{"id":4194,"date":"2024-02-20T08:34:00","date_gmt":"2024-02-20T07:34:00","guid":{"rendered":"https:\/\/www.amyloidosisalliance.org\/se-acerca-el-dia-de-las-enfermedades-raras-2024\/"},"modified":"2026-11-03T10:21:49","modified_gmt":"2026-11-03T09:21:49","slug":"se-acerca-el-dia-de-las-enfermedades-raras-2024","status":"publish","type":"post","link":"https:\/\/www.amyloidosisalliance.org\/es\/se-acerca-el-dia-de-las-enfermedades-raras-2024\/","title":{"rendered":"\u00a1Se acerca el D\u00eda de las Enfermedades Raras 2024!"},"content":{"rendered":"\n<p class=\"wp-block-paragraph\">El 29 de febrero es el D\u00eda Mundial de las Enfermedades Raras, una ocasi\u00f3n especial para concienciar al p\u00fablico sobre las dificultades de las personas que viven con una enfermedad rara. Este a\u00f1o, una vez m\u00e1s, la Amyloidosis Alliance se moviliza en todo el mundo para apoyar la causa y mostrar el impacto de la amiloidosis. Cada <a href=\"https:\/\/www.amyloidosisalliance.org\/es\/miembros\/\"><mark style=\"background-color:rgba(0, 0, 0, 0)\" class=\"has-inline-color has-pale-cyan-blue-color\">miembro<\/mark><\/a> de la Alianza contribuye a su manera, en su pa\u00eds.<\/p>\n\n<p class=\"wp-block-paragraph\"><a href=\"http:\/\/rarediseaseday.org\/\">D<\/a><mark style=\"background-color:rgba(0, 0, 0, 0)\" class=\"has-inline-color has-pale-cyan-blue-color\"><a href=\"http:\/\/rarediseaseday.org\/\">\u00eda Internacional de las Enfermedades Raras:<\/a> <\/mark>una cita ineludible que se celebra cada a\u00f1o, simb\u00f3licamente el 29 de febrero en los a\u00f1os bisiestos. Esta jornada ofrece una plataforma esencial para concienciar al p\u00fablico, fomentar la investigaci\u00f3n y favorecer el acceso a los tratamientos para las personas con enfermedades raras.<\/p>\n\n<h2 class=\"wp-block-heading has-medium-font-size\"><mark style=\"background-color:rgba(0, 0, 0, 0)\" class=\"has-inline-color has-luminous-vivid-orange-color\">La Amyloidosis Alliance, un actor comprometido con el D\u00eda de las Enfermedades Raras<\/mark><\/h2>\n\n<p class=\"wp-block-paragraph\">Con motivo de esta jornada excepcional, la Amyloidosis Alliance se afirma como un actor comprometido en la lucha contra las enfermedades raras. La amiloidosis es una enfermedad caracterizada por el dep\u00f3sito an\u00f3malo de prote\u00ednas en los tejidos y \u00f3rganos, que provoca complicaciones graves. Lamentablemente, debido a su rareza, la amiloidosis se diagnostica a menudo de forma err\u00f3nea, lo que retrasa un tratamiento adecuado.<\/p>\n\n<h2 class=\"wp-block-heading has-medium-font-size\"><mark style=\"background-color:rgba(0, 0, 0, 0)\" class=\"has-inline-color has-vivid-cyan-blue-color\">Concienciar y movilizar: los objetivos de la Amyloidosis Alliance para el D\u00eda de las Enfermedades Raras<\/mark><\/h2>\n\n<p class=\"wp-block-paragraph\">La Amyloidosis Alliance aprovechar\u00e1 esta jornada para intensificar sus acciones de concienciaci\u00f3n, destacando las dificultades que afrontan los pacientes con amiloidosis. La asociaci\u00f3n tambi\u00e9n desea movilizar recursos para apoyar la investigaci\u00f3n, con el fin de comprender mejor la enfermedad y desarrollar tratamientos m\u00e1s eficaces.<\/p>\n\n<h2 class=\"wp-block-heading has-medium-font-size\"><mark style=\"background-color:rgba(0, 0, 0, 0)\" class=\"has-inline-color has-vivid-green-cyan-color\">C\u00f3mo participar en el D\u00eda de las Enfermedades Raras<\/mark><\/h2>\n\n<p class=\"wp-block-paragraph\">Puede sumarse al compromiso de la Alianza participando activamente en el D\u00eda de las Enfermedades Raras. Siga las redes sociales de la Alianza, comparta informaci\u00f3n \u00fatil y utilice el hashtag oficial de la jornada para dar m\u00e1s alcance a los mensajes de concienciaci\u00f3n. Tambi\u00e9n puede apoyar las acciones, las investigaciones y las iniciativas de cada uno de los miembros de la Alianza en el mundo.<\/p>\n\n<h2 class=\"wp-block-heading has-medium-font-size\"><mark style=\"background-color:rgba(0, 0, 0, 0)\" class=\"has-inline-color has-pale-pink-color\">Marcar la diferencia juntos<\/mark><\/h2>\n\n<p class=\"wp-block-paragraph\">El D\u00eda Internacional de las Enfermedades Raras es una valiosa oportunidad para dar a conocer al p\u00fablico realidades a menudo poco conocidas. Uniendo fuerzas con la Amyloidosis Alliance, cada uno de nosotros puede contribuir a impulsar la investigaci\u00f3n, mejorar la atenci\u00f3n a los pacientes y hacer avanzar la causa de las enfermedades raras. <\/p>\n\n<p class=\"wp-block-paragraph\">El 29 de febrero, s\u00famese a esta iniciativa mundial y sea la voz de quienes luchan contra la amiloidosis.<\/p>\n\n<div style=\"height:49px\" aria-hidden=\"true\" class=\"wp-block-spacer\"><\/div>\n\n<figure class=\"wp-block-image size-full is-resized\"><img decoding=\"async\" src=\"https:\/\/www.amyloidosisalliance.org\/wp-content\/uploads\/2022\/06\/cropped-cropped-logo.jpg\" alt=\"\" class=\"wp-image-5208\" style=\"width:218px;height:auto\"\/><\/figure>\n\n<div style=\"height:100px\" aria-hidden=\"true\" class=\"wp-block-spacer\"><\/div>\n","protected":false},"excerpt":{"rendered":"<p>El D\u00eda de las Enfermedades Raras se celebra el 29 de febrero de 2024. C\u00f3mo se movilizan la Amyloidosis Alliance y sus miembros para dar a conocer la amiloidosis entre las enfermedades raras.<\/p>\n","protected":false},"author":1,"featured_media":4195,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[52],"tags":[],"class_list":["post-4194","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-uncategorized-es"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v28.6 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>\u00a1Se acerca el D\u00eda de las Enfermedades Raras 2024!<\/title>\n<meta name=\"description\" content=\"El D\u00eda de las Enfermedades Raras se celebra el 29 de febrero de 2024. 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