{"id":1525,"date":"2023-04-05T08:32:00","date_gmt":"2023-04-05T06:32:00","guid":{"rendered":"https:\/\/amyloidosisalliance.local\/lisez-lhistoire-de-la-maladie-damy-diagnostiquee-a-52-ans\/"},"modified":"2026-09-29T15:32:07","modified_gmt":"2026-09-29T13:32:07","slug":"lisez-lhistoire-de-la-maladie-damy-diagnostiquee-a-52-ans","status":"publish","type":"post","link":"https:\/\/www.amyloidosisalliance.org\/fr\/lisez-lhistoire-de-la-maladie-damy-diagnostiquee-a-52-ans\/","title":{"rendered":"LISEZ L\u2019HISTOIRE DE LA MALADIE D\u2019AMY, diagnostiqu\u00e9e \u00e0 52 ans"},"content":{"rendered":"\n<p class=\"wp-block-paragraph\">On m\u2019a diagnostiqu\u00e9 une amylose en 2018, \u00e0 52 ans, apr\u00e8s plusieurs ann\u00e9es de consultations pour des sympt\u00f4mes que personne n\u2019arrivait \u00e0 expliquer.<\/p>\n\n<p class=\"wp-block-paragraph\">Je savais que quelque chose n\u2019allait pas, mais les bilans de routine ne montraient rien d\u2019anormal. La substance amylo\u00efde a \u00e9t\u00e9 d\u00e9couverte lors d\u2019une coloscopie de routine, dans mon tube digestif.<\/p>\n\n<p class=\"wp-block-paragraph\">L\u2019amylose, c\u2019\u00e9tait un mot que je n\u2019avais jamais entendu, et m\u00eame apr\u00e8s des ann\u00e9es pass\u00e9es \u00e0 me renseigner depuis le diagnostic, je trouve cette maladie tr\u00e8s complexe et difficile \u00e0 comprendre.<\/p>\n\n<p class=\"wp-block-paragraph\">Femme tr\u00e8s active, m\u00e8re de trois enfants et grand-m\u00e8re de sept petits-enfants, j\u2019ai d\u2019abord eu le c\u0153ur bris\u00e9 et j\u2019ai eu peur. J\u2019avais perdu mes deux parents et deux fr\u00e8res et s\u0153urs \u00e0 cause de cancers, j\u2019avais fait des choix de vie sains, cela ne pouvait pas m\u2019arriver.<\/p>\n\n<p class=\"wp-block-paragraph\">La r\u00e9alit\u00e9 m\u2019a donn\u00e9 tort.<\/p>\n\n<p class=\"wp-block-paragraph\">Trouver un m\u00e9decin sp\u00e9cialiste de l\u2019amylose est indispensable\u202f! Apr\u00e8s des examens approfondis pour \u00e9valuer l\u2019\u00e9volution de la maladie, j\u2019ai commenc\u00e9 un cocktail de m\u00e9dicaments de chimioth\u00e9rapie, pendant 6 mois.<\/p>\n\n<p class=\"wp-block-paragraph\">Jusqu\u2019\u00e0 pr\u00e9sent, les r\u00e9sultats sont en ma faveur. M\u00eame si la greffe de cellules souches est une option souvent \u00e9voqu\u00e9e pour cette maladie, elle n\u2019est pas envisageable pour moi en raison de facteurs li\u00e9s aux IgM. Encore un facteur rare. Je suis d\u00e9termin\u00e9e \u00e0 vivre \u00ab\u00a0ma normalit\u00e9\u00a0\u00bb autant que possible. Je me concentre sur une vie heureuse, je compte sur les avanc\u00e9es de la recherche et sur les nouveaux traitements \u00e0 mesure qu\u2019ils arrivent. J\u2019adapte mon quotidien quand il le faut, mais je refuse de m\u2019avouer vaincue\u202f!<\/p>\n\n<p class=\"wp-block-paragraph\">En partageant mon histoire, mon but principal est de faire conna\u00eetre la maladie, dans l\u2019espoir que d\u2019autres soient diagnostiqu\u00e9s plus t\u00f4t.<\/p>\n\n<p class=\"wp-block-paragraph\"><img loading=\"lazy\" decoding=\"async\" height=\"16\" width=\"16\" src=\"https:\/\/static.xx.fbcdn.net\/images\/emoji.php\/v9\/t1f\/2\/16\/27a1.png\" alt=\"&#x27A1;&#xFE0F;\"\/> <a href=\"https:\/\/worldamyloidosisday.org\/amys-disease-aka-amyloidosis-3\/?fbclid=IwAR3Fon8r7Fd1Q0NlX3m7RY_L_2SdDolMqpqxyJoWqnEVAejB0F_nuGuD5oM\">Son histoire ici<\/a> <\/p>\n","protected":false},"excerpt":{"rendered":"<p>Amy a appris qu\u2019elle avait une amylose \u00e0 52 ans, apr\u00e8s des ann\u00e9es de sympt\u00f4mes inexpliqu\u00e9s. Elle raconte son parcours et pourquoi il est essentiel de trouver un m\u00e9decin sp\u00e9cialiste.<\/p>\n","protected":false},"author":1,"featured_media":1526,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[24],"tags":[],"class_list":["post-1525","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-actualites"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v28.6 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>LISEZ L\u2019HISTOIRE DE LA MALADIE D\u2019AMY, diagnostiqu\u00e9e \u00e0 52 ans<\/title>\n<meta name=\"description\" content=\"Amy a appris qu\u2019elle avait une amylose \u00e0 52 ans, apr\u00e8s des ann\u00e9es de sympt\u00f4mes inexpliqu\u00e9s. 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