{"id":471,"date":"2021-05-25T14:42:44","date_gmt":"2021-05-25T12:42:44","guid":{"rendered":"https:\/\/www.amyloidosisalliance.org\/events\/world-amyloidosis-day\/testimonials\/johns-journey\/"},"modified":"2021-05-25T14:42:44","modified_gmt":"2021-05-25T12:42:44","slug":"johns-journey","status":"publish","type":"aa_testimony","link":"https:\/\/www.amyloidosisalliance.org\/fr\/events\/world-amyloidosis-day\/testimonials\/johns-journey\/","title":{"rendered":"John\u2019s Journey"},"content":{"rendered":"<p class=\"wp-block-paragraph\">A two year journey of increased shortness of breath and fatigue. 3 cardiologist&rsquo;s, 2 gastroenterologist&rsquo;s, a pulmonologist and his primary care physician\u2026 and no one could figure it out until 33 days before he died.<br \/>3 heart attacks, severe uncontrolled peripheral edema, extremely low BP, and episodes of syncope. But his number one CONSTANT complaint was extreme shortness of breath, he just felt like he couldn&rsquo;t breathe, but his pulse OX Was always in the high 90&rsquo;s.<br \/>A 57 year old otherwise healthy very active farmer &amp; Corrections Officer just detioriates in a matter of months when it got really bad.<\/p>\n<p class=\"wp-block-paragraph\">5 years ago: bilateral carpal tunnel.<br \/>Oct 2019: first Afib<br \/>Jan 2020: first heart attack and 2nd Afib episode &#8211; discharged still in Afib.<br \/>Oct 2020: 2nd heart attack<br \/>Nov 2020: cardiac ICU, potassium 8.<br \/>Nov 2020- Feb 2021: 6 hospitalizations for uncontrolled edema, extremely low sodium &amp; potassium.<br \/>Feb 5, 2021: heart MRI shows Amyloid deposits<br \/>Mar 5, 2021: first round of chemo<br \/>Mar 10, 2021: the widowmaker<\/p>\n<blockquote class=\"wp-block-quote is-layout-flow wp-block-quote-is-layout-flow\">\n<p>Order the MRI &#8211; EARLY! It could save a life.<\/p>\n<\/blockquote>\n<p class=\"wp-block-paragraph\">My husband John M. was diagnosed on Feb 5, 2021 with AL Amyloidosis affecting the heart. After a year of complaining of shortness of breath. He was treated for congestive heart failure &#8211; and every specialist and his primary said he should not be so fatigued &amp; out of breath. Pulmonary found no reason for his symptoms. THIS must be an indication for testing early.<\/p>\n<p class=\"wp-block-paragraph\">If he had died from any of of the other heart attacks, he would have died from \u00ab\u00a0congestive heart failure \u00ab\u00a0. How many other patients with John&rsquo;s symptoms have died of CHF instead of the correct diagnosis of Amyloidosis?<br \/>Check the box\u2026Afib? Shortness of breath? Fatigue? Order the MRI &#8211; EARLY! It could save a life.<\/p>\n<p class=\"wp-block-paragraph\">John&rsquo;s Journey &#8211; Stephanie &#8211; UNITED STATES<\/p>\n","protected":false},"excerpt":{"rendered":"<p>My husband John M. was diagnosed on Feb 5, 2021 with AL Amyloidosis affecting the heart. After a year of complaining of shortness of breath.<\/p>\n","protected":false},"featured_media":472,"template":"","class_list":["post-471","aa_testimony","type-aa_testimony","status-publish","has-post-thumbnail","hentry"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v28.6 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>John\u2019s Journey - Amyloidosis Alliance<\/title>\n<meta name=\"description\" content=\"My husband John M. was diagnosed on Feb 5, 2021 with AL Amyloidosis affecting the heart. 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