{"id":2483,"date":"2026-07-07T11:33:50","date_gmt":"2026-07-07T09:33:50","guid":{"rendered":"https:\/\/www.amyloidosisalliance.org\/quienes-somos\/"},"modified":"2026-10-22T15:58:33","modified_gmt":"2026-10-22T13:58:33","slug":"quienes-somos","status":"publish","type":"page","link":"https:\/\/www.amyloidosisalliance.org\/es\/quienes-somos\/","title":{"rendered":"Qui\u00e9nes somos"},"content":{"rendered":"\n<nav aria-label=\"Breadcrumb\" class=\"wp-block-group aa-breadcrumb is-layout-flow wp-block-group-is-layout-flow\">\n<div class=\"aa-inner\"><a href=\"\/\">Inicio<\/a><span class=\"aa-breadcrumb__sep\">\u203a<\/span><span class=\"aa-breadcrumb__label\">La Alianza<\/span><span class=\"aa-breadcrumb__sep\">\u203a<\/span><span class=\"aa-breadcrumb__current\">Qui\u00e9nes somos<\/span><\/div>\n<\/nav>\n\n<section class=\"wp-block-group aa-page-hero is-layout-flow wp-block-group-is-layout-flow\">\n<div class=\"wp-block-group aa-inner is-layout-flow wp-block-group-is-layout-flow\">\n<div class=\"wp-block-group aa-page-hero__grid is-layout-flow wp-block-group-is-layout-flow\">\n<div class=\"wp-block-group is-layout-flow wp-block-group-is-layout-flow\">\n<p class=\"aa-overline wp-block-paragraph\">La Alianza<\/p>\n\n\n\n<h1 class=\"wp-block-heading\">Qui\u00e9nes somos<\/h1>\n\n\n\n<p class=\"aa-lead wp-block-paragraph\">La Amyloidosis Alliance es una coalici\u00f3n internacional que re\u00fane a asociaciones de pacientes, expertos m\u00e9dicos e instituciones de investigaci\u00f3n en torno a una misi\u00f3n com\u00fan: poner fin a la odisea diagn\u00f3stica y transformar la atenci\u00f3n a los pacientes con amiloidosis en todo el mundo.<\/p>\n\n\n\n<p class=\"aa-page-hero__body wp-block-paragraph\">Basada en la convicci\u00f3n de que ninguna organizaci\u00f3n puede afrontar sola estos retos, la Alianza conecta los esfuerzos nacionales mediante la cooperaci\u00f3n internacional, compartiendo conocimientos, recursos y las perspectivas de las personas afectadas por la enfermedad.<\/p>\n<\/div>\n\n\n\n<div class=\"wp-block-group aa-page-hero__photo is-layout-flow wp-block-group-is-layout-flow\">\n<figure class=\"wp-block-image size-full\"><img loading=\"lazy\" decoding=\"async\" width=\"631\" height=\"593\" src=\"https:\/\/www.amyloidosisalliance.org\/wp-content\/uploads\/2026\/09\/about-us.jpg\" alt=\"\" class=\"wp-image-671\" srcset=\"https:\/\/www.amyloidosisalliance.org\/wp-content\/uploads\/2026\/09\/about-us.jpg 631w, https:\/\/www.amyloidosisalliance.org\/wp-content\/uploads\/2026\/09\/about-us-300x282.jpg 300w\" sizes=\"auto, (max-width: 631px) 100vw, 631px\" \/><\/figure>\n<\/div>\n<\/div>\n<\/div>\n<\/section>\n\n<nav aria-label=\"Section navigation\" class=\"wp-block-group aa-anchorband is-layout-flow wp-block-group-is-layout-flow\">\n<div class=\"wp-block-group aa-inner is-layout-flow wp-block-group-is-layout-flow\">\n<div class=\"wp-block-columns aa-anchor-cols is-layout-flex wp-container-core-columns-is-layout-b2e659ba wp-block-columns-is-layout-flex\">\n<div class=\"wp-block-column aa-anchor-item is-layout-flow wp-block-column-is-layout-flow\">\n<p class=\"num wp-block-paragraph\">01<\/p>\n\n\n\n<p class=\"lbl wp-block-paragraph\"><a href=\"#why\">Por qu\u00e9 existimos<\/a><\/p>\n<\/div>\n\n\n\n<div class=\"wp-block-column aa-anchor-item is-layout-flow wp-block-column-is-layout-flow\">\n<p class=\"num wp-block-paragraph\">02<\/p>\n\n\n\n<p class=\"lbl wp-block-paragraph\"><a href=\"#connect\">Lo que reunimos<\/a><\/p>\n<\/div>\n\n\n\n<div class=\"wp-block-column aa-anchor-item is-layout-flow wp-block-column-is-layout-flow\">\n<p class=\"num wp-block-paragraph\">03<\/p>\n\n\n\n<p class=\"lbl wp-block-paragraph\"><a href=\"#how\">C\u00f3mo funcionamos<\/a><\/p>\n<\/div>\n\n\n\n<div class=\"wp-block-column aa-anchor-item is-layout-flow wp-block-column-is-layout-flow\">\n<p class=\"num wp-block-paragraph\">04<\/p>\n\n\n\n<p class=\"lbl wp-block-paragraph\"><a href=\"#presence\">Presencia internacional<\/a><\/p>\n<\/div>\n\n\n\n<div class=\"wp-block-column aa-anchor-item is-layout-flow wp-block-column-is-layout-flow\">\n<p class=\"num wp-block-paragraph\">05<\/p>\n\n\n\n<p class=\"lbl wp-block-paragraph\"><a href=\"#serve\">Para qui\u00e9n trabajamos<\/a><\/p>\n<\/div>\n\n\n\n<div class=\"wp-block-column aa-anchor-item is-layout-flow wp-block-column-is-layout-flow\">\n<p class=\"num wp-block-paragraph\">06<\/p>\n\n\n\n<p class=\"lbl wp-block-paragraph\"><a href=\"#timeline\">La historia de la Alianza<\/a><\/p>\n<\/div>\n<\/div>\n<\/div>\n<\/nav>\n\n<section id=\"why\" class=\"wp-block-group aa-section aa-section--white aa-why is-layout-flow wp-block-group-is-layout-flow\">\n<div class=\"wp-block-group aa-inner is-layout-flow wp-block-group-is-layout-flow\">\n<div class=\"wp-block-group is-layout-flow wp-block-group-is-layout-flow\">\n<p class=\"aa-section-num wp-block-paragraph\">01<\/p>\n\n\n\n<h2 class=\"wp-block-heading\">Por qu\u00e9 existe la Alianza<\/h2>\n<\/div>\n\n\n\n<div class=\"wp-block-group aa-why__cols is-layout-flow wp-block-group-is-layout-flow\">\n<div class=\"wp-block-group aa-why-col is-layout-flow wp-block-group-is-layout-flow\">\n<h4 class=\"wp-block-heading\">El reto de una enfermedad rara<\/h4>\n\n\n\n<p class=\"wp-block-paragraph\">La amiloidosis es un grupo de enfermedades raras y complejas que siguen estando ampliamente infradiagnosticadas. Sus s\u00edntomas pueden parecerse a los de afecciones mucho m\u00e1s frecuentes, mientras que el conocimiento especializado est\u00e1 repartido entre distintas especialidades y sistemas de salud.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">Esto puede dar lugar a un recorrido diagn\u00f3stico de varios a\u00f1os, con riesgo de da\u00f1o org\u00e1nico progresivo y potencialmente irreversible.<\/p>\n<\/div>\n\n\n\n<div class=\"wp-block-group aa-why-col is-layout-flow wp-block-group-is-layout-flow\">\n<h4 class=\"wp-block-heading\">Una respuesta internacional com\u00fan<\/h4>\n\n\n\n<p class=\"wp-block-paragraph\">La Alianza se fund\u00f3 para conectar las iniciativas nacionales y reunir a organizaciones de pacientes, profesionales sanitarios, investigadores y otros actores en torno a objetivos comunes.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">Compartiendo conocimientos y recursos m\u00e1s all\u00e1 de las fronteras, trabajamos para favorecer un diagn\u00f3stico m\u00e1s temprano, mejorar el acceso a la atenci\u00f3n y reforzar la voz de los pacientes en los debates sobre salud, investigaci\u00f3n y pol\u00edticas p\u00fablicas.<\/p>\n<\/div>\n<\/div>\n<\/div>\n<\/section>\n\n<section id=\"connect\" class=\"wp-block-group aa-section aa-section--cream aa-connect is-layout-flow wp-block-group-is-layout-flow\">\n<div class=\"wp-block-group aa-inner is-layout-flow wp-block-group-is-layout-flow\">\n<div class=\"wp-block-group aa-connect__media is-layout-flow wp-block-group-is-layout-flow\">\n<figure class=\"wp-block-image size-large\"><img loading=\"lazy\" decoding=\"async\" width=\"683\" height=\"1024\" src=\"https:\/\/www.amyloidosisalliance.org\/wp-content\/uploads\/2026\/09\/krakenimages-Y5bvRlcCx8k-unsplash-683x1024.jpg\" alt=\"\" class=\"wp-image-667\" srcset=\"https:\/\/www.amyloidosisalliance.org\/wp-content\/uploads\/2026\/09\/krakenimages-Y5bvRlcCx8k-unsplash-683x1024.jpg 683w, https:\/\/www.amyloidosisalliance.org\/wp-content\/uploads\/2026\/09\/krakenimages-Y5bvRlcCx8k-unsplash-200x300.jpg 200w, https:\/\/www.amyloidosisalliance.org\/wp-content\/uploads\/2026\/09\/krakenimages-Y5bvRlcCx8k-unsplash-768x1152.jpg 768w, https:\/\/www.amyloidosisalliance.org\/wp-content\/uploads\/2026\/09\/krakenimages-Y5bvRlcCx8k-unsplash-1024x1536.jpg 1024w, https:\/\/www.amyloidosisalliance.org\/wp-content\/uploads\/2026\/09\/krakenimages-Y5bvRlcCx8k-unsplash-1365x2048.jpg 1365w\" sizes=\"auto, (max-width: 683px) 100vw, 683px\" \/><\/figure>\n<\/div>\n\n\n\n<div class=\"wp-block-group is-layout-flow wp-block-group-is-layout-flow\">\n<p class=\"aa-section-num wp-block-paragraph\">02<\/p>\n\n\n\n<h2 class=\"wp-block-heading\">Lo que reunimos<\/h2>\n\n\n\n<div class=\"wp-block-group aa-connect__list is-layout-flow wp-block-group-is-layout-flow\">\n<div class=\"wp-block-group aa-connect-row is-layout-flow wp-block-group-is-layout-flow\">\n<p class=\"aa-connect-row__name wp-block-paragraph\">Organizaciones miembro<\/p>\n\n\n\n<p class=\"aa-connect-row__desc wp-block-paragraph\">24 organizaciones de pacientes en 19 pa\u00edses, conectadas en una misma alianza internacional.<\/p>\n<\/div>\n\n\n\n<div class=\"wp-block-group aa-connect-row is-layout-flow wp-block-group-is-layout-flow\">\n<p class=\"aa-connect-row__name wp-block-paragraph\">Comit\u00e9 cient\u00edfico<\/p>\n\n\n\n<p class=\"aa-connect-row__desc wp-block-paragraph\">M\u00e9dicos e investigadores que aportan su experiencia cient\u00edfica y m\u00e9dica al trabajo de la Alianza.<\/p>\n<\/div>\n\n\n\n<div class=\"wp-block-group aa-connect-row is-layout-flow wp-block-group-is-layout-flow\">\n<p class=\"aa-connect-row__name wp-block-paragraph\">Acciones de concienciaci\u00f3n<\/p>\n\n\n\n<p class=\"aa-connect-row__desc wp-block-paragraph\">Campa\u00f1as mundiales, entre ellas el D\u00eda Mundial de la Amiloidosis, que movilizan a la comunidad cada a\u00f1o.<\/p>\n<\/div>\n\n\n\n<div class=\"wp-block-group aa-connect-row is-layout-flow wp-block-group-is-layout-flow\">\n<p class=\"aa-connect-row__name wp-block-paragraph\">Recursos y eventos<\/p>\n\n\n\n<p class=\"aa-connect-row__desc wp-block-paragraph\">Encuentros internacionales, recursos educativos y herramientas pr\u00e1cticas pensados para los distintos p\u00fablicos de la comunidad de la amiloidosis.<\/p>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/section>\n\n<section id=\"how\" class=\"wp-block-group aa-section aa-section--white aa-how is-layout-flow wp-block-group-is-layout-flow\">\n<div class=\"wp-block-group aa-inner is-layout-flow wp-block-group-is-layout-flow\">\n<div class=\"wp-block-group aa-how__head is-layout-flow wp-block-group-is-layout-flow\">\n<p class=\"aa-section-num wp-block-paragraph\">03<\/p>\n\n\n\n<h2 class=\"wp-block-heading\">C\u00f3mo funciona la Alianza<\/h2>\n\n\n\n<div class=\"aa-divider-dot\"><\/div>\n\n\n\n<p class=\"wp-block-paragraph\">Tres funciones complementarias permiten a nuestra red actuar de forma colectiva y aumentar su impacto.<\/p>\n<\/div>\n\n\n\n<div class=\"wp-block-group aa-how__grid is-layout-flow wp-block-group-is-layout-flow\">\n<div class=\"wp-block-group aa-how-card is-layout-flow wp-block-group-is-layout-flow\">\n<span class=\"aa-icon-tile\"><svg width=\"24\" height=\"24\" viewbox=\"0 0 24 24\" fill=\"none\" stroke=\"currentColor\" stroke-width=\"1.75\" stroke-linecap=\"round\" stroke-linejoin=\"round\" aria-hidden=\"true\"><circle cx=\"18\" cy=\"5\" r=\"3\"><\/circle><circle cx=\"6\" cy=\"12\" r=\"3\"><\/circle><circle cx=\"18\" cy=\"19\" r=\"3\"><\/circle><line x1=\"8.59\" y1=\"13.51\" x2=\"15.42\" y2=\"17.49\"><\/line><line x1=\"15.41\" y1=\"6.51\" x2=\"8.59\" y2=\"10.49\"><\/line><\/svg><\/span>\n\n\n\n<h3 class=\"wp-block-heading\">Coordinar<\/h3>\n\n\n\n<p class=\"wp-block-paragraph\">Reunimos a las organizaciones miembro en torno a prioridades comunes para que puedan intercambiar experiencias, compartir buenas pr\u00e1cticas y desarrollar iniciativas conjuntas.<\/p>\n<\/div>\n\n\n\n<div class=\"wp-block-group aa-how-card is-layout-flow wp-block-group-is-layout-flow\">\n<span class=\"aa-icon-tile\"><svg width=\"24\" height=\"24\" viewbox=\"0 0 24 24\" fill=\"none\" stroke=\"currentColor\" stroke-width=\"1.75\" stroke-linecap=\"round\" stroke-linejoin=\"round\" aria-hidden=\"true\"><path d=\"M3 11l18-5v12L3 14v-3z\"><\/path><path d=\"M11.6 16.8a3 3 0 1 1-5.8-1.6\"><\/path><\/svg><\/span>\n\n\n\n<h3 class=\"wp-block-heading\">Defender<\/h3>\n\n\n\n<p class=\"wp-block-paragraph\">Llevamos la perspectiva de los pacientes a los debates con las autoridades sanitarias y otros actores, y abogamos por un diagn\u00f3stico a tiempo, una atenci\u00f3n adecuada y un acceso equitativo al tratamiento.<\/p>\n<\/div>\n\n\n\n<div class=\"wp-block-group aa-how-card is-layout-flow wp-block-group-is-layout-flow\">\n<span class=\"aa-icon-tile\"><svg width=\"24\" height=\"24\" viewbox=\"0 0 24 24\" fill=\"none\" stroke=\"currentColor\" stroke-width=\"1.75\" stroke-linecap=\"round\" stroke-linejoin=\"round\" aria-hidden=\"true\"><path d=\"M2 3h6a4 4 0 0 1 4 4v14a3 3 0 0 0-3-3H2z\"><\/path><path d=\"M22 3h-6a4 4 0 0 0-4 4v14a3 3 0 0 1 3-3h7z\"><\/path><\/svg><\/span>\n\n\n\n<h3 class=\"wp-block-heading\">Informar<\/h3>\n\n\n\n<p class=\"wp-block-paragraph\">Convertimos una ciencia compleja en recursos claros y fiables para pacientes, familias y profesionales sanitarios.<\/p>\n<\/div>\n<\/div>\n<\/div>\n<\/section>\n\n<section id=\"presence\" class=\"wp-block-group aa-section aa-section--cream aa-presence is-layout-flow wp-block-group-is-layout-flow\">\n<div class=\"wp-block-group aa-inner is-layout-flow wp-block-group-is-layout-flow\">\n<div class=\"wp-block-group is-layout-flow wp-block-group-is-layout-flow\">\n<p class=\"aa-section-num wp-block-paragraph\">04<\/p>\n\n\n\n<h2 class=\"wp-block-heading\">Presencia internacional<\/h2>\n\n\n\n<p class=\"aa-lead wp-block-paragraph\">En Europa, el continente americano, Asia y otras regiones, la Alianza conecta organizaciones de pacientes y conocimientos especializados m\u00e1s all\u00e1 de las fronteras, para compartir conocimientos y reforzar el apoyo en contextos diferentes.<\/p>\n\n\n\n<p class=\"aa-presence__body wp-block-paragraph\">Cada organizaci\u00f3n miembro aporta a la red su conocimiento y su experiencia locales, lo que ayuda a identificar retos comunes y a compartir enfoques entre pa\u00edses.<\/p>\n\n\n\n<div class=\"wp-block-group aa-presence__stats is-layout-flow wp-block-group-is-layout-flow\">\n<div class=\"wp-block-group aa-presence-stat is-layout-flow wp-block-group-is-layout-flow\">\n<p class=\"n wp-block-paragraph\">19<\/p>\n\n\n\n<p class=\"t wp-block-paragraph\">Pa\u00edses<\/p>\n<\/div>\n\n\n\n<div class=\"wp-block-group aa-presence-stat is-layout-flow wp-block-group-is-layout-flow\">\n<p class=\"n wp-block-paragraph\">24<\/p>\n\n\n\n<p class=\"t wp-block-paragraph\">Asociaciones<\/p>\n<\/div>\n\n\n\n<div class=\"wp-block-group aa-presence-stat is-layout-flow wp-block-group-is-layout-flow\">\n<p class=\"n wp-block-paragraph\">8<\/p>\n\n\n\n<p class=\"t wp-block-paragraph\">Idiomas<\/p>\n<\/div>\n<\/div>\n<\/div>\n\n\n\n<div class=\"wp-block-group aa-presence__map is-layout-flow wp-block-group-is-layout-flow\">\n<figure class=\"wp-block-image size-full\"><img loading=\"lazy\" decoding=\"async\" width=\"1600\" height=\"1200\" src=\"https:\/\/www.amyloidosisalliance.org\/wp-content\/uploads\/2026\/09\/alliance-world-map.png\" alt=\"Mapa del mundo estilizado que muestra las organizaciones miembro conectadas entre continentes\" class=\"wp-image-1048\" srcset=\"https:\/\/www.amyloidosisalliance.org\/wp-content\/uploads\/2026\/09\/alliance-world-map.png 1600w, https:\/\/www.amyloidosisalliance.org\/wp-content\/uploads\/2026\/09\/alliance-world-map-300x225.png 300w, https:\/\/www.amyloidosisalliance.org\/wp-content\/uploads\/2026\/09\/alliance-world-map-1024x768.png 1024w, https:\/\/www.amyloidosisalliance.org\/wp-content\/uploads\/2026\/09\/alliance-world-map-768x576.png 768w, https:\/\/www.amyloidosisalliance.org\/wp-content\/uploads\/2026\/09\/alliance-world-map-1536x1152.png 1536w\" sizes=\"auto, (max-width: 1600px) 100vw, 1600px\" \/><\/figure>\n\n\n\n<div class=\"wp-block-group aa-presence__badge is-layout-flow wp-block-group-is-layout-flow\">\n<p class=\"num wp-block-paragraph\">19<\/p>\n\n\n\n<p class=\"txt wp-block-paragraph\">Nuestras organizaciones miembro est\u00e1n presentes actualmente en 19 pa\u00edses de varias regiones del mundo.<\/p>\n<\/div>\n<\/div>\n<\/div>\n<\/section>\n\n<section id=\"serve\" class=\"wp-block-group aa-section aa-section--white aa-serve is-layout-flow wp-block-group-is-layout-flow\">\n<div class=\"wp-block-group aa-inner is-layout-flow wp-block-group-is-layout-flow\">\n<div class=\"wp-block-group aa-serve__head is-layout-flow wp-block-group-is-layout-flow\">\n<p class=\"aa-section-num wp-block-paragraph\">05<\/p>\n\n\n\n<h2 class=\"wp-block-heading\">Para qui\u00e9n trabajamos<\/h2>\n<\/div>\n\n\n\n<div class=\"wp-block-group aa-serve__grid is-layout-flow wp-block-group-is-layout-flow\">\n<div class=\"wp-block-group aa-serve-col is-layout-flow wp-block-group-is-layout-flow\">\n<span class=\"aa-icon-tile\"><svg width=\"24\" height=\"24\" viewbox=\"0 0 24 24\" fill=\"none\" stroke=\"currentColor\" stroke-width=\"1.75\" stroke-linecap=\"round\" stroke-linejoin=\"round\" aria-hidden=\"true\"><rect x=\"4\" y=\"2\" width=\"16\" height=\"20\" rx=\"1\"><\/rect><path d=\"M9 22v-4h6v4\"><\/path><path d=\"M8 6h.01\"><\/path><path d=\"M16 6h.01\"><\/path><path d=\"M12 6h.01\"><\/path><path d=\"M8 10h.01\"><\/path><path d=\"M16 10h.01\"><\/path><path d=\"M12 10h.01\"><\/path><path d=\"M8 14h.01\"><\/path><path d=\"M16 14h.01\"><\/path><path d=\"M12 14h.01\"><\/path><\/svg><\/span>\n\n\n\n<h3 class=\"wp-block-heading\">Asociaciones de pacientes<\/h3>\n\n\n\n<p class=\"wp-block-paragraph\">Una red para compartir experiencias y recursos, colaborar m\u00e1s all\u00e1 de las fronteras y reforzar el trabajo de las organizaciones de pacientes, tanto a nivel nacional como internacional.<\/p>\n\n\n\n<p class=\"aa-serve-col__link wp-block-paragraph\"><a href=\"https:\/\/www.amyloidosisalliance.org\/es\/miembros\/#apply\">H\u00e1gase miembro<\/a><\/p>\n<\/div>\n\n\n\n<div class=\"wp-block-group aa-serve-col is-layout-flow wp-block-group-is-layout-flow\">\n<span class=\"aa-icon-tile\"><svg width=\"24\" height=\"24\" viewbox=\"0 0 24 24\" fill=\"none\" stroke=\"currentColor\" stroke-width=\"1.75\" stroke-linecap=\"round\" stroke-linejoin=\"round\" aria-hidden=\"true\"><path d=\"M17 21v-2a4 4 0 0 0-4-4H5a4 4 0 0 0-4 4v2\"><\/path><circle cx=\"9\" cy=\"7\" r=\"4\"><\/circle><path d=\"M23 21v-2a4 4 0 0 0-3-3.87\"><\/path><path d=\"M16 3.13a4 4 0 0 1 0 7.75\"><\/path><\/svg><\/span>\n\n\n\n<h3 class=\"wp-block-heading\">Pacientes y familias<\/h3>\n\n\n\n<p class=\"wp-block-paragraph\">Orientaci\u00f3n, comunidad y centros de excelencia reconocidos para ayudar a recorrer el camino, desde el diagn\u00f3stico hasta la vida cotidiana.<\/p>\n\n\n\n<p class=\"aa-serve-col__link wp-block-paragraph\"><a href=\"https:\/\/www.amyloidosisalliance.org\/es\/recursos\/biblioteca\/\">Recursos para pacientes<\/a><\/p>\n<\/div>\n\n\n\n<div class=\"wp-block-group aa-serve-col is-layout-flow wp-block-group-is-layout-flow\">\n<span class=\"aa-icon-tile\"><svg width=\"24\" height=\"24\" viewbox=\"0 0 24 24\" fill=\"none\" stroke=\"currentColor\" stroke-width=\"1.75\" stroke-linecap=\"round\" stroke-linejoin=\"round\" aria-hidden=\"true\"><path d=\"M11 2v2\"><\/path><path d=\"M5 2v2\"><\/path><path d=\"M5 3H4a2 2 0 0 0-2 2v4a6 6 0 0 0 12 0V5a2 2 0 0 0-2-2h-1\"><\/path><path d=\"M8 15a6 6 0 0 0 12 0v-3\"><\/path><circle cx=\"20\" cy=\"10\" r=\"2\"><\/circle><\/svg><\/span>\n\n\n\n<h3 class=\"wp-block-heading\">Profesionales sanitarios<\/h3>\n\n\n\n<p class=\"wp-block-paragraph\">Acceso a recursos educativos, informaci\u00f3n cient\u00edfica y contactos con el conjunto de la comunidad de la amiloidosis.<\/p>\n\n\n\n<p class=\"aa-serve-col__link wp-block-paragraph\"><a href=\"https:\/\/www.amyloidosisalliance.org\/es\/recursos\/biblioteca\/\">Espacio cl\u00ednico<\/a><\/p>\n<\/div>\n<\/div>\n<\/div>\n<\/section>\n\n<section id=\"timeline\" class=\"wp-block-group aa-section aa-section--cream aa-timeline is-layout-flow wp-block-group-is-layout-flow\">\n<div class=\"wp-block-group aa-inner is-layout-flow wp-block-group-is-layout-flow\">\n<div class=\"wp-block-group aa-timeline__head is-layout-flow wp-block-group-is-layout-flow\">\n<p class=\"aa-section-num wp-block-paragraph\">06<\/p>\n\n\n\n<h2 class=\"wp-block-heading\">La historia de la Alianza<\/h2>\n\n\n\n<div class=\"aa-divider-dot\"><\/div>\n<\/div>\n\n\n\n<div class=\"wp-block-group aa-tl is-layout-flow wp-block-group-is-layout-flow\">\n<div class=\"wp-block-group aa-tl-row is-layout-flow wp-block-group-is-layout-flow\">\n<div class=\"wp-block-group aa-tl-card is-layout-flow wp-block-group-is-layout-flow\">\n<p class=\"aa-tl-year wp-block-paragraph\">2017<\/p>\n\n\n\n<h4 class=\"wp-block-heading\">Primer encuentro ATTR para pacientes y m\u00e9dicos<\/h4>\n<\/div>\n<\/div>\n\n\n\n<div class=\"wp-block-group aa-tl-row is-layout-flow wp-block-group-is-layout-flow\">\n<div class=\"wp-block-group aa-tl-card is-layout-flow wp-block-group-is-layout-flow\">\n<p class=\"aa-tl-year wp-block-paragraph\">2018<\/p>\n\n\n\n<h4 class=\"wp-block-heading\">Creaci\u00f3n de la Alianza<\/h4>\n\n\n\n<p class=\"wp-block-paragraph\">Asociaciones de pacientes de varios pa\u00edses se unen para formar una \u00fanica voz internacional en favor de la amiloidosis.<\/p>\n<\/div>\n<\/div>\n\n\n\n<div class=\"wp-block-group aa-tl-row is-layout-flow wp-block-group-is-layout-flow\">\n<div class=\"wp-block-group aa-tl-card is-layout-flow wp-block-group-is-layout-flow\">\n<p class=\"aa-tl-year wp-block-paragraph\">2019<\/p>\n\n\n\n<h4 class=\"wp-block-heading\">Segundo encuentro ATTR para pacientes y m\u00e9dicos<\/h4>\n<\/div>\n<\/div>\n\n\n\n<div class=\"wp-block-group aa-tl-row is-layout-flow wp-block-group-is-layout-flow\">\n<div class=\"wp-block-group aa-tl-card is-layout-flow wp-block-group-is-layout-flow\">\n<p class=\"aa-tl-year wp-block-paragraph\">2020<\/p>\n\n\n\n<h4 class=\"wp-block-heading\">Primera red de miembros<\/h4>\n\n\n\n<p class=\"wp-block-paragraph\">La red se extiende por varios continentes y se dota de una gobernanza compartida y de objetivos comunes.<\/p>\n<\/div>\n<\/div>\n\n\n\n<div class=\"wp-block-group aa-tl-row is-layout-flow wp-block-group-is-layout-flow\">\n<div class=\"wp-block-group aa-tl-card is-layout-flow wp-block-group-is-layout-flow\">\n<p class=\"aa-tl-year wp-block-paragraph\">2021<\/p>\n\n\n\n<h4 class=\"wp-block-heading\">D\u00eda Mundial de la Amiloidosis<\/h4>\n\n\n\n<p class=\"wp-block-paragraph\">El primer d\u00eda mundial de concienciaci\u00f3n, el 26 de octubre, moviliza a la comunidad en torno a una causa com\u00fan.<\/p>\n<\/div>\n<\/div>\n\n\n\n<div class=\"wp-block-group aa-tl-row is-layout-flow wp-block-group-is-layout-flow\">\n<div class=\"wp-block-group aa-tl-card is-layout-flow wp-block-group-is-layout-flow\">\n<p class=\"aa-tl-year wp-block-paragraph\">2021<\/p>\n\n\n\n<h4 class=\"wp-block-heading\">Tercer encuentro ATTR para pacientes y m\u00e9dicos<\/h4>\n<\/div>\n<\/div>\n\n\n\n<div class=\"wp-block-group aa-tl-row is-layout-flow wp-block-group-is-layout-flow\">\n<div class=\"wp-block-group aa-tl-card is-layout-flow wp-block-group-is-layout-flow\">\n<p class=\"aa-tl-year wp-block-paragraph\">2023<\/p>\n\n\n\n<h4 class=\"wp-block-heading\">Comit\u00e9 cient\u00edfico<\/h4>\n\n\n\n<p class=\"wp-block-paragraph\">Se crea el Comit\u00e9 cient\u00edfico para aportar experiencia cient\u00edfica y m\u00e9dica y apoyar el trabajo de la Alianza.<\/p>\n<\/div>\n<\/div>\n\n\n\n<div class=\"wp-block-group aa-tl-row is-layout-flow wp-block-group-is-layout-flow\">\n<div class=\"wp-block-group aa-tl-card is-layout-flow wp-block-group-is-layout-flow\">\n<p class=\"aa-tl-year wp-block-paragraph\">2023<\/p>\n\n\n\n<h4 class=\"wp-block-heading\">Cuarto encuentro ATTR para pacientes y m\u00e9dicos<\/h4>\n\n\n\n<p class=\"wp-block-paragraph\">El primer encuentro internacional ATTR re\u00fane a la comunidad en Madrid.<\/p>\n<\/div>\n<\/div>\n\n\n\n<div class=\"wp-block-group aa-tl-row is-layout-flow wp-block-group-is-layout-flow\">\n<div class=\"wp-block-group aa-tl-card is-layout-flow wp-block-group-is-layout-flow\">\n<p class=\"aa-tl-year wp-block-paragraph\">2024<\/p>\n\n\n\n<h4 class=\"wp-block-heading\">Congreso AL en Bruselas<\/h4>\n\n\n\n<p class=\"wp-block-paragraph\">Se celebra en B\u00e9lgica el primer congreso dedicado a la amiloidosis AL.<\/p>\n<\/div>\n<\/div>\n\n\n\n<div class=\"wp-block-group aa-tl-row is-layout-flow wp-block-group-is-layout-flow\">\n<div class=\"wp-block-group aa-tl-card is-layout-flow wp-block-group-is-layout-flow\">\n<p class=\"aa-tl-year wp-block-paragraph\">2025<\/p>\n\n\n\n<h4 class=\"wp-block-heading\">Encuesta AMYLife<\/h4>\n\n\n\n<p class=\"wp-block-paragraph\">Lanzamiento de AMYLife, la encuesta internacional de la Alianza sobre la experiencia y la vida cotidiana de las personas afectadas por la amiloidosis.<\/p>\n<\/div>\n<\/div>\n\n\n\n<div class=\"wp-block-group aa-tl-row is-layout-flow wp-block-group-is-layout-flow\">\n<div class=\"wp-block-group aa-tl-card is-layout-flow wp-block-group-is-layout-flow\">\n<p class=\"aa-tl-year wp-block-paragraph\">2026<\/p>\n\n\n\n<h4 class=\"wp-block-heading\">Quinto encuentro ATTR para pacientes y m\u00e9dicos<\/h4>\n\n\n\n<p class=\"wp-block-paragraph\">El encuentro internacional ATTR se celebra en Baveno, Italia.<\/p>\n<\/div>\n<\/div>\n\n\n\n<div class=\"wp-block-group aa-tl-row is-layout-flow wp-block-group-is-layout-flow\">\n<div class=\"wp-block-group aa-tl-card is-layout-flow wp-block-group-is-layout-flow\">\n<p class=\"aa-tl-year wp-block-paragraph\">2027<\/p>\n\n\n\n<h4 class=\"wp-block-heading\">Sexto encuentro internacional AL &amp; ATTR para pacientes y m\u00e9dicos<\/h4>\n\n\n\n<p class=\"wp-block-paragraph\">Previsto: los encuentros AL y ATTR se unir\u00e1n en un \u00fanico evento internacional para pacientes, profesionales sanitarios y el conjunto de la comunidad de la amiloidosis.<\/p>\n<\/div>\n<\/div>\n<\/div>\n\n\n\n<div class=\"wp-block-buttons aa-timeline__continue is-layout-flex wp-block-buttons-is-layout-flex\">\n<div class=\"wp-block-button aa-btn aa-btn--ghost-teal aa-btn--lg\"><a class=\"wp-block-button__link wp-element-button\" href=\"https:\/\/www.amyloidosisalliance.org\/es\/nuestros-eventos\/\">La historia contin\u00faa<\/a><\/div>\n<\/div>\n<\/div>\n<\/section>\n\n<section class=\"wp-block-group aa-next is-layout-flow wp-block-group-is-layout-flow\">\n<div class=\"wp-block-group aa-inner is-layout-flow wp-block-group-is-layout-flow\">\n<div class=\"wp-block-group aa-next__head is-layout-flow wp-block-group-is-layout-flow\">\n<p class=\"aa-section-num wp-block-paragraph\">Continuar<\/p>\n\n\n\n<h2 class=\"wp-block-heading\">Para saber m\u00e1s<\/h2>\n<\/div>\n\n\n\n<div class=\"wp-block-group aa-next__grid is-layout-flow wp-block-group-is-layout-flow\">\n<div class=\"wp-block-group aa-next-card is-layout-flow wp-block-group-is-layout-flow\">\n<h3 class=\"wp-block-heading\"><a href=\"https:\/\/www.amyloidosisalliance.org\/es\/nuestras-misiones\/\">Descubra nuestras misiones<\/a><\/h3>\n\n\n\n<p class=\"wp-block-paragraph\">Descubra las prioridades estrat\u00e9gicas que gu\u00edan nuestro trabajo, desde la investigaci\u00f3n hasta la defensa de los pacientes y la concienciaci\u00f3n.<\/p>\n<\/div>\n\n\n\n<div class=\"wp-block-group aa-next-card is-layout-flow wp-block-group-is-layout-flow\">\n<h3 class=\"wp-block-heading\"><a href=\"https:\/\/www.amyloidosisalliance.org\/es\/el-equipo\/\">Conocer al equipo<\/a><\/h3>\n\n\n\n<p class=\"wp-block-paragraph\">Conozca a las personas y los expertos que hacen posible la Alianza.<\/p>\n<\/div>\n\n\n\n<div class=\"wp-block-group aa-next-card is-layout-flow wp-block-group-is-layout-flow\">\n<h3 class=\"wp-block-heading\"><a href=\"https:\/\/www.amyloidosisalliance.org\/es\/unase-a-nosotros\/\">\u00danase a nosotros<\/a><\/h3>\n\n\n\n<p class=\"wp-block-paragraph\">Colabore con nosotros para multiplicar su impacto y reforzar la voz de los pacientes en todo el mundo.<\/p>\n<\/div>\n<\/div>\n<\/div>\n<\/section>\n","protected":false},"excerpt":{"rendered":"<p>Inicio\u203aLa Alianza\u203aQui\u00e9nes somos La Alianza Qui\u00e9nes somos La Amyloidosis Alliance es una coalici\u00f3n internacional que re\u00fane a asociaciones de pacientes, expertos m\u00e9dicos e instituciones de investigaci\u00f3n en torno a una misi\u00f3n com\u00fan: poner fin a la odisea diagn\u00f3stica y transformar la atenci\u00f3n a los pacientes con amiloidosis en todo el mundo. Basada en la convicci\u00f3n [&hellip;]<\/p>\n","protected":false},"author":1,"featured_media":0,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"footnotes":""},"class_list":["post-2483","page","type-page","status-publish","hentry"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v28.6 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>Acerca de la Amyloidosis Alliance: qui\u00e9nes somos<\/title>\n<meta name=\"description\" content=\"Una coalici\u00f3n internacional de organizaciones de pacientes, expertos m\u00e9dicos e instituciones de investigaci\u00f3n que trabaja para mejorar la atenci\u00f3n a las personas afectadas por la amiloidosis.\" \/>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.amyloidosisalliance.org\/es\/quienes-somos\/\" \/>\n<meta property=\"og:locale\" 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