{"id":1392,"date":"2026-07-30T10:28:48","date_gmt":"2026-07-30T08:28:48","guid":{"rendered":"https:\/\/amyloidosisalliance.local\/nos-evenements\/"},"modified":"2026-09-30T10:18:35","modified_gmt":"2026-09-30T08:18:35","slug":"nos-evenements","status":"publish","type":"page","link":"https:\/\/www.amyloidosisalliance.org\/fr\/nos-evenements\/","title":{"rendered":"Nos \u00e9v\u00e9nements"},"content":{"rendered":"\n<nav aria-label=\"Breadcrumb\" class=\"wp-block-group aa-breadcrumb aa-events-hero__crumb is-layout-flow wp-block-group-is-layout-flow\">\n<div class=\"aa-inner\"><a href=\"\/\">Accueil<\/a><span class=\"aa-breadcrumb__sep\">\u203a<\/span><span class=\"aa-breadcrumb__current\">Nos \u00e9v\u00e9nements<\/span><\/div>\r\n<\/nav>\n\n<section class=\"wp-block-group aa-events-hero is-layout-flow wp-block-group-is-layout-flow\">\n<div class=\"wp-block-group aa-events-hero__bg is-layout-flow wp-block-group-is-layout-flow\">\n<figure class=\"wp-block-image size-full\"><img loading=\"lazy\" decoding=\"async\" width=\"2560\" height=\"1703\" src=\"https:\/\/www.amyloidosisalliance.org\/wp-content\/uploads\/2026\/09\/DSC_2113-scaled.jpg\" alt=\"\" class=\"wp-image-1115\" srcset=\"https:\/\/www.amyloidosisalliance.org\/wp-content\/uploads\/2026\/09\/DSC_2113-scaled.jpg 2560w, https:\/\/www.amyloidosisalliance.org\/wp-content\/uploads\/2026\/09\/DSC_2113-300x200.jpg 300w, https:\/\/www.amyloidosisalliance.org\/wp-content\/uploads\/2026\/09\/DSC_2113-1024x681.jpg 1024w, https:\/\/www.amyloidosisalliance.org\/wp-content\/uploads\/2026\/09\/DSC_2113-768x511.jpg 768w, https:\/\/www.amyloidosisalliance.org\/wp-content\/uploads\/2026\/09\/DSC_2113-1536x1022.jpg 1536w\" sizes=\"auto, (max-width: 2560px) 100vw, 2560px\" \/><\/figure>\n<\/div>\n\n\n\n<div class=\"wp-block-group aa-inner is-layout-flow wp-block-group-is-layout-flow\">\n<p class=\"aa-events-hero__kicker wp-block-paragraph\">NOS \u00e9v\u00e9nements<\/p>\n\n\n\n<h1 class=\"wp-block-heading\">Nos deux \u00e9v\u00e9nements phares<\/h1>\n\n\n\n<p class=\"wp-block-paragraph\">Deux rendez-vous rassemblent chaque ann\u00e9e la communaut\u00e9 internationale de l\u2019amylose : le <strong>World Amyloidosis Day<\/strong> (Journ\u00e9e mondiale de l\u2019amylose), notre campagne mondiale de sensibilisation, et l\u2019<strong>AL \/ ATTR International Meeting for Patients and Doctors<\/strong>, o\u00f9 patients et cliniciens se rencontrent en personne.<\/p>\n\n\n\n<div class=\"wp-block-buttons is-layout-flex wp-block-buttons-is-layout-flex\">\n<div class=\"wp-block-button aa-btn aa-btn--primary aa-btn--lg\"><a class=\"wp-block-button__link wp-element-button\" href=\"https:\/\/www.amyloidosisalliance.org\/fr\/nos-evenements\/journee-mondiale-de-lamylose\/\">World Amyloidosis Day<\/a><\/div>\n\n\n\n<div class=\"wp-block-button aa-btn aa-btn--ghost-paper aa-btn--lg\"><a class=\"wp-block-button__link wp-element-button\" href=\"#meeting\">AL &amp; ATTR International Meeting for Patients and Doctors<\/a><\/div>\n<\/div>\n<\/div>\n<\/section>\n\n<section class=\"wp-block-group aa-section aa-section--cream aa-event-duo is-layout-flow wp-block-group-is-layout-flow\">\n<div class=\"wp-block-group aa-inner is-layout-flow wp-block-group-is-layout-flow\">\n<div class=\"wp-block-group aa-centered-head is-layout-flow wp-block-group-is-layout-flow\">\n<p class=\"aa-eyebrow wp-block-paragraph\">R\u00e9servez la date<\/p>\n\n\n\n<h2 class=\"wp-block-heading\">Deux \u00e9v\u00e9nements, une communaut\u00e9<\/h2>\n\n\n\n<div class=\"aa-divider-dot\"><\/div>\r\n\n\n\n<p class=\"wp-block-paragraph\">L\u2019un rassemble le monde entier autour d\u2019une m\u00eame journ\u00e9e de sensibilisation\u202f; l\u2019autre r\u00e9unit patients et m\u00e9decins dans la m\u00eame salle. Tous deux existent pour la m\u00eame raison\u00a0: raccourcir le chemin vers le diagnostic.<\/p>\n<\/div>\n\n\n\n<div class=\"wp-block-columns aa-duo is-layout-flex wp-container-core-columns-is-layout-b2e659ba wp-block-columns-is-layout-flex\">\n<div class=\"wp-block-column is-layout-flow wp-block-column-is-layout-flow\">\n<div class=\"wp-block-group aa-duo-card aa-duo-card--wad is-layout-flow wp-block-group-is-layout-flow\">\n<div class=\"wp-block-group aa-duo-card__visual is-layout-flow wp-block-group-is-layout-flow\">\n<figure class=\"wp-block-image size-full\"><img loading=\"lazy\" decoding=\"async\" width=\"880\" height=\"500\" src=\"https:\/\/www.amyloidosisalliance.org\/wp-content\/uploads\/2026\/09\/world-amyloidosis-day-2026.jpg\" alt=\"\" class=\"wp-image-771\" srcset=\"https:\/\/www.amyloidosisalliance.org\/wp-content\/uploads\/2026\/09\/world-amyloidosis-day-2026.jpg 880w, https:\/\/www.amyloidosisalliance.org\/wp-content\/uploads\/2026\/09\/world-amyloidosis-day-2026-300x170.jpg 300w, https:\/\/www.amyloidosisalliance.org\/wp-content\/uploads\/2026\/09\/world-amyloidosis-day-2026-768x436.jpg 768w\" sizes=\"auto, (max-width: 880px) 100vw, 880px\" \/><\/figure>\n\n\n\n<p class=\"aa-duo-card__tag wp-block-paragraph\">Campagne de sensibilisation<\/p>\n<\/div>\n\n\n\n<div class=\"wp-block-group aa-duo-card__body is-layout-flow wp-block-group-is-layout-flow\">\n<p class=\"aa-duo-card__date wp-block-paragraph\">Chaque 26 octobre \u00b7 Dans le monde entier<\/p>\n\n\n\n<h3 class=\"wp-block-heading\">Journ\u00e9e mondiale de l\u2019amylose<\/h3>\n\n\n\n<p class=\"wp-block-paragraph\">Une journ\u00e9e, un message\u00a0: <strong>Be the Link<\/strong>. Patients, aidants, professionnels de sant\u00e9 et organisations de patients de tous les continents s\u2019unissent pour faire conna\u00eetre l\u2019amylose, et la faire diagnostiquer plus t\u00f4t.<\/p>\n\n\n\n<div class=\"wp-block-buttons is-layout-flex wp-block-buttons-is-layout-flex\">\n<div class=\"wp-block-button aa-btn aa-btn--wad\"><a class=\"wp-block-button__link wp-element-button\" href=\"https:\/\/www.amyloidosisalliance.org\/fr\/nos-evenements\/journee-mondiale-de-lamylose\/\">D\u00e9couvrir la Journ\u00e9e mondiale de l\u2019amylose <\/a><\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n\n\n\n<div class=\"wp-block-column is-layout-flow wp-block-column-is-layout-flow\">\n<div class=\"wp-block-group aa-duo-card aa-duo-card--meeting is-layout-flow wp-block-group-is-layout-flow\">\n<div class=\"wp-block-group aa-duo-card__visual is-layout-flow wp-block-group-is-layout-flow\">\n<figure class=\"wp-block-image size-full\"><img loading=\"lazy\" decoding=\"async\" width=\"2560\" height=\"1993\" src=\"https:\/\/www.amyloidosisalliance.org\/wp-content\/uploads\/2026\/09\/attr-scaled.jpg\" alt=\"\" class=\"wp-image-1118\" srcset=\"https:\/\/www.amyloidosisalliance.org\/wp-content\/uploads\/2026\/09\/attr-scaled.jpg 2560w, https:\/\/www.amyloidosisalliance.org\/wp-content\/uploads\/2026\/09\/attr-300x233.jpg 300w, https:\/\/www.amyloidosisalliance.org\/wp-content\/uploads\/2026\/09\/attr-1024x797.jpg 1024w, https:\/\/www.amyloidosisalliance.org\/wp-content\/uploads\/2026\/09\/attr-768x598.jpg 768w, https:\/\/www.amyloidosisalliance.org\/wp-content\/uploads\/2026\/09\/attr-1536x1196.jpg 1536w\" sizes=\"auto, (max-width: 2560px) 100vw, 2560px\" \/><\/figure>\n\n\n\n<p class=\"aa-duo-card__tag wp-block-paragraph\">Rencontre internationale<\/p>\n<\/div>\n\n\n\n<div class=\"wp-block-group aa-duo-card__body is-layout-flow wp-block-group-is-layout-flow\">\n<p class=\"aa-duo-card__date wp-block-paragraph\">Septembre 2027 \u00b7 Londres<\/p>\n\n\n\n<h3 class=\"wp-block-heading\">AL \/ ATTR International Meeting<\/h3>\n\n\n\n<p class=\"wp-block-paragraph\">Patients, familles, cliniciens et chercheurs dans la m\u00eame salle, pour se parler simplement. L\u2019\u00e9dition 2027 est la premi\u00e8re \u00e0 r\u00e9unir les <strong>communaut\u00e9s AL et ATTR<\/strong> lors d\u2019une m\u00eame rencontre internationale.<\/p>\n\n\n\n<div class=\"wp-block-buttons is-layout-flex wp-block-buttons-is-layout-flex\">\n<div class=\"wp-block-button aa-btn aa-btn--teal\"><a class=\"wp-block-button__link wp-element-button\" href=\"#\" target=\"_blank\" rel=\"noreferrer noopener\">Visiter le site de la rencontre <\/a><\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/section>\n\n<section class=\"wp-block-group aa-section aa-section--wad aa-event-feature aa-event-feature--natural is-layout-flow wp-block-group-is-layout-flow\">\n<div class=\"wp-block-group aa-inner is-layout-flow wp-block-group-is-layout-flow\">\n<div class=\"wp-block-group aa-event-feature__copy is-layout-flow wp-block-group-is-layout-flow\">\n<p class=\"aa-overline wp-block-paragraph\">Campagne de sensibilisation \u00b7 26 octobre<\/p>\n\n\n\n<h2 class=\"wp-block-heading\">Journ\u00e9e mondiale de l\u2019amylose<\/h2>\n\n\n\n<p class=\"wp-block-paragraph\">L\u2019amylose est une maladie rare et multiforme, tr\u00e8s peu connue, y compris des professionnels de sant\u00e9. Comme ses sympt\u00f4mes ressemblent \u00e0 ceux de maladies bien plus fr\u00e9quentes, il faut <strong>quatre ans en moyenne<\/strong> pour obtenir un diagnostic\u00a0: quatre ann\u00e9es pendant lesquelles les l\u00e9sions des organes deviennent souvent irr\u00e9versibles.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">La Journ\u00e9e mondiale de l\u2019amylose existe pour r\u00e9duire cet \u00e9cart. Chaque 26 octobre, la communaut\u00e9 internationale se rassemble autour d\u2019une m\u00eame campagne, <strong>Be the Link<\/strong>, avec des conf\u00e9rences m\u00e9dicales, des concerts, des conf\u00e9rences ouvertes au public, des campagnes de presse et des rencontres de patients dans des dizaines de pays.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">D\u00e9couvrez l\u2019histoire de la campagne, les actions men\u00e9es dans le monde, et comment votre organisation peut participer \u00e0 la prochaine \u00e9dition.<\/p>\n\n\n\n<div class=\"wp-block-buttons is-layout-flex wp-block-buttons-is-layout-flex\">\n<div class=\"wp-block-button aa-btn aa-btn--primary aa-btn--lg\"><a class=\"wp-block-button__link wp-element-button\" href=\"https:\/\/www.amyloidosisalliance.org\/fr\/nos-evenements\/journee-mondiale-de-lamylose\/\">Explorer la Journ\u00e9e mondiale de l\u2019amylose <\/a><\/div>\n<\/div>\n<\/div>\n\n\n\n<div class=\"wp-block-group aa-event-feature__visual is-layout-flow wp-block-group-is-layout-flow\">\n<figure class=\"wp-block-image size-large\"><img loading=\"lazy\" decoding=\"async\" width=\"1000\" height=\"899\" src=\"\/wp-content\/uploads\/2026\/07\/visuel4.jpg\" alt=\"Quatre personnes (un m&#xE9;decin, une patiente, un jeune homme et un homme &#xE2;g&#xE9;) reli&#xE9;es par un m&#xEA;me fil orange\" class=\"wp-image-127\" srcset=\"https:\/\/www.amyloidosisalliance.org\/wp-content\/uploads\/2026\/07\/visuel4.jpg 1000w, https:\/\/www.amyloidosisalliance.org\/wp-content\/uploads\/2026\/07\/visuel4-300x270.jpg 300w, https:\/\/www.amyloidosisalliance.org\/wp-content\/uploads\/2026\/07\/visuel4-768x690.jpg 768w\" sizes=\"auto, (max-width: 1000px) 100vw, 1000px\" \/><\/figure>\n<\/div>\n<\/div>\n<\/section>\n\n<section id=\"meeting\" class=\"wp-block-group aa-section aa-section--white aa-event-feature aa-event-feature--natural aa-event-feature--reverse aa-event-feature--teal is-layout-flow wp-block-group-is-layout-flow\">\n<div class=\"wp-block-group aa-inner is-layout-flow wp-block-group-is-layout-flow\">\n<div class=\"wp-block-group aa-event-feature__copy is-layout-flow wp-block-group-is-layout-flow\">\n<p class=\"aa-overline wp-block-paragraph\">Rencontre internationale \u00b7 Septembre 2027<\/p>\n\n\n\n<h2 class=\"wp-block-heading\">AL \/ ATTR International Meeting for Patients and Doctors<\/h2>\n\n\n\n<p class=\"wp-block-paragraph\">Les patients et les sp\u00e9cialistes qui les soignent partagent rarement la m\u00eame salle. Les congr\u00e8s scientifiques sont con\u00e7us pour les cliniciens et les chercheurs\u202f; les rencontres de patients donnent rarement acc\u00e8s aux \u00e9quipes qui travaillent sur la maladie. Les questions qui p\u00e8sent le plus au quotidien, \u00e0 quoi s\u2019attendre, que surveiller, ce que la recherche change vraiment, sont celles qui disposent du moins de temps.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">L\u2019International AL \/ ATTR Meeting for Patients and Doctors a \u00e9t\u00e9 cr\u00e9\u00e9 pour r\u00e9duire cette distance. Depuis 2017, cinq \u00e9ditions ont r\u00e9uni chercheurs, cliniciens et organisations de patients dans un m\u00eame programme, dans un langage que tout le public peut suivre. La sixi\u00e8me \u00e9dition, \u00e0 <strong>Londres en septembre 2027<\/strong>, est la premi\u00e8re \u00e0 r\u00e9unir les communaut\u00e9s AL et ATTR lors d\u2019un m\u00eame \u00e9v\u00e9nement international.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">Le programme, le lieu et les modalit\u00e9s d\u2019inscription seront annonc\u00e9s au fur et \u00e0 mesure de leur confirmation, sur le site de la rencontre.<\/p>\n\n\n\n<div class=\"wp-block-buttons is-layout-flex wp-block-buttons-is-layout-flex\">\n<div class=\"wp-block-button aa-btn aa-btn--teal aa-btn--lg\"><a class=\"wp-block-button__link wp-element-button\" href=\"#\" target=\"_blank\" rel=\"noreferrer noopener\">Visiter le site de la rencontre <\/a><\/div>\n<\/div>\n<\/div>\n\n\n\n<div class=\"wp-block-group aa-event-feature__visual is-layout-flow wp-block-group-is-layout-flow\">\n<figure class=\"wp-block-image size-full\"><img loading=\"lazy\" decoding=\"async\" width=\"2560\" height=\"1993\" src=\"https:\/\/www.amyloidosisalliance.org\/wp-content\/uploads\/2026\/09\/attr-scaled.jpg\" alt=\"\" class=\"wp-image-1118\" srcset=\"https:\/\/www.amyloidosisalliance.org\/wp-content\/uploads\/2026\/09\/attr-scaled.jpg 2560w, https:\/\/www.amyloidosisalliance.org\/wp-content\/uploads\/2026\/09\/attr-300x233.jpg 300w, https:\/\/www.amyloidosisalliance.org\/wp-content\/uploads\/2026\/09\/attr-1024x797.jpg 1024w, https:\/\/www.amyloidosisalliance.org\/wp-content\/uploads\/2026\/09\/attr-768x598.jpg 768w, https:\/\/www.amyloidosisalliance.org\/wp-content\/uploads\/2026\/09\/attr-1536x1196.jpg 1536w\" sizes=\"auto, (max-width: 2560px) 100vw, 2560px\" \/><\/figure>\n<\/div>\n<\/div>\n<\/section>\n\n<section id=\"from-our-members\" class=\"wp-block-group aa-section aa-section--cream is-layout-flow wp-block-group-is-layout-flow\">\n<div class=\"wp-block-group aa-inner is-layout-flow wp-block-group-is-layout-flow\">\n<div class=\"wp-block-group aa-centered-head is-layout-flow wp-block-group-is-layout-flow\">\n<p class=\"aa-eyebrow wp-block-paragraph\">Dans le monde<\/p>\n\n\n\n<h2 class=\"wp-block-heading\">Chez nos membres<\/h2>\n\n\n\n<div class=\"aa-divider-dot\"><\/div>\r\n\n\n\n<p class=\"wp-block-paragraph\">Rencontres de patients, conf\u00e9rences m\u00e9dicales, campagnes de sensibilisation\u00a0: tout au long de l\u2019ann\u00e9e, nos organisations membres rassemblent la communaut\u00e9 de l\u2019amylose dans leur pays.<\/p>\n<\/div>\n\n\n\n<div class=\"wp-block-query aa-event-query is-layout-flow wp-block-query-is-layout-flow\">\n\n<div class=\"wp-block-query-no-results\">\n\n<p class=\"aa-narrow aa-text-center wp-block-paragraph\">Aucun \u00e9v\u00e9nement de membre n\u2019est annonc\u00e9 pour le moment. Ils appara\u00eetront ici d\u00e8s que les organisations membres les partageront.<\/p>\n\n<\/div><\/div>\n<\/div>\n<\/section>\n","protected":false},"excerpt":{"rendered":"<p>Accueil\u203aNos \u00e9v\u00e9nements NOS \u00e9v\u00e9nements Nos deux \u00e9v\u00e9nements phares Deux rendez-vous rassemblent chaque ann\u00e9e la communaut\u00e9 internationale de l\u2019amylose : le World Amyloidosis Day (Journ\u00e9e mondiale de l\u2019amylose), notre campagne mondiale de sensibilisation, et l\u2019AL \/ ATTR International Meeting for Patients and Doctors, o\u00f9 patients et cliniciens se rencontrent en personne. R\u00e9servez la date Deux \u00e9v\u00e9nements, [&hellip;]<\/p>\n","protected":false},"author":1,"featured_media":0,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"footnotes":""},"class_list":["post-1392","page","type-page","status-publish","hentry"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v28.6 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>\u00c9v\u00e9nements sur l\u2019amylose\u00a0: nos deux rendez-vous phares<\/title>\n<meta name=\"description\" content=\"Deux rendez-vous rassemblent chaque ann\u00e9e la communaut\u00e9 internationale de l\u2019amylose\u00a0: la Journ\u00e9e mondiale de l\u2019amylose et l\u2019AL &amp; ATTR International Meeting.\" \/>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.amyloidosisalliance.org\/fr\/nos-evenements\/\" \/>\n<meta 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