{"id":1713,"date":"2023-07-12T08:55:00","date_gmt":"2023-07-12T06:55:00","guid":{"rendered":"https:\/\/amyloidosisalliance.local\/un-nouvel-espoir-de-guerison-pour-les-personnes-atteintes-damylose\/"},"modified":"2026-09-29T15:32:18","modified_gmt":"2026-09-29T13:32:18","slug":"un-nouvel-espoir-de-guerison-pour-les-personnes-atteintes-damylose","status":"publish","type":"post","link":"https:\/\/www.amyloidosisalliance.org\/fr\/un-nouvel-espoir-de-guerison-pour-les-personnes-atteintes-damylose\/","title":{"rendered":"Un nouvel espoir de gu\u00e9rison pour les personnes atteintes d\u2019amylose"},"content":{"rendered":"\n<p class=\"wp-block-paragraph\">L\u2019amylose h\u00e9r\u00e9ditaire est une maladie g\u00e9n\u00e9tique rare, caract\u00e9ris\u00e9e par le d\u00e9p\u00f4t inhabituel d\u2019amas de prot\u00e9ines dans les tissus, entre les cellules, et souvent dans la paroi des petits vaisseaux. Les premiers sympt\u00f4mes apparaissent entre 20 et 40 ans et sont mortels en 10 ans. Si vous \u00eates atteint de la maladie, vous avez une chance sur deux de la transmettre \u00e0 vos enfants.<\/p>\n\n<h2 class=\"wp-block-heading\">Le professeur Ed Gane<\/h2>\n\n<p class=\"wp-block-paragraph\">Ed Gane est un professeur n\u00e9o-z\u00e9landais d\u2019exception, qui a contribu\u00e9 \u00e0 cr\u00e9er l\u2019unit\u00e9 nationale de greffe du foie. Il est aussi un pionnier du traitement curatif de l\u2019h\u00e9patite C, gr\u00e2ce \u00e0 ses essais de m\u00e9dicaments men\u00e9s dans le monde entier.<br\/>Le professeur s\u2019est lanc\u00e9 un nouveau d\u00e9fi\u00a0: tenter de gu\u00e9rir l\u2019amylose, une maladie qui touche une cinquantaine de familles n\u00e9o-z\u00e9landaises. Ces familles sont aujourd\u2019hui accompagn\u00e9es par le professeur Gane tout au long de leur parcours de soins\u00a0: du diagnostic aux greffes de foie et de c\u0153ur, il les aide, leur parle, leur tient la main et est plus que pr\u00e9sent pour elles.<\/p>\n\n<p class=\"wp-block-paragraph\"><\/p>\n\n<h2 class=\"wp-block-heading\">Les essais cliniques du professeur<\/h2>\n\n<p class=\"wp-block-paragraph\">Il y a deux ans, le professeur Gane a pu tenter d\u2019atteindre son objectif lorsqu\u2019on lui a propos\u00e9 de mener le premier essai chez l\u2019humain d\u2019une nouvelle technologie m\u00e9dicale permettant aux scientifiques de modifier des g\u00e8nes d\u00e9fectueux de l\u2019ADN.<br\/>L\u2019\u00e9dition g\u00e9n\u00e9tique CRISPR (courtes r\u00e9p\u00e9titions palindromiques group\u00e9es et r\u00e9guli\u00e8rement espac\u00e9es) est un processus naturel apparu pour prot\u00e9ger les bact\u00e9ries des virus. Une avanc\u00e9e m\u00e9dicale majeure\u202f!<br\/>Le professeur Gane a eu l\u2019honneur d\u2019utiliser cette avanc\u00e9e chez 12 de ses patients atteints d\u2019amylose. Personne ne savait si l\u2019essai serait un succ\u00e8s, mais deux ans plus tard, les premiers r\u00e9sultats indiquent que tous les participants seront gu\u00e9ris de cette maladie mortelle, ce qui repr\u00e9sente un r\u00e9el espoir pour les enfants des porteurs du g\u00e8ne de l\u2019amylose.<\/p>\n\n<p class=\"wp-block-paragraph\"><\/p>\n\n<p class=\"wp-block-paragraph\">Pour en savoir plus\u00a0:<\/p>\n\n<figure class=\"wp-block-embed\"><div class=\"wp-block-embed__wrapper\">\nhttps:\/\/www.1news.co.nz\/2023\/03\/19\/kiwi-liver-specialist-on-brink-of-cure-for-rare-genetic-disease\/?fbclid=IwAR1L4EF9XmIzzw924PnnevpTnsA9gScTXHZ-d4sRrw7BE0IhhgFoIulEOHE\n<\/div><\/figure>\n","protected":false},"excerpt":{"rendered":"<p>En Nouvelle-Z\u00e9lande, le professeur Ed Gane accompagne des familles touch\u00e9es par l\u2019amylose h\u00e9r\u00e9ditaire, tandis que la recherche sur de nouvelles approches th\u00e9rapeutiques apporte un nouvel espoir.<\/p>\n","protected":false},"author":1,"featured_media":1714,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[24],"tags":[],"class_list":["post-1713","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-actualites"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v28.6 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>Un nouvel espoir de gu\u00e9rison pour les personnes atteintes d\u2019amylose<\/title>\n<meta name=\"description\" content=\"En Nouvelle-Z\u00e9lande, le professeur Ed Gane accompagne des familles touch\u00e9es par l\u2019amylose h\u00e9r\u00e9ditaire, tandis que la recherche sur de nouvelles approches th\u00e9rapeutiques apporte un nouvel espoir.\" \/>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" 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