{"id":1807,"date":"2026-08-12T19:23:03","date_gmt":"2026-08-12T17:23:03","guid":{"rendered":"https:\/\/amyloidosisalliance.local\/members\/funcolehf-fundacion-colombiana-para-enfermedades-huerfanas\/"},"modified":"2026-09-29T15:44:19","modified_gmt":"2026-09-29T13:44:19","slug":"funcolehf-fundacion-colombiana-para-enfermedades-huerfanas","status":"publish","type":"aa_member","link":"https:\/\/www.amyloidosisalliance.org\/fr\/membres\/funcolehf-fundacion-colombiana-para-enfermedades-huerfanas\/","title":{"rendered":"FUNCOLEHF, Fundaci\u00f3n Colombiana para Enfermedades Hu\u00e9rfanas"},"content":{"rendered":"<div class=\"wp-block-buttons aa-member-actions is-layout-flex wp-block-buttons-is-layout-flex\"><div class=\"wp-block-button aa-btn aa-btn--teal\"><a class=\"wp-block-button__link wp-element-button\" href=\"https:\/\/enfermedadeshuerfanas.org.co\/\" target=\"_blank\" rel=\"noreferrer noopener\">Visiter leur site<\/a><\/div><\/div><div class=\"wp-block-file aa-member-file\"><a href=\"https:\/\/www.amyloidosisalliance.org\/wp-content\/uploads\/2026\/08\/funcolehf-brochure.pdf\">funcolehf-brochure.pdf<\/a><a href=\"https:\/\/www.amyloidosisalliance.org\/wp-content\/uploads\/2026\/08\/funcolehf-brochure.pdf\" class=\"wp-block-file__button wp-element-button\" download=\"\">T\u00e9l\u00e9charger la brochure (PDF)<\/a><\/div><ul class=\"wp-block-social-links has-visible-labels has-normal-icon-size aa-member-socials is-layout-flex wp-block-social-links-is-layout-flex\"><li class=\"wp-social-link wp-social-link-facebook wp-block-social-link\"><a href=\"https:\/\/www.facebook.com\/Funcolehf\/\" class=\"wp-block-social-link-anchor\"><svg width=\"24\" height=\"24\" viewBox=\"0 0 24 24\" version=\"1.1\" xmlns=\"http:\/\/www.w3.org\/2000\/svg\" aria-hidden=\"true\" focusable=\"false\"><path d=\"M12 2C6.5 2 2 6.5 2 12c0 5 3.7 9.1 8.4 9.9v-7H7.9V12h2.5V9.8c0-2.5 1.5-3.9 3.8-3.9 1.1 0 2.2.2 2.2.2v2.5h-1.3c-1.2 0-1.6.8-1.6 1.6V12h2.8l-.4 2.9h-2.3v7C18.3 21.1 22 17 22 12c0-5.5-4.5-10-10-10z\"><\/path><\/svg><span class=\"wp-block-social-link-label\">Facebook<\/span><\/a><\/li><li class=\"wp-social-link wp-social-link-x wp-block-social-link\"><a href=\"https:\/\/x.com\/Funcolehf\/\" class=\"wp-block-social-link-anchor\"><svg width=\"24\" height=\"24\" viewBox=\"0 0 24 24\" version=\"1.1\" xmlns=\"http:\/\/www.w3.org\/2000\/svg\" aria-hidden=\"true\" focusable=\"false\"><path d=\"M13.982 10.622 20.54 3h-1.554l-5.693 6.618L8.745 3H3.5l6.876 10.007L3.5 21h1.554l6.012-6.989L15.868 21h5.245l-7.131-10.378Zm-2.128 2.474-.697-.997-5.543-7.93H8l4.474 6.4.697.996 5.815 8.318h-2.387l-4.745-6.787Z\" \/><\/svg><span class=\"wp-block-social-link-label\">X \/ Twitter<\/span><\/a><\/li><li class=\"wp-social-link wp-social-link-instagram wp-block-social-link\"><a href=\"https:\/\/www.instagram.com\/funcolehf\/\" class=\"wp-block-social-link-anchor\"><svg width=\"24\" height=\"24\" viewBox=\"0 0 24 24\" version=\"1.1\" xmlns=\"http:\/\/www.w3.org\/2000\/svg\" aria-hidden=\"true\" focusable=\"false\"><path d=\"M12,4.622c2.403,0,2.688,0.009,3.637,0.052c0.877,0.04,1.354,0.187,1.671,0.31c0.42,0.163,0.72,0.358,1.035,0.673 c0.315,0.315,0.51,0.615,0.673,1.035c0.123,0.317,0.27,0.794,0.31,1.671c0.043,0.949,0.052,1.234,0.052,3.637 s-0.009,2.688-0.052,3.637c-0.04,0.877-0.187,1.354-0.31,1.671c-0.163,0.42-0.358,0.72-0.673,1.035 c-0.315,0.315-0.615,0.51-1.035,0.673c-0.317,0.123-0.794,0.27-1.671,0.31c-0.949,0.043-1.233,0.052-3.637,0.052 s-2.688-0.009-3.637-0.052c-0.877-0.04-1.354-0.187-1.671-0.31c-0.42-0.163-0.72-0.358-1.035-0.673 c-0.315-0.315-0.51-0.615-0.673-1.035c-0.123-0.317-0.27-0.794-0.31-1.671C4.631,14.688,4.622,14.403,4.622,12 s0.009-2.688,0.052-3.637c0.04-0.877,0.187-1.354,0.31-1.671c0.163-0.42,0.358-0.72,0.673-1.035 c0.315-0.315,0.615-0.51,1.035-0.673c0.317-0.123,0.794-0.27,1.671-0.31C9.312,4.631,9.597,4.622,12,4.622 M12,3 C9.556,3,9.249,3.01,8.289,3.054C7.331,3.098,6.677,3.25,6.105,3.472C5.513,3.702,5.011,4.01,4.511,4.511 c-0.5,0.5-0.808,1.002-1.038,1.594C3.25,6.677,3.098,7.331,3.054,8.289C3.01,9.249,3,9.556,3,12c0,2.444,0.01,2.751,0.054,3.711 c0.044,0.958,0.196,1.612,0.418,2.185c0.23,0.592,0.538,1.094,1.038,1.594c0.5,0.5,1.002,0.808,1.594,1.038 c0.572,0.222,1.227,0.375,2.185,0.418C9.249,20.99,9.556,21,12,21s2.751-0.01,3.711-0.054c0.958-0.044,1.612-0.196,2.185-0.418 c0.592-0.23,1.094-0.538,1.594-1.038c0.5-0.5,0.808-1.002,1.038-1.594c0.222-0.572,0.375-1.227,0.418-2.185 C20.99,14.751,21,14.444,21,12s-0.01-2.751-0.054-3.711c-0.044-0.958-0.196-1.612-0.418-2.185c-0.23-0.592-0.538-1.094-1.038-1.594 c-0.5-0.5-1.002-0.808-1.594-1.038c-0.572-0.222-1.227-0.375-2.185-0.418C14.751,3.01,14.444,3,12,3L12,3z M12,7.378 c-2.552,0-4.622,2.069-4.622,4.622S9.448,16.622,12,16.622s4.622-2.069,4.622-4.622S14.552,7.378,12,7.378z M12,15 c-1.657,0-3-1.343-3-3s1.343-3,3-3s3,1.343,3,3S13.657,15,12,15z M16.804,6.116c-0.596,0-1.08,0.484-1.08,1.08 s0.484,1.08,1.08,1.08c0.596,0,1.08-0.484,1.08-1.08S17.401,6.116,16.804,6.116z\"><\/path><\/svg><span class=\"wp-block-social-link-label\">Instagram<\/span><\/a><\/li><li class=\"wp-social-link wp-social-link-youtube wp-block-social-link\"><a href=\"https:\/\/www.youtube.com\/@Funcolehf\" class=\"wp-block-social-link-anchor\"><svg width=\"24\" height=\"24\" viewBox=\"0 0 24 24\" version=\"1.1\" xmlns=\"http:\/\/www.w3.org\/2000\/svg\" aria-hidden=\"true\" focusable=\"false\"><path d=\"M21.8,8.001c0,0-0.195-1.378-0.795-1.985c-0.76-0.797-1.613-0.801-2.004-0.847c-2.799-0.202-6.997-0.202-6.997-0.202 h-0.009c0,0-4.198,0-6.997,0.202C4.608,5.216,3.756,5.22,2.995,6.016C2.395,6.623,2.2,8.001,2.2,8.001S2,9.62,2,11.238v1.517 c0,1.618,0.2,3.237,0.2,3.237s0.195,1.378,0.795,1.985c0.761,0.797,1.76,0.771,2.205,0.855c1.6,0.153,6.8,0.201,6.8,0.201 s4.203-0.006,7.001-0.209c0.391-0.047,1.243-0.051,2.004-0.847c0.6-0.607,0.795-1.985,0.795-1.985s0.2-1.618,0.2-3.237v-1.517 C22,9.62,21.8,8.001,21.8,8.001z M9.935,14.594l-0.001-5.62l5.404,2.82L9.935,14.594z\"><\/path><\/svg><span class=\"wp-block-social-link-label\">YouTube<\/span><\/a><\/li><\/ul><p class=\"wp-block-paragraph\">Nous poursuivons notre mission par le plaidoyer, une participation active \u00e0 l\u2019\u00e9laboration des politiques publiques et le contr\u00f4le du syst\u00e8me de sant\u00e9, en lien \u00e9troit avec des institutions comme la Superintendance nationale de la sant\u00e9, le Bureau de l\u2019inspecteur g\u00e9n\u00e9ral, le Bureau du D\u00e9fenseur du peuple et le minist\u00e8re de la Sant\u00e9.<\/p>","protected":false},"excerpt":{"rendered":"<p>La Fundaci\u00f3n Colombiana para Enfermedades Hu\u00e9rfanas (FUNCOLEHF) est une fondation \u00e0 but non lucratif qui \u0153uvre \u00e0 am\u00e9liorer la qualit\u00e9 de vie et l\u2019esp\u00e9rance de vie des personnes et des familles touch\u00e9es par des maladies rares, dont l\u2019amylose. Nous travaillons main dans la main avec les soci\u00e9t\u00e9s savantes, les d\u00e9cideurs et les associations de patients dans toute la Colombie, avec l\u2019appui d\u2019alliances internationales.<\/p>\n","protected":false},"featured_media":1808,"template":"","meta":{"aa_member_country":"Colombia","aa_member_map_coords":"","aa_member_map_place":"","footnotes":""},"class_list":["post-1807","aa_member","type-aa_member","status-publish","has-post-thumbnail","hentry"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v28.6 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>FUNCOLEHF, Fundaci\u00f3n Colombiana para Enfermedades Hu\u00e9rfanas - Amyloidosis Alliance<\/title>\n<meta name=\"description\" content=\"La Fundaci\u00f3n Colombiana para Enfermedades Hu\u00e9rfanas (FUNCOLEHF) est une fondation \u00e0 but non lucratif qui \u0153uvre \u00e0 am\u00e9liorer la qualit\u00e9 de vie et l\u2019esp\u00e9rance de vie des personnes et des familles touch\u00e9es par des maladies rares, dont l\u2019amylose. 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