{"id":1498,"date":"2026-07-07T11:33:50","date_gmt":"2026-07-07T09:33:50","guid":{"rendered":"https:\/\/amyloidosisalliance.local\/a-propos\/"},"modified":"2026-10-09T08:56:46","modified_gmt":"2026-10-09T06:56:46","slug":"a-propos","status":"publish","type":"page","link":"https:\/\/www.amyloidosisalliance.org\/fr\/a-propos\/","title":{"rendered":"\u00c0 propos"},"content":{"rendered":"\n<nav aria-label=\"Breadcrumb\" class=\"wp-block-group aa-breadcrumb is-layout-flow wp-block-group-is-layout-flow\">\n<div class=\"aa-inner\"><a href=\"\/\">Accueil<\/a><span class=\"aa-breadcrumb__sep\">\u203a<\/span><span class=\"aa-breadcrumb__label\">L\u2019Alliance<\/span><span class=\"aa-breadcrumb__sep\">\u203a<\/span><span class=\"aa-breadcrumb__current\">\u00c0 propos<\/span><\/div>\r\n<\/nav>\n\n<section class=\"wp-block-group aa-page-hero is-layout-flow wp-block-group-is-layout-flow\">\n<div class=\"wp-block-group aa-inner is-layout-flow wp-block-group-is-layout-flow\">\n<div class=\"wp-block-group aa-page-hero__grid is-layout-flow wp-block-group-is-layout-flow\">\n<div class=\"wp-block-group is-layout-flow wp-block-group-is-layout-flow\">\n<p class=\"aa-overline wp-block-paragraph\">L\u2019Alliance<\/p>\n\n\n\n<h1 class=\"wp-block-heading\">\u00c0 propos<\/h1>\n\n\n\n<p class=\"aa-lead wp-block-paragraph\">L\u2019Amyloidosis Alliance est une coalition internationale qui r\u00e9unit des associations de patients, des experts m\u00e9dicaux et des institutions de recherche autour d\u2019une mission commune\u00a0: mettre fin \u00e0 l\u2019errance diagnostique et transformer la prise en charge des patients atteints d\u2019amylose dans le monde entier.<\/p>\n\n\n\n<p class=\"aa-page-hero__body wp-block-paragraph\">Fond\u00e9e sur la conviction qu\u2019aucune organisation ne peut relever seule ces d\u00e9fis, l\u2019Alliance relie les efforts nationaux par la coop\u00e9ration internationale, en partageant connaissances, ressources et points de vue des personnes touch\u00e9es par la maladie.<\/p>\n<\/div>\n\n\n\n<div class=\"wp-block-group aa-page-hero__photo is-layout-flow wp-block-group-is-layout-flow\">\n<figure class=\"wp-block-image size-full\"><img loading=\"lazy\" decoding=\"async\" width=\"631\" height=\"593\" src=\"https:\/\/www.amyloidosisalliance.org\/wp-content\/uploads\/2026\/09\/about-us.jpg\" alt=\"\" class=\"wp-image-671\" srcset=\"https:\/\/www.amyloidosisalliance.org\/wp-content\/uploads\/2026\/09\/about-us.jpg 631w, https:\/\/www.amyloidosisalliance.org\/wp-content\/uploads\/2026\/09\/about-us-300x282.jpg 300w\" sizes=\"auto, (max-width: 631px) 100vw, 631px\" \/><\/figure>\n<\/div>\n<\/div>\n<\/div>\n<\/section>\n\n<nav aria-label=\"Section navigation\" class=\"wp-block-group aa-anchorband is-layout-flow wp-block-group-is-layout-flow\">\n<div class=\"wp-block-group aa-inner is-layout-flow wp-block-group-is-layout-flow\">\n<div class=\"wp-block-columns aa-anchor-cols is-layout-flex wp-container-core-columns-is-layout-b2e659ba wp-block-columns-is-layout-flex\">\n<div class=\"wp-block-column aa-anchor-item is-layout-flow wp-block-column-is-layout-flow\">\n<p class=\"num wp-block-paragraph\">01<\/p>\n\n\n\n<p class=\"lbl wp-block-paragraph\"><a href=\"#why\">Pourquoi nous existons<\/a><\/p>\n<\/div>\n\n\n\n<div class=\"wp-block-column aa-anchor-item is-layout-flow wp-block-column-is-layout-flow\">\n<p class=\"num wp-block-paragraph\">02<\/p>\n\n\n\n<p class=\"lbl wp-block-paragraph\"><a href=\"#connect\">Ce que nous r\u00e9unissons<\/a><\/p>\n<\/div>\n\n\n\n<div class=\"wp-block-column aa-anchor-item is-layout-flow wp-block-column-is-layout-flow\">\n<p class=\"num wp-block-paragraph\">03<\/p>\n\n\n\n<p class=\"lbl wp-block-paragraph\"><a href=\"#how\">Notre fonctionnement<\/a><\/p>\n<\/div>\n\n\n\n<div class=\"wp-block-column aa-anchor-item is-layout-flow wp-block-column-is-layout-flow\">\n<p class=\"num wp-block-paragraph\">04<\/p>\n\n\n\n<p class=\"lbl wp-block-paragraph\"><a href=\"#presence\">Pr\u00e9sence internationale<\/a><\/p>\n<\/div>\n\n\n\n<div class=\"wp-block-column aa-anchor-item is-layout-flow wp-block-column-is-layout-flow\">\n<p class=\"num wp-block-paragraph\">05<\/p>\n\n\n\n<p class=\"lbl wp-block-paragraph\"><a href=\"#serve\">Pour qui nous agissons<\/a><\/p>\n<\/div>\n\n\n\n<div class=\"wp-block-column aa-anchor-item is-layout-flow wp-block-column-is-layout-flow\">\n<p class=\"num wp-block-paragraph\">06<\/p>\n\n\n\n<p class=\"lbl wp-block-paragraph\"><a href=\"#timeline\">L\u2019histoire de l\u2019Alliance<\/a><\/p>\n<\/div>\n<\/div>\n<\/div>\n<\/nav>\n\n<section id=\"why\" class=\"wp-block-group aa-section aa-section--white aa-why is-layout-flow wp-block-group-is-layout-flow\">\n<div class=\"wp-block-group aa-inner is-layout-flow wp-block-group-is-layout-flow\">\n<div class=\"wp-block-group is-layout-flow wp-block-group-is-layout-flow\">\n<p class=\"aa-section-num wp-block-paragraph\">01<\/p>\n\n\n\n<h2 class=\"wp-block-heading\">Pourquoi l\u2019Alliance existe<\/h2>\n<\/div>\n\n\n\n<div class=\"wp-block-group aa-why__cols is-layout-flow wp-block-group-is-layout-flow\">\n<div class=\"wp-block-group aa-why-col is-layout-flow wp-block-group-is-layout-flow\">\n<h4 class=\"wp-block-heading\">Le d\u00e9fi d\u2019une maladie rare<\/h4>\n\n\n\n<p class=\"wp-block-paragraph\">L\u2019amylose est un groupe de maladies rares et complexes, encore largement sous-diagnostiqu\u00e9es. Les sympt\u00f4mes peuvent ressembler \u00e0 ceux de maladies bien plus fr\u00e9quentes, tandis que l\u2019expertise est r\u00e9partie entre diff\u00e9rentes sp\u00e9cialit\u00e9s et diff\u00e9rents syst\u00e8mes de sant\u00e9.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">Cela peut conduire \u00e0 une errance diagnostique de plusieurs ann\u00e9es, avec un risque d\u2019atteinte progressive et potentiellement irr\u00e9versible des organes.<\/p>\n<\/div>\n\n\n\n<div class=\"wp-block-group aa-why-col is-layout-flow wp-block-group-is-layout-flow\">\n<h4 class=\"wp-block-heading\">Une r\u00e9ponse internationale commune<\/h4>\n\n\n\n<p class=\"wp-block-paragraph\">L\u2019Alliance a \u00e9t\u00e9 fond\u00e9e pour relier les initiatives nationales et r\u00e9unir organisations de patients, professionnels de sant\u00e9, chercheurs et autres acteurs autour d\u2019objectifs communs.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">En partageant connaissances et ressources par-del\u00e0 les fronti\u00e8res, nous \u0153uvrons pour un diagnostic plus pr\u00e9coce, un meilleur acc\u00e8s aux soins et une voix des patients plus forte dans les d\u00e9bats sur la sant\u00e9, la recherche et les politiques publiques.<\/p>\n<\/div>\n<\/div>\n<\/div>\n<\/section>\n\n<section id=\"connect\" class=\"wp-block-group aa-section aa-section--cream aa-connect is-layout-flow wp-block-group-is-layout-flow\">\n<div class=\"wp-block-group aa-inner is-layout-flow wp-block-group-is-layout-flow\">\n<div class=\"wp-block-group aa-connect__media is-layout-flow wp-block-group-is-layout-flow\">\n<figure class=\"wp-block-image size-large\"><img loading=\"lazy\" decoding=\"async\" width=\"683\" height=\"1024\" src=\"https:\/\/www.amyloidosisalliance.org\/wp-content\/uploads\/2026\/09\/krakenimages-Y5bvRlcCx8k-unsplash-683x1024.jpg\" alt=\"\" class=\"wp-image-667\" srcset=\"https:\/\/www.amyloidosisalliance.org\/wp-content\/uploads\/2026\/09\/krakenimages-Y5bvRlcCx8k-unsplash-683x1024.jpg 683w, https:\/\/www.amyloidosisalliance.org\/wp-content\/uploads\/2026\/09\/krakenimages-Y5bvRlcCx8k-unsplash-200x300.jpg 200w, https:\/\/www.amyloidosisalliance.org\/wp-content\/uploads\/2026\/09\/krakenimages-Y5bvRlcCx8k-unsplash-768x1152.jpg 768w, https:\/\/www.amyloidosisalliance.org\/wp-content\/uploads\/2026\/09\/krakenimages-Y5bvRlcCx8k-unsplash-1024x1536.jpg 1024w, https:\/\/www.amyloidosisalliance.org\/wp-content\/uploads\/2026\/09\/krakenimages-Y5bvRlcCx8k-unsplash-1365x2048.jpg 1365w\" sizes=\"auto, (max-width: 683px) 100vw, 683px\" \/><\/figure>\n<\/div>\n\n\n\n<div class=\"wp-block-group is-layout-flow wp-block-group-is-layout-flow\">\n<p class=\"aa-section-num wp-block-paragraph\">02<\/p>\n\n\n\n<h2 class=\"wp-block-heading\">Ce que nous r\u00e9unissons<\/h2>\n\n\n\n<div class=\"wp-block-group aa-connect__list is-layout-flow wp-block-group-is-layout-flow\">\n<div class=\"wp-block-group aa-connect-row is-layout-flow wp-block-group-is-layout-flow\">\n<p class=\"aa-connect-row__name wp-block-paragraph\">Associations membres<\/p>\n\n\n\n<p class=\"aa-connect-row__desc wp-block-paragraph\">24 organisations de patients dans 19 pays, reli\u00e9es au sein d\u2019une m\u00eame alliance internationale.<\/p>\n<\/div>\n\n\n\n<div class=\"wp-block-group aa-connect-row is-layout-flow wp-block-group-is-layout-flow\">\n<p class=\"aa-connect-row__name wp-block-paragraph\">Comit\u00e9 scientifique<\/p>\n\n\n\n<p class=\"aa-connect-row__desc wp-block-paragraph\">Des cliniciens et des chercheurs qui apportent leur expertise scientifique et m\u00e9dicale au travail de l\u2019Alliance.<\/p>\n<\/div>\n\n\n\n<div class=\"wp-block-group aa-connect-row is-layout-flow wp-block-group-is-layout-flow\">\n<p class=\"aa-connect-row__name wp-block-paragraph\">Actions de sensibilisation<\/p>\n\n\n\n<p class=\"aa-connect-row__desc wp-block-paragraph\">Des campagnes mondiales, dont la Journ\u00e9e mondiale de l\u2019amylose, qui mobilisent la communaut\u00e9 chaque ann\u00e9e.<\/p>\n<\/div>\n\n\n\n<div class=\"wp-block-group aa-connect-row is-layout-flow wp-block-group-is-layout-flow\">\n<p class=\"aa-connect-row__name wp-block-paragraph\">Ressources et \u00e9v\u00e9nements<\/p>\n\n\n\n<p class=\"aa-connect-row__desc wp-block-paragraph\">Des rencontres internationales, des ressources p\u00e9dagogiques et des outils pratiques con\u00e7us pour les diff\u00e9rents publics de la communaut\u00e9 de l\u2019amylose.<\/p>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/section>\n\n<section id=\"how\" class=\"wp-block-group aa-section aa-section--white aa-how is-layout-flow wp-block-group-is-layout-flow\">\n<div class=\"wp-block-group aa-inner is-layout-flow wp-block-group-is-layout-flow\">\n<div class=\"wp-block-group aa-how__head is-layout-flow wp-block-group-is-layout-flow\">\n<p class=\"aa-section-num wp-block-paragraph\">03<\/p>\n\n\n\n<h2 class=\"wp-block-heading\">Comment fonctionne l\u2019Alliance<\/h2>\n\n\n\n<div class=\"aa-divider-dot\"><\/div>\r\n\n\n\n<p class=\"wp-block-paragraph\">Trois fonctions compl\u00e9mentaires permettent \u00e0 notre r\u00e9seau d\u2019agir collectivement et d\u2019accro\u00eetre son impact.<\/p>\n<\/div>\n\n\n\n<div class=\"wp-block-group aa-how__grid is-layout-flow wp-block-group-is-layout-flow\">\n<div class=\"wp-block-group aa-how-card is-layout-flow wp-block-group-is-layout-flow\">\n<span class=\"aa-icon-tile\"><svg width=\"24\" height=\"24\" viewbox=\"0 0 24 24\" fill=\"none\" stroke=\"currentColor\" stroke-width=\"1.75\" stroke-linecap=\"round\" stroke-linejoin=\"round\" aria-hidden=\"true\"><circle cx=\"18\" cy=\"5\" r=\"3\"><\/circle><circle cx=\"6\" cy=\"12\" r=\"3\"><\/circle><circle cx=\"18\" cy=\"19\" r=\"3\"><\/circle><line x1=\"8.59\" y1=\"13.51\" x2=\"15.42\" y2=\"17.49\"><\/line><line x1=\"15.41\" y1=\"6.51\" x2=\"8.59\" y2=\"10.49\"><\/line><\/svg><\/span>\r\n\n\n\n<h3 class=\"wp-block-heading\">Coordonner<\/h3>\n\n\n\n<p class=\"wp-block-paragraph\">Nous r\u00e9unissons les organisations membres autour de priorit\u00e9s communes, pour qu\u2019elles puissent \u00e9changer leurs exp\u00e9riences, partager leurs bonnes pratiques et d\u00e9velopper des initiatives conjointes.<\/p>\n<\/div>\n\n\n\n<div class=\"wp-block-group aa-how-card is-layout-flow wp-block-group-is-layout-flow\">\n<span class=\"aa-icon-tile\"><svg width=\"24\" height=\"24\" viewbox=\"0 0 24 24\" fill=\"none\" stroke=\"currentColor\" stroke-width=\"1.75\" stroke-linecap=\"round\" stroke-linejoin=\"round\" aria-hidden=\"true\"><path d=\"M3 11l18-5v12L3 14v-3z\"><\/path><path d=\"M11.6 16.8a3 3 0 1 1-5.8-1.6\"><\/path><\/svg><\/span>\r\n\n\n\n<h3 class=\"wp-block-heading\">D\u00e9fendre<\/h3>\n\n\n\n<p class=\"wp-block-paragraph\">Nous portons le point de vue des patients aupr\u00e8s des autorit\u00e9s de sant\u00e9 et des autres acteurs, en plaidant pour un diagnostic rapide, une prise en charge adapt\u00e9e et un acc\u00e8s \u00e9quitable aux traitements.<\/p>\n<\/div>\n\n\n\n<div class=\"wp-block-group aa-how-card is-layout-flow wp-block-group-is-layout-flow\">\n<span class=\"aa-icon-tile\"><svg width=\"24\" height=\"24\" viewbox=\"0 0 24 24\" fill=\"none\" stroke=\"currentColor\" stroke-width=\"1.75\" stroke-linecap=\"round\" stroke-linejoin=\"round\" aria-hidden=\"true\"><path d=\"M2 3h6a4 4 0 0 1 4 4v14a3 3 0 0 0-3-3H2z\"><\/path><path d=\"M22 3h-6a4 4 0 0 0-4 4v14a3 3 0 0 1 3-3h7z\"><\/path><\/svg><\/span>\r\n\n\n\n<h3 class=\"wp-block-heading\">Informer<\/h3>\n\n\n\n<p class=\"wp-block-paragraph\">Nous traduisons une science complexe en ressources claires et fiables pour les patients, les familles et les professionnels de sant\u00e9.<\/p>\n<\/div>\n<\/div>\n<\/div>\n<\/section>\n\n<section id=\"presence\" class=\"wp-block-group aa-section aa-section--cream aa-presence is-layout-flow wp-block-group-is-layout-flow\">\n<div class=\"wp-block-group aa-inner is-layout-flow wp-block-group-is-layout-flow\">\n<div class=\"wp-block-group is-layout-flow wp-block-group-is-layout-flow\">\n<p class=\"aa-section-num wp-block-paragraph\">04<\/p>\n\n\n\n<h2 class=\"wp-block-heading\">Pr\u00e9sence internationale<\/h2>\n\n\n\n<p class=\"aa-lead wp-block-paragraph\">En Europe, sur le continent am\u00e9ricain, en Asie et au-del\u00e0, l\u2019Alliance relie les organisations de patients et les expertises par-del\u00e0 les fronti\u00e8res, pour partager les connaissances et renforcer le soutien dans des contextes diff\u00e9rents.<\/p>\n\n\n\n<p class=\"aa-presence__body wp-block-paragraph\">Chaque organisation membre apporte au r\u00e9seau sa connaissance et son exp\u00e9rience du terrain, ce qui aide \u00e0 rep\u00e9rer les d\u00e9fis communs et \u00e0 partager les approches d\u2019un pays \u00e0 l\u2019autre.<\/p>\n\n\n\n<div class=\"wp-block-group aa-presence__stats is-layout-flow wp-block-group-is-layout-flow\">\n<div class=\"wp-block-group aa-presence-stat is-layout-flow wp-block-group-is-layout-flow\">\n<p class=\"n wp-block-paragraph\">19<\/p>\n\n\n\n<p class=\"t wp-block-paragraph\">Pays<\/p>\n<\/div>\n\n\n\n<div class=\"wp-block-group aa-presence-stat is-layout-flow wp-block-group-is-layout-flow\">\n<p class=\"n wp-block-paragraph\">24<\/p>\n\n\n\n<p class=\"t wp-block-paragraph\">Associations<\/p>\n<\/div>\n\n\n\n<div class=\"wp-block-group aa-presence-stat is-layout-flow wp-block-group-is-layout-flow\">\n<p class=\"n wp-block-paragraph\">8<\/p>\n\n\n\n<p class=\"t wp-block-paragraph\">Langues<\/p>\n<\/div>\n<\/div>\n<\/div>\n\n\n\n<div class=\"wp-block-group aa-presence__map is-layout-flow wp-block-group-is-layout-flow\">\n<figure class=\"wp-block-image size-full\"><img loading=\"lazy\" decoding=\"async\" width=\"1600\" height=\"1200\" src=\"https:\/\/www.amyloidosisalliance.org\/wp-content\/uploads\/2026\/09\/alliance-world-map.png\" alt=\"Carte du monde stylis&#xE9;e montrant les organisations membres reli&#xE9;es d&#x2019;un continent &#xE0; l&#x2019;autre\" class=\"wp-image-1048\" srcset=\"https:\/\/www.amyloidosisalliance.org\/wp-content\/uploads\/2026\/09\/alliance-world-map.png 1600w, https:\/\/www.amyloidosisalliance.org\/wp-content\/uploads\/2026\/09\/alliance-world-map-300x225.png 300w, https:\/\/www.amyloidosisalliance.org\/wp-content\/uploads\/2026\/09\/alliance-world-map-1024x768.png 1024w, https:\/\/www.amyloidosisalliance.org\/wp-content\/uploads\/2026\/09\/alliance-world-map-768x576.png 768w, https:\/\/www.amyloidosisalliance.org\/wp-content\/uploads\/2026\/09\/alliance-world-map-1536x1152.png 1536w\" sizes=\"auto, (max-width: 1600px) 100vw, 1600px\" \/><\/figure>\n\n\n\n<div class=\"wp-block-group aa-presence__badge is-layout-flow wp-block-group-is-layout-flow\">\n<p class=\"num wp-block-paragraph\">19<\/p>\n\n\n\n<p class=\"txt wp-block-paragraph\">Nos organisations membres sont aujourd\u2019hui pr\u00e9sentes dans 19 pays, dans plusieurs r\u00e9gions du monde.<\/p>\n<\/div>\n<\/div>\n<\/div>\n<\/section>\n\n<section id=\"serve\" class=\"wp-block-group aa-section aa-section--white aa-serve is-layout-flow wp-block-group-is-layout-flow\">\n<div class=\"wp-block-group aa-inner is-layout-flow wp-block-group-is-layout-flow\">\n<div class=\"wp-block-group aa-serve__head is-layout-flow wp-block-group-is-layout-flow\">\n<p class=\"aa-section-num wp-block-paragraph\">05<\/p>\n\n\n\n<h2 class=\"wp-block-heading\">Pour qui nous agissons<\/h2>\n<\/div>\n\n\n\n<div class=\"wp-block-group aa-serve__grid is-layout-flow wp-block-group-is-layout-flow\">\n<div class=\"wp-block-group aa-serve-col is-layout-flow wp-block-group-is-layout-flow\">\n<span class=\"aa-icon-tile\"><svg width=\"24\" height=\"24\" viewbox=\"0 0 24 24\" fill=\"none\" stroke=\"currentColor\" stroke-width=\"1.75\" stroke-linecap=\"round\" stroke-linejoin=\"round\" aria-hidden=\"true\"><rect x=\"4\" y=\"2\" width=\"16\" height=\"20\" rx=\"1\"><\/rect><path d=\"M9 22v-4h6v4\"><\/path><path d=\"M8 6h.01\"><\/path><path d=\"M16 6h.01\"><\/path><path d=\"M12 6h.01\"><\/path><path d=\"M8 10h.01\"><\/path><path d=\"M16 10h.01\"><\/path><path d=\"M12 10h.01\"><\/path><path d=\"M8 14h.01\"><\/path><path d=\"M16 14h.01\"><\/path><path d=\"M12 14h.01\"><\/path><\/svg><\/span>\r\n\n\n\n<h3 class=\"wp-block-heading\">Associations de patients<\/h3>\n\n\n\n<p class=\"wp-block-paragraph\">Un r\u00e9seau pour partager exp\u00e9riences et ressources, collaborer par-del\u00e0 les fronti\u00e8res et renforcer le travail des organisations de patients, au niveau national comme international.<\/p>\n\n\n\n<p class=\"aa-serve-col__link wp-block-paragraph\"><a href=\"https:\/\/www.amyloidosisalliance.org\/fr\/membres\/#apply\">Devenir membre<\/a><\/p>\n<\/div>\n\n\n\n<div class=\"wp-block-group aa-serve-col is-layout-flow wp-block-group-is-layout-flow\">\n<span class=\"aa-icon-tile\"><svg width=\"24\" height=\"24\" viewbox=\"0 0 24 24\" fill=\"none\" stroke=\"currentColor\" stroke-width=\"1.75\" stroke-linecap=\"round\" stroke-linejoin=\"round\" aria-hidden=\"true\"><path d=\"M17 21v-2a4 4 0 0 0-4-4H5a4 4 0 0 0-4 4v2\"><\/path><circle cx=\"9\" cy=\"7\" r=\"4\"><\/circle><path d=\"M23 21v-2a4 4 0 0 0-3-3.87\"><\/path><path d=\"M16 3.13a4 4 0 0 1 0 7.75\"><\/path><\/svg><\/span>\r\n\n\n\n<h3 class=\"wp-block-heading\">Patients et familles<\/h3>\n\n\n\n<p class=\"wp-block-paragraph\">Des rep\u00e8res, une communaut\u00e9 et des centres d\u2019excellence reconnus pour aider \u00e0 traverser le parcours, du diagnostic \u00e0 la vie quotidienne.<\/p>\n\n\n\n<p class=\"aa-serve-col__link wp-block-paragraph\"><a href=\"https:\/\/www.amyloidosisalliance.org\/fr\/ressources\/bibliotheque\/\">Ressources pour les patients<\/a><\/p>\n<\/div>\n\n\n\n<div class=\"wp-block-group aa-serve-col is-layout-flow wp-block-group-is-layout-flow\">\n<span class=\"aa-icon-tile\"><svg width=\"24\" height=\"24\" viewbox=\"0 0 24 24\" fill=\"none\" stroke=\"currentColor\" stroke-width=\"1.75\" stroke-linecap=\"round\" stroke-linejoin=\"round\" aria-hidden=\"true\"><path d=\"M11 2v2\"><\/path><path d=\"M5 2v2\"><\/path><path d=\"M5 3H4a2 2 0 0 0-2 2v4a6 6 0 0 0 12 0V5a2 2 0 0 0-2-2h-1\"><\/path><path d=\"M8 15a6 6 0 0 0 12 0v-3\"><\/path><circle cx=\"20\" cy=\"10\" r=\"2\"><\/circle><\/svg><\/span>\r\n\n\n\n<h3 class=\"wp-block-heading\">Professionnels de sant\u00e9<\/h3>\n\n\n\n<p class=\"wp-block-paragraph\">L\u2019acc\u00e8s \u00e0 des ressources p\u00e9dagogiques, \u00e0 des informations scientifiques et \u00e0 des liens avec l\u2019ensemble de la communaut\u00e9 de l\u2019amylose.<\/p>\n\n\n\n<p class=\"aa-serve-col__link wp-block-paragraph\"><a href=\"https:\/\/www.amyloidosisalliance.org\/fr\/ressources\/bibliotheque\/\">Espace clinique<\/a><\/p>\n<\/div>\n<\/div>\n<\/div>\n<\/section>\n\n<section id=\"timeline\" class=\"wp-block-group aa-section aa-section--cream aa-timeline is-layout-flow wp-block-group-is-layout-flow\">\n<div class=\"wp-block-group aa-inner is-layout-flow wp-block-group-is-layout-flow\">\n<div class=\"wp-block-group aa-timeline__head is-layout-flow wp-block-group-is-layout-flow\">\n<p class=\"aa-section-num wp-block-paragraph\">06<\/p>\n\n\n\n<h2 class=\"wp-block-heading\">L\u2019histoire de l\u2019Alliance<\/h2>\n\n\n\n<div class=\"aa-divider-dot\"><\/div>\r\n<\/div>\n\n\n\n<div class=\"wp-block-group aa-tl is-layout-flow wp-block-group-is-layout-flow\">\n<div class=\"wp-block-group aa-tl-row is-layout-flow wp-block-group-is-layout-flow\">\n<div class=\"wp-block-group aa-tl-card is-layout-flow wp-block-group-is-layout-flow\">\n<p class=\"aa-tl-year wp-block-paragraph\">2017<\/p>\n\n\n\n<h4 class=\"wp-block-heading\">Premi\u00e8re rencontre ATTR pour les patients et les m\u00e9decins<\/h4>\n<\/div>\n<\/div>\n\n\n\n<div class=\"wp-block-group aa-tl-row is-layout-flow wp-block-group-is-layout-flow\">\n<div class=\"wp-block-group aa-tl-card is-layout-flow wp-block-group-is-layout-flow\">\n<p class=\"aa-tl-year wp-block-paragraph\">2018<\/p>\n\n\n\n<h4 class=\"wp-block-heading\">Cr\u00e9ation de l\u2019Alliance<\/h4>\n\n\n\n<p class=\"wp-block-paragraph\">Des associations de patients de plusieurs pays s\u2019unissent pour former une seule voix internationale pour l\u2019amylose.<\/p>\n<\/div>\n<\/div>\n\n\n\n<div class=\"wp-block-group aa-tl-row is-layout-flow wp-block-group-is-layout-flow\">\n<div class=\"wp-block-group aa-tl-card is-layout-flow wp-block-group-is-layout-flow\">\n<p class=\"aa-tl-year wp-block-paragraph\">2019<\/p>\n\n\n\n<h4 class=\"wp-block-heading\">Deuxi\u00e8me rencontre ATTR pour les patients et les m\u00e9decins<\/h4>\n<\/div>\n<\/div>\n\n\n\n<div class=\"wp-block-group aa-tl-row is-layout-flow wp-block-group-is-layout-flow\">\n<div class=\"wp-block-group aa-tl-card is-layout-flow wp-block-group-is-layout-flow\">\n<p class=\"aa-tl-year wp-block-paragraph\">2020<\/p>\n\n\n\n<h4 class=\"wp-block-heading\">Premier r\u00e9seau de membres<\/h4>\n\n\n\n<p class=\"wp-block-paragraph\">Le r\u00e9seau s\u2019\u00e9tend sur plusieurs continents et se dote d\u2019une gouvernance partag\u00e9e et d\u2019objectifs communs.<\/p>\n<\/div>\n<\/div>\n\n\n\n<div class=\"wp-block-group aa-tl-row is-layout-flow wp-block-group-is-layout-flow\">\n<div class=\"wp-block-group aa-tl-card is-layout-flow wp-block-group-is-layout-flow\">\n<p class=\"aa-tl-year wp-block-paragraph\">2021<\/p>\n\n\n\n<h4 class=\"wp-block-heading\">Journ\u00e9e mondiale de l\u2019amylose<\/h4>\n\n\n\n<p class=\"wp-block-paragraph\">La premi\u00e8re journ\u00e9e mondiale de sensibilisation, le 26 octobre, mobilise la communaut\u00e9 autour d\u2019une cause commune.<\/p>\n<\/div>\n<\/div>\n\n\n\n<div class=\"wp-block-group aa-tl-row is-layout-flow wp-block-group-is-layout-flow\">\n<div class=\"wp-block-group aa-tl-card is-layout-flow wp-block-group-is-layout-flow\">\n<p class=\"aa-tl-year wp-block-paragraph\">2021<\/p>\n\n\n\n<h4 class=\"wp-block-heading\">Troisi\u00e8me rencontre ATTR pour les patients et les m\u00e9decins<\/h4>\n<\/div>\n<\/div>\n\n\n\n<div class=\"wp-block-group aa-tl-row is-layout-flow wp-block-group-is-layout-flow\">\n<div class=\"wp-block-group aa-tl-card is-layout-flow wp-block-group-is-layout-flow\">\n<p class=\"aa-tl-year wp-block-paragraph\">2023<\/p>\n\n\n\n<h4 class=\"wp-block-heading\">Comit\u00e9 scientifique<\/h4>\n\n\n\n<p class=\"wp-block-paragraph\">Le Comit\u00e9 scientifique est cr\u00e9\u00e9 pour apporter son expertise scientifique et m\u00e9dicale et soutenir le travail de l\u2019Alliance.<\/p>\n<\/div>\n<\/div>\n\n\n\n<div class=\"wp-block-group aa-tl-row is-layout-flow wp-block-group-is-layout-flow\">\n<div class=\"wp-block-group aa-tl-card is-layout-flow wp-block-group-is-layout-flow\">\n<p class=\"aa-tl-year wp-block-paragraph\">2023<\/p>\n\n\n\n<h4 class=\"wp-block-heading\">Quatri\u00e8me rencontre ATTR pour les patients et les m\u00e9decins<\/h4>\n\n\n\n<p class=\"wp-block-paragraph\">La premi\u00e8re rencontre internationale ATTR r\u00e9unit la communaut\u00e9 \u00e0 Madrid.<\/p>\n<\/div>\n<\/div>\n\n\n\n<div class=\"wp-block-group aa-tl-row is-layout-flow wp-block-group-is-layout-flow\">\n<div class=\"wp-block-group aa-tl-card is-layout-flow wp-block-group-is-layout-flow\">\n<p class=\"aa-tl-year wp-block-paragraph\">2024<\/p>\n\n\n\n<h4 class=\"wp-block-heading\">Congr\u00e8s AL \u00e0 Bruxelles<\/h4>\n\n\n\n<p class=\"wp-block-paragraph\">Le premier congr\u00e8s consacr\u00e9 \u00e0 l\u2019amylose AL se tient en Belgique.<\/p>\n<\/div>\n<\/div>\n\n\n\n<div class=\"wp-block-group aa-tl-row is-layout-flow wp-block-group-is-layout-flow\">\n<div class=\"wp-block-group aa-tl-card is-layout-flow wp-block-group-is-layout-flow\">\n<p class=\"aa-tl-year wp-block-paragraph\">2025<\/p>\n\n\n\n<h4 class=\"wp-block-heading\">Enqu\u00eate AMYLife<\/h4>\n\n\n\n<p class=\"wp-block-paragraph\">Lancement d\u2019AMYLife, l\u2019enqu\u00eate internationale de l\u2019Alliance sur l\u2019exp\u00e9rience et la vie quotidienne des personnes touch\u00e9es par l\u2019amylose.<\/p>\n<\/div>\n<\/div>\n\n\n\n<div class=\"wp-block-group aa-tl-row is-layout-flow wp-block-group-is-layout-flow\">\n<div class=\"wp-block-group aa-tl-card is-layout-flow wp-block-group-is-layout-flow\">\n<p class=\"aa-tl-year wp-block-paragraph\">2026<\/p>\n\n\n\n<h4 class=\"wp-block-heading\">Cinqui\u00e8me rencontre ATTR pour les patients et les m\u00e9decins<\/h4>\n\n\n\n<p class=\"wp-block-paragraph\">La rencontre internationale ATTR se tient \u00e0 Baveno, en Italie.<\/p>\n<\/div>\n<\/div>\n\n\n\n<div class=\"wp-block-group aa-tl-row is-layout-flow wp-block-group-is-layout-flow\">\n<div class=\"wp-block-group aa-tl-card is-layout-flow wp-block-group-is-layout-flow\">\n<p class=\"aa-tl-year wp-block-paragraph\">2027<\/p>\n\n\n\n<h4 class=\"wp-block-heading\">Sixi\u00e8me rencontre internationale AL &amp; ATTR pour les patients et les m\u00e9decins<\/h4>\n\n\n\n<p class=\"wp-block-paragraph\">En projet\u00a0: les rencontres AL et ATTR se r\u00e9uniront en un seul \u00e9v\u00e9nement international pour les patients, les professionnels de sant\u00e9 et l\u2019ensemble de la communaut\u00e9 de l\u2019amylose.<\/p>\n<\/div>\n<\/div>\n<\/div>\n\n\n\n<div class=\"wp-block-buttons aa-timeline__continue is-layout-flex wp-block-buttons-is-layout-flex\">\n<div class=\"wp-block-button aa-btn aa-btn--ghost-teal aa-btn--lg\"><a class=\"wp-block-button__link wp-element-button\" href=\"https:\/\/www.amyloidosisalliance.org\/fr\/nos-evenements\/\">La suite de l\u2019histoire<\/a><\/div>\n<\/div>\n<\/div>\n<\/section>\n\n<section class=\"wp-block-group aa-next is-layout-flow wp-block-group-is-layout-flow\">\n<div class=\"wp-block-group aa-inner is-layout-flow wp-block-group-is-layout-flow\">\n<div class=\"wp-block-group aa-next__head is-layout-flow wp-block-group-is-layout-flow\">\n<p class=\"aa-section-num wp-block-paragraph\">Continuer<\/p>\n\n\n\n<h2 class=\"wp-block-heading\">Pour aller plus loin<\/h2>\n<\/div>\n\n\n\n<div class=\"wp-block-group aa-next__grid is-layout-flow wp-block-group-is-layout-flow\">\n<div class=\"wp-block-group aa-next-card is-layout-flow wp-block-group-is-layout-flow\">\n<h3 class=\"wp-block-heading\"><a href=\"https:\/\/www.amyloidosisalliance.org\/fr\/nos-missions\/\">D\u00e9couvrir nos missions<\/a><\/h3>\n\n\n\n<p class=\"wp-block-paragraph\">D\u00e9couvrez les priorit\u00e9s strat\u00e9giques qui guident notre travail, de la recherche au plaidoyer et \u00e0 la sensibilisation.<\/p>\n<\/div>\n\n\n\n<div class=\"wp-block-group aa-next-card is-layout-flow wp-block-group-is-layout-flow\">\n<h3 class=\"wp-block-heading\"><a href=\"https:\/\/www.amyloidosisalliance.org\/fr\/lequipe\/\">D\u00e9couvrir l\u2019\u00e9quipe<\/a><\/h3>\n\n\n\n<p class=\"wp-block-paragraph\">Faites connaissance avec les personnes et les experts qui font vivre l\u2019Alliance.<\/p>\n<\/div>\n\n\n\n<div class=\"wp-block-group aa-next-card is-layout-flow wp-block-group-is-layout-flow\">\n<h3 class=\"wp-block-heading\"><a href=\"https:\/\/www.amyloidosisalliance.org\/fr\/nous-rejoindre\/\">Nous rejoindre<\/a><\/h3>\n\n\n\n<p class=\"wp-block-paragraph\">Devenez notre partenaire pour amplifier votre impact et renforcer la voix des patients dans le monde.<\/p>\n<\/div>\n<\/div>\n<\/div>\n<\/section>\n","protected":false},"excerpt":{"rendered":"<p>Accueil\u203aL\u2019Alliance\u203a\u00c0 propos L\u2019Alliance \u00c0 propos L\u2019Amyloidosis Alliance est une coalition internationale qui r\u00e9unit des associations de patients, des experts m\u00e9dicaux et des institutions de recherche autour d\u2019une mission commune\u00a0: mettre fin \u00e0 l\u2019errance diagnostique et transformer la prise en charge des patients atteints d\u2019amylose dans le monde entier. Fond\u00e9e sur la conviction qu\u2019aucune organisation ne [&hellip;]<\/p>\n","protected":false},"author":1,"featured_media":0,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"footnotes":""},"class_list":["post-1498","page","type-page","status-publish","hentry"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v28.6 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>\u00c0 propos de l\u2019Amyloidosis Alliance\u00a0: qui sommes-nous<\/title>\n<meta name=\"description\" content=\"Une coalition internationale d\u2019organisations de patients, d\u2019experts m\u00e9dicaux et d\u2019institutions de recherche qui \u0153uvre \u00e0 am\u00e9liorer la prise en charge des personnes touch\u00e9es par l\u2019amylose.\" \/>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" 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