{"id":1610,"date":"2025-07-31T12:07:03","date_gmt":"2025-07-31T10:07:03","guid":{"rendered":"https:\/\/amyloidosisalliance.local\/journee-mondiale-de-lamylose-2025\/"},"modified":"2026-09-29T15:32:11","modified_gmt":"2026-09-29T13:32:11","slug":"journee-mondiale-de-lamylose-2025","status":"publish","type":"post","link":"https:\/\/www.amyloidosisalliance.org\/fr\/journee-mondiale-de-lamylose-2025\/","title":{"rendered":"Journ\u00e9e mondiale de l\u2019amylose 2025"},"content":{"rendered":"

Qu\u2019est-ce que la Journ\u00e9e mondiale de l\u2019amylose 2025\u202f?<\/h2>\n\n

World Amyloidosis Day 2025<\/a><\/strong>\u00a0will be observed on\u00a0October 26, 2025<\/strong>, uniting people around the globe to raise awareness about amyloidosis a rare and often misdiagnosed disease caused by abnormal protein deposits in tissues and organs.<\/p>\n\n

Cette journ\u00e9e internationale de sensibilisation est une occasion essentielle d\u2019informer le public, d\u2019am\u00e9liorer le diagnostic pr\u00e9coce et de soutenir les personnes qui vivent avec la maladie.<\/p>\n\n

\u00a0<\/h2>\n

What Is Amyloidosis?<\/h2>\n

\u00a0<\/p>\n\n

L\u2019amylose<\/strong> est un groupe de maladies rares qui surviennent lorsqu\u2019une prot\u00e9ine anormale, appel\u00e9e substance amylo\u00efde, s\u2019accumule dans les organes et les tissus. Sans traitement, l\u2019amylose peut entra\u00eener une d\u00e9faillance des organes, touchant en particulier le c\u0153ur, les reins, le foie, la rate et le syst\u00e8me nerveux.<\/p>\n\n

Parmi les sympt\u00f4mes fr\u00e9quents\u00a0:<\/p>\n\n

    \n
  • Une perte de poids inexpliqu\u00e9e<\/li>\n\n
  • Fatigue<\/li>\n\n
  • Gonflement des jambes et des chevilles<\/li>\n\n
  • Un essoufflement<\/li>\n\n
  • Engourdissements ou fourmillements dans les mains et les pieds<\/li>\n<\/ul>\n\n

    Un d\u00e9pistage pr\u00e9coce est essentiel pour am\u00e9liorer le pronostic, mais de nombreux patients sont diagnostiqu\u00e9s tardivement en raison de sympt\u00f4mes peu sp\u00e9cifiques.<\/p>\n\n

    \u00a0<\/h2>\n

    The Importance of World Amyloidosis Day 2025

    <\/h2>\n\n

    La Journ\u00e9e mondiale de l\u2019amylose vise \u00e0\u00a0:<\/p>\n\n

      \n
    • Sensibiliser le monde entier<\/strong>, grand public comme professionnels de sant\u00e9<\/li>\n\n
    • Favoriser un diagnostic pr\u00e9coce<\/strong> gr\u00e2ce \u00e0 l\u2019information<\/li>\n\n
    • Soutenir les patients et les familles<\/strong> touch\u00e9s par la maladie<\/li>\n\n
    • Encourager la recherche et son financement<\/strong> pour de meilleurs traitements<\/li>\n<\/ul>\n\n

      En mettant l\u2019amylose en lumi\u00e8re chaque ann\u00e9e, nous franchissons une \u00e9tape d\u00e9cisive vers des diagnostics plus rapides et une meilleure qualit\u00e9 de vie pour les patients.<\/p>\n\n

      \u00a0<\/h3>\n

      Theme of World Amyloidosis Day 2025<\/h3>\n

      The official theme for World Amyloidosis Day 2025<\/strong>\u00a0is Hereditary Amyloidosis.<\/strong>\u00a0This reflects the urgent need for faster recognition of symptoms and improved access to diagnostic tools worldwide.<\/p>\n\n

      \u00a0<\/p>\n\n

      How You Can Get Involved in World Amyloidosis Day 2025<\/h3>\n\n

      Chacun peut soutenir la Journ\u00e9e mondiale de l\u2019amylose 2025. Voici quelques fa\u00e7ons d\u2019agir\u00a0:<\/p>\n\n

        \n
      • \u00a0Portez de l\u2019orange\u00a0:<\/strong> l\u2019orange est la couleur de la sensibilisation \u00e0 l\u2019amylose. Montrez votre soutien en portant de l\u2019orange et en partageant des photos sur les r\u00e9seaux sociaux avec des hashtags comme #WorldAmyloidosisDay2025<\/strong> et #AmyloidosisAwareness<\/strong>.<\/li>\n\n
      • Partagez l\u2019information\u00a0:<\/strong> publiez en ligne des faits, des t\u00e9moignages de patients et des contenus p\u00e9dagogiques.<\/li>\n\n
      • Informez-vous et informez les autres\u00a0:<\/strong> d\u00e9couvrez les diff\u00e9rents types d\u2019amylose (AL, AA, ATTR\u2026) et faites passer le mot autour de vous.<\/li>\n\n
      • Participez \u00e0 des \u00e9v\u00e9nements ou webinaires en ligne\u00a0:<\/strong> prenez part aux \u00e9changes et aux actions de sensibilisation organis\u00e9s par les organisations de patients du monde entier<\/li>\n<\/ul>\n\n

        Why Awareness Matters<\/h3>\n\n

        Une meilleure connaissance de la maladie permet un diagnostic plus pr\u00e9coce et un meilleur pronostic. Pour les maladies rares comme l\u2019amylose, l\u2019information peut sauver des vies<\/strong>. Le 26 octobre 2025<\/strong>, unissons-nous pour donner la parole aux personnes touch\u00e9es, faire avancer la m\u00e9decine et r\u00e9duire le temps n\u00e9cessaire pour obtenir un diagnostic.<\/p>\n\n

        Final Thoughts

        <\/h2>\n\n

        Notez la date de la Journ\u00e9e mondiale de l\u2019amylose 2025<\/strong> et rejoignez un mouvement qui donne de l\u2019espoir \u00e0 des milliers de personnes dans le monde. Que vous soyez patient, proche, professionnel de sant\u00e9 ou militant associatif, votre voix compte.<\/p>\n\n

        Ensemble, transformons la sensibilisation en action.<\/p>\n","protected":false},"excerpt":{"rendered":"

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