{"id":2190,"date":"2026-07-07T11:33:50","date_gmt":"2026-07-07T09:33:50","guid":{"rendered":"https:\/\/www.amyloidosisalliance.org\/ueber-uns\/"},"modified":"2026-10-22T11:50:34","modified_gmt":"2026-10-22T09:50:34","slug":"ueber-uns","status":"publish","type":"page","link":"https:\/\/www.amyloidosisalliance.org\/de\/ueber-uns\/","title":{"rendered":"\u00dcber uns"},"content":{"rendered":"\n<nav aria-label=\"Breadcrumb\" class=\"wp-block-group aa-breadcrumb is-layout-flow wp-block-group-is-layout-flow\">\n<div class=\"aa-inner\"><a href=\"\/\">Startseite<\/a><span class=\"aa-breadcrumb__sep\">\u203a<\/span><span class=\"aa-breadcrumb__label\">Die Allianz<\/span><span class=\"aa-breadcrumb__sep\">\u203a<\/span><span class=\"aa-breadcrumb__current\">\u00dcber uns<\/span><\/div>\n<\/nav>\n\n<section class=\"wp-block-group aa-page-hero is-layout-flow wp-block-group-is-layout-flow\">\n<div class=\"wp-block-group aa-inner is-layout-flow wp-block-group-is-layout-flow\">\n<div class=\"wp-block-group aa-page-hero__grid is-layout-flow wp-block-group-is-layout-flow\">\n<div class=\"wp-block-group is-layout-flow wp-block-group-is-layout-flow\">\n<p class=\"aa-overline wp-block-paragraph\">Die Allianz<\/p>\n\n\n\n<h1 class=\"wp-block-heading\">\u00dcber uns<\/h1>\n\n\n\n<p class=\"aa-lead wp-block-paragraph\">Die Amyloidosis Alliance ist ein internationaler Zusammenschluss, der Patientenorganisationen, medizinische Fachleute und Forschungseinrichtungen um eine gemeinsame Aufgabe vereint: die oft jahrelange Suche nach der Diagnose zu beenden und die Versorgung von Amyloidose-Patienten weltweit grundlegend zu verbessern.<\/p>\n\n\n\n<p class=\"aa-page-hero__body wp-block-paragraph\">Getragen von der \u00dcberzeugung, dass keine Organisation diese Herausforderungen allein bew\u00e4ltigen kann, verbindet die Allianz nationale Bem\u00fchungen durch internationale Zusammenarbeit und teilt Wissen, Ressourcen und die Sichtweisen der von der Krankheit betroffenen Menschen.<\/p>\n<\/div>\n\n\n\n<div class=\"wp-block-group aa-page-hero__photo is-layout-flow wp-block-group-is-layout-flow\">\n<figure class=\"wp-block-image size-full\"><img loading=\"lazy\" decoding=\"async\" width=\"631\" height=\"593\" src=\"https:\/\/www.amyloidosisalliance.org\/wp-content\/uploads\/2026\/09\/about-us.jpg\" alt=\"\" class=\"wp-image-671\" srcset=\"https:\/\/www.amyloidosisalliance.org\/wp-content\/uploads\/2026\/09\/about-us.jpg 631w, https:\/\/www.amyloidosisalliance.org\/wp-content\/uploads\/2026\/09\/about-us-300x282.jpg 300w\" sizes=\"auto, (max-width: 631px) 100vw, 631px\" \/><\/figure>\n<\/div>\n<\/div>\n<\/div>\n<\/section>\n\n<nav aria-label=\"Section navigation\" class=\"wp-block-group aa-anchorband is-layout-flow wp-block-group-is-layout-flow\">\n<div class=\"wp-block-group aa-inner is-layout-flow wp-block-group-is-layout-flow\">\n<div class=\"wp-block-columns aa-anchor-cols is-layout-flex wp-container-core-columns-is-layout-b2e659ba wp-block-columns-is-layout-flex\">\n<div class=\"wp-block-column aa-anchor-item is-layout-flow wp-block-column-is-layout-flow\">\n<p class=\"num wp-block-paragraph\">01<\/p>\n\n\n\n<p class=\"lbl wp-block-paragraph\"><a href=\"#why\">Warum es uns gibt<\/a><\/p>\n<\/div>\n\n\n\n<div class=\"wp-block-column aa-anchor-item is-layout-flow wp-block-column-is-layout-flow\">\n<p class=\"num wp-block-paragraph\">02<\/p>\n\n\n\n<p class=\"lbl wp-block-paragraph\"><a href=\"#connect\">Was wir zusammenbringen<\/a><\/p>\n<\/div>\n\n\n\n<div class=\"wp-block-column aa-anchor-item is-layout-flow wp-block-column-is-layout-flow\">\n<p class=\"num wp-block-paragraph\">03<\/p>\n\n\n\n<p class=\"lbl wp-block-paragraph\"><a href=\"#how\">So arbeiten wir<\/a><\/p>\n<\/div>\n\n\n\n<div class=\"wp-block-column aa-anchor-item is-layout-flow wp-block-column-is-layout-flow\">\n<p class=\"num wp-block-paragraph\">04<\/p>\n\n\n\n<p class=\"lbl wp-block-paragraph\"><a href=\"#presence\">Internationale Pr\u00e4senz<\/a><\/p>\n<\/div>\n\n\n\n<div class=\"wp-block-column aa-anchor-item is-layout-flow wp-block-column-is-layout-flow\">\n<p class=\"num wp-block-paragraph\">05<\/p>\n\n\n\n<p class=\"lbl wp-block-paragraph\"><a href=\"#serve\">F\u00fcr wen wir uns einsetzen<\/a><\/p>\n<\/div>\n\n\n\n<div class=\"wp-block-column aa-anchor-item is-layout-flow wp-block-column-is-layout-flow\">\n<p class=\"num wp-block-paragraph\">06<\/p>\n\n\n\n<p class=\"lbl wp-block-paragraph\"><a href=\"#timeline\">Die Geschichte der Allianz<\/a><\/p>\n<\/div>\n<\/div>\n<\/div>\n<\/nav>\n\n<section id=\"why\" class=\"wp-block-group aa-section aa-section--white aa-why is-layout-flow wp-block-group-is-layout-flow\">\n<div class=\"wp-block-group aa-inner is-layout-flow wp-block-group-is-layout-flow\">\n<div class=\"wp-block-group is-layout-flow wp-block-group-is-layout-flow\">\n<p class=\"aa-section-num wp-block-paragraph\">01<\/p>\n\n\n\n<h2 class=\"wp-block-heading\">Warum es die Allianz gibt<\/h2>\n<\/div>\n\n\n\n<div class=\"wp-block-group aa-why__cols is-layout-flow wp-block-group-is-layout-flow\">\n<div class=\"wp-block-group aa-why-col is-layout-flow wp-block-group-is-layout-flow\">\n<h4 class=\"wp-block-heading\">Die Herausforderung einer seltenen Erkrankung<\/h4>\n\n\n\n<p class=\"wp-block-paragraph\">Amyloidose ist eine Gruppe seltener, komplexer Erkrankungen, die nach wie vor h\u00e4ufig nicht erkannt werden. Die Symptome k\u00f6nnen denen deutlich h\u00e4ufigerer Krankheiten \u00e4hneln, w\u00e4hrend sich das Fachwissen auf verschiedene Fachrichtungen und Gesundheitssysteme verteilt. <\/p>\n\n\n\n<p class=\"wp-block-paragraph\">Dies kann zu einem jahrelangen Weg bis zur Diagnose f\u00fchren, mit dem Risiko fortschreitender und m\u00f6glicherweise irreversibler Organsch\u00e4den.<\/p>\n<\/div>\n\n\n\n<div class=\"wp-block-group aa-why-col is-layout-flow wp-block-group-is-layout-flow\">\n<h4 class=\"wp-block-heading\">Eine gemeinsame internationale Antwort<\/h4>\n\n\n\n<p class=\"wp-block-paragraph\">Die Allianz wurde gegr\u00fcndet, um nationale Initiativen miteinander zu verbinden und Patientenorganisationen, medizinisches Fachpersonal, Forschende und weitere Akteure um gemeinsame Ziele zu vereinen.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">Indem wir Wissen und Ressourcen \u00fcber Grenzen hinweg teilen, setzen wir uns f\u00fcr eine fr\u00fchere Diagnose, einen besseren Zugang zur Versorgung und eine st\u00e4rkere Stimme der Patienten in Gesundheitswesen, Forschung und Politik ein.<\/p>\n<\/div>\n<\/div>\n<\/div>\n<\/section>\n\n<section id=\"connect\" class=\"wp-block-group aa-section aa-section--cream aa-connect is-layout-flow wp-block-group-is-layout-flow\">\n<div class=\"wp-block-group aa-inner is-layout-flow wp-block-group-is-layout-flow\">\n<div class=\"wp-block-group aa-connect__media is-layout-flow wp-block-group-is-layout-flow\">\n<figure class=\"wp-block-image size-large\"><img loading=\"lazy\" decoding=\"async\" width=\"683\" height=\"1024\" src=\"https:\/\/www.amyloidosisalliance.org\/wp-content\/uploads\/2026\/09\/krakenimages-Y5bvRlcCx8k-unsplash-683x1024.jpg\" alt=\"\" class=\"wp-image-667\" srcset=\"https:\/\/www.amyloidosisalliance.org\/wp-content\/uploads\/2026\/09\/krakenimages-Y5bvRlcCx8k-unsplash-683x1024.jpg 683w, https:\/\/www.amyloidosisalliance.org\/wp-content\/uploads\/2026\/09\/krakenimages-Y5bvRlcCx8k-unsplash-200x300.jpg 200w, https:\/\/www.amyloidosisalliance.org\/wp-content\/uploads\/2026\/09\/krakenimages-Y5bvRlcCx8k-unsplash-768x1152.jpg 768w, https:\/\/www.amyloidosisalliance.org\/wp-content\/uploads\/2026\/09\/krakenimages-Y5bvRlcCx8k-unsplash-1024x1536.jpg 1024w, https:\/\/www.amyloidosisalliance.org\/wp-content\/uploads\/2026\/09\/krakenimages-Y5bvRlcCx8k-unsplash-1365x2048.jpg 1365w\" sizes=\"auto, (max-width: 683px) 100vw, 683px\" \/><\/figure>\n<\/div>\n\n\n\n<div class=\"wp-block-group is-layout-flow wp-block-group-is-layout-flow\">\n<p class=\"aa-section-num wp-block-paragraph\">02<\/p>\n\n\n\n<h2 class=\"wp-block-heading\">Was wir zusammenbringen<\/h2>\n\n\n\n<div class=\"wp-block-group aa-connect__list is-layout-flow wp-block-group-is-layout-flow\">\n<div class=\"wp-block-group aa-connect-row is-layout-flow wp-block-group-is-layout-flow\">\n<p class=\"aa-connect-row__name wp-block-paragraph\">Mitgliedsorganisationen<\/p>\n\n\n\n<p class=\"aa-connect-row__desc wp-block-paragraph\">24 Patientenorganisationen in 19 L\u00e4ndern, verbunden in einer gemeinsamen internationalen Allianz.<\/p>\n<\/div>\n\n\n\n<div class=\"wp-block-group aa-connect-row is-layout-flow wp-block-group-is-layout-flow\">\n<p class=\"aa-connect-row__name wp-block-paragraph\">Wissenschaftlicher Beirat<\/p>\n\n\n\n<p class=\"aa-connect-row__desc wp-block-paragraph\">\u00c4rztinnen, \u00c4rzte und Forschende, die die Arbeit der Allianz mit ihrer wissenschaftlichen und medizinischen Expertise unterst\u00fctzen.<\/p>\n<\/div>\n\n\n\n<div class=\"wp-block-group aa-connect-row is-layout-flow wp-block-group-is-layout-flow\">\n<p class=\"aa-connect-row__name wp-block-paragraph\">Aufkl\u00e4rungsinitiativen<\/p>\n\n\n\n<p class=\"aa-connect-row__desc wp-block-paragraph\">Weltweite Kampagnen, darunter der Welt-Amyloidose-Tag, die jedes Jahr die Gemeinschaft mobilisieren.<\/p>\n<\/div>\n\n\n\n<div class=\"wp-block-group aa-connect-row is-layout-flow wp-block-group-is-layout-flow\">\n<p class=\"aa-connect-row__name wp-block-paragraph\">Ressourcen &amp; Veranstaltungen<\/p>\n\n\n\n<p class=\"aa-connect-row__desc wp-block-paragraph\">Internationale Treffen, Informationsmaterialien und praktische Hilfsmittel f\u00fcr die verschiedenen Zielgruppen der Amyloidose-Gemeinschaft.<\/p>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/section>\n\n<section id=\"how\" class=\"wp-block-group aa-section aa-section--white aa-how is-layout-flow wp-block-group-is-layout-flow\">\n<div class=\"wp-block-group aa-inner is-layout-flow wp-block-group-is-layout-flow\">\n<div class=\"wp-block-group aa-how__head is-layout-flow wp-block-group-is-layout-flow\">\n<p class=\"aa-section-num wp-block-paragraph\">03<\/p>\n\n\n\n<h2 class=\"wp-block-heading\">So arbeitet die Allianz<\/h2>\n\n\n\n<div class=\"aa-divider-dot\"><\/div>\n\n\n\n<p class=\"wp-block-paragraph\">Drei sich erg\u00e4nzende Funktionen erm\u00f6glichen es unserem Netzwerk, gemeinsam zu handeln und seine Wirkung zu verst\u00e4rken.<\/p>\n<\/div>\n\n\n\n<div class=\"wp-block-group aa-how__grid is-layout-flow wp-block-group-is-layout-flow\">\n<div class=\"wp-block-group aa-how-card is-layout-flow wp-block-group-is-layout-flow\">\n<span class=\"aa-icon-tile\"><svg xmlns=\"http:\/\/www.w3.org\/2000\/svg\" width=\"24\" height=\"24\" viewbox=\"0 0 24 24\" fill=\"none\" stroke=\"currentColor\" stroke-width=\"1.75\" stroke-linecap=\"round\" stroke-linejoin=\"round\" aria-hidden=\"true\"><circle cx=\"18\" cy=\"5\" r=\"3\"><\/circle><circle cx=\"6\" cy=\"12\" r=\"3\"><\/circle><circle cx=\"18\" cy=\"19\" r=\"3\"><\/circle><line x1=\"8.59\" y1=\"13.51\" x2=\"15.42\" y2=\"17.49\"><\/line><line x1=\"15.41\" y1=\"6.51\" x2=\"8.59\" y2=\"10.49\"><\/line><\/svg><\/span>\n\n\n\n<h3 class=\"wp-block-heading\">Koordinieren<\/h3>\n\n\n\n<p class=\"wp-block-paragraph\">Wir bringen die Mitgliedsorganisationen um gemeinsame Priorit\u00e4ten zusammen, damit sie Erfahrungen austauschen, bew\u00e4hrte Vorgehensweisen teilen und gemeinsame Initiativen entwickeln k\u00f6nnen.<\/p>\n<\/div>\n\n\n\n<div class=\"wp-block-group aa-how-card is-layout-flow wp-block-group-is-layout-flow\">\n<span class=\"aa-icon-tile\"><svg xmlns=\"http:\/\/www.w3.org\/2000\/svg\" width=\"24\" height=\"24\" viewbox=\"0 0 24 24\" fill=\"none\" stroke=\"currentColor\" stroke-width=\"1.75\" stroke-linecap=\"round\" stroke-linejoin=\"round\" aria-hidden=\"true\"><path d=\"M3 11l18-5v12L3 14v-3z\"><\/path><path d=\"M11.6 16.8a3 3 0 1 1-5.8-1.6\"><\/path><\/svg><\/span>\n\n\n\n<h3 class=\"wp-block-heading\">Interessen vertreten<\/h3>\n\n\n\n<p class=\"wp-block-paragraph\">Wir bringen die Sichtweise der Patienten in den Dialog mit Gesundheitsbeh\u00f6rden und anderen Akteuren ein und setzen uns f\u00fcr eine rechtzeitige Diagnose, eine angemessene Versorgung und einen gerechten Zugang zur Behandlung ein.<\/p>\n<\/div>\n\n\n\n<div class=\"wp-block-group aa-how-card is-layout-flow wp-block-group-is-layout-flow\">\n<span class=\"aa-icon-tile\"><svg xmlns=\"http:\/\/www.w3.org\/2000\/svg\" width=\"24\" height=\"24\" viewbox=\"0 0 24 24\" fill=\"none\" stroke=\"currentColor\" stroke-width=\"1.75\" stroke-linecap=\"round\" stroke-linejoin=\"round\" aria-hidden=\"true\"><path d=\"M2 3h6a4 4 0 0 1 4 4v14a3 3 0 0 0-3-3H2z\"><\/path><path d=\"M22 3h-6a4 4 0 0 0-4 4v14a3 3 0 0 1 3-3h7z\"><\/path><\/svg><\/span>\n\n\n\n<h3 class=\"wp-block-heading\">Informieren<\/h3>\n\n\n\n<p class=\"wp-block-paragraph\">Wir \u00fcbersetzen komplexe Wissenschaft in verst\u00e4ndliche, verl\u00e4ssliche Informationen f\u00fcr Patienten, Familien und medizinisches Fachpersonal.<\/p>\n<\/div>\n<\/div>\n<\/div>\n<\/section>\n\n<section id=\"presence\" class=\"wp-block-group aa-section aa-section--cream aa-presence is-layout-flow wp-block-group-is-layout-flow\">\n<div class=\"wp-block-group aa-inner is-layout-flow wp-block-group-is-layout-flow\">\n<div class=\"wp-block-group is-layout-flow wp-block-group-is-layout-flow\">\n<p class=\"aa-section-num wp-block-paragraph\">04<\/p>\n\n\n\n<h2 class=\"wp-block-heading\">Internationale Pr\u00e4senz<\/h2>\n\n\n\n<p class=\"aa-lead wp-block-paragraph\">In Europa, Amerika, Asien und dar\u00fcber hinaus verbindet die Allianz Patientenorganisationen und Fachwissen \u00fcber Grenzen hinweg, um Wissen zu teilen und die Unterst\u00fctzung in unterschiedlichen Kontexten zu st\u00e4rken.<\/p>\n\n\n\n<p class=\"aa-presence__body wp-block-paragraph\">Jede Mitgliedsorganisation bringt ihr Wissen und ihre Erfahrung vor Ort in das Netzwerk ein und hilft so, gemeinsame Herausforderungen zu erkennen und Ans\u00e4tze l\u00e4nder\u00fcbergreifend zu teilen.<\/p>\n\n\n\n<div class=\"wp-block-group aa-presence__stats is-layout-flow wp-block-group-is-layout-flow\">\n<div class=\"wp-block-group aa-presence-stat is-layout-flow wp-block-group-is-layout-flow\">\n<p class=\"n wp-block-paragraph\">19<\/p>\n\n\n\n<p class=\"t wp-block-paragraph\">L\u00e4nder<\/p>\n<\/div>\n\n\n\n<div class=\"wp-block-group aa-presence-stat is-layout-flow wp-block-group-is-layout-flow\">\n<p class=\"n wp-block-paragraph\">24<\/p>\n\n\n\n<p class=\"t wp-block-paragraph\">Vereine<\/p>\n<\/div>\n\n\n\n<div class=\"wp-block-group aa-presence-stat is-layout-flow wp-block-group-is-layout-flow\">\n<p class=\"n wp-block-paragraph\">8<\/p>\n\n\n\n<p class=\"t wp-block-paragraph\">Sprachen<\/p>\n<\/div>\n<\/div>\n<\/div>\n\n\n\n<div class=\"wp-block-group aa-presence__map is-layout-flow wp-block-group-is-layout-flow\">\n<figure class=\"wp-block-image size-full\"><img loading=\"lazy\" decoding=\"async\" width=\"1600\" height=\"1200\" src=\"https:\/\/www.amyloidosisalliance.org\/wp-content\/uploads\/2026\/09\/alliance-world-map.png\" alt=\"Stilisierte Weltkarte mit Mitgliedsorganisationen, die &#xFC;ber Kontinente hinweg verbunden sind\" class=\"wp-image-1048\" srcset=\"https:\/\/www.amyloidosisalliance.org\/wp-content\/uploads\/2026\/09\/alliance-world-map.png 1600w, https:\/\/www.amyloidosisalliance.org\/wp-content\/uploads\/2026\/09\/alliance-world-map-300x225.png 300w, https:\/\/www.amyloidosisalliance.org\/wp-content\/uploads\/2026\/09\/alliance-world-map-1024x768.png 1024w, https:\/\/www.amyloidosisalliance.org\/wp-content\/uploads\/2026\/09\/alliance-world-map-768x576.png 768w, https:\/\/www.amyloidosisalliance.org\/wp-content\/uploads\/2026\/09\/alliance-world-map-1536x1152.png 1536w\" sizes=\"auto, (max-width: 1600px) 100vw, 1600px\" \/><\/figure>\n\n\n\n<div class=\"wp-block-group aa-presence__badge is-layout-flow wp-block-group-is-layout-flow\">\n<p class=\"num wp-block-paragraph\">19<\/p>\n\n\n\n<p class=\"txt wp-block-paragraph\">Unsere Mitgliedsorganisationen sind derzeit in 19 L\u00e4ndern in mehreren Regionen der Welt vertreten.<\/p>\n<\/div>\n<\/div>\n<\/div>\n<\/section>\n\n<section id=\"serve\" class=\"wp-block-group aa-section aa-section--white aa-serve is-layout-flow wp-block-group-is-layout-flow\">\n<div class=\"wp-block-group aa-inner is-layout-flow wp-block-group-is-layout-flow\">\n<div class=\"wp-block-group aa-serve__head is-layout-flow wp-block-group-is-layout-flow\">\n<p class=\"aa-section-num wp-block-paragraph\">05<\/p>\n\n\n\n<h2 class=\"wp-block-heading\">F\u00fcr wen wir uns einsetzen<\/h2>\n<\/div>\n\n\n\n<div class=\"wp-block-group aa-serve__grid is-layout-flow wp-block-group-is-layout-flow\">\n<div class=\"wp-block-group aa-serve-col is-layout-flow wp-block-group-is-layout-flow\">\n<span class=\"aa-icon-tile\"><svg xmlns=\"http:\/\/www.w3.org\/2000\/svg\" width=\"24\" height=\"24\" viewbox=\"0 0 24 24\" fill=\"none\" stroke=\"currentColor\" stroke-width=\"1.75\" stroke-linecap=\"round\" stroke-linejoin=\"round\" aria-hidden=\"true\"><rect x=\"4\" y=\"2\" width=\"16\" height=\"20\" rx=\"1\"><\/rect><path d=\"M9 22v-4h6v4\"><\/path><path d=\"M8 6h.01\"><\/path><path d=\"M16 6h.01\"><\/path><path d=\"M12 6h.01\"><\/path><path d=\"M8 10h.01\"><\/path><path d=\"M16 10h.01\"><\/path><path d=\"M12 10h.01\"><\/path><path d=\"M8 14h.01\"><\/path><path d=\"M16 14h.01\"><\/path><path d=\"M12 14h.01\"><\/path><\/svg><\/span>\n\n\n\n<h3 class=\"wp-block-heading\">Patientenorganisationen<\/h3>\n\n\n\n<p class=\"wp-block-paragraph\">Ein Netzwerk, um Erfahrungen und Ressourcen zu teilen, grenz\u00fcberschreitend zusammenzuarbeiten und die Arbeit von Patientenorganisationen auf nationaler wie internationaler Ebene zu st\u00e4rken.<\/p>\n\n\n\n<p class=\"aa-serve-col__link wp-block-paragraph\"><a href=\"https:\/\/www.amyloidosisalliance.org\/de\/mitglieder\/#apply\">Mitglied werden<\/a><\/p>\n<\/div>\n\n\n\n<div class=\"wp-block-group aa-serve-col is-layout-flow wp-block-group-is-layout-flow\">\n<span class=\"aa-icon-tile\"><svg xmlns=\"http:\/\/www.w3.org\/2000\/svg\" width=\"24\" height=\"24\" viewbox=\"0 0 24 24\" fill=\"none\" stroke=\"currentColor\" stroke-width=\"1.75\" stroke-linecap=\"round\" stroke-linejoin=\"round\" aria-hidden=\"true\"><path d=\"M17 21v-2a4 4 0 0 0-4-4H5a4 4 0 0 0-4 4v2\"><\/path><circle cx=\"9\" cy=\"7\" r=\"4\"><\/circle><path d=\"M23 21v-2a4 4 0 0 0-3-3.87\"><\/path><path d=\"M16 3.13a4 4 0 0 1 0 7.75\"><\/path><\/svg><\/span>\n\n\n\n<h3 class=\"wp-block-heading\">Patienten und Familien<\/h3>\n\n\n\n<p class=\"wp-block-paragraph\">Orientierung, Gemeinschaft und anerkannte Kompetenzzentren, die Sie auf dem Weg von der Diagnose bis in den Alltag begleiten.<\/p>\n\n\n\n<p class=\"aa-serve-col__link wp-block-paragraph\"><a href=\"https:\/\/www.amyloidosisalliance.org\/de\/ressourcen\/bibliothek\/\">Informationen f\u00fcr Patienten<\/a><\/p>\n<\/div>\n\n\n\n<div class=\"wp-block-group aa-serve-col is-layout-flow wp-block-group-is-layout-flow\">\n<span class=\"aa-icon-tile\"><svg xmlns=\"http:\/\/www.w3.org\/2000\/svg\" width=\"24\" height=\"24\" viewbox=\"0 0 24 24\" fill=\"none\" stroke=\"currentColor\" stroke-width=\"1.75\" stroke-linecap=\"round\" stroke-linejoin=\"round\" aria-hidden=\"true\"><path d=\"M11 2v2\"><\/path><path d=\"M5 2v2\"><\/path><path d=\"M5 3H4a2 2 0 0 0-2 2v4a6 6 0 0 0 12 0V5a2 2 0 0 0-2-2h-1\"><\/path><path d=\"M8 15a6 6 0 0 0 12 0v-3\"><\/path><circle cx=\"20\" cy=\"10\" r=\"2\"><\/circle><\/svg><\/span>\n\n\n\n<h3 class=\"wp-block-heading\">Fachkr\u00e4fte im Gesundheitswesen<\/h3>\n\n\n\n<p class=\"wp-block-paragraph\">Zugang zu Informationsmaterialien, wissenschaftlichen Informationen und Verbindungen zur gesamten Amyloidose-Gemeinschaft.<\/p>\n\n\n\n<p class=\"aa-serve-col__link wp-block-paragraph\"><a href=\"https:\/\/www.amyloidosisalliance.org\/de\/ressourcen\/bibliothek\/\">Bereich f\u00fcr Fachleute<\/a><\/p>\n<\/div>\n<\/div>\n<\/div>\n<\/section>\n\n<section id=\"timeline\" class=\"wp-block-group aa-section aa-section--cream aa-timeline is-layout-flow wp-block-group-is-layout-flow\">\n<div class=\"wp-block-group aa-inner is-layout-flow wp-block-group-is-layout-flow\">\n<div class=\"wp-block-group aa-timeline__head is-layout-flow wp-block-group-is-layout-flow\">\n<p class=\"aa-section-num wp-block-paragraph\">06<\/p>\n\n\n\n<h2 class=\"wp-block-heading\">Die Geschichte der Allianz<\/h2>\n\n\n\n<div class=\"aa-divider-dot\"><\/div>\n<\/div>\n\n\n\n<div class=\"wp-block-group aa-tl is-layout-flow wp-block-group-is-layout-flow\">\n<div class=\"wp-block-group aa-tl-row is-layout-flow wp-block-group-is-layout-flow\">\n<div class=\"wp-block-group aa-tl-card is-layout-flow wp-block-group-is-layout-flow\">\n<p class=\"aa-tl-year wp-block-paragraph\">2017<\/p>\n\n\n\n<h4 class=\"wp-block-heading\">Erstes ATTR-Amyloidose-Treffen f\u00fcr Patienten und \u00c4rzte<\/h4>\n<\/div>\n<\/div>\n\n\n\n<div class=\"wp-block-group aa-tl-row is-layout-flow wp-block-group-is-layout-flow\">\n<div class=\"wp-block-group aa-tl-card is-layout-flow wp-block-group-is-layout-flow\">\n<p class=\"aa-tl-year wp-block-paragraph\">2018<\/p>\n\n\n\n<h4 class=\"wp-block-heading\">Gr\u00fcndung der Allianz<\/h4>\n\n\n\n<p class=\"wp-block-paragraph\">Patientenorganisationen aus mehreren L\u00e4ndern schlie\u00dfen sich zusammen und bilden eine gemeinsame internationale Stimme f\u00fcr Amyloidose.<\/p>\n<\/div>\n<\/div>\n\n\n\n<div class=\"wp-block-group aa-tl-row is-layout-flow wp-block-group-is-layout-flow\">\n<div class=\"wp-block-group aa-tl-card is-layout-flow wp-block-group-is-layout-flow\">\n<p class=\"aa-tl-year wp-block-paragraph\">2019<\/p>\n\n\n\n<h4 class=\"wp-block-heading\">Zweites ATTR-Amyloidose-Treffen f\u00fcr Patienten und \u00c4rzte<\/h4>\n<\/div>\n<\/div>\n\n\n\n<div class=\"wp-block-group aa-tl-row is-layout-flow wp-block-group-is-layout-flow\">\n<div class=\"wp-block-group aa-tl-card is-layout-flow wp-block-group-is-layout-flow\">\n<p class=\"aa-tl-year wp-block-paragraph\">2020<\/p>\n\n\n\n<h4 class=\"wp-block-heading\">Erstes Mitgliedernetzwerk<\/h4>\n\n\n\n<p class=\"wp-block-paragraph\">Das Netzwerk erstreckt sich \u00fcber mehrere Kontinente und gibt sich eine gemeinsame F\u00fchrungsstruktur und gemeinsame Ziele.<\/p>\n<\/div>\n<\/div>\n\n\n\n<div class=\"wp-block-group aa-tl-row is-layout-flow wp-block-group-is-layout-flow\">\n<div class=\"wp-block-group aa-tl-card is-layout-flow wp-block-group-is-layout-flow\">\n<p class=\"aa-tl-year wp-block-paragraph\">2021<\/p>\n\n\n\n<h4 class=\"wp-block-heading\">Welt-Amyloidose-Tag<\/h4>\n\n\n\n<p class=\"wp-block-paragraph\">Der erste weltweite Aufkl\u00e4rungstag am 26. Oktober mobilisiert die Gemeinschaft f\u00fcr ein gemeinsames Anliegen.<\/p>\n<\/div>\n<\/div>\n\n\n\n<div class=\"wp-block-group aa-tl-row is-layout-flow wp-block-group-is-layout-flow\">\n<div class=\"wp-block-group aa-tl-card is-layout-flow wp-block-group-is-layout-flow\">\n<p class=\"aa-tl-year wp-block-paragraph\">2021<\/p>\n\n\n\n<h4 class=\"wp-block-heading\">Drittes ATTR-Amyloidose-Treffen f\u00fcr Patienten und \u00c4rzte<\/h4>\n<\/div>\n<\/div>\n\n\n\n<div class=\"wp-block-group aa-tl-row is-layout-flow wp-block-group-is-layout-flow\">\n<div class=\"wp-block-group aa-tl-card is-layout-flow wp-block-group-is-layout-flow\">\n<p class=\"aa-tl-year wp-block-paragraph\">2023<\/p>\n\n\n\n<h4 class=\"wp-block-heading\">Wissenschaftlicher Beirat<\/h4>\n\n\n\n<p class=\"wp-block-paragraph\">Der Wissenschaftliche Beirat wird gegr\u00fcndet, um wissenschaftliche und medizinische Expertise einzubringen und die Arbeit der Allianz zu unterst\u00fctzen.<\/p>\n<\/div>\n<\/div>\n\n\n\n<div class=\"wp-block-group aa-tl-row is-layout-flow wp-block-group-is-layout-flow\">\n<div class=\"wp-block-group aa-tl-card is-layout-flow wp-block-group-is-layout-flow\">\n<p class=\"aa-tl-year wp-block-paragraph\">2023<\/p>\n\n\n\n<h4 class=\"wp-block-heading\">Viertes ATTR-Amyloidose-Treffen f\u00fcr Patienten und \u00c4rzte<\/h4>\n\n\n\n<p class=\"wp-block-paragraph\">Das erste internationale ATTR-Treffen bringt die Gemeinschaft in Madrid zusammen.<\/p>\n<\/div>\n<\/div>\n\n\n\n<div class=\"wp-block-group aa-tl-row is-layout-flow wp-block-group-is-layout-flow\">\n<div class=\"wp-block-group aa-tl-card is-layout-flow wp-block-group-is-layout-flow\">\n<p class=\"aa-tl-year wp-block-paragraph\">2024<\/p>\n\n\n\n<h4 class=\"wp-block-heading\">AL-Kongress in Br\u00fcssel<\/h4>\n\n\n\n<p class=\"wp-block-paragraph\">Der erste Kongress zur AL-Amyloidose findet in Belgien statt.<\/p>\n<\/div>\n<\/div>\n\n\n\n<div class=\"wp-block-group aa-tl-row is-layout-flow wp-block-group-is-layout-flow\">\n<div class=\"wp-block-group aa-tl-card is-layout-flow wp-block-group-is-layout-flow\">\n<p class=\"aa-tl-year wp-block-paragraph\">2025<\/p>\n\n\n\n<h4 class=\"wp-block-heading\">AMYLife-Umfrage<\/h4>\n\n\n\n<p class=\"wp-block-paragraph\">Start von AMYLife, der internationalen Umfrage der Allianz zu den Erfahrungen und dem Alltag von Menschen, die von Amyloidose betroffen sind.<\/p>\n<\/div>\n<\/div>\n\n\n\n<div class=\"wp-block-group aa-tl-row is-layout-flow wp-block-group-is-layout-flow\">\n<div class=\"wp-block-group aa-tl-card is-layout-flow wp-block-group-is-layout-flow\">\n<p class=\"aa-tl-year wp-block-paragraph\">2026<\/p>\n\n\n\n<h4 class=\"wp-block-heading\">F\u00fcnftes ATTR-Amyloidose-Treffen f\u00fcr Patienten und \u00c4rzte<\/h4>\n\n\n\n<p class=\"wp-block-paragraph\">Das internationale ATTR-Treffen findet in Baveno, Italien, statt.<\/p>\n<\/div>\n<\/div>\n\n\n\n<div class=\"wp-block-group aa-tl-row is-layout-flow wp-block-group-is-layout-flow\">\n<div class=\"wp-block-group aa-tl-card is-layout-flow wp-block-group-is-layout-flow\">\n<p class=\"aa-tl-year wp-block-paragraph\">2027<\/p>\n\n\n\n<h4 class=\"wp-block-heading\">Sechstes internationales AL- &amp; ATTR-Treffen f\u00fcr Patienten und \u00c4rzte<\/h4>\n\n\n\n<p class=\"wp-block-paragraph\">Geplant: Die AL- und ATTR-Treffen werden zu einer gemeinsamen internationalen Veranstaltung f\u00fcr Patienten, medizinisches Fachpersonal und die gesamte Amyloidose-Gemeinschaft zusammengef\u00fchrt.<\/p>\n<\/div>\n<\/div>\n<\/div>\n\n\n\n<div class=\"wp-block-buttons aa-timeline__continue is-layout-flex wp-block-buttons-is-layout-flex\">\n<div class=\"wp-block-button aa-btn aa-btn--ghost-teal aa-btn--lg\"><a class=\"wp-block-button__link wp-element-button\" href=\"https:\/\/www.amyloidosisalliance.org\/de\/unsere-veranstaltungen\/\">Weiter in der Geschichte<\/a><\/div>\n<\/div>\n<\/div>\n<\/section>\n\n<section class=\"wp-block-group aa-next is-layout-flow wp-block-group-is-layout-flow\">\n<div class=\"wp-block-group aa-inner is-layout-flow wp-block-group-is-layout-flow\">\n<div class=\"wp-block-group aa-next__head is-layout-flow wp-block-group-is-layout-flow\">\n<p class=\"aa-section-num wp-block-paragraph\">Weiterlesen<\/p>\n\n\n\n<h2 class=\"wp-block-heading\">Weiterf\u00fchrende Seiten<\/h2>\n<\/div>\n\n\n\n<div class=\"wp-block-group aa-next__grid is-layout-flow wp-block-group-is-layout-flow\">\n<div class=\"wp-block-group aa-next-card is-layout-flow wp-block-group-is-layout-flow\">\n<h3 class=\"wp-block-heading\"><a href=\"https:\/\/www.amyloidosisalliance.org\/de\/unsere-aufgaben\/\">Unsere Aufgaben entdecken<\/a><\/h3>\n\n\n\n<p class=\"wp-block-paragraph\">Entdecken Sie die strategischen Priorit\u00e4ten, die unsere Arbeit leiten, von der Forschung \u00fcber die Interessenvertretung bis zur Aufkl\u00e4rung.<\/p>\n<\/div>\n\n\n\n<div class=\"wp-block-group aa-next-card is-layout-flow wp-block-group-is-layout-flow\">\n<h3 class=\"wp-block-heading\"><a href=\"https:\/\/www.amyloidosisalliance.org\/de\/das-team\/\">Das Team kennenlernen<\/a><\/h3>\n\n\n\n<p class=\"wp-block-paragraph\">Lernen Sie die Menschen und Fachleute kennen, die die Arbeit der Allianz m\u00f6glich machen.<\/p>\n<\/div>\n\n\n\n<div class=\"wp-block-group aa-next-card is-layout-flow wp-block-group-is-layout-flow\">\n<h3 class=\"wp-block-heading\"><a href=\"https:\/\/www.amyloidosisalliance.org\/de\/mitglied-werden\/\">Mitglied werden<\/a><\/h3>\n\n\n\n<p class=\"wp-block-paragraph\">Werden Sie unser Partner, um Ihre Wirkung zu verst\u00e4rken und der Stimme der Patienten weltweit mehr Gewicht zu geben.<\/p>\n<\/div>\n<\/div>\n<\/div>\n<\/section>\n","protected":false},"excerpt":{"rendered":"<p>Startseite\u203aDie Allianz\u203a\u00dcber uns Die Allianz \u00dcber uns Die Amyloidosis Alliance ist ein internationaler Zusammenschluss, der Patientenorganisationen, medizinische Fachleute und Forschungseinrichtungen um eine gemeinsame Aufgabe vereint: die oft jahrelange Suche nach der Diagnose zu beenden und die Versorgung von Amyloidose-Patienten weltweit grundlegend zu verbessern. Getragen von der \u00dcberzeugung, dass keine Organisation diese Herausforderungen allein bew\u00e4ltigen kann, [&hellip;]<\/p>\n","protected":false},"author":1,"featured_media":0,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"footnotes":""},"class_list":["post-2190","page","type-page","status-publish","hentry"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v28.6 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>\u00dcber die Amyloidosis Alliance: wer wir sind<\/title>\n<meta name=\"description\" content=\"Ein internationaler Zusammenschluss von Patientenorganisationen, medizinischen Fachleuten und Forschungseinrichtungen, der sich f\u00fcr eine bessere Versorgung von Menschen mit Amyloidose einsetzt.\" \/>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" 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