{"id":4293,"date":"2023-04-05T08:32:00","date_gmt":"2023-04-05T06:32:00","guid":{"rendered":"https:\/\/www.amyloidosisalliance.org\/lea-la-historia-de-la-enfermedad-de-amy-diagnosticada-a-los-52-anos\/"},"modified":"2026-11-03T10:23:35","modified_gmt":"2026-11-03T09:23:35","slug":"lea-la-historia-de-la-enfermedad-de-amy-diagnosticada-a-los-52-anos","status":"publish","type":"post","link":"https:\/\/www.amyloidosisalliance.org\/es\/lea-la-historia-de-la-enfermedad-de-amy-diagnosticada-a-los-52-anos\/","title":{"rendered":"LEA LA HISTORIA DE LA ENFERMEDAD DE AMY, diagnosticada a los 52 a\u00f1os"},"content":{"rendered":"\n<p class=\"wp-block-paragraph\">Me diagnosticaron amiloidosis en 2018, a los 52 a\u00f1os, despu\u00e9s de varios a\u00f1os de consultas por s\u00edntomas que nadie lograba explicar.<\/p>\n\n<p class=\"wp-block-paragraph\">Sab\u00eda que algo no iba bien, pero los chequeos rutinarios no mostraban nada anormal. El amiloide se descubri\u00f3 en una colonoscopia de rutina, en mi tubo digestivo.<\/p>\n\n<p class=\"wp-block-paragraph\">Amiloidosis era una palabra que nunca hab\u00eda o\u00eddo y, aun despu\u00e9s de a\u00f1os inform\u00e1ndome tras el diagn\u00f3stico, me parece una enfermedad muy compleja y dif\u00edcil de entender.<\/p>\n\n<p class=\"wp-block-paragraph\">Como mujer muy activa, madre de tres hijos y abuela de siete nietos, al principio me qued\u00e9 destrozada y tuve miedo. Hab\u00eda perdido a mis padres y a dos hermanos por c\u00e1ncer, hab\u00eda elegido una vida sana; esto no pod\u00eda estar pas\u00e1ndome a m\u00ed.<\/p>\n\n<p class=\"wp-block-paragraph\">La realidad me demostr\u00f3 lo contrario.<\/p>\n\n<p class=\"wp-block-paragraph\">\u00a1Encontrar un m\u00e9dico especialista en amiloidosis es imprescindible! Tras pruebas exhaustivas para determinar la evoluci\u00f3n, empec\u00e9 un c\u00f3ctel de medicamentos de quimioterapia que dur\u00f3 6 meses.<\/p>\n\n<p class=\"wp-block-paragraph\">Hasta ahora, los resultados han sido favorables. Aunque el trasplante de c\u00e9lulas madre es una opci\u00f3n de la que se oye hablar a menudo con esta enfermedad, no es viable en mi caso por factores relacionados con la IgM. Otro factor raro m\u00e1s. Estoy decidida a vivir \u00abmi normalidad\u00bb tanto como sea posible. Me centro en vivir feliz, conf\u00edo en los avances de la investigaci\u00f3n y en los nuevos tratamientos a medida que vayan llegando. Adapto mi rutina cuando es necesario, \u00a1pero me niego a darme por vencida!<\/p>\n\n<p class=\"wp-block-paragraph\">Al compartir mi historia, mi objetivo principal es dar a conocer la enfermedad, con la esperanza de que otras personas reciban un diagn\u00f3stico m\u00e1s temprano.<\/p>\n\n<p class=\"wp-block-paragraph\"><img loading=\"lazy\" decoding=\"async\" height=\"16\" width=\"16\" src=\"https:\/\/static.xx.fbcdn.net\/images\/emoji.php\/v9\/t1f\/2\/16\/27a1.png\" alt=\"&#x27A1;&#xFE0F;\"\/> <a href=\"https:\/\/worldamyloidosisday.org\/amys-disease-aka-amyloidosis-3\/?fbclid=IwAR3Fon8r7Fd1Q0NlX3m7RY_L_2SdDolMqpqxyJoWqnEVAejB0F_nuGuD5oM\">Su historia aqu\u00ed<\/a> <\/p>\n","protected":false},"excerpt":{"rendered":"<p>A Amy le diagnosticaron amiloidosis a los 52 a\u00f1os, tras a\u00f1os de s\u00edntomas sin explicaci\u00f3n. Comparte su recorrido y por qu\u00e9 es esencial encontrar un m\u00e9dico especialista.<\/p>\n","protected":false},"author":1,"featured_media":4294,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[52],"tags":[],"class_list":["post-4293","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-uncategorized-es"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v28.6 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>LEA LA HISTORIA DE LA ENFERMEDAD DE AMY, diagnosticada a los 52 a\u00f1os<\/title>\n<meta name=\"description\" content=\"A Amy le diagnosticaron amiloidosis a los 52 a\u00f1os, tras a\u00f1os de s\u00edntomas sin explicaci\u00f3n. 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