{"id":1691,"date":"2023-10-06T08:43:00","date_gmt":"2023-10-06T06:43:00","guid":{"rendered":"https:\/\/amyloidosisalliance.local\/la-journee-mondiale-de-lamylose-2023\/"},"modified":"2026-09-29T15:32:16","modified_gmt":"2026-09-29T13:32:16","slug":"la-journee-mondiale-de-lamylose-2023","status":"publish","type":"post","link":"https:\/\/www.amyloidosisalliance.org\/fr\/la-journee-mondiale-de-lamylose-2023\/","title":{"rendered":"La Journ\u00e9e mondiale de l\u2019amylose 2023"},"content":{"rendered":"\n<h2 class=\"wp-block-heading\">Unis pour vaincre la maladie\u00a0: la Journ\u00e9e mondiale de l\u2019amylose 2023, le 26 octobre<\/h2>\n\n<p class=\"wp-block-paragraph\">\u00c0 l\u2019approche de la fin octobre, le monde se pr\u00e9pare \u00e0 un \u00e9v\u00e9nement important qui m\u00e9rite notre attention\u00a0: la <a href=\"http:\/\/www.worldamyloidosisday.org\">Journ\u00e9e mondiale de l\u2019amylose 2023.<\/a> Pr\u00e9vue le 26 octobre, cette journ\u00e9e rassemble des personnes, des organisations et des professionnels de sant\u00e9 du monde entier pour faire conna\u00eetre l\u2019amylose, une maladie rare mais potentiellement mortelle. Dans cet article, nous revenons sur ce qu\u2019est l\u2019amylose, sur l\u2019importance de la Journ\u00e9e mondiale de l\u2019amylose et sur les fa\u00e7ons de participer \u00e0 cette campagne mondiale essentielle.<\/p>\n\n<h3 class=\"wp-block-heading\"><strong>Comprendre l\u2019amylose<\/strong><\/h3>\n\n<p class=\"wp-block-paragraph\">L\u2019amylose est un groupe de maladies rares caract\u00e9ris\u00e9es par l\u2019accumulation anormale d\u2019une prot\u00e9ine, appel\u00e9e substance amylo\u00efde, dans diff\u00e9rents organes et tissus de l\u2019organisme. Cette accumulation peut entra\u00eener de graves l\u00e9sions des organes et, sans traitement, mettre la vie en danger. Les types d\u2019amylose les plus fr\u00e9quents sont l\u2019amylose AL, l\u2019amylose ATTR et l\u2019amylose AA, qui touchent chacune des organes et des syst\u00e8mes diff\u00e9rents.<\/p>\n\n<h3 class=\"wp-block-heading\"><strong>L\u2019importance de la Journ\u00e9e mondiale de l\u2019amylose<\/strong><\/h3>\n\n<p class=\"wp-block-paragraph\">La Journ\u00e9e mondiale de l\u2019amylose n\u2019est pas une date comme les autres\u00a0: c\u2019est une journ\u00e9e d\u2019espoir, d\u2019information et de sensibilisation. Voici pourquoi elle est essentielle\u00a0:<\/p>\n\n<p class=\"wp-block-paragraph\"><strong>Sensibiliser\u00a0: <\/strong>en raison de sa raret\u00e9 et de la diversit\u00e9 de ses sympt\u00f4mes, l\u2019amylose est souvent mal diagnostiqu\u00e9e ou diagnostiqu\u00e9e tardivement. La Journ\u00e9e mondiale de l\u2019amylose met cette maladie en lumi\u00e8re, pour que davantage de personnes en reconnaissent les signes et les sympt\u00f4mes.<br\/><strong>Soutenir les patients et les familles<\/strong>\u00a0: pour les personnes qui vivent avec l\u2019amylose et leurs familles, cette journ\u00e9e apporte un sentiment de communaut\u00e9 et de soutien. Elle leur rappelle qu\u2019elles ne sont pas seules dans leur parcours.<br\/><strong>Promouvoir la recherche\u00a0: <\/strong>la recherche est la cl\u00e9 pour comprendre l\u2019amylose et, un jour, la gu\u00e9rir. Lors de la Journ\u00e9e mondiale de l\u2019amylose, des fonds sont collect\u00e9s et des \u00e9changes sont organis\u00e9s pour acc\u00e9l\u00e9rer la recherche, au service de meilleurs traitements et d\u2019une meilleure \u00e9volution pour les patients.<br\/><strong>Former les professionnels de sant\u00e9\u00a0: <\/strong>cette journ\u00e9e est aussi l\u2019occasion d\u2019informer les professionnels de sant\u00e9 des derni\u00e8res avanc\u00e9es du diagnostic et du traitement de l\u2019amylose.<br\/>S\u2019impliquer<\/p>\n\n<p class=\"wp-block-paragraph\">Maintenant que vous connaissez l\u2019importance de la <a href=\"http:\/\/www.worldamyloidosisday.org\">Journ\u00e9e mondiale de l\u2019amylose,<\/a> voici quelques fa\u00e7ons de vous impliquer\u00a0:<\/p>\n\n<p class=\"wp-block-paragraph\"><strong>Faites conna\u00eetre la maladie\u00a0: <\/strong>utilisez vos r\u00e9seaux sociaux pour partager des informations sur l\u2019amylose, ses sympt\u00f4mes et l\u2019importance d\u2019un diagnostic pr\u00e9coce. Utilisez des hashtags comme #WorldAmyloidosisDay pour rejoindre la conversation mondiale.<br\/><strong>Faites un don\u00a0:<\/strong> de nombreuses organisations et institutions de recherche d\u00e9pendent des dons pour financer la recherche sur l\u2019amylose. Pensez \u00e0 soutenir leurs efforts.<br\/><strong>Participez aux \u00e9v\u00e9nements\u00a0:<\/strong> cherchez les \u00e9v\u00e9nements organis\u00e9s pr\u00e8s de chez vous ou en ligne le 26 octobre\u00a0: s\u00e9minaires, webinaires, collectes de fonds\u2026<br\/><strong>Portez de l\u2019orange<\/strong>\u00a0: l\u2019orange est la couleur officielle de la Journ\u00e9e mondiale de l\u2019amylose. Montrez votre soutien en portant des v\u00eatements ou des accessoires orange le 26 octobre.<br\/><strong>Informez-vous\u00a0:<\/strong> renseignez-vous sur l\u2019amylose aupr\u00e8s de sources fiables, pour mieux informer les autres sur cette maladie.<\/p>\n\n<p class=\"wp-block-paragraph\">La Journ\u00e9e mondiale de l\u2019amylose 2023 approche \u00e0 grands pas, le <strong>26 octobre<\/strong>\u00a0: c\u2019est l\u2019occasion pour les personnes, les communaut\u00e9s et les organisations du monde entier de s\u2019unir dans la lutte contre l\u2019amylose. <\/p>\n\n<p class=\"wp-block-paragraph\">En sensibilisant, en apportant notre soutien et en contribuant \u00e0 la recherche, nous pouvons changer concr\u00e8tement la vie des personnes touch\u00e9es par cette maladie rare. <\/p>\n\n<p class=\"wp-block-paragraph\">Rejoignez-nous lors de cette journ\u00e9e importante pour faire entendre votre voix et faire la diff\u00e9rence dans la lutte contre l\u2019amylose. Ensemble, nous pouvons \u0153uvrer pour un avenir lib\u00e9r\u00e9 du fardeau de cette maladie<\/p>\n","protected":false},"excerpt":{"rendered":"<p>La Journ\u00e9e mondiale de l\u2019amylose 2023 a lieu le 26 octobre. Ce qu\u2019est l\u2019amylose, pourquoi cette journ\u00e9e mondiale de sensibilisation compte et comment vous impliquer.<\/p>\n","protected":false},"author":1,"featured_media":1692,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[24],"tags":[],"class_list":["post-1691","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-actualites"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v28.6 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>La Journ\u00e9e mondiale de l\u2019amylose 2023<\/title>\n<meta name=\"description\" content=\"La Journ\u00e9e mondiale de l\u2019amylose 2023 a lieu le 26 octobre. Ce qu\u2019est l\u2019amylose, pourquoi cette journ\u00e9e mondiale de sensibilisation compte et comment vous impliquer.\" \/>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.amyloidosisalliance.org\/fr\/la-journee-mondiale-de-lamylose-2023\/\" \/>\n<meta property=\"og:locale\" content=\"fr_FR\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"La Journ\u00e9e mondiale de l\u2019amylose 2023\" \/>\n<meta property=\"og:description\" content=\"La Journ\u00e9e mondiale de l\u2019amylose 2023 a lieu le 26 octobre. 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