{"id":1595,"date":"2026-09-14T15:20:19","date_gmt":"2026-09-14T13:20:19","guid":{"rendered":"https:\/\/amyloidosisalliance.local\/journee-mondiale-de-lamylose-2026-une-campagne-mondiale-pour-faire-connaitre-lamylose\/"},"modified":"2026-09-29T15:32:10","modified_gmt":"2026-09-29T13:32:10","slug":"journee-mondiale-de-lamylose-2026-une-campagne-mondiale-pour-faire-connaitre-lamylose","status":"publish","type":"post","link":"https:\/\/www.amyloidosisalliance.org\/fr\/journee-mondiale-de-lamylose-2026-une-campagne-mondiale-pour-faire-connaitre-lamylose\/","title":{"rendered":"Journ\u00e9e mondiale de l\u2019amylose 2026\u00a0: une campagne mondiale pour faire conna\u00eetre l\u2019amylose"},"content":{"rendered":"\n<p class=\"wp-block-paragraph\"><strong>26 octobre 2026<\/strong><\/p>\n\n<p class=\"wp-block-paragraph\">Chaque ann\u00e9e, la Journ\u00e9e mondiale de l\u2019amylose rassemble la communaut\u00e9 internationale de l\u2019amylose pour faire conna\u00eetre une maladie rare et complexe, encore trop souvent n\u00e9glig\u00e9e.<\/p>\n\n<p class=\"wp-block-paragraph\">Le 26 octobre 2026, l\u2019Amyloidosis Alliance c\u00e9l\u00e9brera la <a href=\"https:\/\/www.amyloidosisalliance.org\/fr\/nos-evenements\/journee-mondiale-de-lamylose\/\">6e Journ\u00e9e mondiale de l\u2019amylose<\/a>, en r\u00e9unissant organisations de patients, patients, familles, professionnels de sant\u00e9 et sympathisants du monde entier.<\/p>\n\n<h2 class=\"wp-block-heading\">Une journ\u00e9e. Une communaut\u00e9. Un message mondial.<\/h2>\n\n<p class=\"wp-block-paragraph\">L\u2019amylose peut \u00eatre difficile \u00e0 reconna\u00eetre et \u00e0 diagnostiquer. Ses sympt\u00f4mes peuvent varier consid\u00e9rablement selon le type d\u2019amylose et les organes touch\u00e9s, et la maladie reste relativement m\u00e9connue, du grand public comme des professionnels de sant\u00e9.<\/p>\n\n<p class=\"wp-block-paragraph\">Ce manque de connaissance peut contribuer \u00e0 d\u2019importants retards de diagnostic.<\/p>\n\n<p class=\"wp-block-paragraph\"><a href=\"https:\/\/www.amyloidosisalliance.org\/fr\/nos-evenements\/journee-mondiale-de-lamylose\/editions-precedentes\/\">La Journ\u00e9e mondiale de l\u2019amylose a \u00e9t\u00e9 cr\u00e9\u00e9e<\/a> pour r\u00e9pondre \u00e0 ce d\u00e9fi, en mettant la maladie en lumi\u00e8re et en encourageant chaque acteur de la communaut\u00e9 de l\u2019amylose \u00e0 devenir un lien entre les patients, les aidants, les professionnels de sant\u00e9, les chercheurs et la soci\u00e9t\u00e9 tout enti\u00e8re.<\/p>\n\n<p class=\"wp-block-paragraph\">Le message central de la campagne est simple\u00a0:<\/p>\n\n<p class=\"wp-block-paragraph\"><strong>Ensemble, nous pouvons \u00eatre le lien.<\/strong><\/p>\n\n<h2 class=\"wp-block-heading\">Une campagne internationale dans plus de 19 pays<\/h2>\n\n<p class=\"wp-block-paragraph\">Pour l\u2019\u00e9dition 2026, la campagne de la Journ\u00e9e mondiale de l\u2019amylose sera relay\u00e9e \u00e0 l\u2019international par le <a href=\"https:\/\/www.amyloidosisalliance.org\/fr\/membres\/\">r\u00e9seau d\u2019organisations de patients<\/a> rattach\u00e9es \u00e0 l\u2019Amyloidosis Alliance.<\/p>\n\n<p class=\"wp-block-paragraph\">Plus de 19 pays y participeront, formant un v\u00e9ritable mouvement international pour mieux faire conna\u00eetre l\u2019amylose et donner davantage de visibilit\u00e9 au <a href=\"https:\/\/www.amyloidosisalliance.org\/fr\/nos-evenements\/journee-mondiale-de-lamylose\/temoignages\/\">v\u00e9cu des personnes atteintes de la maladie<\/a>.<\/p>\n\n<p class=\"wp-block-paragraph\">De l\u2019Europe au reste du monde, les organisations locales pourront adapter et relayer la campagne aupr\u00e8s de leurs propres communaut\u00e9s, tout en contribuant \u00e0 un message international commun.<\/p>\n\n<p class=\"wp-block-paragraph\">Cette d\u00e9marche coordonn\u00e9e illustre l\u2019une des grandes forces de l\u2019Alliance\u00a0: r\u00e9unir des organisations de patients par-del\u00e0 les fronti\u00e8res pour faire porter plus loin la voix de la communaut\u00e9 de l\u2019amylose.<\/p>\n\n<h2 class=\"wp-block-heading\">Des supports de campagne accessibles \u00e0 tous<\/h2>\n\n<p class=\"wp-block-paragraph\">Pour soutenir cette mobilisation mondiale, l\u2019Amyloidosis Alliance a con\u00e7u un <a href=\"https:\/\/www.amyloidosisalliance.org\/fr\/nos-evenements\/journee-mondiale-de-lamylose\/#campaign\">ensemble complet de supports de campagne<\/a>.<\/p>\n\n<p class=\"wp-block-paragraph\">Ces ressources sont \u00e0 la disposition des organisations et des particuliers qui souhaitent participer, et peuvent comprendre\u00a0:<\/p>\n\n<ul class=\"wp-block-list\">\n<li>des visuels et des messages cl\u00e9s de campagne\u202f;<\/li>\n\n<li>des contenus pour les r\u00e9seaux sociaux\u202f;<\/li>\n\n<li>des supports de communication t\u00e9l\u00e9chargeables\u202f;<\/li>\n\n<li>ainsi que des supports pouvant \u00eatre adapt\u00e9s et diffus\u00e9s dans diff\u00e9rents pays.<\/li>\n<\/ul>\n\n<p class=\"wp-block-paragraph\">L\u2019objectif est de permettre \u00e0 chacun de participer le plus simplement possible et d\u2019aider \u00e0 faire conna\u00eetre la maladie.<\/p>\n\n<p class=\"wp-block-paragraph\">Que vous soyez une organisation de patients, un professionnel de sant\u00e9, un patient, un aidant, un chercheur ou un sympathisant, vous pouvez contribuer \u00e0 rendre l\u2019amylose plus visible.<\/p>\n\n<h2 class=\"wp-block-heading\">Pourquoi la sensibilisation est essentielle<\/h2>\n\n<p class=\"wp-block-paragraph\">L\u2019amylose reste une maladie rare et complexe\u00a0: mieux la faire conna\u00eetre est essentiel pour am\u00e9liorer le parcours des patients.<\/p>\n\n<p class=\"wp-block-paragraph\">Reconna\u00eetre la maladie plus t\u00f4t peut favoriser un diagnostic plus rapide, un meilleur acc\u00e8s \u00e0 des soins sp\u00e9cialis\u00e9s et, \u00e0 terme, une meilleure prise en charge et une meilleure qualit\u00e9 de vie.<\/p>\n\n<p class=\"wp-block-paragraph\">Mais la sensibilisation ne rel\u00e8ve pas seulement de la m\u00e9decine.<\/p>\n\n<p class=\"wp-block-paragraph\">Il s\u2019agit aussi de faire en sorte que les patients et leurs familles se sentent reconnus, compris et soutenus.<\/p>\n\n<p class=\"wp-block-paragraph\">La Journ\u00e9e mondiale de l\u2019amylose est donc une journ\u00e9e pour rassembler toute la communaut\u00e9, et rappeler \u00e0 chacun que derri\u00e8re chaque diagnostic, il y a une personne, une famille et une histoire unique.<\/p>\n\n<h2 class=\"wp-block-heading\">Rejoignez le mouvement<\/h2>\n\n<p class=\"wp-block-paragraph\">Le 26 octobre, rendons l\u2019amylose visible.<\/p>\n\n<p class=\"wp-block-paragraph\">Partagez la campagne. Utilisez les ressources disponibles. Parlez de l\u2019amylose. Soutenez les patients et les aidants. Aidez les professionnels de sant\u00e9 \u00e0 reconna\u00eetre la maladie.<\/p>\n\n<p class=\"wp-block-paragraph\">Un message peut toucher une personne.<br\/>Une personne peut faire la diff\u00e9rence.<br\/>Ensemble, nous pouvons \u00eatre le lien.<\/p>\n\n<p class=\"wp-block-paragraph\">D\u00e9couvrez la campagne de la Journ\u00e9e mondiale de l\u2019amylose et acc\u00e9dez \u00e0 ses ressources sur le site officiel\u00a0: <a href=\"https:\/\/www.worldamyloidosisday.org\" target=\"_blank\" rel=\"noreferrer noopener\">www.worldamyloidosisday.org<\/a><\/p>\n","protected":false},"excerpt":{"rendered":"<p>Le 26 octobre 2026, des organisations de patients de plus de 19 pays c\u00e9l\u00e8brent la 6e Journ\u00e9e mondiale de l\u2019amylose. D\u00e9couvrez la campagne et participez.<\/p>\n","protected":false},"author":1,"featured_media":1596,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[24],"tags":[],"class_list":["post-1595","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-actualites"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v28.6 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>Journ\u00e9e mondiale de l\u2019amylose 2026\u00a0: rejoignez la campagne<\/title>\n<meta name=\"description\" content=\"Le 26 octobre 2026, des organisations de patients de plus de 19 pays c\u00e9l\u00e8brent la 6e Journ\u00e9e mondiale de l\u2019amylose. 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