My name is Anna I have AL Amyloidosis. It\u2019s strange really because when I was told what I had it took me 6 months to even be able to pronounce the word Amyloidosis. In 2015 I had been to see so many doctors days in tears not being able to breath eat, sleep all the time pains all over my body really going downhill mentally and physically. In 2017 I had a complete mini breakdown in my doctors saying that I thought I was going to die very soon on my own in horrible pain . At this point they sent me for a heart scan then a consultant and specialist nurse sat me down and told me I had AL Amyloidosis. I wasn\u2019t shocked because I had no idea what that meant. They explained I said would it kill me I have 2 children and grandkids. They sort of looked at one another and I new . We will arrange Chemotherapy ect . I said Thank you and went home on the bus . Since then it\u2019s been hard tests hospital chemotherapy nearly finished me of I lost weight neuropathy in my feet pain no taste dietary problems can\u2019t taste horrible hallucinations for 3 months in hospital attacking the poor nursing staff . Well now in 2021 I\u2019m fairly stable treatment once a month no chemotherapy just Amyloidosis days get me sometime but I manage I still walk like a duck but at least I\u2019m walking . 6 grandkids I beautiful big dog and I\u2019m alive . When people complain about rubbish I just smile I very rarely complain because I know what it\u2019s like to be at rock bottom and until this illness kills me off if it ever does I shall continue to be a Amyloidosis Warrior.<\/p>\n