{"id":477,"date":"2021-05-17T08:22:00","date_gmt":"2021-05-17T06:22:00","guid":{"rendered":"https:\/\/www.amyloidosisalliance.org\/events\/world-amyloidosis-day\/testimonials\/une-histoire-de-famille\/"},"modified":"2021-05-17T08:22:00","modified_gmt":"2021-05-17T06:22:00","slug":"une-histoire-de-famille","status":"publish","type":"aa_testimony","link":"https:\/\/www.amyloidosisalliance.org\/fr\/events\/world-amyloidosis-day\/testimonials\/une-histoire-de-famille\/","title":{"rendered":"Une histoire de famille"},"content":{"rendered":"<p class=\"wp-block-paragraph\">Papa est tomb\u00e9 malade au d\u00e9but de sa retraite dans les ann\u00e9es 70 . On ne comprenait rien \u00e0 sa maladie que les m\u00e9decins ne connaissaient pas . Je l\u2019ai vu fatigu\u00e9, puis avoir des difficult\u00e9s \u00e0 marcher, puis ne plus pouvoir utiliser ses mains. Pour signer les ch\u00e8ques il avait fait fabriquer un tampon qui reprenait les courbes et les d\u00e9li\u00e9s de sa signature mais plus tard il aura m\u00eame du mal \u00e0 l\u2019utiliser ce qui nous faisait prendre, \u00e0 mes mes s\u0153urs et moi, des fous rires nerveux que je regrette maintenant . Un jour il est devenu grabataire et la fin est arriv\u00e9e sans que l\u2019on comprenne sa maladie et sans que l\u2019on ait pu mesurer sa souffrance et sa solitude de malade . Des ann\u00e9es plus tard mes fr\u00e8res et s\u0153urs a\u00een\u00e9s ont d\u00e9velopp\u00e9 les m\u00eames sympt\u00f4mes et le verdict est tomb\u00e9 pour Andr\u00e9, Michel, Nicole et moi : Amylose . <\/p>\n<blockquote class=\"wp-block-quote is-layout-flow wp-block-quote-is-layout-flow\">\n<p>Un mot qui semblait pourtant plut\u00f4t amical \u2026<\/p>\n<\/blockquote>\n<p class=\"wp-block-paragraph\">Andr\u00e9 et Michel sont d\u00e9c\u00e9d\u00e9s aussi mais Nicole et moi nous b\u00e9n\u00e9ficions des avanc\u00e9es de la recherche et nous nous accrochons \u00e0 nos vies comme le lierre au mur . Chaque jour qui se l\u00e8ve , je suis heureuse de le saluer moi qui suis maintenant devenue plus vielle que Papa \u00b4, Andr\u00e9 et Michel .<\/p>\n<p class=\"wp-block-paragraph\">Merci \u00e0 la recherche, merci aux soignants et aux administratifs qui nous soutiennent et courage \u00e0 Nicole \u00e0 mes neveux et ni\u00e8ces atteints par la maladie et \u00e0 tous les patients du monde entier atteints par l\u2019amylose . On peut le faire ! Sylvie <\/p>\n<p class=\"wp-block-paragraph\">Une histoire de famille &#8211; Sylvie L. &#8211; FRANCE<\/p>\n","protected":false},"excerpt":{"rendered":"<p>Papa est tomb\u00e9 malade au d\u00e9but de sa retraite dans les ann\u00e9es 70 . On ne comprenait rien \u00e0 sa maladie que les m\u00e9decins ne connaissaient pas\u2026<\/p>\n","protected":false},"featured_media":478,"template":"","class_list":["post-477","aa_testimony","type-aa_testimony","status-publish","has-post-thumbnail","hentry"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v28.6 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>Une histoire de famille - Amyloidosis Alliance<\/title>\n<meta name=\"description\" content=\"Papa est tomb\u00e9 malade au d\u00e9but de sa retraite dans les ann\u00e9es 70 . 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