{"id":401,"date":"2021-07-07T06:57:15","date_gmt":"2021-07-07T04:57:15","guid":{"rendered":"https:\/\/www.amyloidosisalliance.org\/events\/world-amyloidosis-day\/testimonials\/amylose-al\/"},"modified":"2021-07-07T06:57:15","modified_gmt":"2021-07-07T04:57:15","slug":"amylose-al","status":"publish","type":"aa_testimony","link":"https:\/\/www.amyloidosisalliance.org\/fr\/events\/world-amyloidosis-day\/testimonials\/amylose-al\/","title":{"rendered":"Amylose AL"},"content":{"rendered":"<p class=\"wp-block-paragraph\">Diagnostiqu\u00e9e d&rsquo;une amylose AL en 2017 \u00e0 57 ans, apr\u00e8s avoir \u00e9t\u00e9 soign\u00e9e par un cardiologue qui n\u2019a pas trouv\u00e9 le probl\u00e8me. Aggravation des sympt\u00f4mes et admise en urgence \u00e0 la clinique du bois \u00e0 Lille. Deux chocs cardiaques pour remettre le c\u0153ur en fonctionnement. Les reins sont \u00e9galement atteints. Pronostic vital ???<br \/>Ils envisagent une greffe cardiaque.<br \/>43 kg. Incapable de marcher. Chaise roulante. Le docteur B n\u00e9phrologue a trouv\u00e9 le probl\u00e8me et tout de suite ils ont mis en place un traitement par chimioth\u00e9rapie qui a fonctionn\u00e9. Toutes les semaines chimioth\u00e9rapie pendant 4 mois. Dur dur mais efficace.<br \/>J ai mis 2 ans \u00e0 me reconstruire \u00e0 80% et l&rsquo;ann\u00e9e derni\u00e8re j ai fait un petit triathlon. 750m nage 5km marche rapide tout terrain et 20 km de v\u00e9lo Golf sans pb. J ai un chariot \u00e9lectrique Je vis mieux que beaucoup de mes copines qq fois un peu en surpoids !!!<br \/>Et Patatras. D\u00e9cembre 2020 les cha\u00eenes l\u00e9g\u00e8res remontent. Je suis rapidement prise en charge au CHR de Lille pour une cure immunoth\u00e9rapie de Dara, associ\u00e9 \u00e0 de la cortisone sa fonctionne bien c est bcp moins destructeur que la chimioth\u00e9rapie. Ma cure de 5 mois : 2 mois toutes les semaines et ensuite tous les 15 jours s&rsquo;est finie hier ???????? Maintenant je crois que pour aider son corps il faut \u00e9galement faire un vrai travail physique et psychologique c est nous m\u00eame qui nous d\u00e9truisons et c&rsquo;est dommage.<br \/>Les causes : La nourriture ?<br \/>Les traitements ext\u00e9rieurs ?<br \/>Ou tout simplement des probl\u00e8mes perso que nous n&rsquo;avons pas r\u00e9gl\u00e9s. Toutes les pistes sont ouvertes et il faut les emprunter. Il y a \u00e9galement des compl\u00e9ments alimentaires donn\u00e9s par d&rsquo;excellents m\u00e9decins qui permettent de renforcer nos d\u00e9fenses. Pourquoi pas la Radiesthesie. Surtout l&rsquo;amour des proches et moins proches \u00e0 2, 3, 4, 5&#8230; on est plus forts et aujourd\u2019hui je sors de traitement. Je vais me reposer 3, 4 jours et vais commencer la natation, la marche et ce sera magique !!! On sait bien que cette maladie n&rsquo;est pas facile \u00e0 \u00e9radiquer mais on doit refuser d&rsquo;\u00eatre vieille ou vieux avant 98 ans. Si Dieu nous pr\u00eate vie. Voil\u00e0 je vous souhaite \u00e0 toutes et \u00e0 tous beaucoup d \u00e9nergie et d amour et faisons mentir les pronostics pessimistes.<br \/>Bien \u00e0 vous <\/p>\n<p class=\"wp-block-paragraph\">Amylose AL &#8211; Dorothee &#8211; FRANCE<\/p>\n","protected":false},"excerpt":{"rendered":"<p>Diagnostiqu\u00e9e d\u2019une amylose AL en 2017 \u00e0 57 ans, apr\u00e8s avoir \u00e9t\u00e9 soign\u00e9e par un cardiologue qui n\u2019a pas trouv\u00e9 le probl\u00e8me.<\/p>\n","protected":false},"featured_media":1197,"template":"","class_list":["post-401","aa_testimony","type-aa_testimony","status-publish","has-post-thumbnail","hentry"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v28.6 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>Amylose AL - Amyloidosis Alliance<\/title>\n<meta name=\"description\" content=\"Diagnostiqu\u00e9e d\u2019une amylose AL en 2017 \u00e0 57 ans, apr\u00e8s avoir \u00e9t\u00e9 soign\u00e9e par un cardiologue qui n\u2019a pas trouv\u00e9 le probl\u00e8me.\" \/>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.amyloidosisalliance.org\/fr\/events\/world-amyloidosis-day\/testimonials\/amylose-al\/\" \/>\n<meta property=\"og:locale\" content=\"fr_FR\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Amylose AL - 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