How is the Alliance structured and who is involved

Statutes

Download the statues

Members 

  • Standard members
    • ABPAR - Brazil
    • Amyloidosis Israel.org - Israel
    • Amyloidosis Support Groups - US
    • FaMY Norbotten - Sweden
    • FAP-eV - Germany
    • the Association Française contre l’Amylose (AFCA) - France
    • the Associazione Italiana Amiloidosi Familiare Onlus (FAMY) – Italy
    • the Stichting Amyloïdose Nederland (SAN) – Netherlands
  • Associate members
    • ABEA - Spain (Balearic Islands)
    • FAP Venezuela - Venezuela
  • Honorary members
  • Associated patients Groups
    • Australia
    • South Korea
    • Spain - Amilo

 

Board of Founders and Directors

  • President: the Association Française contre l’Amylose represented by Mr Jean-Christophe FIDALGO
  • Treasurer: the Associazione Italiana Amiloidosi Familiare Onlus represented by Mr Giovanni d'ALESSIO
  • Secretary: Stichting Amyloïdose Nederland represented by Dr Koenraad VERHAGEN.

 

Direction

  • Administrative Secretary Francoise PELCOT