{"id":1702,"date":"2023-08-31T10:02:02","date_gmt":"2023-08-31T08:02:02","guid":{"rendered":"https:\/\/amyloidosisalliance.local\/appel-a-temoignages-sur-lamylose-2\/"},"modified":"2026-09-29T15:32:17","modified_gmt":"2026-09-29T13:32:17","slug":"appel-a-temoignages-sur-lamylose-2","status":"publish","type":"post","link":"https:\/\/www.amyloidosisalliance.org\/fr\/appel-a-temoignages-sur-lamylose-2\/","title":{"rendered":"Appel \u00e0 t\u00e9moignages sur l\u2019amylose"},"content":{"rendered":"\n<p class=\"wp-block-paragraph\">Chers membres de notre communaut\u00e9 engag\u00e9e,<\/p>\n\n<p class=\"wp-block-paragraph\">Nous avons besoin de vos t\u00e9moignages pour la <a href=\"http:\/\/www.wordamylidosisday.org\">Journ\u00e9e mondiale de l\u2019amylose du 26 octobre<\/a> !<\/p>\n\n<p class=\"wp-block-paragraph\">Nous lan\u00e7ons une grande campagne de sensibilisation pour montrer l\u2019impact de toutes les formes d\u2019amylose, qui bouleversent de nombreuses vies de famille dans le monde.<\/p>\n\n<p class=\"wp-block-paragraph\">Si l\u2019un de vos proches est atteint d\u2019une forme d\u2019amylose, votre exp\u00e9rience et votre t\u00e9moignage pourraient changer concr\u00e8tement la vie d\u2019autres personnes qui traversent des situations semblables.<\/p>\n\n<p class=\"wp-block-paragraph\">Nous vous invitons chaleureusement \u00e0 partager votre histoire personnelle en r\u00e9pondant \u00e0 ces questions cl\u00e9s\u00a0:<\/p>\n\n<ul class=\"wp-block-list\">\n<li><strong>Un membre de votre famille est-il atteint d\u2019une forme d\u2019amylose\u202f?<\/strong> Nous aimerions en savoir plus sur votre lien avec cette maladie rare. Votre relation et votre proximit\u00e9 avec la personne malade nous aideront \u00e0 mieux comprendre les difficult\u00e9s que vous avez rencontr\u00e9es.<br\/><\/li>\n\n\n\n<li><strong>Comment avez-vous v\u00e9cu l\u2019annonce du diagnostic d\u2019amylose\u202f?<\/strong> Recevoir le diagnostic d\u2019une maladie rare comme l\u2019amylose peut \u00eatre un choc. Partagez avec nous vos \u00e9motions, vos pens\u00e9es et vos r\u00e9actions \u00e0 l\u2019annonce de la nouvelle. Votre histoire peut inspirer et soutenir d\u2019autres personnes dans une situation semblable.<br\/><\/li>\n\n\n\n<li><strong>Quel impact la maladie a-t-elle eu sur votre vie de famille\u202f?<\/strong> Les maladies rares ont souvent un impact profond sur la vie de famille. Racontez-nous comment l\u2019amylose a affect\u00e9 vos relations, votre quotidien et vos projets familiaux. Votre exp\u00e9rience peut aider d\u2019autres familles \u00e0 faire face \u00e0 ces difficult\u00e9s.<br\/><\/li>\n<\/ul>\n\n<p class=\"wp-block-paragraph\">Nous savons que ce sont des moments intimes et personnels que vous allez partager avec nous. Tous les t\u00e9moignages seront trait\u00e9s de fa\u00e7on <strong>anonyme<\/strong>, dans le respect de votre vie priv\u00e9e, tout en donnant une voix \u00e0 votre exp\u00e9rience. Votre histoire peut \u00e9clairer celles et ceux qui cherchent des r\u00e9ponses et de l\u2019espoir dans leur combat contre l\u2019amylose.<br\/><br\/>Pour participer\u00a0:<\/p>\n\n<ul class=\"wp-block-list\">\n<li>Envoyez simplement votre histoire, par \u00e9crit ou \u00e0 l\u2019oral, avant le 15 septembre, dans votre langue maternelle, \u00e0 l\u2019adresse suivante\u00a0: &#99;&#x6f;&#109;&#x6d;&#117;&#x6e;&#105;&#x63;&#97;&#x74;&#105;&#x6f;&#110;&#x40;&#97;&#x6d;&#121;&#x6c;&#111;&#x73;&#101;&#x2e;&#97;&#x73;&#115;&#x6f;&#46;&#x66;&#114;<\/li>\n\n\n\n<li>Si possible, votre histoire ne doit pas d\u00e9passer une page, soit environ 250 mots.<\/li>\n\n\n\n<li>Nous vous demanderons aussi de pr\u00e9ciser en bas de page que vous autorisez l\u2019Amyloidosis Alliance \u00e0 utiliser votre histoire de fa\u00e7on anonyme, en tout ou en partie.<br\/><\/li>\n<\/ul>\n\n<p class=\"wp-block-paragraph\">Merci infiniment pour votre g\u00e9n\u00e9rosit\u00e9 et votre courage en partageant votre histoire. Ensemble, nous pouvons sensibiliser le public et apporter un soutien pr\u00e9cieux \u00e0 ceux qui en ont besoin.<\/p>\n\n<p class=\"wp-block-paragraph\">Avec toute notre gratitude,<\/p>\n","protected":false},"excerpt":{"rendered":"<p>Pour la Journ\u00e9e mondiale de l\u2019amylose du 26 octobre, l\u2019Alliance invite les familles touch\u00e9es par l\u2019amylose \u00e0 partager leur histoire pour aider d\u2019autres personnes dans la m\u00eame situation.<\/p>\n","protected":false},"author":1,"featured_media":1703,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[24],"tags":[],"class_list":["post-1702","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-actualites"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v28.6 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>Appel \u00e0 t\u00e9moignages sur 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