{"id":1744,"date":"2023-04-20T13:54:38","date_gmt":"2023-04-20T11:54:38","guid":{"rendered":"https:\/\/amyloidosisalliance.local\/le-tout-premier-sommet-canadien-des-patients-atteints-damylose-attr\/"},"modified":"2026-09-29T15:32:20","modified_gmt":"2026-09-29T13:32:20","slug":"le-tout-premier-sommet-canadien-des-patients-atteints-damylose-attr","status":"publish","type":"post","link":"https:\/\/www.amyloidosisalliance.org\/fr\/le-tout-premier-sommet-canadien-des-patients-atteints-damylose-attr\/","title":{"rendered":"Le tout premier sommet canadien des patients atteints d\u2019amylose ATTR"},"content":{"rendered":"\n<p class=\"wp-block-paragraph\">HAC\/TAC est fi\u00e8re de pr\u00e9senter le tout premier sommet canadien des patients atteints d\u2019amylose ATTR <img loading=\"lazy\" decoding=\"async\" height=\"16\" width=\"16\" src=\"https:\/\/static.xx.fbcdn.net\/images\/emoji.php\/v9\/t9\/2\/16\/1f1e8_1f1e6.png\" alt=\" \"\/><\/p>\n\n<p class=\"wp-block-paragraph\">Un \u00e9v\u00e9nement qui r\u00e9unira patients, familles, m\u00e9decins, professionnels de sant\u00e9 et industrie le temps d\u2019un week-end d\u2019\u00e9changes de connaissances, de partage d\u2019exp\u00e9riences et de rencontres. <\/p>\n\n<p class=\"wp-block-paragraph\"><img loading=\"lazy\" decoding=\"async\" height=\"16\" width=\"16\" alt=\" \" src=\"https:\/\/static.xx.fbcdn.net\/images\/emoji.php\/v9\/tcc\/2\/16\/1f4cd.png\"\/>Ce sommet des patients ATTR aura lieu \u00e0 l\u2019h\u00f4tel Hyatt Regency, au centre-ville de Toronto.<\/p>\n\n<p class=\"wp-block-paragraph\"><img loading=\"lazy\" decoding=\"async\" height=\"16\" width=\"16\" alt=\"&#x2615;&#xFE0F;\" src=\"https:\/\/static.xx.fbcdn.net\/images\/emoji.php\/v9\/t12\/2\/16\/2615.png\"\/>Le petit-d\u00e9jeuner sera servi \u00e0 8 h le 29 avril, et les sessions commenceront \u00e0 9 h. Le sommet se terminera \u00e0 12 h le 30 avril.<\/p>\n\n<p class=\"wp-block-paragraph\"><img loading=\"lazy\" decoding=\"async\" height=\"16\" width=\"16\" src=\"https:\/\/static.xx.fbcdn.net\/images\/emoji.php\/v9\/t66\/2\/16\/1f362.png\" alt=\" \"\/>Une r\u00e9ception d\u2019accueil aura aussi lieu de 18 h \u00e0 20 h le vendredi 28 avril au Hyatt.<\/p>\n\n<h2 class=\"wp-block-heading\">Les objectifs de ce sommet<\/h2>\n\n<p class=\"wp-block-paragraph\">Ce sommet est un \u00e9v\u00e9nement marquant qui vise \u00e0 donner aux patients les moyens d\u2019agir, \u00e0 sensibiliser et \u00e0 favoriser la collaboration entre les patients, les m\u00e9decins et tous les autres acteurs pr\u00e9sents. Il proposera des conf\u00e9rences, des tables rondes, des ateliers interactifs et d\u2019autres activit\u00e9s, tous consacr\u00e9s \u00e0 l\u2019am\u00e9lioration de la vie des personnes touch\u00e9es par l\u2019amylose ATTR. Des experts pr\u00e9senteront les derniers r\u00e9sultats de la recherche, les outils de diagnostic et les options de traitement de l\u2019amylose ATTR, et souligneront l\u2019importance du d\u00e9pistage pr\u00e9coce et d\u2019une prise en charge pluridisciplinaire. Les patients joueront aussi un r\u00f4le cl\u00e9\u00a0: ils partageront leur histoire, leurs difficult\u00e9s et leurs r\u00e9ussites face \u00e0 la maladie, pour que les professionnels de sant\u00e9 puissent les \u00e9couter, r\u00e9pondre \u00e0 leurs besoins (si possible) et noter de nouvelles pistes de recherche.<\/p>\n\n<h2 class=\"wp-block-heading\">Les enjeux de cet \u00e9v\u00e9nement<\/h2>\n\n<p class=\"wp-block-paragraph\">Le sommet canadien des patients atteints d\u2019amylose ATTR n\u2019est pas seulement un \u00e9v\u00e9nement p\u00e9dagogique et informatif\u00a0: c\u2019est aussi l\u2019occasion de sensibiliser le public et de faire progresser la recherche. Il permettra de souligner la n\u00e9cessit\u00e9 d\u2019augmenter le financement de la recherche, d\u2019am\u00e9liorer les politiques de sant\u00e9 et de mieux faire conna\u00eetre la maladie au public, et peut-\u00eatre m\u00eame d\u2019am\u00e9liorer la vie des personnes touch\u00e9es par l\u2019amylose ATTR. Ce tout premier sommet canadien montre la force de la collaboration entre patients et experts de l\u2019amylose pour r\u00e9pondre aux difficult\u00e9s du quotidien et am\u00e9liorer la sant\u00e9 et le bien-\u00eatre des patients et de leurs familles.<\/p>\n\n<p class=\"wp-block-paragraph\">L\u2019inscription est gratuite, mais les places sont limit\u00e9es. Pour r\u00e9server votre place et nous aider \u00e0 organiser l\u2019\u00e9v\u00e9nement, <a href=\"https:\/\/docs.google.com\/forms\/d\/e\/1FAIpQLSc8GfcDBtq_N6CEiGDxHJud1Abk7hhdvD1dsRxicsRzehZs6g\/viewform\"><strong>cliquez ici pour vous inscri<\/strong>re.<\/a><\/p>\n\n<p class=\"wp-block-paragraph\"><a href=\"https:\/\/madhattr.ca\/summit\/\"><strong>Plus d\u2019informations sur l\u2019\u00e9v\u00e9nement ici <\/strong><\/a><\/p>\n\n<figure class=\"wp-block-image size-large\"><img decoding=\"async\" src=\"https:\/\/www.amyloidosisalliance.org\/wp-content\/uploads\/2023\/04\/Screenshot-2023-02-23-at-11.37.08-AM-774x1024.png\" alt=\"\" class=\"wp-image-6671\"\/><\/figure>\n","protected":false},"excerpt":{"rendered":"<p>Le premier sommet canadien des patients atteints d\u2019amylose ATTR r\u00e9unit patients, familles, m\u00e9decins et industrie \u00e0 Toronto en avril 2023 pour partager connaissances et exp\u00e9riences.<\/p>\n","protected":false},"author":1,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[24],"tags":[],"class_list":["post-1744","post","type-post","status-publish","format-standard","hentry","category-actualites"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v28.6 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>Le tout premier sommet canadien des patients atteints d\u2019amylose ATTR<\/title>\n<meta name=\"description\" content=\"Le premier sommet canadien des patients atteints d\u2019amylose ATTR r\u00e9unit patients, familles, m\u00e9decins et industrie \u00e0 Toronto en avril 2023 pour partager connaissances et exp\u00e9riences.\" \/>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" 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