-divider-dot\"><\/div>\n<\/div>\n\n\n\n<div class=\"wp-block-group aa-tl is-layout-flow wp-block-group-is-layout-flow\">\n<div class=\"wp-block-group aa-tl-row is-layout-flow wp-block-group-is-layout-flow\">\n<div class=\"wp-block-group aa-tl-card is-layout-flow wp-block-group-is-layout-flow\">\n<p class=\"aa-tl-year wp-block-paragraph\">2017<\/p>\n\n\n\n<h4 class=\"wp-block-heading\">Eerste ATTR-bijeenkomst voor pati\u00ebnten en artsen<\/h4>\n<\/div>\n<\/div>\n\n\n\n<div class=\"wp-block-group aa-tl-row is-layout-flow wp-block-group-is-layout-flow\">\n<div class=\"wp-block-group aa-tl-card is-layout-flow wp-block-group-is-layout-flow\">\n<p class=\"aa-tl-year wp-block-paragraph\">2018<\/p>\n\n\n\n<h4 class=\"wp-block-heading\">Oprichting van de Alliantie<\/h4>\n\n\n\n<p class=\"wp-block-paragraph\">Pati\u00ebntenverenigingen uit verschillende landen bundelen hun krachten tot \u00e9\u00e9n internationale stem voor amylo\u00efdose.<\/p>\n<\/div>\n<\/div>\n\n\n\n<div class=\"wp-block-group aa-tl-row is-layout-flow wp-block-group-is-layout-flow\">\n<div class=\"wp-block-group aa-tl-card is-layout-flow wp-block-group-is-layout-flow\">\n<p class=\"aa-tl-year wp-block-paragraph\">2019<\/p>\n\n\n\n<h4 class=\"wp-block-heading\">Tweede ATTR-bijeenkomst voor pati\u00ebnten en artsen<\/h4>\n<\/div>\n<\/div>\n\n\n\n<div class=\"wp-block-group aa-tl-row is-layout-flow wp-block-group-is-layout-flow\">\n<div class=\"wp-block-group aa-tl-card is-layout-flow wp-block-group-is-layout-flow\">\n<p class=\"aa-tl-year wp-block-paragraph\">2020<\/p>\n\n\n\n<h4 class=\"wp-block-heading\">Eerste ledennetwerk<\/h4>\n\n\n\n<p class=\"wp-block-paragraph\">Het netwerk breidt zich uit over meerdere continenten en krijgt een gedeeld bestuursmodel en gemeenschappelijke doelen.<\/p>\n<\/div>\n<\/div>\n\n\n\n<div class=\"wp-block-group aa-tl-row is-layout-flow wp-block-group-is-layout-flow\">\n<div class=\"wp-block-group aa-tl-card is-layout-flow wp-block-group-is-layout-flow\">\n<p class=\"aa-tl-year wp-block-paragraph\">2021<\/p>\n\n\n\n<h4 class=\"wp-block-heading\">Wereldamylo\u00efdosedag<\/h4>\n\n\n\n<p class=\"wp-block-paragraph\">De eerste wereldwijde bewustwordingsdag op 26 oktober brengt de gemeenschap in beweging rond een gedeelde zaak.<\/p>\n<\/div>\n<\/div>\n\n\n\n<div class=\"wp-block-group aa-tl-row is-layout-flow wp-block-group-is-layout-flow\">\n<div class=\"wp-block-group aa-tl-card is-layout-flow wp-block-group-is-layout-flow\">\n<p class=\"aa-tl-year wp-block-paragraph\">2021<\/p>\n\n\n\n<h4 class=\"wp-block-heading\">Derde ATTR-bijeenkomst voor pati\u00ebnten en artsen<\/h4>\n<\/div>\n<\/div>\n\n\n\n<div class=\"wp-block-group aa-tl-row is-layout-flow wp-block-group-is-layout-flow\">\n<div class=\"wp-block-group aa-tl-card is-layout-flow wp-block-group-is-layout-flow\">\n<p class=\"aa-tl-year wp-block-paragraph\">2023<\/p>\n\n\n\n<h4 class=\"wp-block-heading\">Wetenschappelijk comit\u00e9<\/h4>\n\n\n\n<p class=\"wp-block-paragraph\">Het Wetenschappelijk comit\u00e9 wordt opgericht om wetenschappelijke en medische expertise te bieden en het werk van de Alliantie te ondersteunen.<\/p>\n<\/div>\n<\/div>\n\n\n\n<div class=\"wp-block-group aa-tl-row is-layout-flow wp-block-group-is-layout-flow\">\n<div class=\"wp-block-group aa-tl-card is-layout-flow wp-block-group-is-layout-flow\">\n<p class=\"aa-tl-year wp-block-paragraph\">2023<\/p>\n\n\n\n<h4 class=\"wp-block-heading\">Vierde ATTR-bijeenkomst voor pati\u00ebnten en artsen<\/h4>\n\n\n\n<p class=\"wp-block-paragraph\">De eerste internationale ATTR-bijeenkomst brengt de gemeenschap samen in Madrid.<\/p>\n<\/div>\n<\/div>\n\n\n\n<div class=\"wp-block-group aa-tl-row is-layout-flow wp-block-group-is-layout-flow\">\n<div class=\"wp-block-group aa-tl-card is-layout-flow wp-block-group-is-layout-flow\">\n<p class=\"aa-tl-year wp-block-paragraph\">2024<\/p>\n\n\n\n<h4 class=\"wp-block-heading\">AL-congres in Brussel<\/h4>\n\n\n\n<p class=\"wp-block-paragraph\">Het eerste congres over AL-amylo\u00efdose vindt plaats in Belgi\u00eb.<\/p>\n<\/div>\n<\/div>\n\n\n\n<div class=\"wp-block-group aa-tl-row is-layout-flow wp-block-group-is-layout-flow\">\n<div class=\"wp-block-group aa-tl-card is-layout-flow wp-block-group-is-layout-flow\">\n<p class=\"aa-tl-year wp-block-paragraph\">2025<\/p>\n\n\n\n<h4 class=\"wp-block-heading\">AMYLife-enqu\u00eate<\/h4>\n\n\n\n<p class=\"wp-block-paragraph\">AMYLife, de internationale enqu\u00eate van de Alliantie naar de ervaringen en het dagelijks leven van mensen met amylo\u00efdose, wordt gelanceerd.<\/p>\n<\/div>\n<\/div>\n\n\n\n<div class=\"wp-block-group aa-tl-row is-layout-flow wp-block-group-is-layout-flow\">\n<div class=\"wp-block-group aa-tl-card is-layout-flow wp-block-group-is-layout-flow\">\n<p class=\"aa-tl-year wp-block-paragraph\">2026<\/p>\n\n\n\n<h4 class=\"wp-block-heading\">Vijfde ATTR-bijeenkomst voor pati\u00ebnten en artsen<\/h4>\n\n\n\n<p class=\"wp-block-paragraph\">De internationale ATTR-bijeenkomst vindt plaats in Baveno, Itali\u00eb.<\/p>\n<\/div>\n<\/div>\n\n\n\n<div class=\"wp-block-group aa-tl-row is-layout-flow wp-block-group-is-layout-flow\">\n<div class=\"wp-block-group aa-tl-card is-layout-flow wp-block-group-is-layout-flow\">\n<p class=\"aa-tl-year wp-block-paragraph\">2027<\/p>\n\n\n\n<h4 class=\"wp-block-heading\">Zesde internationale AL &amp; ATTR-bijeenkomst voor pati\u00ebnten en artsen<\/h4>\n\n\n\n<p class=\"wp-block-paragraph\">Gepland: de AL- en ATTR-bijeenkomsten worden samengevoegd tot \u00e9\u00e9n internationaal evenement voor pati\u00ebnten, zorgverleners en de bredere amylo\u00efdosegemeenschap.<\/p>\n<\/div>\n<\/div>\n<\/div>\n\n\n\n<div class=\"wp-block-buttons aa-timeline__continue is-layout-flex wp-block-buttons-is-layout-flex\">\n<div class=\"wp-block-button aa-btn aa-btn--ghost-teal aa-btn--lg\"><a class=\"wp-block-button__link wp-element-button\" href=\"https:\/\/www.amyloidosisalliance.org\/nl\/onze-evenementen\/\">Het verhaal gaat verder<\/a><\/div>\n<\/div>\n<\/div>\n<\/section>\n\n<section class=\"wp-block-group aa-next is-layout-flow wp-block-group-is-layout-flow\">\n<div class=\"wp-block-group aa-inner is-layout-flow wp-block-group-is-layout-flow\">\n<div class=\"wp-block-group aa-next__head is-layout-flow wp-block-group-is-layout-flow\">\n<p class=\"aa-section-num wp-block-paragraph\">Verder lezen<\/p>\n\n\n\n<h2 class=\"wp-block-heading\">Verder lezen<\/h2>\n<\/div>\n\n\n\n<div class=\"wp-block-group aa-next__grid is-layout-flow wp-block-group-is-layout-flow\">\n<div class=\"wp-block-group aa-next-card is-layout-flow wp-block-group-is-layout-flow\">\n<h3 class=\"wp-block-heading\"><a href=\"https:\/\/www.amyloidosisalliance.org\/nl\/onze-missies\/\">Ontdek onze missies<\/a><\/h3>\n\n\n\n<p class=\"wp-block-paragraph\">Ontdek de strategische prioriteiten die ons werk sturen, van onderzoek tot belangenbehartiging en bewustwording.<\/p>\n<\/div>\n\n\n\n<div class=\"wp-block-group aa-next-card is-layout-flow wp-block-group-is-layout-flow\">\n<h3 class=\"wp-block-heading\"><a href=\"https:\/\/www.amyloidosisalliance.org\/nl\/het-team\/\">Maak kennis met het team<\/a><\/h3>\n\n\n\n<p class=\"wp-block-paragraph\">Maak kennis met de mensen en experts die de Alliantie mogelijk maken.<\/p>\n<\/div>\n\n\n\n<div class=\"wp-block-group aa-next-card is-layout-flow wp-block-group-is-layout-flow\">\n<h3 class=\"wp-block-heading\"><a href=\"https:\/\/www.amyloidosisalliance.org\/nl\/sluit-u-aan\/\">Sluit u aan<\/a><\/h3>\n\n\n\n<p class=\"wp-block-paragraph\">Word onze partner om uw impact te vergroten en de stem van pati\u00ebnten wereldwijd te versterken.<\/p>\n<\/div>\n<\/div>\n<\/div>\n<\/section>\n","protected":false},"excerpt":{"rendered":"<p>Home\u203aDe Alliantie\u203aOver ons De Alliantie Over ons De Amyloidosis Alliance is een internationale coalitie die pati\u00ebntenverenigingen, medische experts en onderzoeksinstellingen samenbrengt rond \u00e9\u00e9n gemeenschappelijke missie: een einde maken aan de lange zoektocht naar een diagnose en de zorg voor amylo\u00efdosepati\u00ebnten wereldwijd ingrijpend verbeteren. Vanuit de overtuiging dat geen enkele organisatie deze uitdagingen alleen aankan, verbindt [&hellip;]<\/p>\n","protected":false},"author":1,"featured_media":0,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"footnotes":""},"class_list":["post-3704","page","type-page","status-publish","hentry"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v28.6 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>Over de Amyloidosis Alliance: wie we zijn<\/title>\n<meta name=\"description\" content=\"Een internationale coalitie van pati\u00ebntenorganisaties, medische experts en onderzoeksinstellingen die zich inzet voor betere zorg voor mensen met amylo\u00efdose.\" \/>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.amyloidosisalliance.org\/nl\/over-ons\/\" \/>\n<meta property=\"og:locale\" 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