{"id":2834,"date":"2026-07-07T11:33:50","date_gmt":"2026-07-07T09:33:50","guid":{"rendered":"https:\/\/www.amyloidosisalliance.org\/chi-siamo\/"},"modified":"2026-11-02T11:57:26","modified_gmt":"2026-11-02T10:57:26","slug":"chi-siamo","status":"publish","type":"page","link":"https:\/\/www.amyloidosisalliance.org\/it\/chi-siamo\/","title":{"rendered":"Chi siamo"},"content":{"rendered":"\n<nav aria-label=\"Breadcrumb\" class=\"wp-block-group aa-breadcrumb is-layout-flow wp-block-group-is-layout-flow\">\n<div class=\"aa-inner\"><a href=\"\/\">Home<\/a><span class=\"aa-breadcrumb__sep\">\u203a<\/span><span class=\"aa-breadcrumb__label\">L\u2019Alleanza<\/span><span class=\"aa-breadcrumb__sep\">\u203a<\/span><span class=\"aa-breadcrumb__current\">Chi siamo<\/span><\/div>\n<\/nav>\n\n<section class=\"wp-block-group aa-page-hero is-layout-flow wp-block-group-is-layout-flow\">\n<div class=\"wp-block-group aa-inner is-layout-flow wp-block-group-is-layout-flow\">\n<div class=\"wp-block-group aa-page-hero__grid is-layout-flow wp-block-group-is-layout-flow\">\n<div class=\"wp-block-group is-layout-flow wp-block-group-is-layout-flow\">\n<p class=\"aa-overline wp-block-paragraph\">L\u2019Alleanza<\/p>\n\n\n\n<h1 class=\"wp-block-heading\">Chi siamo<\/h1>\n\n\n\n<p class=\"aa-lead wp-block-paragraph\">L\u2019Amyloidosis Alliance \u00e8 una coalizione internazionale che riunisce associazioni di pazienti, esperti medici e istituti di ricerca attorno a una missione comune: porre fine all\u2019odissea diagnostica e trasformare la presa in carico dei pazienti affetti da amiloidosi in tutto il mondo.<\/p>\n\n\n\n<p class=\"aa-page-hero__body wp-block-paragraph\">Nata dalla convinzione che nessuna organizzazione possa affrontare da sola queste sfide, l\u2019Alleanza collega gli sforzi nazionali attraverso la cooperazione internazionale, condividendo conoscenze, risorse e il punto di vista delle persone colpite dalla malattia.<\/p>\n<\/div>\n\n\n\n<div class=\"wp-block-group aa-page-hero__photo is-layout-flow wp-block-group-is-layout-flow\">\n<figure class=\"wp-block-image size-full\"><img loading=\"lazy\" decoding=\"async\" width=\"631\" height=\"593\" src=\"https:\/\/www.amyloidosisalliance.org\/wp-content\/uploads\/2026\/09\/about-us.jpg\" alt=\"\" class=\"wp-image-671\" srcset=\"https:\/\/www.amyloidosisalliance.org\/wp-content\/uploads\/2026\/09\/about-us.jpg 631w, https:\/\/www.amyloidosisalliance.org\/wp-content\/uploads\/2026\/09\/about-us-300x282.jpg 300w\" sizes=\"auto, (max-width: 631px) 100vw, 631px\" \/><\/figure>\n<\/div>\n<\/div>\n<\/div>\n<\/section>\n\n<nav aria-label=\"Section navigation\" class=\"wp-block-group aa-anchorband is-layout-flow wp-block-group-is-layout-flow\">\n<div class=\"wp-block-group aa-inner is-layout-flow wp-block-group-is-layout-flow\">\n<div class=\"wp-block-columns aa-anchor-cols is-layout-flex wp-container-core-columns-is-layout-b2e659ba wp-block-columns-is-layout-flex\">\n<div class=\"wp-block-column aa-anchor-item is-layout-flow wp-block-column-is-layout-flow\">\n<p class=\"num wp-block-paragraph\">01<\/p>\n\n\n\n<p class=\"lbl wp-block-paragraph\"><a href=\"#why\">Perch\u00e9 esistiamo<\/a><\/p>\n<\/div>\n\n\n\n<div class=\"wp-block-column aa-anchor-item is-layout-flow wp-block-column-is-layout-flow\">\n<p class=\"num wp-block-paragraph\">02<\/p>\n\n\n\n<p class=\"lbl wp-block-paragraph\"><a href=\"#connect\">Che cosa riuniamo<\/a><\/p>\n<\/div>\n\n\n\n<div class=\"wp-block-column aa-anchor-item is-layout-flow wp-block-column-is-layout-flow\">\n<p class=\"num wp-block-paragraph\">03<\/p>\n\n\n\n<p class=\"lbl wp-block-paragraph\"><a href=\"#how\">Come funzioniamo<\/a><\/p>\n<\/div>\n\n\n\n<div class=\"wp-block-column aa-anchor-item is-layout-flow wp-block-column-is-layout-flow\">\n<p class=\"num wp-block-paragraph\">04<\/p>\n\n\n\n<p class=\"lbl wp-block-paragraph\"><a href=\"#presence\">Presenza internazionale<\/a><\/p>\n<\/div>\n\n\n\n<div class=\"wp-block-column aa-anchor-item is-layout-flow wp-block-column-is-layout-flow\">\n<p class=\"num wp-block-paragraph\">05<\/p>\n\n\n\n<p class=\"lbl wp-block-paragraph\"><a href=\"#serve\">Per chi agiamo<\/a><\/p>\n<\/div>\n\n\n\n<div class=\"wp-block-column aa-anchor-item is-layout-flow wp-block-column-is-layout-flow\">\n<p class=\"num wp-block-paragraph\">06<\/p>\n\n\n\n<p class=\"lbl wp-block-paragraph\"><a href=\"#timeline\">La storia dell\u2019Alleanza<\/a><\/p>\n<\/div>\n<\/div>\n<\/div>\n<\/nav>\n\n<section id=\"why\" class=\"wp-block-group aa-section aa-section--white aa-why is-layout-flow wp-block-group-is-layout-flow\">\n<div class=\"wp-block-group aa-inner is-layout-flow wp-block-group-is-layout-flow\">\n<div class=\"wp-block-group is-layout-flow wp-block-group-is-layout-flow\">\n<p class=\"aa-section-num wp-block-paragraph\">01<\/p>\n\n\n\n<h2 class=\"wp-block-heading\">Perch\u00e9 esiste l\u2019Alleanza<\/h2>\n<\/div>\n\n\n\n<div class=\"wp-block-group aa-why__cols is-layout-flow wp-block-group-is-layout-flow\">\n<div class=\"wp-block-group aa-why-col is-layout-flow wp-block-group-is-layout-flow\">\n<h4 class=\"wp-block-heading\">La sfida di una malattia rara<\/h4>\n\n\n\n<p class=\"wp-block-paragraph\">L\u2019amiloidosi \u00e8 un gruppo di malattie rare e complesse, ancora ampiamente sottodiagnosticate. I sintomi possono somigliare a quelli di patologie molto pi\u00f9 comuni, mentre le competenze sono distribuite tra diverse specialit\u00e0 e diversi sistemi sanitari.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">Questo pu\u00f2 portare a un percorso diagnostico lungo diversi anni, con il rischio di un danno d\u2019organo progressivo e potenzialmente irreversibile.<\/p>\n<\/div>\n\n\n\n<div class=\"wp-block-group aa-why-col is-layout-flow wp-block-group-is-layout-flow\">\n<h4 class=\"wp-block-heading\">Una risposta internazionale comune<\/h4>\n\n\n\n<p class=\"wp-block-paragraph\">L\u2019Alleanza \u00e8 stata fondata per collegare le iniziative nazionali e riunire organizzazioni di pazienti, professionisti sanitari, ricercatori e altri attori attorno a obiettivi comuni.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">Condividendo conoscenze e risorse oltre i confini, lavoriamo per favorire una diagnosi pi\u00f9 precoce, migliorare l\u2019accesso alle cure e rafforzare la voce dei pazienti nei dibattiti su sanit\u00e0, ricerca e politiche pubbliche.<\/p>\n<\/div>\n<\/div>\n<\/div>\n<\/section>\n\n<section id=\"connect\" class=\"wp-block-group aa-section aa-section--cream aa-connect is-layout-flow wp-block-group-is-layout-flow\">\n<div class=\"wp-block-group aa-inner is-layout-flow wp-block-group-is-layout-flow\">\n<div class=\"wp-block-group aa-connect__media is-layout-flow wp-block-group-is-layout-flow\">\n<figure class=\"wp-block-image size-large\"><img loading=\"lazy\" decoding=\"async\" width=\"683\" height=\"1024\" src=\"https:\/\/www.amyloidosisalliance.org\/wp-content\/uploads\/2026\/09\/krakenimages-Y5bvRlcCx8k-unsplash-683x1024.jpg\" alt=\"\" class=\"wp-image-667\" srcset=\"https:\/\/www.amyloidosisalliance.org\/wp-content\/uploads\/2026\/09\/krakenimages-Y5bvRlcCx8k-unsplash-683x1024.jpg 683w, https:\/\/www.amyloidosisalliance.org\/wp-content\/uploads\/2026\/09\/krakenimages-Y5bvRlcCx8k-unsplash-200x300.jpg 200w, https:\/\/www.amyloidosisalliance.org\/wp-content\/uploads\/2026\/09\/krakenimages-Y5bvRlcCx8k-unsplash-768x1152.jpg 768w, https:\/\/www.amyloidosisalliance.org\/wp-content\/uploads\/2026\/09\/krakenimages-Y5bvRlcCx8k-unsplash-1024x1536.jpg 1024w, https:\/\/www.amyloidosisalliance.org\/wp-content\/uploads\/2026\/09\/krakenimages-Y5bvRlcCx8k-unsplash-1365x2048.jpg 1365w\" sizes=\"auto, (max-width: 683px) 100vw, 683px\" \/><\/figure>\n<\/div>\n\n\n\n<div class=\"wp-block-group is-layout-flow wp-block-group-is-layout-flow\">\n<p class=\"aa-section-num wp-block-paragraph\">02<\/p>\n\n\n\n<h2 class=\"wp-block-heading\">Che cosa riuniamo<\/h2>\n\n\n\n<div class=\"wp-block-group aa-connect__list is-layout-flow wp-block-group-is-layout-flow\">\n<div class=\"wp-block-group aa-connect-row is-layout-flow wp-block-group-is-layout-flow\">\n<p class=\"aa-connect-row__name wp-block-paragraph\">Organizzazioni membri<\/p>\n\n\n\n<p class=\"aa-connect-row__desc wp-block-paragraph\">24 organizzazioni di pazienti in 19 paesi, collegate all\u2019interno di un\u2019unica alleanza internazionale.<\/p>\n<\/div>\n\n\n\n<div class=\"wp-block-group aa-connect-row is-layout-flow wp-block-group-is-layout-flow\">\n<p class=\"aa-connect-row__name wp-block-paragraph\">Comitato scientifico<\/p>\n\n\n\n<p class=\"aa-connect-row__desc wp-block-paragraph\">Clinici e ricercatori che mettono la loro competenza scientifica e medica al servizio del lavoro dell\u2019Alleanza.<\/p>\n<\/div>\n\n\n\n<div class=\"wp-block-group aa-connect-row is-layout-flow wp-block-group-is-layout-flow\">\n<p class=\"aa-connect-row__name wp-block-paragraph\">Iniziative di sensibilizzazione<\/p>\n\n\n\n<p class=\"aa-connect-row__desc wp-block-paragraph\">Campagne mondiali, tra cui la Giornata mondiale dell\u2019amiloidosi, che ogni anno mobilitano la comunit\u00e0.<\/p>\n<\/div>\n\n\n\n<div class=\"wp-block-group aa-connect-row is-layout-flow wp-block-group-is-layout-flow\">\n<p class=\"aa-connect-row__name wp-block-paragraph\">Risorse ed eventi<\/p>\n\n\n\n<p class=\"aa-connect-row__desc wp-block-paragraph\">Incontri internazionali, risorse formative e strumenti pratici pensati per i diversi destinatari della comunit\u00e0 dell\u2019amiloidosi.<\/p>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/section>\n\n<section id=\"how\" class=\"wp-block-group aa-section aa-section--white aa-how is-layout-flow wp-block-group-is-layout-flow\">\n<div class=\"wp-block-group aa-inner is-layout-flow wp-block-group-is-layout-flow\">\n<div class=\"wp-block-group aa-how__head is-layout-flow wp-block-group-is-layout-flow\">\n<p class=\"aa-section-num wp-block-paragraph\">03<\/p>\n\n\n\n<h2 class=\"wp-block-heading\">Come funziona l\u2019Alleanza<\/h2>\n\n\n\n<div class=\"aa-divider-dot\"><\/div>\n\n\n\n<p class=\"wp-block-paragraph\">Tre funzioni complementari permettono alla nostra rete di agire collettivamente e di accrescere il proprio impatto.<\/p>\n<\/div>\n\n\n\n<div class=\"wp-block-group aa-how__grid is-layout-flow wp-block-group-is-layout-flow\">\n<div class=\"wp-block-group aa-how-card is-layout-flow wp-block-group-is-layout-flow\">\n<span class=\"aa-icon-tile\"><svg width=\"24\" height=\"24\" viewbox=\"0 0 24 24\" fill=\"none\" stroke=\"currentColor\" stroke-width=\"1.75\" stroke-linecap=\"round\" stroke-linejoin=\"round\" aria-hidden=\"true\"><circle cx=\"18\" cy=\"5\" r=\"3\"><\/circle><circle cx=\"6\" cy=\"12\" r=\"3\"><\/circle><circle cx=\"18\" cy=\"19\" r=\"3\"><\/circle><line x1=\"8.59\" y1=\"13.51\" x2=\"15.42\" y2=\"17.49\"><\/line><line x1=\"15.41\" y1=\"6.51\" x2=\"8.59\" y2=\"10.49\"><\/line><\/svg><\/span>\n\n\n\n<h3 class=\"wp-block-heading\">Coordinare<\/h3>\n\n\n\n<p class=\"wp-block-paragraph\">Riuniamo le organizzazioni membri attorno a priorit\u00e0 comuni, perch\u00e9 possano scambiarsi esperienze, condividere buone pratiche e sviluppare iniziative congiunte.<\/p>\n<\/div>\n\n\n\n<div class=\"wp-block-group aa-how-card is-layout-flow wp-block-group-is-layout-flow\">\n<span class=\"aa-icon-tile\"><svg width=\"24\" height=\"24\" viewbox=\"0 0 24 24\" fill=\"none\" stroke=\"currentColor\" stroke-width=\"1.75\" stroke-linecap=\"round\" stroke-linejoin=\"round\" aria-hidden=\"true\"><path d=\"M3 11l18-5v12L3 14v-3z\"><\/path><path d=\"M11.6 16.8a3 3 0 1 1-5.8-1.6\"><\/path><\/svg><\/span>\n\n\n\n<h3 class=\"wp-block-heading\">Difendere<\/h3>\n\n\n\n<p class=\"wp-block-paragraph\">Portiamo il punto di vista dei pazienti presso le autorit\u00e0 sanitarie e gli altri attori, sostenendo una diagnosi tempestiva, una presa in carico adeguata e un accesso equo ai trattamenti.<\/p>\n<\/div>\n\n\n\n<div class=\"wp-block-group aa-how-card is-layout-flow wp-block-group-is-layout-flow\">\n<span class=\"aa-icon-tile\"><svg width=\"24\" height=\"24\" viewbox=\"0 0 24 24\" fill=\"none\" stroke=\"currentColor\" stroke-width=\"1.75\" stroke-linecap=\"round\" stroke-linejoin=\"round\" aria-hidden=\"true\"><path d=\"M2 3h6a4 4 0 0 1 4 4v14a3 3 0 0 0-3-3H2z\"><\/path><path d=\"M22 3h-6a4 4 0 0 0-4 4v14a3 3 0 0 1 3-3h7z\"><\/path><\/svg><\/span>\n\n\n\n<h3 class=\"wp-block-heading\">Informare<\/h3>\n\n\n\n<p class=\"wp-block-paragraph\">Traduciamo una scienza complessa in risorse chiare e affidabili per pazienti, famiglie e professionisti sanitari.<\/p>\n<\/div>\n<\/div>\n<\/div>\n<\/section>\n\n<section id=\"presence\" class=\"wp-block-group aa-section aa-section--cream aa-presence is-layout-flow wp-block-group-is-layout-flow\">\n<div class=\"wp-block-group aa-inner is-layout-flow wp-block-group-is-layout-flow\">\n<div class=\"wp-block-group is-layout-flow wp-block-group-is-layout-flow\">\n<p class=\"aa-section-num wp-block-paragraph\">04<\/p>\n\n\n\n<h2 class=\"wp-block-heading\">Presenza internazionale<\/h2>\n\n\n\n<p class=\"aa-lead wp-block-paragraph\">In Europa, nelle Americhe, in Asia e oltre, l\u2019Alleanza collega organizzazioni di pazienti e competenze al di l\u00e0 dei confini, per condividere le conoscenze e rafforzare il sostegno in contesti diversi.<\/p>\n\n\n\n<p class=\"aa-presence__body wp-block-paragraph\">Ogni organizzazione membro porta alla rete la propria conoscenza ed esperienza del territorio, aiutando a individuare le sfide comuni e a condividere gli approcci da un paese all\u2019altro.<\/p>\n\n\n\n<div class=\"wp-block-group aa-presence__stats is-layout-flow wp-block-group-is-layout-flow\">\n<div class=\"wp-block-group aa-presence-stat is-layout-flow wp-block-group-is-layout-flow\">\n<p class=\"n wp-block-paragraph\">19<\/p>\n\n\n\n<p class=\"t wp-block-paragraph\">Paesi<\/p>\n<\/div>\n\n\n\n<div class=\"wp-block-group aa-presence-stat is-layout-flow wp-block-group-is-layout-flow\">\n<p class=\"n wp-block-paragraph\">24<\/p>\n\n\n\n<p class=\"t wp-block-paragraph\">Associazioni<\/p>\n<\/div>\n\n\n\n<div class=\"wp-block-group aa-presence-stat is-layout-flow wp-block-group-is-layout-flow\">\n<p class=\"n wp-block-paragraph\">8<\/p>\n\n\n\n<p class=\"t wp-block-paragraph\">Lingue<\/p>\n<\/div>\n<\/div>\n<\/div>\n\n\n\n<div class=\"wp-block-group aa-presence__map is-layout-flow wp-block-group-is-layout-flow\">\n<figure class=\"wp-block-image size-full\"><img loading=\"lazy\" decoding=\"async\" width=\"1600\" height=\"1200\" src=\"https:\/\/www.amyloidosisalliance.org\/wp-content\/uploads\/2026\/09\/alliance-world-map.png\" alt=\"Mappa del mondo stilizzata che mostra le organizzazioni membri collegate da un continente all&#x2019;altro\" class=\"wp-image-1048\" srcset=\"https:\/\/www.amyloidosisalliance.org\/wp-content\/uploads\/2026\/09\/alliance-world-map.png 1600w, https:\/\/www.amyloidosisalliance.org\/wp-content\/uploads\/2026\/09\/alliance-world-map-300x225.png 300w, https:\/\/www.amyloidosisalliance.org\/wp-content\/uploads\/2026\/09\/alliance-world-map-1024x768.png 1024w, https:\/\/www.amyloidosisalliance.org\/wp-content\/uploads\/2026\/09\/alliance-world-map-768x576.png 768w, https:\/\/www.amyloidosisalliance.org\/wp-content\/uploads\/2026\/09\/alliance-world-map-1536x1152.png 1536w\" sizes=\"auto, (max-width: 1600px) 100vw, 1600px\" \/><\/figure>\n\n\n\n<div class=\"wp-block-group aa-presence__badge is-layout-flow wp-block-group-is-layout-flow\">\n<p class=\"num wp-block-paragraph\">19<\/p>\n\n\n\n<p class=\"txt wp-block-paragraph\">Le nostre organizzazioni membri sono oggi presenti in 19 paesi, in diverse regioni del mondo.<\/p>\n<\/div>\n<\/div>\n<\/div>\n<\/section>\n\n<section id=\"serve\" class=\"wp-block-group aa-section aa-section--white aa-serve is-layout-flow wp-block-group-is-layout-flow\">\n<div class=\"wp-block-group aa-inner is-layout-flow wp-block-group-is-layout-flow\">\n<div class=\"wp-block-group aa-serve__head is-layout-flow wp-block-group-is-layout-flow\">\n<p class=\"aa-section-num wp-block-paragraph\">05<\/p>\n\n\n\n<h2 class=\"wp-block-heading\">Per chi agiamo<\/h2>\n<\/div>\n\n\n\n<div class=\"wp-block-group aa-serve__grid is-layout-flow wp-block-group-is-layout-flow\">\n<div class=\"wp-block-group aa-serve-col is-layout-flow wp-block-group-is-layout-flow\">\n<span class=\"aa-icon-tile\"><svg width=\"24\" height=\"24\" viewbox=\"0 0 24 24\" fill=\"none\" stroke=\"currentColor\" stroke-width=\"1.75\" stroke-linecap=\"round\" stroke-linejoin=\"round\" aria-hidden=\"true\"><rect x=\"4\" y=\"2\" width=\"16\" height=\"20\" rx=\"1\"><\/rect><path d=\"M9 22v-4h6v4\"><\/path><path d=\"M8 6h.01\"><\/path><path d=\"M16 6h.01\"><\/path><path d=\"M12 6h.01\"><\/path><path d=\"M8 10h.01\"><\/path><path d=\"M16 10h.01\"><\/path><path d=\"M12 10h.01\"><\/path><path d=\"M8 14h.01\"><\/path><path d=\"M16 14h.01\"><\/path><path d=\"M12 14h.01\"><\/path><\/svg><\/span>\n\n\n\n<h3 class=\"wp-block-heading\">Associazioni di pazienti<\/h3>\n\n\n\n<p class=\"wp-block-paragraph\">Una rete per condividere esperienze e risorse, collaborare oltre i confini e rafforzare il lavoro delle organizzazioni di pazienti, a livello nazionale e internazionale.<\/p>\n\n\n\n<p class=\"aa-serve-col__link wp-block-paragraph\"><a href=\"https:\/\/www.amyloidosisalliance.org\/it\/membri\/#apply\">Diventate membri<\/a><\/p>\n<\/div>\n\n\n\n<div class=\"wp-block-group aa-serve-col is-layout-flow wp-block-group-is-layout-flow\">\n<span class=\"aa-icon-tile\"><svg width=\"24\" height=\"24\" viewbox=\"0 0 24 24\" fill=\"none\" stroke=\"currentColor\" stroke-width=\"1.75\" stroke-linecap=\"round\" stroke-linejoin=\"round\" aria-hidden=\"true\"><path d=\"M17 21v-2a4 4 0 0 0-4-4H5a4 4 0 0 0-4 4v2\"><\/path><circle cx=\"9\" cy=\"7\" r=\"4\"><\/circle><path d=\"M23 21v-2a4 4 0 0 0-3-3.87\"><\/path><path d=\"M16 3.13a4 4 0 0 1 0 7.75\"><\/path><\/svg><\/span>\n\n\n\n<h3 class=\"wp-block-heading\">Pazienti e famiglie<\/h3>\n\n\n\n<p class=\"wp-block-paragraph\">Punti di riferimento, una comunit\u00e0 e centri di eccellenza riconosciuti per orientarsi nel percorso, dalla diagnosi alla vita quotidiana.<\/p>\n\n\n\n<p class=\"aa-serve-col__link wp-block-paragraph\"><a href=\"https:\/\/www.amyloidosisalliance.org\/it\/risorse\/biblioteca\/\">Risorse per i pazienti<\/a><\/p>\n<\/div>\n\n\n\n<div class=\"wp-block-group aa-serve-col is-layout-flow wp-block-group-is-layout-flow\">\n<span class=\"aa-icon-tile\"><svg width=\"24\" height=\"24\" viewbox=\"0 0 24 24\" fill=\"none\" stroke=\"currentColor\" stroke-width=\"1.75\" stroke-linecap=\"round\" stroke-linejoin=\"round\" aria-hidden=\"true\"><path d=\"M11 2v2\"><\/path><path d=\"M5 2v2\"><\/path><path d=\"M5 3H4a2 2 0 0 0-2 2v4a6 6 0 0 0 12 0V5a2 2 0 0 0-2-2h-1\"><\/path><path d=\"M8 15a6 6 0 0 0 12 0v-3\"><\/path><circle cx=\"20\" cy=\"10\" r=\"2\"><\/circle><\/svg><\/span>\n\n\n\n<h3 class=\"wp-block-heading\">Professionisti sanitari<\/h3>\n\n\n\n<p class=\"wp-block-paragraph\">Accesso a risorse formative, informazioni scientifiche e contatti con l\u2019intera comunit\u00e0 dell\u2019amiloidosi.<\/p>\n\n\n\n<p class=\"aa-serve-col__link wp-block-paragraph\"><a href=\"https:\/\/www.amyloidosisalliance.org\/it\/risorse\/biblioteca\/\">Spazio clinico<\/a><\/p>\n<\/div>\n<\/div>\n<\/div>\n<\/section>\n\n<section id=\"timeline\" class=\"wp-block-group aa-section aa-section--cream aa-timeline is-layout-flow wp-block-group-is-layout-flow\">\n<div class=\"wp-block-group aa-inner is-layout-flow wp-block-group-is-layout-flow\">\n<div class=\"wp-block-group aa-timeline__head is-layout-flow wp-block-group-is-layout-flow\">\n<p class=\"aa-section-num wp-block-paragraph\">06<\/p>\n\n\n\n<h2 class=\"wp-block-heading\">La storia dell\u2019Alleanza<\/h2>\n\n\n\n<div class=\"aa-divider-dot\"><\/div>\n<\/div>\n\n\n\n<div class=\"wp-block-group aa-tl is-layout-flow wp-block-group-is-layout-flow\">\n<div class=\"wp-block-group aa-tl-row is-layout-flow wp-block-group-is-layout-flow\">\n<div class=\"wp-block-group aa-tl-card is-layout-flow wp-block-group-is-layout-flow\">\n<p class=\"aa-tl-year wp-block-paragraph\">2017<\/p>\n\n\n\n<h4 class=\"wp-block-heading\">Primo incontro ATTR per pazienti e medici<\/h4>\n<\/div>\n<\/div>\n\n\n\n<div class=\"wp-block-group aa-tl-row is-layout-flow wp-block-group-is-layout-flow\">\n<div class=\"wp-block-group aa-tl-card is-layout-flow wp-block-group-is-layout-flow\">\n<p class=\"aa-tl-year wp-block-paragraph\">2018<\/p>\n\n\n\n<h4 class=\"wp-block-heading\">Nascita dell\u2019Alleanza<\/h4>\n\n\n\n<p class=\"wp-block-paragraph\">Associazioni di pazienti di diversi paesi si uniscono per formare un\u2019unica voce internazionale per l\u2019amiloidosi.<\/p>\n<\/div>\n<\/div>\n\n\n\n<div class=\"wp-block-group aa-tl-row is-layout-flow wp-block-group-is-layout-flow\">\n<div class=\"wp-block-group aa-tl-card is-layout-flow wp-block-group-is-layout-flow\">\n<p class=\"aa-tl-year wp-block-paragraph\">2019<\/p>\n\n\n\n<h4 class=\"wp-block-heading\">Secondo incontro ATTR per pazienti e medici<\/h4>\n<\/div>\n<\/div>\n\n\n\n<div class=\"wp-block-group aa-tl-row is-layout-flow wp-block-group-is-layout-flow\">\n<div class=\"wp-block-group aa-tl-card is-layout-flow wp-block-group-is-layout-flow\">\n<p class=\"aa-tl-year wp-block-paragraph\">2020<\/p>\n\n\n\n<h4 class=\"wp-block-heading\">Prima rete di membri<\/h4>\n\n\n\n<p class=\"wp-block-paragraph\">La rete si estende su pi\u00f9 continenti e si dota di una governance condivisa e di obiettivi comuni.<\/p>\n<\/div>\n<\/div>\n\n\n\n<div class=\"wp-block-group aa-tl-row is-layout-flow wp-block-group-is-layout-flow\">\n<div class=\"wp-block-group aa-tl-card is-layout-flow wp-block-group-is-layout-flow\">\n<p class=\"aa-tl-year wp-block-paragraph\">2021<\/p>\n\n\n\n<h4 class=\"wp-block-heading\">Giornata mondiale dell\u2019amiloidosi<\/h4>\n\n\n\n<p class=\"wp-block-paragraph\">La prima giornata mondiale di sensibilizzazione, il 26 ottobre, mobilita la comunit\u00e0 attorno a una causa comune.<\/p>\n<\/div>\n<\/div>\n\n\n\n<div class=\"wp-block-group aa-tl-row is-layout-flow wp-block-group-is-layout-flow\">\n<div class=\"wp-block-group aa-tl-card is-layout-flow wp-block-group-is-layout-flow\">\n<p class=\"aa-tl-year wp-block-paragraph\">2021<\/p>\n\n\n\n<h4 class=\"wp-block-heading\">Terzo incontro ATTR per pazienti e medici<\/h4>\n<\/div>\n<\/div>\n\n\n\n<div class=\"wp-block-group aa-tl-row is-layout-flow wp-block-group-is-layout-flow\">\n<div class=\"wp-block-group aa-tl-card is-layout-flow wp-block-group-is-layout-flow\">\n<p class=\"aa-tl-year wp-block-paragraph\">2023<\/p>\n\n\n\n<h4 class=\"wp-block-heading\">Comitato scientifico<\/h4>\n\n\n\n<p class=\"wp-block-paragraph\">Viene istituito il Comitato scientifico, per offrire competenze scientifiche e mediche e sostenere il lavoro dell\u2019Alleanza.<\/p>\n<\/div>\n<\/div>\n\n\n\n<div class=\"wp-block-group aa-tl-row is-layout-flow wp-block-group-is-layout-flow\">\n<div class=\"wp-block-group aa-tl-card is-layout-flow wp-block-group-is-layout-flow\">\n<p class=\"aa-tl-year wp-block-paragraph\">2023<\/p>\n\n\n\n<h4 class=\"wp-block-heading\">Quarto incontro ATTR per pazienti e medici<\/h4>\n\n\n\n<p class=\"wp-block-paragraph\">Il primo incontro internazionale ATTR riunisce la comunit\u00e0 a Madrid.<\/p>\n<\/div>\n<\/div>\n\n\n\n<div class=\"wp-block-group aa-tl-row is-layout-flow wp-block-group-is-layout-flow\">\n<div class=\"wp-block-group aa-tl-card is-layout-flow wp-block-group-is-layout-flow\">\n<p class=\"aa-tl-year wp-block-paragraph\">2024<\/p>\n\n\n\n<h4 class=\"wp-block-heading\">Congresso AL a Bruxelles<\/h4>\n\n\n\n<p class=\"wp-block-paragraph\">In Belgio si tiene il primo congresso dedicato all\u2019amiloidosi AL.<\/p>\n<\/div>\n<\/div>\n\n\n\n<div class=\"wp-block-group aa-tl-row is-layout-flow wp-block-group-is-layout-flow\">\n<div class=\"wp-block-group aa-tl-card is-layout-flow wp-block-group-is-layout-flow\">\n<p class=\"aa-tl-year wp-block-paragraph\">2025<\/p>\n\n\n\n<h4 class=\"wp-block-heading\">Indagine AMYLife<\/h4>\n\n\n\n<p class=\"wp-block-paragraph\">Lancio di AMYLife, l\u2019indagine internazionale dell\u2019Alleanza sull\u2019esperienza e sulla vita quotidiana delle persone colpite dall\u2019amiloidosi.<\/p>\n<\/div>\n<\/div>\n\n\n\n<div class=\"wp-block-group aa-tl-row is-layout-flow wp-block-group-is-layout-flow\">\n<div class=\"wp-block-group aa-tl-card is-layout-flow wp-block-group-is-layout-flow\">\n<p class=\"aa-tl-year wp-block-paragraph\">2026<\/p>\n\n\n\n<h4 class=\"wp-block-heading\">Quinto incontro ATTR per pazienti e medici<\/h4>\n\n\n\n<p class=\"wp-block-paragraph\">L\u2019incontro internazionale ATTR si tiene a Baveno, in Italia.<\/p>\n<\/div>\n<\/div>\n\n\n\n<div class=\"wp-block-group aa-tl-row is-layout-flow wp-block-group-is-layout-flow\">\n<div class=\"wp-block-group aa-tl-card is-layout-flow wp-block-group-is-layout-flow\">\n<p class=\"aa-tl-year wp-block-paragraph\">2027<\/p>\n\n\n\n<h4 class=\"wp-block-heading\">Sesto incontro internazionale AL &amp; ATTR per pazienti e medici<\/h4>\n\n\n\n<p class=\"wp-block-paragraph\">In programma: gli incontri AL e ATTR confluiranno in un unico evento internazionale per i pazienti, i professionisti sanitari e l\u2019intera comunit\u00e0 dell\u2019amiloidosi.<\/p>\n<\/div>\n<\/div>\n<\/div>\n\n\n\n<div class=\"wp-block-buttons aa-timeline__continue is-layout-flex wp-block-buttons-is-layout-flex\">\n<div class=\"wp-block-button aa-btn aa-btn--ghost-teal aa-btn--lg\"><a class=\"wp-block-button__link wp-element-button\" href=\"https:\/\/www.amyloidosisalliance.org\/it\/i-nostri-eventi\/\">Il seguito della storia<\/a><\/div>\n<\/div>\n<\/div>\n<\/section>\n\n<section class=\"wp-block-group aa-next is-layout-flow wp-block-group-is-layout-flow\">\n<div class=\"wp-block-group aa-inner is-layout-flow wp-block-group-is-layout-flow\">\n<div class=\"wp-block-group aa-next__head is-layout-flow wp-block-group-is-layout-flow\">\n<p class=\"aa-section-num wp-block-paragraph\">Continua<\/p>\n\n\n\n<h2 class=\"wp-block-heading\">Per saperne di pi\u00f9<\/h2>\n<\/div>\n\n\n\n<div class=\"wp-block-group aa-next__grid is-layout-flow wp-block-group-is-layout-flow\">\n<div class=\"wp-block-group aa-next-card is-layout-flow wp-block-group-is-layout-flow\">\n<h3 class=\"wp-block-heading\"><a href=\"https:\/\/www.amyloidosisalliance.org\/it\/le-nostre-missioni\/\">Scoprite le nostre missioni<\/a><\/h3>\n\n\n\n<p class=\"wp-block-paragraph\">Scoprite le priorit\u00e0 strategiche che guidano il nostro lavoro, dalla ricerca all\u2019advocacy e alla sensibilizzazione.<\/p>\n<\/div>\n\n\n\n<div class=\"wp-block-group aa-next-card is-layout-flow wp-block-group-is-layout-flow\">\n<h3 class=\"wp-block-heading\"><a href=\"https:\/\/www.amyloidosisalliance.org\/it\/il-team\/\">Scoprite il team<\/a><\/h3>\n\n\n\n<p class=\"wp-block-paragraph\">Conoscete le persone e gli esperti che fanno vivere l\u2019Alleanza.<\/p>\n<\/div>\n\n\n\n<div class=\"wp-block-group aa-next-card is-layout-flow wp-block-group-is-layout-flow\">\n<h3 class=\"wp-block-heading\"><a href=\"https:\/\/www.amyloidosisalliance.org\/it\/unitevi-a-noi\/\">Unitevi a noi<\/a><\/h3>\n\n\n\n<p class=\"wp-block-paragraph\">Diventate nostri partner per amplificare il vostro impatto e rafforzare la voce dei pazienti nel mondo.<\/p>\n<\/div>\n<\/div>\n<\/div>\n<\/section>\n","protected":false},"excerpt":{"rendered":"<p>Home\u203aL\u2019Alleanza\u203aChi siamo L\u2019Alleanza Chi siamo L\u2019Amyloidosis Alliance \u00e8 una coalizione internazionale che riunisce associazioni di pazienti, esperti medici e istituti di ricerca attorno a una missione comune: porre fine all\u2019odissea diagnostica e trasformare la presa in carico dei pazienti affetti da amiloidosi in tutto il mondo. Nata dalla convinzione che nessuna organizzazione possa affrontare da [&hellip;]<\/p>\n","protected":false},"author":1,"featured_media":0,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"footnotes":""},"class_list":["post-2834","page","type-page","status-publish","hentry"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v28.6 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>L\u2019Amyloidosis Alliance: chi siamo<\/title>\n<meta name=\"description\" content=\"Una coalizione internazionale di organizzazioni di pazienti, esperti medici e istituti di ricerca che si impegna a migliorare la presa in carico delle persone colpite dall\u2019amiloidosi.\" \/>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.amyloidosisalliance.org\/it\/chi-siamo\/\" \/>\n<meta property=\"og:locale\" content=\"it_IT\" 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