{"id":1681,"date":"2023-11-03T08:25:38","date_gmt":"2023-11-03T07:25:38","guid":{"rendered":"https:\/\/amyloidosisalliance.local\/retour-sur-le-4e-congres-attr-sur-lamylose-a-madrid\/"},"modified":"2026-09-29T15:32:16","modified_gmt":"2026-09-29T13:32:16","slug":"retour-sur-le-4e-congres-attr-sur-lamylose-a-madrid","status":"publish","type":"post","link":"https:\/\/www.amyloidosisalliance.org\/fr\/retour-sur-le-4e-congres-attr-sur-lamylose-a-madrid\/","title":{"rendered":"Retour sur le 4e congr\u00e8s ATTR sur l\u2019amylose \u00e0 Madrid"},"content":{"rendered":"\n<p class=\"wp-block-paragraph\">L\u2019Amyloidosis Alliance a franchi une nouvelle \u00e9tape importante dans sa mission contre l\u2019amylose en organisant le 4e <a href=\"http:\/\/attramyloidosis2023.com\/\">congr\u00e8s ATTR sur l\u2019amylose \u00e0 Madrid <\/a>les 2 et 3 novembre 2023.\u00a0<\/p>\n\n<p class=\"wp-block-paragraph\">L\u2019\u00e9v\u00e9nement, qui s\u2019est tenu aujourd\u2019hui, a r\u00e9uni patients, aidants, professionnels de sant\u00e9 et chercheurs du monde entier, et renforc\u00e9 les efforts communs pour am\u00e9liorer la compr\u00e9hension, le traitement et le soutien des personnes touch\u00e9es par cette maladie rare aux lourdes cons\u00e9quences.<\/p>\n\n<p class=\"wp-block-paragraph\">L\u2019amylose, une maladie due \u00e0 l\u2019accumulation de prot\u00e9ines anormales appel\u00e9es substances amylo\u00efdes, existe sous plusieurs formes, dont l\u2019amylose \u00e0 transthyr\u00e9tine (ATTR). En r\u00e9unissant des points de vue et des expertises vari\u00e9s lors de ce congr\u00e8s ATTR, l\u2019Amyloidosis Alliance contribue de fa\u00e7on d\u00e9cisive \u00e0 explorer des approches innovantes, \u00e0 partager les connaissances et \u00e0 construire une compr\u00e9hension globale de cette maladie complexe.<\/p>\n\n<p class=\"wp-block-paragraph\">Le rassemblement de cette ann\u00e9e \u00e0 Madrid marque un moment cl\u00e9\u00a0: il s\u2019attaque aux difficult\u00e9s de la communaut\u00e9 de l\u2019amylose, en se concentrant principalement sur l\u2019amylose ATTR.\u00a0<\/p>\n\n<p class=\"wp-block-paragraph\">La rencontre entre associations de patients, m\u00e9decins, chercheurs et patients eux-m\u00eames lors du congr\u00e8s ATTR cr\u00e9e un environnement unique, qui fait dialoguer l\u2019expertise m\u00e9dicale et l\u2019exp\u00e9rience v\u00e9cue.<\/p>\n\n<p class=\"wp-block-paragraph\">L\u2019un des temps forts de l\u2019\u00e9v\u00e9nement est la place donn\u00e9e \u00e0 une prise en charge centr\u00e9e sur le patient et aux difficult\u00e9s particuli\u00e8res des personnes qui vivent avec l\u2019amylose. Ce regard port\u00e9 sur le v\u00e9cu des patients donne aux m\u00e9decins et aux chercheurs un cap essentiel pour d\u00e9velopper des traitements et des dispositifs de soutien efficaces.<\/p>\n\n<p class=\"wp-block-paragraph\">Le partage des connaissances, les avanc\u00e9es de la recherche et les \u00e9changes sur les traitements et th\u00e9rapies innovants sont au c\u0153ur de ce rassemblement important. La pr\u00e9sentation de d\u00e9couvertes scientifiques, d\u2019essais cliniques et de nouveaux traitements nourrit l\u2019espoir d\u2019une meilleure \u00e9volution et d\u2019une meilleure qualit\u00e9 de vie pour les patients.<\/p>\n\n<p class=\"wp-block-paragraph\">Le congr\u00e8s ATTR est aussi une tribune o\u00f9 patients et aidants partagent leur parcours, leurs difficult\u00e9s et leurs victoires, et cr\u00e9e un sentiment de communaut\u00e9 et de soutien indispensable pour faire face \u00e0 la complexit\u00e9 de l\u2019amylose.<\/p>\n\n<p class=\"wp-block-paragraph\">L\u2019engagement de l\u2019Amyloidosis Alliance \u00e0 organiser de tels rassemblements est essentiel pour faire avancer la lutte contre cette maladie invalidante. En r\u00e9unissant expertise mondiale et exp\u00e9riences personnelles, cet effort collectif peut stimuler de nouvelles recherches, de nouvelles strat\u00e9gies de traitement et de nouveaux dispositifs de soutien, pour am\u00e9liorer la vie des personnes touch\u00e9es par l\u2019amylose.<\/p>\n\n<p class=\"wp-block-paragraph\">Le 4e congr\u00e8s ATTR sur l\u2019amylose \u00e0 Madrid t\u00e9moigne de la force de la collaboration, de l\u2019innovation et du plaidoyer pour comprendre, traiter et, un jour, vaincre l\u2019amylose.\u00a0<\/p>\n\n<p class=\"wp-block-paragraph\">Alors que les participants se r\u00e9unissent et partagent leurs connaissances et leurs exp\u00e9riences, l\u2019avenir promet de meilleurs traitements, une meilleure prise en charge et un soutien renforc\u00e9 pour les personnes et les familles touch\u00e9es par cette maladie difficile.<\/p>\n\n<p class=\"wp-block-paragraph\">Ensemble, nous sommes plus forts. Ensemble, nous combattons l\u2019amylose.<\/p>\n\n<p class=\"wp-block-paragraph\">Pour suivre les nouvelles du 4e congr\u00e8s ATTR et les actions de l\u2019Amyloidosis Alliance, restez connect\u00e9s \u00e0 notre site et \u00e0 nos r\u00e9seaux sociaux.<\/p>\n","protected":false},"excerpt":{"rendered":"<p>Le 4e congr\u00e8s ATTR sur l\u2019amylose, \u00e0 Madrid, a r\u00e9uni patients, aidants, cliniciens et chercheurs les 2 et 3 novembre 2023. Les temps forts.<\/p>\n","protected":false},"author":1,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[24],"tags":[],"class_list":["post-1681","post","type-post","status-publish","format-standard","hentry","category-actualites"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v28.6 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>Retour sur le 4e congr\u00e8s ATTR sur l\u2019amylose \u00e0 Madrid<\/title>\n<meta name=\"description\" content=\"Le 4e congr\u00e8s ATTR sur l\u2019amylose, \u00e0 Madrid, a r\u00e9uni patients, aidants, cliniciens et chercheurs les 2 et 3 novembre 2023. 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