{"id":4428,"date":"2024-02-20T08:34:00","date_gmt":"2024-02-20T07:34:00","guid":{"rendered":"https:\/\/www.amyloidosisalliance.org\/la-giornata-delle-malattie-rare-2024-si-avvicina\/"},"modified":"2026-11-03T10:26:22","modified_gmt":"2026-11-03T09:26:22","slug":"la-giornata-delle-malattie-rare-2024-si-avvicina","status":"publish","type":"post","link":"https:\/\/www.amyloidosisalliance.org\/it\/la-giornata-delle-malattie-rare-2024-si-avvicina\/","title":{"rendered":"La Giornata delle malattie rare 2024 si avvicina!"},"content":{"rendered":"\n<p class=\"wp-block-paragraph\">Il 29 febbraio \u00e8 la Giornata mondiale delle malattie rare, un\u2019occasione speciale per sensibilizzare il pubblico sulle difficolt\u00e0 delle persone che vivono con una malattia rara. Anche quest\u2019anno l\u2019Amyloidosis Alliance si mobilita in tutto il mondo per sostenere la causa e mostrare l\u2019impatto dell\u2019amiloidosi. Ogni <a href=\"https:\/\/www.amyloidosisalliance.org\/it\/membri\/\"><mark style=\"background-color:rgba(0, 0, 0, 0)\" class=\"has-inline-color has-pale-cyan-blue-color\">membro<\/mark><\/a> dell\u2019Alleanza vi contribuisce a modo suo, nel proprio paese.<\/p>\n\n<p class=\"wp-block-paragraph\"><a href=\"http:\/\/rarediseaseday.org\/\">G<\/a><mark style=\"background-color:rgba(0, 0, 0, 0)\" class=\"has-inline-color has-pale-cyan-blue-color\"><a href=\"http:\/\/rarediseaseday.org\/\">iornata internazionale delle malattie rare:<\/a> <\/mark>un appuntamento imperdibile celebrato ogni anno, simbolicamente il 29 febbraio negli anni bisestili. Questa giornata offre una tribuna essenziale per sensibilizzare il pubblico, incoraggiare la ricerca e favorire l\u2019accesso alle cure per le persone che vivono con una malattia rara.<\/p>\n\n<h2 class=\"wp-block-heading has-medium-font-size\"><mark style=\"background-color:rgba(0, 0, 0, 0)\" class=\"has-inline-color has-luminous-vivid-orange-color\">L\u2019Amyloidosis Alliance, un attore impegnato nella Giornata delle malattie rare<\/mark><\/h2>\n\n<p class=\"wp-block-paragraph\">In occasione di questa giornata eccezionale, l\u2019Amyloidosis Alliance si afferma come un attore impegnato nella lotta contro le malattie rare. L\u2019amiloidosi \u00e8 una malattia caratterizzata dal deposito anomalo di proteine nei tessuti e negli organi, che provoca gravi complicanze. Purtroppo, a causa della sua rarit\u00e0, l\u2019amiloidosi viene spesso diagnosticata in modo errato, il che ritarda un trattamento adeguato.<\/p>\n\n<h2 class=\"wp-block-heading has-medium-font-size\"><mark style=\"background-color:rgba(0, 0, 0, 0)\" class=\"has-inline-color has-vivid-cyan-blue-color\">Sensibilizzare e mobilitare: gli obiettivi dell\u2019Amyloidosis Alliance per la Giornata delle malattie rare<\/mark><\/h2>\n\n<p class=\"wp-block-paragraph\">L\u2019Amyloidosis Alliance approfitter\u00e0 di questa giornata per intensificare le sue azioni di sensibilizzazione, mettendo in evidenza le difficolt\u00e0 vissute dai pazienti con amiloidosi. L\u2019associazione spera inoltre di mobilitare risorse per sostenere la ricerca, al fine di comprendere meglio la malattia e sviluppare trattamenti pi\u00f9 efficaci.<\/p>\n\n<h2 class=\"wp-block-heading has-medium-font-size\"><mark style=\"background-color:rgba(0, 0, 0, 0)\" class=\"has-inline-color has-vivid-green-cyan-color\">Come partecipare alla Giornata delle malattie rare<\/mark><\/h2>\n\n<p class=\"wp-block-paragraph\">Potete unirvi all\u2019impegno dell\u2019Alleanza partecipando attivamente alla Giornata delle malattie rare. Seguite i social network dell\u2019Alleanza, condividete le informazioni utili e usate l\u2019hashtag ufficiale della giornata per dare pi\u00f9 risonanza ai messaggi di sensibilizzazione. Potete anche sostenere le azioni, le ricerche e le iniziative di ciascun membro dell\u2019Alleanza nel mondo.<\/p>\n\n<h2 class=\"wp-block-heading has-medium-font-size\"><mark style=\"background-color:rgba(0, 0, 0, 0)\" class=\"has-inline-color has-pale-pink-color\">Fare la differenza insieme<\/mark><\/h2>\n\n<p class=\"wp-block-paragraph\">La Giornata internazionale delle malattie rare \u00e8 un\u2019occasione preziosa per far conoscere al pubblico realt\u00e0 spesso poco note. Unendo le forze con l\u2019Amyloidosis Alliance, ognuno di noi pu\u00f2 contribuire a far avanzare la ricerca, migliorare la cura dei pazienti e far progredire la causa delle malattie rare. <\/p>\n\n<p class=\"wp-block-paragraph\">Il 29 febbraio, unitevi a questa iniziativa mondiale e siate la voce di chi lotta contro l\u2019amiloidosi.<\/p>\n\n<div style=\"height:49px\" aria-hidden=\"true\" class=\"wp-block-spacer\"><\/div>\n\n<figure class=\"wp-block-image size-full is-resized\"><img decoding=\"async\" src=\"https:\/\/www.amyloidosisalliance.org\/wp-content\/uploads\/2022\/06\/cropped-cropped-logo.jpg\" alt=\"\" class=\"wp-image-5208\" style=\"width:218px;height:auto\"\/><\/figure>\n\n<div style=\"height:100px\" aria-hidden=\"true\" class=\"wp-block-spacer\"><\/div>\n","protected":false},"excerpt":{"rendered":"<p>La Giornata delle malattie rare si svolge il 29 febbraio 2024. Come l\u2019Amyloidosis Alliance e i suoi membri si mobilitano per far conoscere l\u2019amiloidosi tra le malattie rare.<\/p>\n","protected":false},"author":1,"featured_media":4429,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[68],"tags":[],"class_list":["post-4428","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-uncategorized-it"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v28.6 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>La Giornata delle malattie rare 2024 si avvicina!<\/title>\n<meta name=\"description\" content=\"La Giornata delle malattie rare si svolge il 29 febbraio 2024. 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